Hi Nigela
Sorry that wasn’t the posting it’s from ycantwe.
Sandra x
Thanks Sandra
yes I saw that
good luck for tomorrow -let us know how you get on. That bothered me i will be lucky to get ultra sound at our place let alone anything else. Just shows tho-how can we trust the scans when what is really needed is MRI?
Nigela x
Well 9 days since saw GP and still no referral letter and I go away tomorrow for a week-how typical. Probably arrive when we away and I will miss the thing. Got to carry on worrying all holiday-they have no idea how it fees. plus the stinging pain to put up with!
Nigela x
Well again no letter has arrived was hoping it would. Plus convinced that the gland I have been watching at right side of my neck is bigger.
Nigela x
Hi Nigela
I’d ring the hospital breast care clinic and ask them when your appointment is. It will at least mean that they have to get your notes up on screen and may nudge them into doing something.
Guidelines do state that we should be seen within 14 days, that’s what an urgent referral is.Unfortunately hospitals do have a slight get-out clause as it is only a guideline.
The waiting and worrying is horrid - it’s what I’m doing right now. I am lucky in that I do have my appointment date, for next Wednesday. That still feels like it may as well be next year though.
Thinking of you and hope you can get some positive news re your appointment from the hospital.
Val x
Hi Nigela
I’ve posted on my thread but thought I’d let you know that although the consultant believes it’s all normal from quick physical exam (GP was more thorough) and a very quick U/S I have to wait for a referral for the mammo that as she says will show if there’s any suspicious changes since last one - which was all I really wanted!
More than a little disappointed as the accompanying leaflet with referral letter said you’d get triple assessment and I’m left playing the waiting game again.
Hope you’re getting thru this - I do think you should ring GP or hospital to find out when you’re appointment is.
Take care
Sandra X
Thanks Sandra Just read your thread-and I have replied to it. Hopefully it does sound good news for you. I know it is bad you having to go back-I also been told that because our clinic has a backlog of women to see I too will prob have to go about 3 times for each test and diagnosis! Crazy!
Take care
Keep me posted thinking of you
Will post in week when I am back.
Nigela x
Hi Nigela
Thanks for post hope you have as good a holiday as you can, going somewhere nice?
I am pleased that she thinks it’s nothing but I had hoped that as the leaflet said all tests would have been done today and I could have come away knowing all was well because all tests show this not because she thinks/believes it is.
I’m glad you know a little more about your appointment(s) and hope ultimately you get some good news.
I was surprised how nervous I got in the end tho it didn’t help waiting fo 30 mins in the waiting room then 20 mins in the consulting room, for less than 10mins with consultant.
The more I think about it the worse it seems - they’re supposed to talk to you find out about general health, your concerns etc 1st - I was lying top off silly gown on for 20 mins when in she came looked quick feel, quick ultra sound (took longer 3 years ago and she’d seen marks on mammo so was trying for a specific spot!) Didn’t do full exam think they’re meant to look with you sitting up, then with arms raised (she didn’t) and feel all round including underarms and up to collar bone (she didn’t), in fact had we have discussed things 1st I would have told her about the eczema that appeared on the other breast and asked her to check it out - I forgot to mention it and she obviously didn’t see it.
Pretty frustrating really, I may start another post because she also mentioned that the indentation on areola could be due to weight loss - I only told her I’d lost a bit of weight thru dieting and altho breasts can be first to reduce haven’t heard of that effect before! and of course age comes into it.
Anyway good luck
Thinking of you
Sandra X
Hi Nigela
Thanks for remembering my appointment, hope you’re OK. I,ve posted on mine with update, but by doing this on yours it’ll move your post back to the top!
I think it is so wrong that you’re going to have to start the whole process again but hopefully under the circumstances they’ll speed things up - maybe a cancellation.
Like me you need an end to the worry, please keep us informed
Thinking of you
Sandra
Hi Nigela
It might be worth going back to your GP and show him/her the lump on your collar bone - it might make them speed up your referral or he maybe able to tell you what it is or what’s causing it.
You’ve had to wait far too long and if it hurries them up that’d be good thing - altho I’m still waiting at least I’m getting tests and so should you.
Sandra x
Hi
Well clinic rang me to day and gave me apt for Wed guess they must have had a cancellation.So not to much longer to wory and wait.
Nigela x
Hi Nigela
Good luck for Wednesday (it’s about time!) hope you get some satisfaction from it - if not tomorrow but maybe in a week or so’s time depending what tests you have (or don’t have!).
I’ll be thinking of you let us know how you get on.
Sandra
Thanks Sandra will do!
Nigela x
Hi all
well back form the clinic. But only got another mamo done -Dr said its just benign b disease so didn’t need an ultra sound. So really not alot better off as thought they wold have done an ulta sound too to see what sort of benign b disease it was so although relieved still got a bit of worry lingering as still got pain and itch. Hope it goes away as I get older! And just hope he is right!
Nigela x
Another comment-as I see when I reread your post Sandra that you had ultra sound 1st. I did think that it was a triple asessment I was getting -my GP thought it would be!
Nigela
Another ps1
I too was only looked at lying down and not sitting up! so quick too!
Nigela x
Hi Nigela
Sorry you’ve not had much joy at your appointment (again!) - it makes you feel so frustrated doesn’t it? Are you not even being offered advice/medication to relieve the symptoms, especially the pain - you shouldn’t have to put up with it.
What was the little lump near your collar bone?
It really is awful to not have complete confidence in what we get told, but as you say we’ve just got to learn to live with it and hope they’re right!
Lots of love
Sandra
ps I’ve still not heard if my mammo is OK - presume it is I think you here sooner rather than later if it’s not so I’m resigning myself to having to believe that my weight loss in February/March (dropping from 14st 7 to 14st - not a huge amount caused the indentatation 5 mnths later at end of August!)
Hi Sandra
He never even felt the little lump in my neck-I told him about it but he never even got the right bit I dont think and said there is nothing there! It still feels tender to me.
My Friends neighbour went to
the same hospital-they have been on the news as they didn’t check women who had shown up as mild changes on their mamo when they should have asked them back for biopsies _they sent them on their way saying" see you in 3 years you have just got to get on with life and forget it!-then it came to light-about 16 of them have cancer-this one a grade 3. How bad is that!
So it doesn"t give you alot of faith I am afraid.
If I get that far-going to wait till next spring and get one done by bupa again. At least they check you properly first too!
Hope you hear son
Take care
Nigela x
Hi
Another thing that worries me is that the very middle of the nipple looks drawn in-not all the time-but that is the one that itches. When I told the Doctor of this he really just ignored it. They really do seem to think that a clear mamo is the end and it is all ok. I just hope he is right.
But I think when you still have strange symptoms you still worry.
Nigela x
Nigela, please insist on further exploration. My partner first went to the gp with classic symptoms of Paget’s disease (a breast cancer starting in the nipple) and it has taken TWO YEARS to get a biopsy done which confirmed the diagnosis I gave the gp (as an ex-, very lippy nurse!) on the first appointment.
A drawn-in nipple always deserves serious attention. My partner has had two mammograms and two ultrasounds; all four were clear. Please do not be fobbed off.
Hugs and best wishes,
Sass