April 2024 chemo starters

@elle16 what fabulous news, so pleased for you. Laura xx

1 Like

Thatā€™s amazing news, such a relief to you. Xxxx

1 Like

Phew - what a huge relief!!

1 Like

I have a random questionā€¦. My resting heart rate is usually about 45-50bpm but since I had Docetaxel/Herceptin itā€™s been about 55-60. Has anyone elseā€™s resting heart rate changed on Docetaxel? Itā€™s quite a minor change but just wondered as itā€™s been consistent at that since my last chemo. Iā€™ve still been exercising the same as on EC without issue itā€™s just my watch flashed up saying there was a new trend in my resting heart rate and when I looked I seen itā€™s been since starting Docetaxel. Iā€™m going to ask about it when Iā€™m next in as I know it can affect the heart etcšŸ¤”

3 Likes

@belle1 my resting HR pre chemo was 52. It is now 63-65. It went up on EC. Had an echo about a month or so ago and they werenā€™t worried. HR on running often too high at 160+, so I monitor HR and walk when it remains too high. Laura xx

2 Likes

Thanksā€¦ Iā€™m guessing itā€™ll just go back down again after the nasties are out of our systems. Yeah mines was fine on EC but just noticed it was slightly higher on the change of drugs. Iā€™m the same for cardio - when Iā€™m doing spin I just keep an eye on it and pull back a bit to let it go back down so Iā€™m not pushing it too hard as Iā€™m quite conscious of not going above my max heart rate!

2 Likes

@belle1 - I totally agree! One thing Iā€™ve definitely learnt from this whole experience is what NOT to say to someone with cancer x

2 Likes

Yes mine has too - it started to go up on EC and now itā€™s just generally higher. Iā€™m hoping it will come down once Iā€™ve finished chemo x

4 Likes

Mine has also increased since docetaxel, was fine with EC xx

2 Likes

@pollyanna1 - youā€™re always so kind and reassuring, I really love reading your messages x

2 Likes

Spin class, you are amazing, :heart:

2 Likes

100% agree xx

Eating is even more soul destroying on the 3rd Docetaxel. I didnā€™t know it was possible to feel even more miserable about food. Everything tastes wrong. Either like soap or sugar (and not in a good way when itā€™s spicy chicken pasta).

Iā€™m soooooo desperate to taste food normally! Iā€™m obsessed with it.

It smells right but just tastes completely wrong.

And I think I never want to eat a Pringle ever again after the last 4 months.

Tried a Tonyā€™s Chocolonely Salted Caramel too and it tasted like chips.

Please send help. Someone. Please. I want to enjoy food so badly! :joy:

2 Likes

Iā€™m feeling the same, taste is worse than itā€™s ever been, Iā€™m so looking forward to a normal tongue. Everything just tastes wrong, in my head before I put something in my mouth I think yes this is what I want but then tastes nothing like it should and in a really bad way,
Ended up with crunchy nut cornflakes for my evening meal :weary:

Iā€™m on paclitaxel and itā€™s no better! Treated myself to a mini snickers today and it was such a disappointment- salty, metallic yuk! Asked my hubby why the stir fry could taste so salty when I hadnā€™t added any and he looked at me like I was bonkers :stuck_out_tongue_winking_eye: Wondering if I should even go for lunch with my pals on Wednesday or just stay home and be disappointed in my own food for free :joy:

1 Like

Thatā€™s exactly it! Itā€™s the disappointment of it smelling normal and tasting sooooooo wrong.

I didnā€™t eat until tonight. It was like some pathetic protest against my mouth which just made me grumpy but hunger is so pointless without taste.

If I wasnā€™t so scared of going into hospital I would just not bother eating and at least be skinny.

Are you shakier than normal on this one? My joints hurt loads, especially the ankles again. Iā€™m less tired I think but just weaker and shaky constantly.

Donā€™t bother trying thick cut chips by the way. Texturally, itā€™s like trying to eat some kitchen roll thatā€™s been dipped in flour :nauseated_face:

I almost wish I was knackered like on EC. I realise now how much I slept through those cycles compared to these. Sleeping made it go faster! Docetaxel just seems to be all about the mouthwash and water drinking and never feeling hydrated, no matter how much you drink.

X

2 Likes

Yes! Salt tastes awful now. Even the slightest hint and itā€™s ruined. On the first cycle, salt was necessary to add to everything! If something could at least constant, I may have some hope of finding something to eat that tastes okay! :joy:

1 Like

Immodium advice please. Looks like we have a completion date on our dream house by the sea :crossed_fingers:which is fabulous news. But the date is smack in the middle of poonami :poop:post final Docetaxel :scream: so I have a 3 hour drive along M4. Has anyone taken immodium to prevent diarrhoea in the first place? Laura x

2 Likes

Iā€™m on paclitaxol as well and the food situation is awful. Thankfully dont have ulcers but most food tastes like cardboard. My breakfast of yoghurt and banana is usually ok, but sometimes tastes ā€˜fizzyā€™ (?) I can eat crumpets with lots of butter, but i cant eat much of anything really, just dont enjoy food and not hungry and im normally such a foodie. Whilst on EC i could eat everthing and it cheered me up to have nice and healthy things to eat. Ive lost about a stone in weight, which is not entirely a bad thing. Also as swk1981, just feel weak and shaky rather than exhausted.

@gromit12 yes definitely take imodium as preventative. My oncology nurse suggested i take one in the evening and then i often take one in the morning if iā€™m going out. Someone else was recommended taking a tablet before evening or msin meal to slow things down before you eat. Hope that helps.

4 Likes

Morning everyone!

Just catching up on everyoneā€™s messages.

@elle16 so pleased everything went well and they were cysts xxx

@gromit12 I took 2 x Imodium on Friday the day after chemo and pre my 5 hrs drive to Cornwall and all was OK!

I would just take it!

Sending love to everyone else, Iā€™m currently sitting in a coffee shop by the sea near St Ives, weather is pants but lovely to have a change of scenery.

Helen xx

5 Likes