Oh what a palava 
, why canât things be straight forward.
At least it got sorted. Good luck with the EC tomorrow.
Xx
1 Like
Thank you @bigpickle! I know, it was mad, I knew it was possible but 
. Yes, onward and upward 
. xx
2 Likes
Itâs like you say @anne3 , as if wasnât enough what we are currently going through, adding things like that like, really,???
all the best for tomorrow, hugs xx
1 Like
@dhmb thank you! Itâs all the extra bits that tip you over the edge! Hope youâre doing ok too, weâre gradually ticking off the weeks xx
1 Like
Iâm kinda okâŠ
Last week i had a pink blotch on my breast, got extremely worried, the oncologist saw it and basically said itâs nothing go home and sleep.
A week and a visit to A&E later, the breast was now half pink and hot to the touch. Oncologist said weâll do a ultrasound for your peace of mind (which absolutely got me fuming but i said nothing apart from thank you) and today all of the sudden I felt wet, looked at it and imagine that the incision had burst and pus was coming out⊠rand the bc nurse that said cover it whith what you have at home (gause) and when youâre in for the ultrasound *today at 4) Iâll come and see you.
Needless to say the content was like pus and ultrasound done, nothing was there⊠
so now proper dressing done, the incision site has how 2 holes and aparently it will sort itself out, just needs monitoring⊠a build up of liquid that chemotherapy prompted even further
Out of all this what absolutely got to me was the expression âfor your peace of mindâ as if i was mad and when i was saying that something wasnât right wasnt taken seriously⊠thatâs what it felt likeâŠ
Canât wait to see what he says when he learns what happenedâŠ
Anyway, part of the worry is now gone because clearly there was a reason why i was feeling the way i did.
To sayni felt belittled is an understatement⊠
1 Like
@dhmb how upsetting for you. Its frustrating when you know your own body and your concerns are swept to the side. Glad you have now been sorted and hopefully it will heal soon. Xx
1 Like
@bigpickle sorry to hear youâve had some bad days but good news you are on the up again now. Where abouts were you through your treatment when you felt the worst? My worst 3 days (so far!) were days 5,6,7 after chemo #3.
Hi
I was EC cycle 3 days 8,9 and 10, so not too unlike your worst days.
1 Like
OMG that sounds awful, poor you. How condescending. As if you havenât got enough to worry about.
Sending hugs xx
@dhmb oh no that sounds awful and I completely understand how you felt. Good for you getting through it and getting someone to look at it anyway. Itâs these extra things that make all this so difficult. (what made my frustrating conversation worse yday with the GP receptionist was hearing her say âoh bless herâ when she put the phone down, like I was mad and didnât understand the process but I was proved right in the end!). It often is what people say that grates the most, but you know you did the right thing and werenât just imagining a problem. Hope it does all resolve itself now, youâre right to keep an eye on it 
1 Like
Just catching up with everyonesâ day. @dhmb that sounds awful. Iâm sorry they were not listening to you but glad its ok now.
@anne3 good luck for tomorrow. You remembered well⊠Iâm in for EC 3 tomorrow too.
@bigpickle glad youre beginning to feel better.
Xxx
1 Like
Hi all
Blimey as if we are not going through enough we have to put up with more rubbish.
So sorry to hear that you had that happen to you @dhmb sounds horrendous! Hopefully it will heal now xx
Glad you starting to feel better @bigpickle thise good days are certainly a breath of fresh air! Iv been good for a whole 9 days, looking forward to this weekend before my next cycle on Monday.
