April 2024 chemo starters

I hope you manage some sleep @gromit12 sending hugs H x

1 Like

@tsoph Hope all goes well today. Itā€™s a scary journey but trust your team, they know what theyā€™re doing. If they advise you to take medicine then take it. Youā€™ll soon be one day closer to finishing this journey. Love and virtual hugs. Lx

2 Likes

Welcome @tsoph :hugs: to the club no one wants to join but Iā€™m so grateful for, the advice, support and lovely people on here have been immeasurable for me :heart:
Sorry for the late welcome, been a busy few days, had my second EC Friday 12th April, had a tough week following but have actually felt really well this week so Iā€™ve been trying to make the most of it, just getting jobs done and had a few visits from friends, think they were dreading seeing me without my hair but nearly all had very positive reaction with only a few tears,
Collected my wig yesterday and Iā€™m so pleased with it :heart:
How are you feeling today? Xx

3 Likes

Morning @elle16 im glad to hear youā€™ve had a good week. I had my first EC on last week Thursday, been a bit of a pants week, how long did it take for you to lose hair? Iā€™m pleased youā€™re happy with your wig, I ended up taking mine back and getting it cut a bit as it just felt like a lot of hair! Its made a lot of difference and I feel it looks more natural. Hope you carry on feeling well. H x

1 Like

Hope today goes well, big hugs H x

1 Like

Morning @tsoph - I am with you today going through my second EC.
Please try not to worry too much, easy to say I know but it really is the anticipation and the not knowing thatā€™s the worse part but youā€™ll find the nurses really experienced and reassuring.
I hope everything goes well- will be thinking of you x

4 Likes

Morning @bettysmum @tsoph, good luck for today and hope all goes well. :smiling_face_with_three_hearts:

3 Likes

@bettysmum and @tsoph good luck for today. Sending you lots of hugs.

3 Likes

@hc1973 Iā€™m on day 21 since my first EC. I tried cold cap but had to take it off. I have been shedding the last 3 days but no bald patches yet. Spoke to the hospitalā€™s wig lady and she said it usually takes a week from starting shedding till fully out. So thatā€™s nice I have another few days. Iā€™ll take any small wins in this situation!

1 Like

@ivegotthis01 iā€™ve also been keeping a diary, and really pleased I did. Now in my second cycle Iā€™m finding it interesting the similarities to last time. It helps remind me that those bad days pass and there are better days ahead.

3 Likes

@bettysmum hope today goes well for you, will be another one down and a step nearer the end. Virtual hugs x

2 Likes

I think my headband helped a bit as did some paracetamol beforehand - but itā€™s still tough so well done on seeing it through :muscle:t3: @ivegotthis01

3 Likes

@hc1973 it started falling about two weeks after my first chemo and I had it shaved to grade 2 on day 18 or 19 as I couldnā€™t deal with how much was coming out, I also struggled with wigs but eventually found one Iā€™m really happy with :heart: I mage mostly with hats and scarves but like the option of the wig so I can blend in when popping out if that makes sense? I will pop a photo on of my wig :heart:
Keep going, I know itā€™s hard when you feel poorly but fingers crossed you will start to pick up again soon, I start to feel better once the injections stop , hope you have a good day today :heart:

4 Likes

10 Likes

@elle16 your wig looks fab! Very similar to mine - but mine is dark brown x

2 Likes

Oh thank you so much @elle16 for your kind message. Your wig looks amazing! Mine is a bob too! I had really long hair then cut it to a bob and decided I preferred it so then got my wig cut too! Are you wearing a wig liner? I bought a bamboo one off Amazon but it feels quite big! Itā€™s hard with the hair loss as I know itā€™s going to happen soon especially as I didnā€™t cold cap. So I keep waking up thinking is today the day and look at my brush! Itā€™s now day 8 since the EC however I did have cyclophosphamide and some docetaxal 2 weeks before- it was stopped due to a reaction. I donā€™t want to lose the hair but almost just need it to happen at the same time itā€™s weird! I will post a photo of my wig x

1 Like

Good luck @tsoph and @bettysmum for today. Honestly @tsoph you will feel so much better once you have the first session out of the way - I think the anticipation is worse.

For those of you taking the filstagrim injections, I had terrible bone pain after my first EC but this time I took an antihistamine an hour before each jab and the bone pain was so much better. I could feel it after the last jab but it was manageable and eased off pretty quickly. Now that Iā€™ve got 10 days before my next EC and Iā€™m feeling pretty normal atm x

6 Likes

Hereā€™s my wig, I had to wear sunglasses as my eye bags were a situation! I donā€™t usually wear shades in my kitchen :rofl:

18 Likes

It looks fantastic! Thereā€™s a few of us rocking bobs on here now x

4 Likes


Iā€™m wearing this head band under mine instead of a wig liner, it was recommended to me at the wig shop, I bought 2 for Ā£9.99 off Amazon, really comfortable and does make my wig feel very secure x

4 Likes