April 2024 chemo starters

I’m confused - I’ve just had a phone consultation with the oncology reg and he said I needed my COVID jab 1-3 days post cycle as that’s when my bloods best, and COVID vaccine more effective then, not midway between 2 cycles :thinking:so I’ve changed it again

Oh that’s good to know @gromit12 as I asked my GP and she said she didn’t know :roll_eyes:

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You might want to look at the Feb chemo thread salbert has found a great wig and posted photo and where she got it :heart: also check out raquel welch wigs not sure if qvc still going but worth a look too maybe :crossed_fingers::two_hearts::two_hearts::sparkles::sparkles:Shi xx

I got my covide & pnemunococle (however you spell it) 10 days before I started treatment, was supposed to also get the flu jag but none available in Edinburgh :face_with_peeking_eye::face_with_peeking_eye: but got told I didn’t need it if I had already got the covide jag - confused but there we go, sounds like everywhere is different

Today’s been a day off 1st for me, I’ve had my 1st chemo session (EC) & I’ve done cold cap (boy was that cold) especially about 20 mins at the end, however I’ve done it & only 7 left :partying_face::partying_face:

I’ve had a snooze & woke with sore teeth, the dull headache, feeling sick & the start off an achy body. I’ve had anti sickness meds, took my temperature (its normal) so I’ve popped 2 paracetamol & trying to drink loads to help flush it through (also red wee, which I was warned about) apart from this, am feeling not too bad but am also feeling VERY proud of myself.

Not looking forward to the steroid jags, but I’ve been given numbling cream (cause I’m a whimp :face_with_hand_over_mouth::face_with_hand_over_mouth:) so if I can’t do it without this at least I have it here ready.

Hope everyone else is doing ok

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@ivegotthis01 yes you are right to be super proud of yourself - that’s a heck of a day and it sounds like you handled it brilliantly!!Well done. 1 down!
Oh and if you haven’t tried it, I have found that ginger & lemon tea helps with the nausea.

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Thank you @Shi is it the one with the hat attached? She looks great in it!
I’ve just signed up to the Look Good Feel Better Virtual Workshop on Headwear, it’s next Tuesday morning…. Hoping it will give me some more confidence and ideas, as I felt so self conscious in my little beanie today :cowboy_hat_face:Book a Workshop - Look Good Feel Better : Look Good Feel Better

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Hi it’s the topper one she got from tana b hair salon in south Croydon she believes it’s a Trendco one, thought it worth pointing out to you as maybe another place to try. Your Macmillan’s in your trusts usually have pre loved wigs too tgat you can try and purchase a donation :heart: the look good feel better sessions are worth signing up for too, free goody bag of makeup and beauticians giving you tips and tricks and you sharing the event with others :heart:sign up for this at your Macmillan’s too and ask about any therapies like reflexology etc that you are entitled to also, not all trusts let you know about what you are entitled to, do ask your Macmillan’s :heart:within your trusts :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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@ivegotthis01 well done, you’re through session one :+1: drink lots and take the meds they tell you to. The jabs are not as bad as you think they will be, and think of them as producing all those white blood cells you need to fight off any infection, and keep you safe and at home. Hugs :hugs::hugs::hugs::hugs:

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Thank you :sparkling_heart::sparkling_heart: - no not yet but will try this tomorrow, thanks for the tip xx

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Thank you :heart_hands::heart_hands: been trying to drink as much as I can today, but “snoozed” for 3hrs when I got home (am currently wide awake now :woman_shrugging::woman_shrugging:) but will try & continue to get the fluids in tomorrow onwards - again thanks for the tip xx

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Thanks @gromit12 and @altoan 2nd round went well no anaphylactic shock this time so a lot less stressful. @ivegotthis01 i hope you are OK I’ve just had my first round of EC too. Big hugs everyone x

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Doing ok just now (I think) but going to take it day by day. I hope your ok, will catch up tomorrow as will be interesting if we have similar issues, but good no issues this time getting treatment. Try & get a good nights sleep :heart_hands::heart_hands:

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My PICC line fitting and second EC today. Very nervous after what happened at last one and the week that followed. Hardly slept. They’re reducing the steroid dose as they think that was my main problem.
Positive vibes please

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Morning @isthisreal im sending you lots of positive thoughts. I had my first EC yesterday after a nasty reaction to TC a few weeks before. I really hope it all goes well for you. Big hugs You can do this x

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How are you this morning ? Ive seen every hr or 2 last night as was up for a wee then feel I took ages to get back to sleep. Been up since half 7, had a cuppa some porridge & my 1st lot off meds. Heads a bit “floaty” & teeth a slight soreness but nothing major, going to keep the fluids up today & see how I go.

Hope everyone has a good day, ps the sun is out in Edinburgh so may try a wee walk :sun_with_face: xx

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Morning! I was the same slept about 3-4 hrs bad headache. Mouths sore but then was from the docetaxal. However at least the steroid dose isn’t as high I’ve been given 8mg dexamethasone, when I was on the TC I had to have 16mg! It’s a funny time isn’t it as you sort of worry about what is going to happen and how you are going to feel! It’s nice to talk to someone at the same point as me! Hx

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@isthisreal you’ve got this. PICC line insertion is a breeze, particularly after what you went through last time. Positive vibes and virtual hugs :hugs::hugs::hugs: xx

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@isthisreal sending virtual hugs to you. Hope pic line insertion goes well. Take care x

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Good to see everyone seems to be doing ok. I’m on the third day post EC round two and so far seem to be alright. Had a bit more nausea than last time but tbh I think that was caused by the cold cap which was almost unbearable this time! Can definitely recommend a picc line - now mine has settled down I don’t even notice it is there and it makes the whole chemo process and giving blood so much easier!

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