Wide awake after midnight club !

Aagh …cobwebs means spiders …not keen on those little blighters !!
Think it will be choc and Sunday papers …I won’t look at the dust today …another day tomorrow…
Enjoy sunshine outdoors today xxxxx

I’m ok with spiders until I see one and then I get all fidgety thinking it might crawl into my bed or something !! I do try to catch them in a basin and put them out …no I’m lying …I usually spray them with fly killer if they are big and fast !! Ugh …

I can’t bear to go near spiders, I break out in a sweat, and I can’t even bring myself to kill them. I did have one that I had an agreement with…if it stayed in the telephone line box by the window, and didn’t come near me, I would allow it to live in the house. It was very successful at catching flies in the window but it disappeared…I wondered if it was so successful that it could no longer get out of the box?

 

I was awake twice in the night but that was because my brother’s dog was having a sleepover. First he needed to go out for a wee about midnight and then 3 am he couldn’t stand the heat on the bed from the electric blanket and needed me to put the light on so he could jump down on the floor (he’s only little). I wouldn’t normally have a dog on the bed but I do generally find it quite comforting when he’s there - other than when he wakes me up.

Oh dbno
I have my son’s boxer for sleepovers too …he sleeps on bed …takes it over as he’s huge …then at exactly 5am he starts licking and cleaning his man bits …slurps and fidgets.
That’s after he has spent most of the night farting and snoring !! But love him to bits.
My friend in oz was pleased to hear from you and an update …
Sounds like your spider has had such a good feast of flies …he’s grown too fat to move …I had one a few years ago …was always on my pillow at night …then ran when I tried to get him …it took me a week of doing the big white Hunter thing …but he had a nice swim…down the loo…ouch call the rspca.
Xxx

Wow Carolyn, you must have a high tolerance threshold!

 

Have an appointment tomorrow afternoon at The Christie. Hope I can get on the trial, and soon.

X

All the best for tomorrow and the trial …
We are all holding cyber hands here for you.
Xxx

Oh FF…!!! My little pal is at home tonight but I’m not sleeping any better. I’ve resorted to Ibuprofen, so I hope it doesn’t set of the acid again. I’ve managed a day without wretching and vomiting.

 

I’ve been joined by my mother in the WAAMC but she’s gone back to bed now.

 

I feel a bit like a kid waiting for Christmas with my trip to Manchester. Can’t wait till it’s time to set off.

Since the clocks changed …I’m all confused with sleep …last night I was still watching the clock at 2am …wasent giving in to reading or tv though …
Bon. .you will have back ache today doing all that gardening …hope u ok. X xxx
FF. .we had a Jack Russell for 18 years with a fetish for feet …visitors or any ones but he used to sneak under duvet in night and start on the feet …my hubs used to get fuming with him .xxxx

Hello mad Margaret
Welcome to our club …we always like new members …don’t think its sausage fingers …it’s predictive text …I often have to check mine before I post .
Think I managed about four hours last night …got out of bed for my usual wee break but forgot we are waiting for new bathroom floor to be laid …ouch should have put my slippers on!!

Bon - don’t be ashamed to say how you feel. Although I’m putting up a fight I know there’ll come a time when I’ve had enough. However, as FF says, I wouldn’t dismiss it without having a go. Gem Carbo I found easy, after dose reduction, and although it badly affected my bloods I got to NED and enjoyed that for a few months. Eribulin was the easiest, with no side effects for me, and I had 7 months with part reduction and stable. Some have had side effects though so it does need careful consideration.

 

Hello Mags.

 

Hello other ladies. I’m back to The Christie tomorrow to sign consent forms and then will have to wait for screening tests to establish eligibility. It’s going to feel like a long wait before I can get some treatment. I talked to my GP today about pain control and I’ve not been doing the painkillers correctly…duh. Am awake with pain again but trying what he said and hope it will make a difference.

 

Computer out of charge so I shall wish you all a good sleep.

X

Well, I’ve signed the consent form and they’re going to phone tomorrow or Monday to let me know when my screening test appointments are going to be. If I pass those I can get started pretty much straight away.

 

The pain has been more under control since talking to the GP, although I’m up again with a bit of breakthrough pain. However, I’ve things to do so I’m making use of being awake.

 

Hope all you other ladies are managing to sleep. Carolyn, I hope you remembered your slippers this time for your nighttime pee!

X

Hello dbno
So glad u are nearly on a trial …is it one with chemo or alternative treatment ?
Fingers crossed that it will be easy to tolerate …but almost a full time job with lots of hospital visits .
No slippers needed now …New bathroom floor down but strange didn’t need to get out for a wee last night …very unusual.
Xxxx

Dbno, I’ve sent you a PM
Hugs Janette xxx

I’m back…bl**dy dog. He’s having a sleepover again and I naively thought he’d sleep all night because we’d been for a walk down the beach, but no, he’s just needed a wee then gone charging around the garden after something. It’s a braw bricht moonlit nicht tonicht. I once walked up Blencathra at midnight, in the snow, because it was such a lovely, moonlit night…oh to be able to walk up a fell again.

