Happy Birthday Pauline, hope you’ve had a lovely s/e day
Sandy, don’t worry we’ll wait for to join the Happy Dance then we’ll party!
Soo proud of Andy Murray! Excellent game
Good luck to all on the chemo train this week, wishing all minimal s/e
No pain for me but on an emotional rollercoaster and can’t get off, take care everyone xxxx
Hi Amber,
I dont know what is worse, the physical or emotional aspects to this treatment.
Thinking about you and hope your spirits are lifted soon, take it easy.
Love Lori xx
Evening Angels, FEC 5 day 1
to all you lovely Angels on the doxytaxdodah ( that’s what I call it with my chemo brain), so sorry your suffering so badly with the nasty s/e. so much harsher than the FEC, hopefully the anti s/e drugs should help your more on the next cycle. I think Im finally there on the s/e with FEC just go to sleep for the week I think is my best bet.
I never managed to get as far as the garden today as thought I would lie down for 5 minutes, woke up 4 hrs later. So still got a two tone head, I was thinking of using fake tan but oh said I might look like a walking globe if I didn’t manage to blend it in properly…thought he had a good point haha.
I think we can all join in the happy dances from now to September, hopefully it will help us all with the fatigue! Also when we meet up next April we should all get up on the dance floor and show each other our different versions of the happy dance, perhaps to the wonderful song DON’T WORRY,BE HAPPY.
good night Angels, cyber hugs to you all, onwards and upwards, we are getting there xx
Talking of happy dances made me remember this youtube video. The first time I saw it I cried. Now it makes me smile and feel ready to face anything they throw at me.
www.youtube.com/watch?v=BaQdwTsVtCY
Moira xxx
Hi Moira, really. Love the happy dance on YouTube, so inspirational, I really mustar practice for next year!
well still up as the steroids are winning the my slumber fight, just wondering what to watch on the TV? Will it be A&E or sparticus? Plus tea and toast whoopee…x
Cycle 4 docetaxel 1 day 12
Moira loved the u tube clip, so true inspirational, will need to practice for our happy dance.
Philomema I would have gone with 24 hrs in A & E love it, always a great story, so true to life.
Hope all of you who have just had or just going for next session are not feeling too bad.
I am feeling much better but have no energy I watered/fed all my pots and baskets last night and did not have the energy to roll up the hose.
Cant imagine having the energy to go back to work full time ! Oh well onwards and upwards and the sun is still shining here today at least.
Lynn x
Mornng Girls,
Another sunny morning, hope everyone is ok.
Love the clip Moira, there’s another version from the Seattle Childrens Hospital. This is the one that made me think if these kids can do it so can I. Tried to copy the link but not working.
Thanks Lori, been up for an hour still trying to get off the rollercoaster. I don’t think we could get through this without the support of each other as nobody knows what it’s like unless you are going through it yourself, emotions are so extreme sometimes. Iam fed up being told…stay positive only one more to go… Everyone means well but just can’t take it board right now.
Right enough of that, got to get busy n shake this off
Enjoy a lovely day xxx
Good morning Angels,
fantastic video Moira, i can’t do a happy dance and sing otherwise all the animals in a 20 mile radius would scarper so I’ll stick to just a dance!
I’m off for bloods this morning for the penultimate time I hope! I may even call in Asda on the way back for more ice cream as the sun is out again here today…I just wish I could sit in it without worrying that I’m going to burn even with factor 50 on as not sure how ‘sensitive’ to the sun I’ve become from the chemo. Has anyone else noticed any difference to how easy/hard it is to tan?
hope you all have a good day and that your ‘crew’ get there safely Angie
Kate
x
Hi all
Trying to post from tablet so bound to lose it!happy belated birthday pauline.
Things have gone a bit pear shaped for me. Went to devon on Saturday for few days break with oh, great weather escaped from teenagers, extra week in cycle seemed like a good plan. Sunday- temp up to 38.9 put off for as long as poss then phoned emergency chemo line at home. They said GO STRAIGHT TO HOSPITAL NOW went to Taunton musgrove, kept in still here. I’m not neutropenic but infection markers in blood are up. They haven’t been able to identify infection but suspecting picc line. I FEEL FINE but they don’t want me to leave until temp is normal for 24 hours. IV kill everything antibiotics atm. Bit scared not helped by not being at home. Thinking of doing a runner in pjs back up m5. Not quite what id Planned!!! Mel xxx
Ah Mel sorry to hear your in hospital, hard to take but you’ve done the right thing and in the best place…hang in there you’ll be home soon!
Moira, great clip…exactly what I had in mind - can’t see the staff joining in with me tho and I (like Kate -ha!) might leave the singing alone!!!
