@elle16 what fabulous news, so pleased for you. Laura xx
Thatās amazing news, such a relief to you. Xxxx
Phew - what a huge relief!!
I have a random questionā¦. My resting heart rate is usually about 45-50bpm but since I had Docetaxel/Herceptin itās been about 55-60. Has anyone elseās resting heart rate changed on Docetaxel? Itās quite a minor change but just wondered as itās been consistent at that since my last chemo. Iāve still been exercising the same as on EC without issue itās just my watch flashed up saying there was a new trend in my resting heart rate and when I looked I seen itās been since starting Docetaxel. Iām going to ask about it when Iām next in as I know it can affect the heart etcš¤
@belle1 my resting HR pre chemo was 52. It is now 63-65. It went up on EC. Had an echo about a month or so ago and they werenāt worried. HR on running often too high at 160+, so I monitor HR and walk when it remains too high. Laura xx
Thanksā¦ Iām guessing itāll just go back down again after the nasties are out of our systems. Yeah mines was fine on EC but just noticed it was slightly higher on the change of drugs. Iām the same for cardio - when Iām doing spin I just keep an eye on it and pull back a bit to let it go back down so Iām not pushing it too hard as Iām quite conscious of not going above my max heart rate!
@belle1 - I totally agree! One thing Iāve definitely learnt from this whole experience is what NOT to say to someone with cancer x
Yes mine has too - it started to go up on EC and now itās just generally higher. Iām hoping it will come down once Iāve finished chemo x
Mine has also increased since docetaxel, was fine with EC xx
Spin class, you are amazing,
100% agree xx
Eating is even more soul destroying on the 3rd Docetaxel. I didnāt know it was possible to feel even more miserable about food. Everything tastes wrong. Either like soap or sugar (and not in a good way when itās spicy chicken pasta).
Iām soooooo desperate to taste food normally! Iām obsessed with it.
It smells right but just tastes completely wrong.
And I think I never want to eat a Pringle ever again after the last 4 months.
Tried a Tonyās Chocolonely Salted Caramel too and it tasted like chips.
Please send help. Someone. Please. I want to enjoy food so badly!
Iām feeling the same, taste is worse than itās ever been, Iām so looking forward to a normal tongue. Everything just tastes wrong, in my head before I put something in my mouth I think yes this is what I want but then tastes nothing like it should and in a really bad way,
Ended up with crunchy nut cornflakes for my evening meal
Iām on paclitaxel and itās no better! Treated myself to a mini snickers today and it was such a disappointment- salty, metallic yuk! Asked my hubby why the stir fry could taste so salty when I hadnāt added any and he looked at me like I was bonkers Wondering if I should even go for lunch with my pals on Wednesday or just stay home and be disappointed in my own food for free
Thatās exactly it! Itās the disappointment of it smelling normal and tasting sooooooo wrong.
I didnāt eat until tonight. It was like some pathetic protest against my mouth which just made me grumpy but hunger is so pointless without taste.
If I wasnāt so scared of going into hospital I would just not bother eating and at least be skinny.
Are you shakier than normal on this one? My joints hurt loads, especially the ankles again. Iām less tired I think but just weaker and shaky constantly.
Donāt bother trying thick cut chips by the way. Texturally, itās like trying to eat some kitchen roll thatās been dipped in flour
I almost wish I was knackered like on EC. I realise now how much I slept through those cycles compared to these. Sleeping made it go faster! Docetaxel just seems to be all about the mouthwash and water drinking and never feeling hydrated, no matter how much you drink.
X
Yes! Salt tastes awful now. Even the slightest hint and itās ruined. On the first cycle, salt was necessary to add to everything! If something could at least constant, I may have some hope of finding something to eat that tastes okay!
Immodium advice please. Looks like we have a completion date on our dream house by the sea which is fabulous news. But the date is smack in the middle of poonami post final Docetaxel so I have a 3 hour drive along M4. Has anyone taken immodium to prevent diarrhoea in the first place? Laura x
Iām on paclitaxol as well and the food situation is awful. Thankfully dont have ulcers but most food tastes like cardboard. My breakfast of yoghurt and banana is usually ok, but sometimes tastes āfizzyā (?) I can eat crumpets with lots of butter, but i cant eat much of anything really, just dont enjoy food and not hungry and im normally such a foodie. Whilst on EC i could eat everthing and it cheered me up to have nice and healthy things to eat. Ive lost about a stone in weight, which is not entirely a bad thing. Also as swk1981, just feel weak and shaky rather than exhausted.
@gromit12 yes definitely take imodium as preventative. My oncology nurse suggested i take one in the evening and then i often take one in the morning if iām going out. Someone else was recommended taking a tablet before evening or msin meal to slow things down before you eat. Hope that helps.
Morning everyone!
Just catching up on everyoneās messages.
@elle16 so pleased everything went well and they were cysts xxx
@gromit12 I took 2 x Imodium on Friday the day after chemo and pre my 5 hrs drive to Cornwall and all was OK!
I would just take it!
Sending love to everyone else, Iām currently sitting in a coffee shop by the sea near St Ives, weather is pants but lovely to have a change of scenery.
Helen xx