 

So, while I’m here. I have more tests on Monday and Tuesday and feeling anxious about passing them all. They’re assuming I will but I won’t settle till I know for sure and get started on some treatment. I’m counting down the days. My chest feels like it’s worsening and I’m getting pains in my shin now aswell.

 

My brother is going to take me straight home after Tuesday’s biopsy so I can get packed up ready for the removal people coming to shift my stuff on Wednesday morning. Hoping for completion by end of next week. My buyer’s conveyancer reckons 10-12 weeks is the norm for completion of a house sale/purchase! She’s as frustrated as I am as we agreed the sale mid January. Still haven’t found a house to move to so I’m staying with my parent’s in the interim. Although I’m going to miss my friends terribly, it will make things easier to be nearer to family.

 

Carolyn, the trial has two drugs - one is an immunotherapy checkpoint inhibitor and the other is Everolimus, which apparently is in tablet form. This gives me the jitters after my experience with Capecitabine, but I shouldn’t tar all tablet treatments with the same brush; I’ll have to wait and see what happens. I just hope they’re not big, as I struggle swallowing tablets and it became even harder after Cape.

 

I’d like to think you’re all sleeping and making lots of melatonin. The dratted dog is now snoring!

 

Feel free to skip past my waffle. I think I’ll send a couple of emails and then try to get back to sleep.

Night night all.

X

 

 

 

Hello dbno
Well the joys of dog sitting …we do it all the time with our son’s dogs …
It’s lovely to hear from you and the new trial sounds good as its not the big guns chemo and u won’t loose your hair. Evorimus was taken off the drugs options by nice last year so it will be good for you to have a chance with it.
Oh the joys of conveyancing in UK …it takes ages …I worked for lawyers for 26 years ( only as a legal cashier) and there are so many procedures to follow and searches especially on older property so it will hopefully all go through tickity boo.you are wise to do it in two steps …sell and then buy later rather than a chain . We did that …sold and moved into rental until we found this house …it was good as we had to really declutter with two house moves in five months.
I will be thinking of you this week.
Hugs xxx

Hi B - I’m moving nearer to the dog (and rest of family) and to the oncology unit which has been treating me for the last 2 /12 years after my local onc felt he’d spent enough of his budget on my primary care and wrote me off when I had the recurrence. Altogether more convenient. Travel distance to The Christie is actually very similar because of the proximity of my old home and new location to the motorway.

 

The dog just likes to have a sleepover because he’s got very attached to me. I spend a lot of time playing with him and taking him for walks when my brother’s at work. I’m sure he senses I’m not well and gives me very concerned looks and tries to chear me up by being really cute if he thinks I’m feeling ill but if I get to groaning in pain he can’t cope and goes and hides with his head in the corner of the room!

 

8 days to go…all being well.

 

Hope you all had a good night’s sleep.

X

Well having a sniffy cold has its rewards …I’ve been taking a lemsip at night and sleeping like a baby …
I shall have to go to AA and stand up and say " my name is Carolyn and I’m a lemsip
addict " !! Oh the shame !! Ha ha. Xxx

Hello bon
Lovely photo …we are all holding your hand for results on Wednesday …just try to enjoy Easter weekend and put on the big girls pants !!
Hugs xxxx

FF
I know exactly what u mean …one day you wake up and realise u r parent to a middle age person !!! But still our babies.

(Mine are 48,41 and 36…aagh)
I will organise a rocking chair and knitting needles for you xxxx

Carolyn - I hope the cold has cleared up, you old b*gger! I didn’t realise you’re old enough to be my mother.

 

FF - how did that creep up on you? I keep telling my niece that age is exponential. You reach 20 and the years just increasingly speed up. In my head I haven’t got past the 20 mark, but I’m not sure if the lack of children has meant that I’ve never got to feeling I’ve really grown up.

 

Bon - good luck with the results on Wednesday. That view really is a place to recharge your batteries. I remember having some lovely Devon holidays as a child. Although we live by the sea it’s not the nice blue that you get down there, typically a bit more muddy brown looking.

 

I’m booked in to start treatment on Tuesday, unless I hear anything beforehand. They just had 2 more test results to come through but they thought I would pass. If you don’t count right now, I just have 3 more sleeps. I feel like a kid at Christmas, only previously my Christmas presents didn’t have the potential for nasty side effects! Anyway, I’m hoping for good things from this trial.

 

Night night all. Hope you’re making zzzzzzs

X