Hello Dawn, everything Nicky has said above from me too. Hope you can get the new pain under control but good to hear you too are stable…xx
hello Dawn
So pleased about things being stable,but sorry about the new pain areas.I know what you mean about finding out things.When I first went to the RM for a second opinion I found out I had 2 tumours in the axilla not one.Apparently rather than shrinking, as I had thought it had in fact split into 2.Good news was that they had still slightly decreased so heading the right way.
I am always afraid to say this,tempting fate,but since switching from oral ibondronate to zometa the pain levels in my spine have decreased and I have managed to take less painkillers,hopefully it continues this way.
Lucinda xx
Hi everyone. Thought I would join in.
I am another stable checking in. My latest CT scan is still showing nothing visible on my liver. My last 4 CT Scans since Feb 2011 have all been the same. No change. No tumours visible. And after being allowed my cosmetic surgery mastectomy last July, it means at the moment that I am sort of NED I think, although I am under no illusions that it has completely gone, but I can hope.
I can now breathe again for another 3 months and keep everything crossed that things stay the same.
Good Luck to all…x
Congratulations DM, welcome to the club.
You probably know this but in a small number of cases people with secondary BC can remain NED for very many years. Some would say that this small group could be fit the cured criteria.
AlexD
Hi All - another one checking in!! Last scans show I am also in the Stable Mabel club!!! So have a wonderful 2 months chemo break to live a bit of normal life - but after 30 chemo sessions I’m just a bit too tired at the moment! I’m sure energy will return soon!
Hugs to everyone else in the stable!!!
Sadie Xx Xx
Welcome to the club Dawn and Sadie. 
Hoping to see more new Mabels here very soon…x
Its a lovely club to belong to! Thank you for the welcome. I was just wondering how many of you are having active treatment to keep things stable and how many of you are on a treatment break - and still managing to keep stabel?
Thank you,
Sadie Xx Xx
Hi all
Can I join too? I’m on weekly vinerolbine and herceptin ,ulcers at the mo, so missed ysterday except for herceptin, and a trial drug. Probably go 2 on 2 off when I see onc next week. Had scan before starting treatment in Jan and compared with Nov same size with some poss shrinkage, funny thing is this happened BEFORE I started treatment.
Secondaries on the head of my pancreas, quite rare apparently.
Mandy x
Hi Mandy, good to read your news! Those ulcers sound painful though, hope they vanish soon…x
Hi Sadie, I’m one who is stable whilst on treatment…x
I am on herceptin only at the moment x
Hi Mandy, welcome!!! I’m new to the club too - but I like it here!!
Dm nd Belinda, thx for your info. I hope to stay stable whilst on a treatment break…just hope that is possible!!
Sadie Xx Xx
Great to see so many people are able to join this thread
Just had results of my latest scan - bones still stable, liver mets so small that they are immeasurable, some “may” have got a bit worse but others have got a bit better so onc has given me an overall verdict of stable
Have at least an eight-week chemo break now, just on Letrozole, if/when that fails will be going onto Capecitabine but hope I can get a few months out of the hormonal first. Meant to ask about Faslodex, but seem to remember reading that has been withdrawn from us by NICE.
Hope everyone is doing OK.
Lesley
Woop, woop Lesley :-). So glad that the chemo has done its trick and you can have a break now - enjoy it, I’m sure you will.
Nicky xx
Hi Lesley, Great news. Im a few weeks into my chemo break. Trying not to worry about every twinge nd enjoy every day!!
Smiles
Stable Sadie Xx Xx
Lesley
Great news - celebrate every little bit of it!
Re: Faslodex, When I spoke to my onc about this (I like to get prepared for the future ;-)he said that he thought it would still be available on a named patient basis.
The problem (as NICE sees it) is that women who have quickly failed on one hormone after another were then being given Faslodex (pricey) however for women who have had some time on other hormonals with success, oncs can probably make a case for moving onto Faslodex. Hope that helps!
Lx
Thanks Laurie, that’s helpful, it sounds as though it may not be completely out of the question then. Tamoxifen and Aromasin failed me, but I got two years out of Arimidex and currently on Letrozole, so it could be worth mentioning.
Good luck with your scan this week, by the way xx
Hi Lesley
Good news for you and I hope it continues. I also had good news yesterday re. liver mets and I’m halfway through the docetaxol treatment so your news is certainly encouraging.
Tamoxifen and letrozole haven’t worked for me but interesting to see that you got two years out of Arimidex - maybe they’ll try that for me when chemo finishes.
Well done on being a stable Mabel - after all your SE’s with chemo you deserve good news.
Liz x
Went to RM yesterday following spine mri,bone scan and ct.Onc said that results were good showing everything stable and improving from previous scans.
Just now need to get a decision from surgeon about removing local occurence from the axilla-has also shrunk recently.Seems letrozole is doing it’s job at the moment, so can manage the se’s knowing it is working.
I had really convinced myself that there had been progression which is why I asked for second opinion.
Deep breathe,carry on until next scan and hope for more good results.
L xx
Great to read all the GOOD news here! Fantastic, I’m SO pleased for you Lesley…will send you a PM.
Hi Liz I had just over 3 years with Arimidex, Tamoxifen worked well for me for about 18 months but Aromasin didn’t work at all…so definitely, I think, worth asking about Arimidex after chemo.
Hi Lucinda, good to know Letrozole is working well for you despite the side effects.
Thank you all for you good wishes, feel like a new woman today, lol
Liz, I was concerned that letrozole and Arimidex are so similar that the letrozole won’t work but we shall see, will keep you posted,
Sadie, enjoy that chemo break for hopefully a very long time
Lucinda, good news on your scan results
And Nicky and Belinda, thank you!!
Xxx