April 2024 chemo starters

Oh no that sounds horrible, I hope you are ok now ? As said, treatment plan may need to be changed for you. Be kind to yourself & rest up, this is not an easy ride for any off us :people_hugging::people_hugging: xx

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So sorry to hear that. Youā€™re in the best hands and Iā€™m sure they will sort you out soon.

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Thank you everyone, back home now and feeling a bit better.
Hopefully the consultant will have a back up.
How are you all today?

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Completely know how you feel. I had my first chemo weds this week and feel in a complete daze. There are so many appointments and drugs I have to take. I really want to keep working (I also love my job) and have a 12 year old daughter, so Iā€™m really hoping I start to feel a bit better soon as I have to keep going. So know you are not alone and keep strong x

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@tsoph Im positive he will have a back up plan and hopefully you will have a new treatment plan really soon, but for now be kind to yourself and try and rest up you have been through such an awful ordeal today, sending you lots of hugs :heart:
Iā€™m still feeling well thank you, but also shattered, think it will be a very early Friday night for me xx

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Just catching up @tsoph, so sorry you had a rough time.
Sending loads of virtual hugs :hugs::hugs: x

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@tsoph so sorry to hear you had such a bad day. It mustā€™ve been very frightening. Try to be gentle with yourself this weekend, and do anything that makes you happy so your mind and body get to recover. Lots of love and hugs from me xxxxx

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@tsoph really sorry to hear you had a hard time, hang on in there, oncologists will be able to sort it. I know itā€™s very disappointing as we want to get it over with. Mine has been deferred 2 weeks in a row due to infections.Iā€™ve found the knock backs very hard,this journey will have bumps on the road but weā€™ll all get there in the end. Be kind to yourself as Iā€™m sure youā€™re emotionally and physically exhausted. Sending you big hugs xxxx

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@tsoph Just seen your message, donā€™t panic I had exactly the same reaction. I had the cyclophosphamide fine then started the docetaxal had an anaphylactic shock crash team adrenaline ect they then decided after an hour that we should re challenge it. We did and it happened again 2nd anaphylactic shock. I know itā€™s scary however itā€™s amazing how well organised all the medical nurses and doctors are. I then saw the oncologist who recommended 3 rounds of EC 3 weeks apart followed by Abraxane weekly for 9 weeks. Itā€™s a complete rollercoaster I know! As you just want that first chemo session done and under your belt. However you did have the cyclophosphamide so thatā€™s a good start and Iā€™m sure they will give you a new plan very soon. Sending hugs Helen x

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@tsoph sorry just realised phesgo is not cyclophosphamide not used to all this chemo lingo H x

Hope you are OK too @pollyanna1 i can imagine you feel very frustrated and just want to get on with it! Fingers crossed you have a new date and you can restart soon H x

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Well I seem to be recovering quicker than last time :crossed_fingers:Day 2 and the nausea seems to be better controlled- though Iā€™m rattling and probably need to up the laxido :see_no_evil::see_no_evil: started to really shed hair yesterday despite cold cap :face_holding_back_tears:havenā€™t taken my Noddy cap off yet to investigate. And COVID jab this morning - so hope I donā€™t react to that. Sleep is a bit illusive - probably the steroids. Hope everyone is doing ok xx

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Good to hear that @gromit12 look after yourself and definitely keep on top of the laxido! Hope your Covid jab goes ok. Big hugs H x

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Thatā€™s good news @gromit12 great to hear your doing fine - good luck with Covid jab imagine it could knock you a little so be prepared.
I was also in the wide awake club last night, was shattered after my 2nd EC in
the morning but couldnā€™t sleep ( must be the steroids ) so taking it easy today.
Much like last time for me also, no nausea or sickness just fuzzy head which I feel extremely grateful for however preparing myself for the Filgrastin onslaught which was so painful last time - taken all the advice of the lovely ladies here and :crossed_fingers:well prepared.

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Oh and I canā€™t stand any more of this hair shedding itā€™s dreadful now so todays the day- the clippers have been charged over night and once Iā€™m awake it will be all off xx

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Oh big hugs @bettysmum i keep wondering when mines going to start falling out. H x

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Hi @pollyanna1 I hope you are doing well on your chemo - Iā€™ve read a few of your posts so well done and keep going. Iā€™m still waiting for my results and I know I have chemo coming - thatā€™s going to be the hard bit I think after mastectomy and SLN. You mentioned a PICC line what is this please? Itā€™s hard trying to take each baby step and scary learning too much at once but just trying to get a better understanding. I am hoping to start looking for a wig this week - canā€™t believe I even said the word :crazy_face:. Take care and thank you for your posts x

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Crikey - just saw your post - how frustrating! Well I think I will be with you on the May Chemo group then. Hope youā€™re feeling a bit better. Xx

@bettysmum this hair malarkey is horrid, just washed mine properly and the shed wasnā€™t as bad as Iā€™d anticipated :crossed_fingers::crossed_fingers:but it was enough! Good luck with the clippers today :smiling_face_with_three_hearts::smiling_face_with_three_hearts:x

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@collywobbles a PICC line is a permanent long drip / catheter, that is placed just above your elbow and they thread it up to the major vessel going into your heart- checked on x-ray. They give chemo through, and can take bloods. Needs dressing by nurse every week- I go to a clinic. Downside you canā€™t get it wet, so have to have a cover for shower. Procedure to have it in was a breeze- they put local in and I watched on the ultrasound machine. I had it inserted on the morning of first chemo, and should last for duration.
Called mine Percy!!