Amber, I know what you mean about comment’s from others they mean well but unless you are going through it - it’s hard. I too am so glad that we have each other! Hopefully you’ll turn your corner soon
Love to all Lori xx
Good morning Angels,
So sorry Mel you have landed up in the dreaded hospital, even worse not being your own. Having said that you are in the best place, though I totally understand the need to escape.hope you escape soon xx
Only four hours sleep last night, so I am going to try really hard to stay awake today and get some sleep tonight . After a bit of tidying I am going out to sit in the garden, bit like you KATE not sure how long to stay out, but think I will do half an hour before midday, then get on the swing bench Which is undercover.
AMBER, I know what you mean regarding peoples throw away remarks, I really try not to moan to anyone to much, as I don’t want to frighten anyone with horror stories, in case they get the same. It’s a bit like child birth, listening to some people’s experience no children would ever be born! But recently I have been more honest and said no I feel really terrible, only to be told thatsstrange as I look so good!!! There was a thread on here a few weeks ago from a lady who had passed away from BC and it was her view on it, it was really touching, and she was saying how annoying it is when people always use terms like fighting, being positive etc, when in fact what we are really doing is living with cancer. My bit is that this implication that if you positive and fight you will survive, so there fore if this disease does take you, that then implies that you did not fight hard enough Or wasnt positive enough, which we all know is not true. And breathe…that concludes the Tuesday lecture …ha ha
oh bye the way does anyone watch Only Coneect on BBC 3, it’s the hardest quiz in the world I think, yesterday i managed to get over 50% right, so chuffed with myself, by this afternoon chemo brain will have set in and will talk rubbish for the next 8 days!
hope you all have the best day you can. Onwards and upwards Angels xx
Hi Everyone,
First of all I can’t take all the credit for finding the Youtube video. The first mention was on another thread, maybe February Valentines, that I read before accepting that I had BC and joining the April Angels. But, yes, it’s still inspirational!
Kate, I was told not to sunbathe because chemo stops melanin production so no tan, just burn. Don’t know how true this is but have tried to avoid sun anyway. Using tinted moisturiser so that everyone thinks I look fit and healthy!!!
Like you, Philomena, I’ve started to tell people when I don’t feel great if they ask. More often than not they don’t want to know that and tell me not long now As for quizzes, I got 30 points on Ken Bruce’s Popmaster on Radio 2 a couple of weeks ago. Now I take serious pride in that achievement!
Sorry to hear your holiday didn’t go quite as planned, Mel. Hopefully the zap-it-all antibiotics will have you out of there in no time. Puts my little moan into perspective - streaming cold plus no nose hair = total embarrassment - cannot leave the house, cannot be seen in public, cannot bend head forward, cannot remove tissue from nose a la Blackadder!
Next couple of days will be taken up with my new career - professional BC sufferer! Tomorrow, I see gp in morning re hearing loss, then nurse for bloods later, then hunt the vein and cocktails on Thursday.
Keep smiling
Moira xxx
I bow to you Moira on the popmaster, I rarely get much above mid 20 on Monday on way back from chemo only got 3, but oh got 36! Have to say R2 has helped me on this crap journey.
i have been researching the sunbathing on all your behalfs, have sat out for 30 mins with no sun block as couldn’t find my new bottle!, will send y.ou results later as to skin response.
onwards and upwards Angels xx
Mel - Sorry to hear you have been kept in a hospital not near home, hope you get released soonest and can head safely back home for some rest.
Popmaster on R2, I’m lucky if I get 1! I’m so rubbish at music quizzes my OH just laughs if I even attempt answering the questions!
Having had my bloods taken at 10.30 this morning I got a call from the chemo unit at 12.45…panic ran through me that my blood levels were too low. Actually they can’t test the blood as its clotted in the tubes so I now have to have it done again tomorrow before the next infusion…just hope its okay and doesn’t clot too quickly then! Maybe I’ve had too much liver/spinach/cabbage and there is too much good stuff in there! I could have gone again this afternoon but didn’t fancy wasting another 2 hours to get there and back when there is such a lovely day outside for me to sit and read my book in!
Moira - good luck with the results of the hearing tests, hope its something they can sort out quickly.
Hope you are all enjoying another sunny day
Kate
x
Ah Moira hope that your cold clears up quickly! Good luck with GP tomorrow and with your next cycle…not long to go now!!!
Cycle 4 docetaxol day 19
hello angels, sorry I’ve ot been on much lately but I have been reading all your posts.
mel you poor thing, there is nothing worse than being in hospital, and especially when your away from home, I had the iv line in for antibiotics when I was in the other week, what a pain, going to the loo with the trolley, and trying to sleep without pulling in out. Get well soon, I hope your temperature comes down and you can get home.
