After enjoying the sun its now too cold for ny wings… Doz - stick to your guns! Good to have occy health backing. Poor Vicki…and you… Awful to watch, as we’ve said before…have a hug…
I shall be there to hold hands tomorrow too (but avert the eyes of COURSE)…Hope all goes well and we’re all in the right time zone…love Jane
I will be the naughty one in the corner giggling with eyes averted of course! Bless you Doz it’s damned if you do and damned if you don’t! You stand your ground lovely after all you have been through you don’t need this c**p! I thought there were strict guidelines on seeing someone if you have been in contact with this virus? What a shame they aren’t being more supportive. I know it won’t make it go away but do try and rest or those spoons will run out!
Hand holding for all flutterbys in need and sending hugs to get you through Em or the one with the giggles in the corner xxxxxx
HI Jane
So pleased you enjoyed the sun its been really pleasant here in the afternoons but pretty misty and chilly in the mornings… but hey ho I can just about cope with that 
I think i’m in the right time zone?? Though at 5.00 this morning I so wished that someone would bend the rules a bit and turn the clocks back 3/4 hours instead of forward!!!
Hav’nt seen much of Daniel as he runs for the hills when there is illness around and he’s only got 5 more days to go before he goes back 
he popped into see Vikki last thursday and since then has been galavanting around catching up with everyone and last night was his 30th celebrations with his buddys so I guess I wont see him today either!!! Self inflicted comes to mind
Popping back to see physio re shoulder still not right and the tape is all curling up like a wilted lettuce and now its starting to itch!!!
This hospital visiting is working wonders for my little house its never been so tidy
Having a chilled morning with Ben taking him for a walk soon and the sun has just come out so off we flutter… well Ben wont be but I certainly will
Love and hugs to all xxxxxxhugsxxxxx
Em…I just knew one flutterby would giggle ha ha ha!!!xxx
Hallo Emmy, Doz, Ami, jane and Janice ( and anyone else ).
Gorgeous day here. Unfortunately we had a birthday party today so were indoors for three hours of it (aarrgh!). Was great to get home whilst it was still bright!
Ami, yes alas the laptop is overused in the evenings. Poor hubby. I hope things go well for you on Monday.
Take care all xxxxx
Hand holding Flutterbys xxxxxxx
Hand holding welcomed!!
Hope you’re OK Doz
Good luck Janice, be thinking of you this afternoon. New butterfly to emerge!
Love Ami xx
Hi Flutterbys
Hoping broken booby butterfly Janice is well on the mend and Ami is not too stressed out awaiting results big hugs to you both xxhugsxx
Baby Butterfly report… antibiotics kicking in and she is looking dare I say a bit better, still flat on her back and not a happy bunny but I will glue her to the bed if it makes her better still no biopsy results yet but should be within the next couple of days!!!
I got the call from work… but it was from our senior nurse who was standing in for Sister who is still on annual leave Phew!!
He was ok when I told him the scenario with her immune system and has asked me to ring on wed, to let them know the score… hopefully if the ward has re-opened I will resume work!
Had to take the tapes off my shoulder as they itched like the devil and still aching will now see what the next step will be with physio…
Its all go!!!
How lovely is this weather… I hope its not our summer???
Enjoy it while it lasts flutterbys and remember to give yourselves some me time love to you all xxxxxxhugxxxxx
Thanks everyone felt your prescence(probably spelt wrong) all went okay and now back home.Glad I had it done as they found a gungy cyst so hope its ok they didn’t seem concerned so on antibiotics as well as being all strapped up to keep everything in position and have got strong sports bra so looking a bit like Madonna ha ha.Hope all was okay yesterday for you Ami and you don’t have too long a wait for your results.Doz glad there has been a slight improvement with Vikki hope she continues to improve.Well ladies feeling shattered so going into P.Js and snuggle up on sofa just a pity I have to wear this iron bra for the next 6 weeks yuk!Love and hugs to you all and wiill post later this week to see how you all are Janice xxxxxxxxxx
Hi everyone
Didn’t expect you to post today, Janice! Great news to find you out and at home. Just got to recuperate now for the new you. Rest and PJ’s a must! Hope you’re not a floppy flutterby and not too worried about the cyst.
Thought about you all yesterday while standing at the plate. It was on the tip of my tongue to share the thought but feared she might look at me gone out. Putting it on the plate is rather like making a pat of butter…. pressing it top to bottom and then sideways to pat it into shape. Good job the machine doesn’t read minds while we’re stood there posing!!