Good luck tomorrow @anne3 xx
@sievehead my bad days start around day 6 and continue through to at least day 13 xx but both of my last treatments were different as I had a change in dose. Iâm apprehensive to see what this next one brings! Xx
2 Likes
Good luck to those in tomorrow for their next sessions
3 Likes
Thank you everyone for you well wishesđ«
As it has been said before, you get it, not easy to explain to those who arenât in the position that we unfortunately find ourselves in⊠you just simply get itâŠ
Itâs almost 4am and Iâm worried⊠i know the fact of being woried isnât helpful and only wears me down yet i canât help it⊠the doctor doing the ultrasound was asking questions⊠Iâm concerned that he might have seen something that lead to those questions or it might just be questions to generaly understand what lead me to needing the ultrasound to begin with⊠trying to to worry and think positive because truth is being woried doesnât change a thing and i know that but still⊠at this point Iâd really prefer to be called a twat and itâs all in my mind 
Anyway⊠going to start taxil in a few hours thenfirst of 12⊠fingers crossed no changes to that and hopefully if no delays Iâll finishbthe Friday before Christmas
Been keeping myself busy with 3 crochet projects on the go, to finish the grany squate blanket for my son (only need stitching the squares together), 50 something Christmas broaches as a thanknyou for the employees of a small charity (again only needs to be assembled) and a doggy blanket as a thank you to the friend that cut my hair in a kinda pixie styleâŠ
Apart from that my breast is feeling more comfortable and more in a fighting mode that Iâve been latelyâŠ
How do you guys keep busy?
Semding love and hugs to everyone and good luck for today for those goong through treatment 
4 Likes
@dhmb the brain really does go into overdrive in the middle of the night. I do hope things seem calmer now the day has started. Good luck with your treatment today. Ive heard treatment will fly by now you are only weekly doses.
To keep busy i do lots of crafts which it sounds like you are already doing. When i cant be bothered to craft i pick up my colouring book which i find helpful. And jigsawsâŠboth actual ones and digital ones. And now that Married at First Sight UK is back on the TV i can lose a fair bit of my week getting involved with their dramas 
!
Xx
3 Likes
@dhmb. good luck today! I do know what you mean - that time of the early morning is the absolute worst time when everything seems magnified. I can feel fine during the day then feel so anxious at 4am! Your doctor was probs asking lots of questions just to get a clear picture but at least they know now there was an issue of sorts and can keep an eye on things⊠This evening you can relax knowing youâve started this next cycle. Take care xx
1 Like
@dhmb Iâm sure the doc was just being thorough. 4am worry-fests are a speciality of mine too. I get up and write poems or lists or questions. But things often seem better in daylight. Hope your first taxane went well. Hope you get sleep and peace tonight. X
Had last EC today. It was drawn out by staff shortages. My 12.30pm start was delayed to 2pm and then the poor nurse was trying to look after 6 patients on her own. One knocked her line out and spilt her chemo so 2 nurses had to put ppe to clean up the toxic waste. Then i think a couple of people on trials had their chemo delayed by labs. The lovely nurse kept getting called to other people so there was a lot of waiting. I was finished at 5pm. My longest visit so far.
Home for a chip shop tea and movie with the kids. Got a whole new set of meds for my switch to docetaxal next time. Now to see which side effects plague me this round. Insomnia definitely! X
4 Likes
You are right @bluesatsuma , as said before, in dsylight things do look better.
Had treatment and the nurse came by to have a look and do the dressing. I was good to go. On my way out, the nurse that administered treatment came to me saying she had a chat with the nurse that did the dressing and they feel that this is something that my surgeon should look at and assess. So definitely something is up.
As soon as i got to the car booked an appointment for next Tuesday, so until then we wait⊠also spoke with the breast care nurse to update he and she also thought a good idea. Come on Tuesday!
Treatment went well but left me so sleepy, i slept the whole afternoonâŠ
Hoping everyone has a peaceful night xx
2 Likes
Hi all. hope youâve had a good night. I slept well but I still feel a bit headachey and woozy after my first ec, just a bit light headed. I was there on the ward 12.0 till 2.30 so my shortest visit as paclitexel was on a drip and took 3 hours at least.
I did find the syringes quite amusing - administering the erubicin in what to me looked like a big toy syringe filled with RibenaâŠ. but thatâs just how I think sometimes 
.
Hope youâre all ok this morning. xx
@dhmb sorry you still have another concern but not long till Tuesday so hopefully youâll get some reassurance. I see the cardio cons that morning for MRI results plus have an echo so will think of you Take care
2 Likes