Moira I’ve been out in the sun baking for the last few days and I have a lovely tan. I’ve not been able to go in the sun for years due to psoriasis but the chemo has cured that this year so I’ve made the most of it, and I’m a lovely colour. My hands are very dry but other than that, no problems. Oh but I do still have the runny nose… In fact it was embarrassing the other night, we walked the dog and dedided to have some fish and chips down by the harbour, I was that busy stuffing my face I didn’t have time to get a tissue out.
i can’t believe it’s cycle 5 this week, I’ve only just got over cycle 4, I just hope the s/e are less this time cos this TAX is awfulIve hubby has shaved my head again this afternoon In the garden, he said I had a dark 5 o’clock shadow at the back but with bald bits, then white shadows either side of my head and a bald top, so he shaved it all off again, I can’t see the point of it growing back till its all growing back.
good luck ladies with the s/e, I hope they’re managable for you all. Hope it’s good news tomorrow Moira.
Hello ladies
Mel - you poor thinloch ops you are released soon and can whizz back up home.
Moira - loved the clip. Good luck with your GP and I hope they can sort out your hearing.
Judy have had a lovely day in Brid and Scarborough, can’t remember the last time I saw sunshine in Scarborough I did keep a look out for someone wearing exotic headscarfs or baring her head but there was no sight of her
I have also been sitting in the sun wearing myfactor 50 for the last couple of weeks, I have noticed that at my freckles are much bigger and more prolific than normal and I have a light tan, because it has been so hit over the last week i have kept my head covered , as i don’t fancy a burnt head, and have sat under the parasol out of the direct sunlight.
Very impressed by your scores on R2 popmaster I can only manage about 3 questions .
take care
Kim x
Tax 2, day 5 - Hi Angle’s, aches and pains have started to kick in and the wee knife jabbers are back stabbing from the inside out but I have to say, so far, not near as bad as last time. I do have much stronger pain killers though so looks like they’re doing their job. Mouth is going and can feel the ulcers but started using gelclair straight away so hopefully this will prevent it getting too bad. I am holding onto water for dear life at the moment which is making my hands and feet really sore and uncomfy - I now officially have Cankles!! Hardly peeing just now but hope my body lets the water go soon - I dont want to be in the summer shot put team
Like Judy - I have been out in the sun recently and tanning as per normal. Using factor 30 whereas my normal would be 15/20 but no adverse affects so far 8)
Mel - nightmare especially being away from home, hope you get freed on bail soon!
Moira - hope you feel a bit better and next cycle goes well this week, you too lori. Judy - hope you get on ok too - sorry but had a giggle at the runny nose story - after everything you have been through I doubt a bit of snot will do any harm - lol, sorry ladies!!
Amber - sometimes this sh** just gets to us, I’m sure you will be back on the ride up soon
Angie - have a blast with the family, take it easy though!
I also have to admit to telling it like it is now i.e. I feel like sh** (if I do) people mean well but it really does get annoying when you continually hear ‘nearly over’ ‘your so brave’ ‘positive’ - ‘we have no choice but to get on with it you feckin eejit’ is what usually goes through my mind - but I just smile and change the subject - usually through gritted teeth !!
Have a good week Angles, take care
Pauline xx
PAULINE a woman after my own heart, I thought then I was back home in Ireland when I saw the feckin eejit bit, which sent me off into howls of laughter when the ONC put me on FEC chemo, so bloody apt, but nothing in comparison the the true ly nasty Tax some of you girls are on .
Glad to see you back JUDY I was going to put out a call for you, so glad to find you have been giving it the biguns in the garden, Im planning another trip tomorrow for 45 mins in the garden. My oh was trying to get to shave my head yesterday as said it reminded him of the Frior Tuck look, hope to god that it comes back normally!!!
Goodnight Angels, onwards and upwards xx
Kim I was on the beach this morning, wading into the sea after the dogs ball, I was up to my knees in it when the dog decided he would go fetch his own ball after all!
Pauline it’s good to see that you stil have your sense of humour even though the s/e are kicking in… You cracked me up with your eejit comments.
Philomena, hope you get better weather than us tomorrow so you can get some Sun in the garden, make sure you put your sun cream on. I didn’t bother on Sunday, we had a family BBQ and I had no cream on and no scarf all day, I was like a beef tomato by night time, I knew about it in bed on Sunday night. I know today I put some of the kids green sun block on my head and face, I looked a right sight but a burnt bald head is no fun!