Doz, I was going to say “Don’t pick at the wilted lettuce“ but seeing as you’ve already done that, please don’t save it for your salad! Bye the way, will you be opening up the tidy house to the public? I think your work sounds so unsupportive, it must really make you miserable and stressed that you have that extra worry you could well do without. Hope Vikki is improving and keeping patient. I’ll send you a big tube of superglue, to keep her put, if you like.
Carolyn, Emmy and Jane, and you great ladies, hope you’ve had a good day and are now relaxing….playing with your laptops in bed, perhaps!!
Ami xx
PS Sending a healing hug for Janice, the Lady with the Iron Bra.
Hello Doz,
Fingers crossed that it’s onwards and upwards for you both now. Janice, look after yourself please and have plenty of rest.
Ami, got in a muddle with who was going for a squishing. Glad it is all over and hoping for good results.
I got away early from work today (thanks to a release time shuffle), two o’clock and I was out of the door, lucky me! Got home and had a nap until time to get Lewis from nursery and then we were in the back garden cutting grass and digging.
How lovely things would be and what a tonic if we could just have a few more bright days!
Keep fluttering. xx
Janice well done you! As for the Madonna impression you go girl! Mind you I bet you are feeling a little fragile just now so you snuggle down in your PJ’s they have been well earned (nasty little cyst!) I am sending you a very gentle hug!
ami you did it again I did giggle 'cos your description was so spot on it is almost like they are working with dough!!! I actually received a letter yesterday confirming what my bcn told me that results were clear! I did ask hubby if I should reply with I LOVE YOU! but I think Mr serious wouldn’t get it! (my onc! good but very serious!)I had my final echo today and I am good to go for the last two 'H’s I even got a lovely hug from the wonderful woman who does my echoes bless she made sure I got the 8.00am slot as it is an hours drive so I could get out of the place before traffic hell takes over! She even offered to ‘fit’ me in any time they needed to do a quick check but needless to say I sincerely hope never to cross their paths again!I am sending positive thoughts for your results as I know how much it means to us all!
Doz I am so happy for the bit of improvement after all the awfulness of the last few weeks for you I just hope you managed to get some sun it has been so lovely here!I reckon you probably owe Ben some serious walks by now! Sending more hugs and as many spoons as you may need!
Carolyn love that you sneaked some me time in I did that today after our jaunt we had lunch out and decided to eat outside and make the most of this glorious sun. How old is Lewis? I bet he enjoyed the garden today isn’t it funny no matter what a bit of sun finds us all fluttering in the sun! it did make me laugh your laptop thing, glad you kissed and made up!
Jane I do hope you are getting some of this weather? I know it is during the day but evenings are lovely when you can snuggle and the cold mornings certainly wake me up!I am sure we all must have put it on order 'cos the timing has helped us see the blue skies!I am also sending you a hug!
By the way I too did the ‘card thing’ by handing an assistant my Nat ins card??? she was quite a young girl and did she look confused? Yep must have thought about that batty woman for the rest of her day!!! Well it has to be done after all we get so many of the blasted things! My poor purse doesn’t like it!
To all flutterbys I hope you have more lovely days in the sun and I am sending you all hugs as ever take care all Em xxxxxx
Well done on surviving being squished! we didn’t look…honest…
Doz - so glad Vicki is responding to the antibiotics, and that you had a sensible conversation with a superior! Is that person senior to your sister? If so - could you talk to him more often!??!!
Took the funeral of twin babies today (21 week gestation) followed by a visit for another baby funeral later in the week - got 3 this week… BUT tomorrow is another annual leave day, and the forecast looks fantastic… going for coffee with a dear friend and then to pilates, which I havent done for a year (one -to-one)… so, my wings should be stronger, and enjoy the warmth of the sunshine while they can…
hope you all manage to too…
great news from you too Em…
love to you all… Jane
WAY HEY wonderful news for all you fragile flutterbys xxx
So glad it went ok Janice and yes you must rest lovey at least we have some feel good weather around so enjoy and take some me time Iron Lady… ha ha love the description of the Bra… and the cyst OMG so good they found it and it was’nt left to cause problems The little blighter!!! Take good care Janice xxx
Ami you are so naughty I can just imagine the mini me on your shoulder saying shall I sha’nt I you should have ha ha!!! At least we still have a sense of humour hope its not long for the results… waiting room scenario still sucks!!! xxx
Caroline keep on enjoying your time off knowing the UK this might be our lot… What a depressing thought, it sure makes you feel good when the sun shines and you feel the warmth again I even managed a bit of rather late pruning this morning for half an hour before visiting Vik’s xxx
Em not long to go now honey you’ll be out that door faster than a locomotive when the last one comes around they wont see you for dust just keep nursing those veins for a little while longer xxx
Jane what a sad week it must be for you… dont know how you do it xxx and unfortunately no he is a senior nurse who is under the Sister… not literally I must add… but nice to have had a bit of understanding from him!
