April 2024 chemo starters

Happy Birthday @elle16 i hope you have a lovely day x

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Thank you all for the birthday wishes, it’s been emotional but lovely so far xx

@gromit12 i too hope you are feeling a little better today xx

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@elle16 happy birthday, hope you have a lovely day, even if it’s a quiet one. Sun shinning here in Northern Ireland, that’s always a plus xxx

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Thank you for all your lovely messages ladies :two_hearts: kicked butt this morning and dragged myself from my bed!! Not only did I complete the half, I felt there was more in me so pushed on and got to 18 miles. Super proud :innocent:and cake at finish line :two_hearts::yum:so many other runners said how inspiring I was :two_hearts::two_hearts:



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@gromit12 - you are amazing! I was completely floored by docetaxel - can’t believe you’ve run that far! :raised_hands:t2:

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HAPPY BIRTHDAY @elle16 :partying_face::tada::ribbon::birthday::gift::confetti_ball::balloon:

I hope you’ve had a lovely day despite the steroids and Docetaxel!

Nice to see the sun come out for you! :sunny:
Xx

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@gromit12 You’re like a weeble! Nothing can keep you down for long! Cannot believe what you are capable of doing! I’m saving you as my inspiration for afterwards since I’m just bloody useless right now! X

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Here’s mine. For cancer, it’s up to Ā£10,000. Ā£100 per day for every chemo/surgery etc.

Could help towards the cruise!

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@gromit12, totally amazing. You’re such an inspiration, you’re giving me the encouragement I need to get moving xxx

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@gromit12 you are amazing! X

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@swk1981 thank you, I’m ringing them tomorrow if my brain works lol,
I’ve had a lovely day but mostly slept, taste has gone again , not that it came back properly but keeping on top of mouth wash, and trying to drink lots of water, how have you been this time?
@gromit12 congratulations, you are incredible, well done :clap: xx

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Taste completely gone. Faster and worse than last time. Am obsessively rinsing my mouth but can feel my guts starting to take a bad turn.

I don’t think I realised how much the neutropenic sepsis thing traumatised me until last night when I started to feel the guts and mouth and bone pains and I freaked out. All the things I associate with neutropenic sepsis are the totally normal side effects of the Docetaxel but my body had a huge panic response thinking it’s close to dying. I really struggled to not freak out last night, scared of ending up back in hospital.

Is your taste so bad that you can’t even taste mouthwash? Mine is literally non-existent! My brain has started to remember that there’s no point in eating anything calorific. Not all the time but Pringle Fest has ended for now!

The hardest bit I find is keeping going on water endlessly. I seem to really need 3L a day at this point as 2L doesn’t = clear wee. I guess our livers need all the help they can get!

I also was not aware that you could experience pain where you went ā€œHoly hell! I can feel every single individual bone hurting!ā€ rather than just thinking ā€œWow, my back hurts!ā€ It’s not like anything I’ve ever experienced before.

One more, lovely @elle16…one more…then we’re getting there!!! :yawning_face:

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I can taste the mouth wash today and I can taste sweet things but don’t fancy them. I’m normally a savoury kind if girl but that’s not doing it for me, bran flakes are good as they taste of nothing anyway so don’t feel like I missing anything, I’ve been advised by a friend who’s been through chemo to try coconut water but I just can’t face it, I feel like it’s wiped me out quicker this time and like you I’m anxious of being really poorly again, I didn’t go for the meal today as don’t want to eat anything I haven’t prepared or be around lots of people,
I’m off to bed now and hoping for a good night sleep, it hit me hard on the Monday last time so I’m keeping my fingers crossed for tomorrow, I’ve actually been constipated again today so don’t think it’s effecting my stomach like it has you, but let’s see what joys it will bring me tomorrow. Good night my lovely hope you get a decent nights sleep :smiling_face_with_three_hearts:

@elle16 @swk1981, hope you both are feeling better today. I’m on day 6 and have found this cycle much worse with tiredness and bone pain. I’ve no taste or appetite and feel constantly nauseous although 2 omeprezole daily has helped with indigestion.
It’s totally understandable that you feel anxious, I know for me it was always that first week I felt frightened and vulnerable incase I took an infection as I know each time previously I ended up back in hospital. This chemo really plays with are minds and bodies. Xxxx

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@ivy-cat it’s natural to be anxious especially when we get a glimpse of normality, feeling slightly better then to have another cycle. Ive found this the hardest part. The way I explain it to my family is there’s no other illness that when you feel better you have to make yourself sick again( chemo) to get better. I probably haven’t worded this very well, brain is mush lol.
I know you feel you’ve a bit of a road ahead with surgery yet but I just want to reassure you, chemo is the worse part and you’ve already done so much.
I started this journey in November last year and can’t believe we’re in the middle of June. I keep holding onto what my surgeon told me that I’m investing in my future.
I’m at the stage if one more person tells me I look well I’ll scream lol. My close family just say to me nowā€ you don’t look too bad, considering everythingā€ this I can live with.
Hopefully the shoe shopping went well :sparkling_heart:
Pauline xxx

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I view the whole fiasco as I am not ill, started this journey at peak of health and fitness. But every 3 weeks they are poisoning me and then I have to go into battle to fight the wretched stuff. It’s just a bloody battle. A friend posted a gif of me yesterday -Wonder Woman smashing through stuff- wish I could post it in action -she saw it as congratulating me on my run -I see it as me smashing through the chemo and cancer cells

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Happy belated Birthday @belle1.

@gromit12 - 18 miles, good for you for pushing yourself further!!

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I had this also and put the smallest amount of vaporub ( slightly stingy) in it and cleared in a day or 2. I now put a bit of Vaseline on nostrils every morning t as a barrier and have found this helps with nose running.

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Have the same thing - nose constantly dripping and sore. I use paw paw

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Just done an online workshop on lashes and eyebrows with Head Wrappers. Can’t remember booking on it but it was well worth it.

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