@lilly123 sorry to hear your temp is up.
I have little patches of numbness, nose, mouth, lower back but no pain as yet.
I hope your pain passes quickly and your temp gets back to normal.
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Morning all
I managed to stay out of hospital, but just rung the ward and they were clear anything about 37.5 and I need a blood test!
She said the rash on my hand can Happen, Iv got a Picc flush on Thursday she is going to look at it then unless it gets any worse.
Last day of filgrastim injection today canāt come soon enough.
I hope youāre all starting to feel improvement.
@bigpickle good luck today xx
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Hope chemo goes well today @bigpickle.
@lilly123 hope you feel a better temperature today. I was told 37.5 too. I have had some skin issues in 1st EC cycle - acne type spots around lips and nose, very dry skin and redness. Also very sore nail beds. But in 2nd EC cycle, no issues with skin at all. In fact, my skin is better than pre chemo! Hope your rash settles down. Itās probably another unpleasant chemo side effect that will vanish in a day or two.
Iām now into the part of my cycle where I feel really energetic and healthy. Its 10.40am and Iāve taken 2 kids to school, been to sainsburys, taken 3rd kid to her physio appointment, switched bank accounts, hoovered and done 2 loads of washing. This time last week I was crying in my bed!
Hope everyone else feels well and has a productive and pleasant day. Xx
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@bluesatsuma you have indded been a busy bee 
Me too, took advantage of the energy even if temporary, and sorted a few things that needed done at home, a small step but a step just the same and thatās what counts 
Ih and spoke to the nurse, she said yeah itās absolutely natural the stabing pains in my arm and breast, and it can go on for some time tooā¦ I can breath againā¦
Best wishes everyone, sending love and hugs 
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@dhmb Iām pretty sure I had the same sounding stabbing pains for a while too. I had 3 ops (so far 
) and it happened after all 3 for a while. Last op I had was in June and I donāt think Ive had any pains in a while now.
Enjoy your day x
Yay, treatment is going ahead at 2:30. Apparently my neutrophil level was 0.4 on Thursday, it needed to be 1.5. Itās come up an awful lot ā¦.must have been the dark chocolate! I have put on a few pounds though 
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Excellent news! Hope you are finished or almost. Home soon to be pampered for a few days? Xxx
Oh yes, back home and hubby takes over all duties!
Half way there now , canāt believe itās gone so quickly. Had a chat about docetaxel with chemo nurse, now got more steroids to take prior to starting. My neutrophils had gone from 0.4 to 2.8!
Thanks all for your kind thoughts xx
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The hair shed has finally properly started. The amount that just came out just washing it (Iād been dry shampooing to try to preserve it), dang nothing prepares you for that. Iām glad I got my wig sorted early but flipping heck!!! 
@sez losing our hair is hard, itās not just having no hair but stressful as it falls out
Iāve been embracing beanies and have a lovely wig that I havenāt worn yet. I keep catching myself in the mirror and get a fright. I try to remind myself itās just temporary but its hard what we are putting our bodies through in order to get better.
Hugs
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@sez Iāve had a major shed today too. I shaved mine during 1st cycle and Iāve been happily embracing my buzz cut. However, Iām down to last smattering of hair now. In the shower today, lots came out and Iām almost totally bald now. I am on day 12 of 2nd EC cycle. Iām still not sure about my wig, but happily wearing beanies, scarves and woolly slouch hats. In fact, I think Iām looking quite cool! Having said that, I look forward to seeing it grow back in the spring! Xxx
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Hi lovelies, 
@songbird1 @bluesatsuma yes indeed I was thinking the same about my wigā¦ tooÄ· me ages to even take it out of the parcel, ordered online, brushed it and been sittin on the standā¦ i look at iy every day but canāt get myself to try it on. My therapist asked why i thought that would be , i said because itās fake, not me at all, even though itās similar to what my hair once wasā¦
BUT this is temporary, and definitely more comfortable with a headcovering than a wig, but there will be one time or another where Iāll need to take the wig diveā¦ our anniversary is coming up, no plans yet but think a wig might fit into them ā¦
Apologies for the long post, and wishing everyone the best possible way š©·
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@songbird1 @bluesatsuma @dhmb @sez I think nowās the time to have fun and experiment. I havenāt shaved but look like a character from the Munsters 
. I do think ec might finish it off though when that startsā¦. Iāve worn my wig quite a bit and am more comfortable with it now but find Iām wearing beanies, scarves and turbans now (with or without pretend fringe 
!) Most people know what Iām going through so will be used to the hair one day, beanie the next phase. Must say it has made me try things out I wouldnāt normally and I donāt/canāt hide behind my fringe anymore! Looking for the positives here! Negatives today are stomach ache and leg pains but that will pass. Weāll get there everyone, take care 
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Woke up just now expecting a pillow completely covered with hair but thereās still some on my head. Canāt run my fingers through it without losing a bunch. I just hope it comes back. Losing it once is bad enough, I wish there was a guarantee itāll come back.
