That is amazing news. Well done! It must make it all feel like it’s been worth it.
Hopefully that’s a turn in fortunes of some good news hospital visits from now on x
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@elle16 sorry to hear it’s been a hard round this time. I’m at same days since EC3 and it’s definitely been tougher this time too with some new/worse SEs - but hang on in there, usually it turns a corner on day 8-9 so 
for tomorrow x
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Whoop WHOOP so happy for you @ivy-cat that’s so amazing and just goes to show it’s working. Have a fab weekend Helen x
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@elle16 I’ve been the same with random ear stuff…. I have tinnitus already and have had it 20 years so can ignore it but after my first chemo it sounded like there was someone hoovering all the time🤣 was genuinely convinced someone was outside cutting the grass at 11pm one night till I realised it was in my own head!! I can hear my heartbeat too when I’m warm like during a walk etc.
On a tasting note… I can still actually taste salted caramel ice cream lollies so I’m having one almost every night as it’s one of my few eating pleasures at the mo (and I love my food usually!) Bring on the magnums lol!
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@belle1 ive been eating the raspberry ones, I’m not normally an ice cream kind of girl but it’s my go too at the min, freezer full of ice creams, dint think my waist line is enjoying it but getting pleasure where I can right now, have just managed a walk in the forest near me with dog , granddaughter and youngest daughter and has picked me up a bit, roll on tomorrow and a new day xx
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@ivy-cat I did a little cheer for you. What amazing news 
I’ve had a bit of a weird day. I thought everything was on track for next Friday after round 1 being a bit of a blip. I’d been given appts for PICC line, breast clips and I’d organised bloods…
Only to take a call today from Oncology to say I’m being reconsented for the new Chemo on Monday and in on Wednesday to start! (I’d been expecting to be in for new chemo on Friday)
It’s thrown a bit of a spanner in the works, I’ve managed to reorganise the PICC for Tuesday but I just feel like the goal posts keep moving and whilst I’m keen to get moving…I’m also just so terrified.
The oncology booking lady was lovely but was basically saying that because I haven’t yet had any chemo my consultant wants me in ASAP … but it’s making me panic honestly as I feel like I’m a ticking time bomb? Does that make any sense?
I’ve had 2 weeks with almost no contact following the anaphylaxis and now it’s all changed again and I’m just feeling so overwhelmed. I was already booked in on Friday anyway so I don’t get why moving it 2 days earlier makes a difference…but I think that heightens the anxiety more honestly as I feel like…what does this doctor know that i don’t?
Moan moan…grumble grumble. Sorry ladies. Brain fart this evening!
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Really feel for you @tsoph , think it’s really understandable that it’s making you feel the way you do, I think a lot of it is about not feeling in control of things ( for myself anyway) we never know how we are going to be from one day to the next and when you’ve got to deal with last minute changes it must be so difficult, another bit chipped away, but even though it’s hard try to embrace the new date, 2 days earlier to finish rather than to start, sending you lots of love and understanding, you’ve got this 
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@tsoph - I totally get this! I was messed around for ages, had my first consultation cancelled and had to go private because I was due to not even be assessed for 6 weeks and then once I was seen things escalated quickly. I saw the oncologist on the Thursday and the booking clerk phoned me on the following Monday booking me in for chemo on the Tuesday, saying they’d been told to get me in as soon as possible! It really panicked me but in retrospect I’m glad because the process started as soon as it could and since then everything has gone quite well and all my picc flushes are scheduled in to coincide with the treatment. Hopefully this is the start of a good, smooth running treatment regime for you 
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Thank you both, such wise words and youre absolutely right. I need to reframe but absolutely went into panic mode 
its so easy to feel entirely out of control.
Gosh having to go private seems bananas but im glad things then sped up for you.
Just to march into this week and smash it
But id rather hide under duvet 
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You’ve got this @tsoph ! I’m due to start the Nab pax / Abraxane can’t remember how to spell it! I blame it in the steroid reduced sleep! I have one more round of EC then 9 of the the Nab pax. So I hope you get on well. Try not to worry I know what it’s like when you’ve had severe reactions. Apparently this one is better if you had adverse effects to the docetaxal like we did. So you go girl it’s all going to work itself out. Sending hugs Helen x
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@ivy-cat thats amazing news, have a great weekend.
@tsoph its totally understandable to feel the way you are, I think when any changes/delays happen in treatment our minds automatically go in to overdrive. If anything I’ve learnt is to try and take it one day at a time. When people ask how long my treatment is I now just say hopefully it’ll be finished by the end of the summer as the goalposts constantly change.
Hope everyone else here has a lovely weekend and can enjoy some sun and ice cream. For anyone feeling a bit rough, hang on in there, we’ve all the best support here and I for one would be lost without this group.
Remember the sun always shines on good people xxxxxx
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Hi @pollyanna1 i had my second EC on Thursday ( I had cyclophosphamide and Docetaxal originally but reacted the the docetaxal so didn’t get the full dose!) I definitely feel worse. I suppose every time we go our bodies are weaker which you can see when you look at your blood results each time. I took my pegfilgrastim injection on Friday and I always find that makes me sore. Today I have a sore throat which I haven’t had before but then maybe I was snoring! Taking steroids kills my sleep and I’m very hyperactive normally so I think maybe I need to chill out a bit and not try to do so much. It’s difficult as my sons first A levels are this week and I’m desperately trying to appear normal if you know what I mean minus the hair! Anyway rant over just feeling a bit yucky today. Positive Helen will resume soon! H xxx
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Just wondering if you’ve tried taking a loratadine (hay fever tablet) an hour before your pegfilgrastrim injection? I do the daily one instead but have been taking a loratadine before them (as I’d seen a few folk who’d had aches/pains after it said it helps) and haven’t had any pain. Also, an Epsom salts bath afterwards may help if you’re not already doing that too … had also seen that recommended and have been doing that each night after my injection. Hopefully it can help ease the soreness.
I went through a non sleeping phase too for a few days which I think my injections are causing and it’s rubbish. Take care☺️
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@belle1 I’ve been taking the Loratadine too, and also 2 ibuprofen before the injection, and that seems to take me through the night. It does seem to have improved the situation. @hc1973 
just try to chill today and be kind to yourself. I’m still loitering in bed, just seem to have lost my get up and go this morning. Hang in there ladies- we’ve got this 
xx
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I’m definitely struggling after my third EC. Still feeling nauseous after several days and really exhausted. Hoping I’ll start to feel a bit better soon because I’m so fed up with feeling rubbish all the time!
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hope you pick up soon. Virtual hugs. Laura xxHi @ivy-cat hope it starts lifting for you really soon. Meanwhile I hope you have a good tv series to binge or a book. Sending higs
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Just adding to the Filgrastim bone pain advice - I’ve also found the Piriton helps, plus my oncologist prescribed some co-codamol (I think you can just get from Boots) and that helps a bit too. Good luck with it x
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@ivy-cat I’ve also got my 3rd on Thursday finding side effects have changed abit compared to my 1st cycle. Ive had painful hips on thursday which has now went away, but its been replaced with pain in my lower back, which I’ve read can be side effects from filgrastim injections, am going to ask about this next week - anyone else had similar ?? Streching & walking is helping. Laura xx
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