April 2024 chemo starters

Happy Birthday @elle16 i hope you have a lovely day x

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Thank you all for the birthday wishes, itā€™s been emotional but lovely so far xx

@gromit12 i too hope you are feeling a little better today xx

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@elle16 happy birthday, hope you have a lovely day, even if itā€™s a quiet one. Sun shinning here in Northern Ireland, thatā€™s always a plus xxx

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Thank you for all your lovely messages ladies :two_hearts: kicked butt this morning and dragged myself from my bed!! Not only did I complete the half, I felt there was more in me so pushed on and got to 18 miles. Super proud :innocent:and cake at finish line :two_hearts::yum:so many other runners said how inspiring I was :two_hearts::two_hearts:



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@gromit12 - you are amazing! I was completely floored by docetaxel - canā€™t believe youā€™ve run that far! :raised_hands:t2:

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HAPPY BIRTHDAY @elle16 :partying_face::tada::ribbon::birthday::gift::confetti_ball::balloon:

I hope youā€™ve had a lovely day despite the steroids and Docetaxel!

Nice to see the sun come out for you! :sunny:
Xx

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@gromit12 Youā€™re like a weeble! Nothing can keep you down for long! Cannot believe what you are capable of doing! Iā€™m saving you as my inspiration for afterwards since Iā€™m just bloody useless right now! X

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Hereā€™s mine. For cancer, itā€™s up to Ā£10,000. Ā£100 per day for every chemo/surgery etc.

Could help towards the cruise!

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@gromit12, totally amazing. Youā€™re such an inspiration, youā€™re giving me the encouragement I need to get moving xxx

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@gromit12 you are amazing! X

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@swk1981 thank you, Iā€™m ringing them tomorrow if my brain works lol,
Iā€™ve had a lovely day but mostly slept, taste has gone again , not that it came back properly but keeping on top of mouth wash, and trying to drink lots of water, how have you been this time?
@gromit12 congratulations, you are incredible, well done :clap: xx

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Taste completely gone. Faster and worse than last time. Am obsessively rinsing my mouth but can feel my guts starting to take a bad turn.

I donā€™t think I realised how much the neutropenic sepsis thing traumatised me until last night when I started to feel the guts and mouth and bone pains and I freaked out. All the things I associate with neutropenic sepsis are the totally normal side effects of the Docetaxel but my body had a huge panic response thinking itā€™s close to dying. I really struggled to not freak out last night, scared of ending up back in hospital.

Is your taste so bad that you canā€™t even taste mouthwash? Mine is literally non-existent! My brain has started to remember that thereā€™s no point in eating anything calorific. Not all the time but Pringle Fest has ended for now!

The hardest bit I find is keeping going on water endlessly. I seem to really need 3L a day at this point as 2L doesnā€™t = clear wee. I guess our livers need all the help they can get!

I also was not aware that you could experience pain where you went ā€œHoly hell! I can feel every single individual bone hurting!ā€ rather than just thinking ā€œWow, my back hurts!ā€ Itā€™s not like anything Iā€™ve ever experienced before.

One more, lovely @elle16ā€¦one moreā€¦then weā€™re getting there!!! :yawning_face:

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I can taste the mouth wash today and I can taste sweet things but donā€™t fancy them. Iā€™m normally a savoury kind if girl but thatā€™s not doing it for me, bran flakes are good as they taste of nothing anyway so donā€™t feel like I missing anything, Iā€™ve been advised by a friend whoā€™s been through chemo to try coconut water but I just canā€™t face it, I feel like itā€™s wiped me out quicker this time and like you Iā€™m anxious of being really poorly again, I didnā€™t go for the meal today as donā€™t want to eat anything I havenā€™t prepared or be around lots of people,
Iā€™m off to bed now and hoping for a good night sleep, it hit me hard on the Monday last time so Iā€™m keeping my fingers crossed for tomorrow, Iā€™ve actually been constipated again today so donā€™t think itā€™s effecting my stomach like it has you, but letā€™s see what joys it will bring me tomorrow. Good night my lovely hope you get a decent nights sleep :smiling_face_with_three_hearts:

@elle16 @swk1981, hope you both are feeling better today. Iā€™m on day 6 and have found this cycle much worse with tiredness and bone pain. Iā€™ve no taste or appetite and feel constantly nauseous although 2 omeprezole daily has helped with indigestion.
Itā€™s totally understandable that you feel anxious, I know for me it was always that first week I felt frightened and vulnerable incase I took an infection as I know each time previously I ended up back in hospital. This chemo really plays with are minds and bodies. Xxxx

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@ivy-cat itā€™s natural to be anxious especially when we get a glimpse of normality, feeling slightly better then to have another cycle. Ive found this the hardest part. The way I explain it to my family is thereā€™s no other illness that when you feel better you have to make yourself sick again( chemo) to get better. I probably havenā€™t worded this very well, brain is mush lol.
I know you feel youā€™ve a bit of a road ahead with surgery yet but I just want to reassure you, chemo is the worse part and youā€™ve already done so much.
I started this journey in November last year and canā€™t believe weā€™re in the middle of June. I keep holding onto what my surgeon told me that Iā€™m investing in my future.
Iā€™m at the stage if one more person tells me I look well Iā€™ll scream lol. My close family just say to me nowā€ you donā€™t look too bad, considering everythingā€ this I can live with.
Hopefully the shoe shopping went well :sparkling_heart:
Pauline xxx

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I view the whole fiasco as I am not ill, started this journey at peak of health and fitness. But every 3 weeks they are poisoning me and then I have to go into battle to fight the wretched stuff. Itā€™s just a bloody battle. A friend posted a gif of me yesterday -Wonder Woman smashing through stuff- wish I could post it in action -she saw it as congratulating me on my run -I see it as me smashing through the chemo and cancer cells

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Happy belated Birthday @belle1.

@gromit12 - 18 miles, good for you for pushing yourself further!!

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I had this also and put the smallest amount of vaporub ( slightly stingy) in it and cleared in a day or 2. I now put a bit of Vaseline on nostrils every morning t as a barrier and have found this helps with nose running.

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Have the same thing - nose constantly dripping and sore. I use paw paw

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Just done an online workshop on lashes and eyebrows with Head Wrappers. Canā€™t remember booking on it but it was well worth it.

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