Some results came back today, not biopsy tho but at least now they know its definately Septic Discitis and the treatment IV antibiotics for at least 8 weeks are the right ones to not set her Colitis off so thats a big relief and she is much brighter today has managed a walk to the day room and back but has been told not to overdo it… mmmm! me thinks that went in one ear and passed through!!! Where did it come from??? its just one of those things the Consultant said possibly from treatment for Colitis last yr?? but more than likely just came on its own and unlucky for them that get it!!! Bless her!
Daniel is going back to Afghanistan on Friday I hav’nt been able to spend as much time with him as i’d liked but he has girlfriend in tow now and a sweet thing she is so he’s enjoyed his time home and tomorrow night i’m being treated to a meal out with him after visiting… Quality time at last… 2 days before he goes
Such is life!!!
Stay well flutterbys are you still awake after reading this marathon Love hugs and spoons to all xxxxxxxxxxhugxxxxxxxxxxxx
Doz - that was a jolly quick break for Dan! Seems wrong to have to go straight back out there I hope you have a FABULOUS meal tonight, and it really IS quality time… Good news that Vicki’s getting the right A/Bs and can totter gently - yes, I wonder where she gets that spunk and spirit from!!!
It’s sad for the parents of the babes, desperately… my job is just to hold it all together and wrap them in love as best I can… not much I can do really, can’t make it all OK, but I can be there in the *** with them, and try to find words for the inexpressable… then I have to move on to the next thing, next patient (via a cup of coffee). The pain stays with them forever, I have to hand them into God’s care and be inspired by the courage and tenacity I see every day… as you must… Sorry, probably doesn’t make much sense…
I do hope you are all resting your wings in the sunshine… just going to pour a cup of tea and sit in the garden, flapping gently…
xx
Jane
Hello lovely Flutterbies/ Flutterbys!!
Jane what a great job you do. I am not very good when others get upset. I just want to join in. One of my pupils was talking about something he was upset about at home and I just filled up. Not exactly a tower of strength, and that seems worse since BC fatigue.
I hope you enjoy your remaining time with Dan, glad his girlfriend is lovely too. Hope Vikki stays settled too.
Emmy, I am glad your echo woman is spreading some love! You deserve it. Two to go then phew! I’ll be thinking of you. Lewis is 4 years old. He had a teddy home from nursery yesterday, we had to fill in a journal at home and draw a picture etc. Fab until the scabby, smelly thing joined us in bed at half past four in the morning! Not sure how hygienic he is.
To everyone else, take care. xx
Carolyn I think its nice they send teddy home but I do wonder if they are hygienic.Bet Lewis loved it.Emmy it must seem like the end is now in site and how lovely echo lady seems.
Doz hope you have a lovely night and Vikki keeps improving
Jane you must be a wonderful and so supportive person I don’t think I could do what you do but its not a job is it . Its a vocation and its good there are people like you around to help others.
Feeling a bit sore tonight so methinks a couple of paracetamol and an early night and hope feel a bit better in the morning.
Elsa how are you doing haven’t heard from you since you were going for your prosthesis hope it was okay and you are sorted now.
All you flutterbys hope you have had a good day and rest well love and hugs Janice xxxx
Carolyn teddy sounds nice my kids when small many moons ago brought home in turn hamsters for the holidays,African toads of some kind and a guinea pig! Much more unhygienic I think? I never worked out how I had agreed to it all!! Four is a gorgeous age it is to me a time when everything is wonderful and they believe in all the lovely things around like fairies and father …well him! I also think you get to see the beginnings of the grown up they will make it is a lovely time!
Jane words fail me I know having been there for my son and partner 15 years ago when they lost a son it is the most heart breaking thing in the world and all I could do was be there and feel so sad I could not take the pain away which as a mum you want to do, you are doing an amazing job I am in awe.
