Hi GIrls
I hope everyone is fine.
Welcome YvoYvo. So sorry you’ve had to join us, but as you’ll be discovering everyone here is really great and you’ll get so much support and advice, especially as we’re all at different stages in our treatment. I was dx on 24/2 with an 11mm grade 3 ER+ lump and with a 1/3 of a mm trace on my sentinel node, I was breast feeding at the time so was really lucky I found it when I did. I’m having EPI-CMF Chemo, radiotherapy & tamoxifen. I had my second dose of chemo yesterday. Do you have any family?
I’m feeling a bit better today, still a bit nauseous but spent most of the day dozing in bed with visits from the kids for a cuddle. I actually think the anti sickness tablets are making me feel worse, as about 5 mins after I take the domperidone(?) I feel really sick and can’t face food (same last time). I forgot to take them before tea tonight and feel so much better and tea was great. I’ll take them again tomorrow, but if I still feel rough after them I might mention it to the hospital and ask what they think – has anyone else has issues with anti-sickness drugs? - or is it all in my head - ha!.
Our house was like a hospital ward today, 7yr old was off school, as he staggered down the stairs last night in tears complaining of a headache and promptly threw up on the stairs and 4yr old was already down stairs rolling round in pain as the Dr thought he had gastrointeritious which was producing colic pain! So he was off nursery today, but seems a lot better now. Think baby is cutting another tooth too, so tiredness could just be down to being a mum and not all chemo! Thank god ‘nurse John’ was off to look after us all.
Fiona – sorry to hear your mouth is still really sore, have you been back to the doctors or dentist? Glad you’re managing to practice with the scarves. How is your hair? My hair is now coming out, not in huge chunks, but definitely a noticeable amount. I did wear the cold cap again yesterday, but I’m not sure how long my hair will last as it’s thin enough as it is. Good luck with your wig fitting, I’ll have to chase mine up if they don’t phone tomorrow.
Sharon – Are you getting ready for Monday? I think we’ll all be thinking about you on Monday and sending you good vibes, keep positive and keep being strong. Take Pauline’s advice and look out for some talent whilst you’re in – a nice dishy Dr would be good!. I hope it all goes well at your pre-assessment on Friday. I’d love to send you a card too, if that’s ok.
Pauline – Glad you had a good weekend away. Good Luck with your PS tomorrow. Are you cooking something nice for your friends on Saturday or is it just a coffee and chat?
Jo – Good luck on Friday, how are you feeling? How long do you have between your CMF treatment? As it doesn’t seem long since you had the last one. When I eventually get to CMF it will be day 1 & 8 with a 3 week break.
Sheila – I hope you’re keeping well and have a good time with your friends at the weekend. What art exhibition are you going to see?
Tracey – hows the training going?
Angela – how are you coping back at work? Are you really tired? When I went back after 9months Mat Leave I did a 3 day then 4 day week before this all kicked off and was totally shattered.
Annie – How are you? I hope you’ve not been ill again.
I was really brave tonight I rang the FPC and cancelled my coil fitting appointment and left a message for the doctor that the lump that she had told me was nothing to worry about, the one she was not at all concerned about as lumps/bumps were really common in breast feeding women, was actually BC. I’d just wanted to raise her awareness so she didn’t dismiss the next BF lady she saw with a lump. Anyway she rang back and said she was just in shock and felt awful she’d just dismissed it and was so apologetic. Anyway, we had a good chat and she admitted that she would’t normally refer a BF woman to the breast clinic, but would monitor the lump over some weeks, but she said she was so shocked that now she would reassess her approach – so hopefully that may speed up someone else’s diagnosis. I submitted an FOI request to NHS FV and only 9 women under 40 were diagnosed with BC last year and only 1 of them was either PRG/BF – probably explains why I don’t think the hospital have read the ‘standards of care for young women’! – What a moaner I am!.
I’ll end by apologising for such a long note, but as I haven’t been about since the weekend I feel I’ve missed out on loads and I’m having a catch up!
Hugs to everyone.
Helen
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