Went to hospital today to get my mri results and to see about getting a port fitted.When I arrived I was told they had had meeting yesterday and surgeon team has decided that because all my bone mets are stable I can have the mass in the axilla and affected lymph nodes removed.So pre-op monday and op on March 13th.
This follows dx in May 2009 when I had a 10cm x 8cm mass.I had chemo,rads and hormone therapy which has resulted in it shrinking to 4cm x 2cm.
The surgeon feels that as mets are stable and it is unlikely to shrink any more this is the time to operate.It is what I have wanted but now I have the decision it is a bit scary.I know there are risks with mobility of the shoulder but I feel that removing the local occurence will leave me with one less thing to worry about.I will still have bone mets in spine,ribs and pelvis so will still be taking letrozole and having zometa.I am now panicking a bit and hoping I have made the right decision in agreeing to op.I know it does not improve my prognosis but at least it cannot cause spread to other areas.I appreciate that the cancer is in my bones and my blood
but hope the op helps somehow.
Back to hospital again tomorrow for zometa and hunt the vein!
Lucinda, just wanted too say that its a personal choice for us secondaries girls about having the primary source removed, even though mine had spread onto my lungs I was positive about having the primary or the mother lump removed, all my instincts were telling me to go for it, go with your gut feeling, physiologically it has made the world of difference to me, now I am concentrating on staying either stable or preferably NED if tamoxifen/herceptin will do the trick. Best wishes to you.
Laurie I’ve said it before on the other thread but YAY happy dance for ya!
Welcome Tish it’s always uplifting to hear of good news, especially when we’ve all been reading some bad news as well. Gives us all hope and im sure helps any newbies.
Long may your Mabel status last
Nicky x
Just want to renew my membership…sternal lymph node shrinkage continues and I was officially told yesterday that I’m stable. When would I like my next scan - 3 or 4 months or after my holiday in July? WOW! Now that’s what I call reassuring.
Cheers to all other Mabels and love and thoughts to those who aren’t.
Isobel
I had my bone scan and tumour marker results. Good news I am still a stable Mabel, Hurrah. It has now been 3.5 years. Celebrated by going out for lunch and dinner!!
Thank you Alex …I’m unable to post at the moment unless I try 10 plus times…and then I suddenly have a double post… But hope this is helpful to anyone about to start on Capecitabine. I’ve been on this chemo since April 2008 and I’m still getting stable CT results…just received the latest one. Good Luck…x
Thank you Alex …I’m unable to post at the moment unless I try 10 plus times…and then I suddenly have a double post… But hope this is helpful to anyone about to start on Capecitabine. I’ve been on this chemo since April 2008 and I’m still getting stable CT results…just received the latest one. Good Luck…x
Just thought I’d revive this thread, by saying that soon after my last post, back in March, my hip fractured spontaneously. So much for me being a stable Mabel.
Anyway, I’ve been told once more that I’m stable - which is good - but I’m much more wary now. One can never be complacent with this bloody disease, but I try to enjoy every day and am already planning my Spring garden and the veggies that I intend to grow.
Onwards and upwards!!
Isobel
Hi Isobel, I’m sorry to hear about your fracture earlier this year. I’m glad to hear that you are stable once more. You’re right - it’s such an unpredictable disease and life is lived on such a knife edge.
I’m keeping “stable” at the moment and I’ve been feeling pretty well despite the side effects from treatment but I never get complacent and try to really make the most of every day.
Take care x
Hello to all Stable Mabels
Just reporting back in to say at my last appointment with my oncologist 2 weeks ago that I am still classed as a Stable Mabel. My words, not his LOL. This is 4 and a half years since my secondary dx and 9 years after my primary dx. I am currently on Arimidex and Bondronat with no pain at all - I’m only adding this in the hope that it helps any newly diagnosed mets ladies that there is life after that shock.
Keep Well Mabels
Nicky xx
But hope this is helpful to anyone about to start on Capecitabine. I’ve been on this chemo since April 2008 and I’m still getting stable CT results…just received the latest one. Good Luck…x