@hc1973 Helen- so glad you’re having a good time. A bit of normality in this sea of chaos. Laura xx
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I just lost an hour of my life to Air Fryer videos in Tik Tok, desperate to find some food. Hubby has gone to get a roast chicken and I’m going to try pesto, roast chicken and crunchy baguette in the hope that texture helps. Also going to try spicy nuts.
I’m obsessed.
Also for anyone who has lymphoedema and gets a sore upper arm and heaviness, I’ve found Clarins Lait Jambes Lourdes really good. It goes on like a cream and then goes cold and massively relieves the discomfort. Works on peripheral neuropathy pain in feet too. Grabbed the wrong cream in the dark last night and accidentally discovered some mild relief! X
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Thanks Helen,
Enjoy your time away, sounds beautiful, shame about the sun but you continue to enjoy the beautiful scenery 
I’ve had another shocker of a day, projectile vomiting in the night, horrendous headache, knew something was wrong this morning and had to ring the emergency number,
They thought it was sepsis but good news it’s just naughty bloods and a water infection, been on a drip for fluids, anti sickness and antibiotics and I’m home now, really trying keep up fluids and eat but like you guys I’m really struggling with the taste, I’m so tired of it now x
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@elle16 what a horrible experience for you. I hope this settles very soon, keep up the fluids even if you can’t manage food. We will all be thinking about you and hope tomorrow is brighter for you 
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Thank you x
never thought I’d be so frustrated at a bottle of water, how can water taste wrong ??? 
Oh no! So sorry to hear that @elle16 - chemo really is the gift that keeps on giving. Really hope you start to feel better soon now they’ve found out what the problem is 
Thinking of you, Emma x
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Sounds as though you’re having a lovely, well deserved break - despite the weather x
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Oh @elle16 that’s awful. So relieved it wasn’t sepsis though! I cannot even imagine having a UTI on top of the already top notch hospitality experience offered by Docetaxel. I really hope the antibiotics kick in super fast for you and you feel a bit better.
I hope everyone is taking care of you and that you manage to get a good sleep in to improve tomorrow! X
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Thanks everyone, I definitely feel better than this morning so that’s good, but just want to feel a bit normal , feeling sorry for myself isn’t good ,
@pollyanna1 how long was it till your taste recovered after your last chemo?
@belle1 hows your mouth ulcers? Xx
They’re feeling better now thanks … managed to chew food without pain for the first time in a week today and it was wonderful … not that it tastes right but glad to be able to chew again 
that corsodyl really helped!
Sorry to hear about your day. It’s just one thing after another eh! I hope you feel better soon 
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Had my final chemo today. All a bit weird as I had a nurse who had come over from the transplant unit and had never used the cold capping machine before! So, I basically had to show her what to do and am now fretting it wasn’t done properly and my hair will fall out after six sessions of torture! That would be typical for me 
Then had a phone call with oncology who basically said that they were handing me over to the surgical team now. I did say that I would be back in touch as there’s no way that’s the end of the road for me with oncology - I said I wanted to explore all options for ongoing treatment, which she agreed to. Feeling totally wired on steroids now and not expecting much sleep tonight!
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Elle sorry to hear you’re feeling rotten same happened to me back in April. Make sure they check in a few days the water infection is clear as mine was treated with wrong antibiotics. I found cystitis sachets from chemist really helped( horrible to take) and ate a lot of ice lollies. I’ve noticed my taste really improved around week 3 after chemo, I had a lovely curry last night and have been enjoying coffee this last few days. I’m a big coffee drinker and hadn’t been able to stomach it from March. Hang on in there it really does settle. I finished 1st phase of radiotherapy today and move on to 2nd phase tomorrow. Feeling the tiredness more and a little tender around my scar area. The radiologist team are fab and giving me lots of different creams. Nothing seems to be a bother to them. Hope everything settles for u soon 
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Glad to hear you’ve had your last chemotherapy, hopefully it’s not too hard on you. I totally get the steroid feeling I shudder even the mention of them. I’m 4 weeks tomorrow from last chemo and can just reassure you things will get better. You’ll be great when you go to the surgical team, always remember you survived chemo. You are 100% right in wanting to explore all options. When I had my last chemo oncology said I can contact the team at the centre up to 6 months with any problems or queries, at least this gives some comfort. Hope you manage to get some sleep or have a box set lined up. Xxxx
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So pleased Radiotherapy is going okay Pauline. Have you found any creams to be better than others?
Can I ask what the machine is like that you go in or is it just a table thing?
I haven’t imagined yet what it looks like at radiotherapy! X
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Well done @ivy-cat so glad you’ve had your last chemo,
Thanks @pollyanna1 i think it’s really helpful we are all at different stages and we can get all this advice and tips,
@swk1981 i went in the radiotherapy room for my tattoos and to be measured up, the machine is just a small round one at my hospital not like a full scan machine, worst part for me was feeling a bit vulnerable with my arms up behind my head with no clothes on top half but the team were lovely and put me at ease and I don’t think it takes too long for each session xx
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@elle16 sorry to hear you’ve been unwell, I’m really hoping you feel better soon. Xx
@ivy-cat last chemo whoop whoop congratulations!
Sending hugs to everyone xx
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I’ve been using Aveeno moisturiser to wash with and Cetraben 3 times a day. I started to use Yellow soft paraffin they gave me yesterday. Around the nipple area has been a bit inflamed. When you initially go for scan it’s like CT they do to measure and get pics. For radiotherapy you are on a board with hands behind head and its like a large square machine that moves to different angles ( depending where they’re giving radiation) the whole process is about 20-30 minutes. I got the accelerated dose in 5 days some people get it over 15 days. I now am moving on to 4 booster to where the tumour was. I was quite nervous my first as I think it was the unknown but nothing to worry about. My main side effects is tiredness and so far slight tenderness and a bit inflamed. It’s nothing compared to chemotherapy. Xxxx
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It takes roughly 20-30 minutes. The first time I felt a bit vulnerable also, now I go in and don’t even pull the curtain to undress as the girls are all chatting about holidays and everyday life and put you at ease. I feel I’ve connected more with these girls than the ones at chemo. I think maybe as this is our regional cancer centre and there’s so many radiologists there. The radiologist told me yesterday they treat 300 people everyday. This made me realise how treatable cancer is now and it’s not a death sentence. Xxxx
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