Itās been really hard trying to get my nephew (whoās 4) to come anywhere near me (theyāve only been in the UK a week, first time Iāve met him) as heās unsure of me cos he thinks I donāt look like how I do on Skype (I take my glasses off so I can see close) but if I go bald as well I fear Iām going to scar the poor kid and never get a hug or anything. I just wanted my hair to stay during their visit.
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Morning all
Excellent news @bigpickle
Talking about hair my scalp is so sore. i lost a lot of hair after my first even through I cold capped, and I didnāt cold cap this time as they said I had lost too much it would burn my scalp.
Anyway with all the pain Iv booked to see my hairdresser this evening he is staying late so I have an empty salon bless him, not sure if im going to chop it off short or brave the shave. I cut it to a bob before my chemo started so we will see if he thinks itās worth saving some or not. I burst in to tears everytime I think about it, Iv been quite emotional this time round I have to say. Sometimes get a bit fed up with everyone saying how well Iām doing as I donāt feel well at all! xx
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Iām not doing well at all @lilly123, youāre not alone. After cycle 1 having the squits for literally the three weeks in-between Iām this time going the other way and struggling having any BMs so Iām in constant ache and knackered. Mentally still messed up about my filgrastim (even though the side effects of that arenāt as bad this time). Incredibly disturbed sleep.
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@sez @lilly123 , yeah it gets that way doesnāt it? How looks can be deceivingā¦ we smile and joke and keep a stiff upper lift, but inside ot sure doesnāt feel that wayā¦
We are stronger then that though and we will gey through this, this is just a rough patch that we must go through for whatever reason, what comes after is more important remember that lovelies
We can and will get through this 
but thatās me waking up at 2AM with sleep issues of course 
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@sez that must be really hard. I worried about talking to my 2yr old grandson on video with a headscarf on but he didnāt seem too phased. Not seen him in person with it on yet though. It just adds another difficult layer to this tricky time weāre going throughā¦ hope you find a way
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@sez my kids have been ok with the hair loss but their friends have been shocked, even though my kids had explained. I just keep a hat on for my 2 year old nieceā¦she is oblivious. It must be hard for you as you hadnāt seen nephew except on skype, but he will get to know you soon enough. Really hard, but it will be okay in a day or so.
Iām also sorry that youāre feeling not great.
@lilly123 you might feel better shaving it. I found it liberating. I thought Iād be so ugly without my hair and that on a scale of Gollum to Sinead OāConnor, Iād be down at Gollum. However, Iāve found it much easier to deal with the hair loss, seeing only little hairs, rather than 12 inches of thick hair. Plus my hats and scarves sit better on my head. Whatever you decide, i hope you feel good about yourself, because this disease takes so much of our confidence and we have to fight to keep that.
Xx
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Hi
Yes I may brace the shave but I have had to cancel my appointment, I just canāt get out of bed without going dizzy. I have no energy.
I seem to go down hill day 5 and now on day 8.
My other half thinks itās a long time Iv been feeling unwell and maybe it shouldnāt be going on so long.
What are others experiences of when they are feeling at their worse and when they start to feel better? What days? This may help me to understand if this is normal
Thank you Xx
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