Janice I so hope the days are being kinder to you and things are settling though I expect the PJ’s are in full use still with the gentle hugs.
ami I hope you are recovered from the squishing and I am holding your hand till that result is here! I know how horrible that waiting room is! I hope it isn’t too long, is there anyone bcn? can help you get them sooner? Big hugs
Doz ,I am hoping that Vik is slowly getting there as we speak! You will look back at this in a few weeks and wonder how you did it but YOU DID! and Vik is a lucky woman to have her mum with her through this.I am sending you a massive hug and hoping you get some quality me time to relax.
Elsa I hope you are feeling better about things and been sorted out? it’s funny with this awfulness we find everything so hard at times!
Well still sat in DG (late one at work yesterday did some training) and feel a little ‘hung over’ sort of feeling today so going to wake myself properly and shower then go get some food shopping! ugh! but hey ho still got the sun shining so best make the most of it! Take care flutterbys and where you can enjoy it while we have it! lots of love and group hug to all flutterbys xxxxxx
Where did I go?? I, too, feel very much like I have strayed from life’s path and going off into the forest. All treatment has been successful and I have the all clear…I should be estatic!!! Why aren’t I?? Maybe deep down I feel that there is something lurking ready to raise it’s ugly head when I’m feeling confident and over it all. I have my first check-up end of May…maybe if they still say “all clear” then, I may believe it. This is sooooo not me to feel negative. Normally, I am gregarious with a love of life. Instead, I hide indoors, many a day in my jimjams. I’m on anti-depressants…maybe I need a stronger dose!!! I had 2 weeks of feeling really well and then back to normal, only to go down with a bang again.
I’m gonna give myself a kick up the jacksie.
Sorry to sound so glum
Phew! I’m just having some quiet time after spending 6 hrs at the hospital with OH. He hasn’t been right for 3 days and today seemed worse so rang for Dr to call as he couldn’t make it to the surgery. Dr sent for an ambulance for admission as he wondered if it could be a stroke. He had tests and there was a lot of umming & ahhing but it seems they don’t think he has. Sent him home with medication and has to go back for a 24hr ecg tape. I felt quite drained and realised I hadn’t had anything to eat or drink, so now my batteries are recharged. Thought about you Doz and the hospital visits and worry, so I’m just glad for you that Vikki is responding now. The time with Daniel seems to have gone in a flash! Hope you had a great evening together and it’s nice to hear he has a good girlfiend (or girlfriend……not going to alter that!!. Might make you smile). There IS light at the end of the tunnel for you. Hope Ben has been for walks which is more than my dog today. He gets stressed if I leave him too long - not destructive just worried. He’s not used to it, especially now he’s old. He’s bang out unconscious, sleeping this evening now he has us back and safe within the fold, poor thing.
Janice, hope your pain is a bit better today and you’ve managed to soak up some sun. Someone said today “You never know - this might be our summer!” I do hope not!!
Carolyn, how is lovely Scabby Smelly Bear? Smiled at him in bed with you. Sounds much loved. My dog has a favourite toy he’s had for almost 15yrs. I’ve mended it so much it’s unrecognisable as his gorilla. The neighbours used to smile at the mottly, washed toys pegged out on the line.
Emmy, I couldn’t wait for those last 2 H to pass, although oddly enough, felt rather strange when saying goodbyes at the hospital. Soon be back on the road to normality now, flutterby. Glad I made you smile with the butter pat. Nearly had to balance on tippy toes! But she did eventually lower the plate. Gracefully accepted the ‘well done’ at the end of it!
Aaaw Jane! All the babies funerals you take! I hope you’re able to recharge somewhat, going for coffee or pilates etc. I don’t know how you do it either, without emotions taking over, particularly when you might feel fragile after BC. Words seem such poor things at a time like that, somehow.
Thank you all for thinking about me while I’m waiting for my results. It means a lot. (Oh, and thanks for not looking! Not a pretty sight!)
Hugs to you all, Ami xx
Sorry you feel negative and glum, Bobbin! If you’ve read the posts on here you’ll know feeling as you do is quite normal. You feel so flat and can’t understand why. Remember, you’ve been through a lot… but you’ve got through it and come out the other side!! Give yourself time, you’ll get there. Well, you’ve joined the lovely ladies on this thread who have supported me and who understand and will support you also, so welcome! It wasn’t until I finished treatment that I joined as I couldn’t understand why I felt as I did after being OK. It just takes time for us to heal emotionally and to find the new you. So I’m sending a comforting hug to help you get through, we are here for you anytime, remember.
Ami xx
PS Love the dog. Is he yours? Looks like Doz’s dog!