Heavens Lulubelle - your wreck lol
Jackie - I wasnt offered immediate recon because it was apparent from my ultra sound that I had loads of lymphnode involvement and would need rads. In fact on consideration one of the lumps i found was a lymph node not tumour.
I was so unsure about recon as well and the waiting list is wales is ages from referral so I have plenty of time for umming and ahhing. I probably will go for it but I dont want any thing that requires muscles being moved - so that limits me and equally i want to lose weight and I know that you have to have a bit of a belly for the free flap. Good luck on holiday - I think you will be fine with a tankini and softy - i tend not to bother too much about it but as I have got fatter my uniboob is massive so you notice the difference more than when I was slimmer.
Thanks again for the support gerties xxxxx
blimey lulu, so many appts honey - you will meet youself coming back. Keep us posted with your results etc. Have everything crossed for you. Rach, beach sounds glorious, sorry you didn’t get to SofF cos of volcano, but perhaps in your current Denby plate throwing state, not a good idea if you have to contend with FIL. Well done you for getting through the anniversary. Mine is looming, I know it will be strange feeling. Like NNL, not been on, cos I stray and read posts that I shouldn’t. A very selfish attitude, I know. Back to work, want to dive in feet first, but can’t. Still very tired, but bloods were checked last week whilst having herceptin and all ok, I suppose its just getting back to norm. I have 9 herceptins to go, if my ticker holds out that is! Went to see Les Mis in Bham on Sat - it was fab. I am taking a leaf out of Sal’s book and filling my diary with social appts and not hospital ones this year! Al, CP looks fab, your photos are great!
Hope you’re all keeping well gerties, looking forward to the Tamworth meet.
Love you all
xxxxxx
Hi everyone
Excuse me for butting in but I had something I wanted to ask you all.
As a few of you have mentioned, this thread has been running for a while now. As we’re getting close to May, I think it might be really confusing for new people to the forum to find this thread in the “newly diagnosed” section (especially with the title).
This has happened with other threads, and what they’ve done is to start a new thread, with a new title, in a different section (e.g. “living with breast cancer”, so they can continue to chat and support each other.
So I was wondering whether you’d be OK with starting a new thread, perhaps in one of the other sections? The alternative would be to move the thread (I can do this for you) but I think you’d still need to change the title (otherwise it’ll still be confusing for new people who are looking through the “latest posts” bit).
Let me know what you think. If you want me to start a new thread (or move it) for you, I can do that (just let me know what you want it to be called) or you can just decide amongst yourselves and go ahead and start one.
with best wishes to you all
Leah (BCC)
leah, yer i see where your coming from. don’t want to confuss newly diagnosed ladies any more. Maybe we could change it to
coming out the other side - one year on !
would want to keep this thread going though, but with the new name !
What do you girlies think?
lulu, good luck with all your appointments babe, keep us informed. I start back to work on the 10th of may too…big day for us both. I will have had 1 year and 1 week off…scary or what.
Well done rach on passing your first anniversary. what we going to plan for all our 10th anniversaries mate…got to be bigger than a tandem jump…and dont say buuunnngggiiieeee either lol
im happy to go with the flow with regards to the thread… as long as it (or its offshoot) is still in the latest posts ill find it… i like your suggestion for the title pauline.
cheers gerties for the good wishes… more worried about getting stabbed again than the actual result my veins are still rubbish.
got my new specs today… think they are great will post a pic soon.
Lxx
Leah, Pauline and Lulu
I totally agree - and love the idea for the name Pauline! More than happy with that!
Love you all!
Shenagh xxxxxxxxx
Thanks everyone. I’ll leave it a few more days to give other people a chance to say what they think, but if everyone’s happy with it, I’ll move it over early next week.
Leah
That’s ok with me too! Good name Pauline.
Lulu - I have an underactive thyroid and have done for 14 years - I’m on 175 mcg of thyroxine daily - I rattle!!
Girls - I’ve had a bit of a pants day. Had my appointment with oncologist and latest liver MRI still shows the lesion, which I guess is good because if it was bad then chemo would prob have shrunk it and it hasn’t shrunk. Report still can’t characterise it for certain although they think it is an hermangioma. Onc is referring me to a liver surgeon - WTF! Also, my scar is lumpy and when onc felt it she decided that I need an ultrasound. I suppose I should just feel happy that she is taking me seriously, but makes me feel like this will never end. Sorry girls - just on a bit of a downer at mo.
Love ya all. Up yer viva
al
x
oh Al, thats no fun!! hope you have had a glass of something to cheer you up! lots of hugs x
Leah I’m quite happy with the move and Paulines new name!
Girls will you just remind me what it is!!! memory still not improved!
love to all debs xxx
Al sorry to hear you have more worries… haemangiomas are fairly common within the body… i have one on my spine which showed up during my mri scan… but at least they could say with certainty thats what it was.
hope your appts come in soon so your not worrying unduly.
sending loads and loads of cyber huggies and luvies to you xxx
got my appt in to see the plastic surgeon… 11th may the day after i start my new post so think ill need to change it… not like it urgent anyway.
im off to glw tomorrow for lunch and to participate in a research study at the BCC glasgow office which is round the corner from where i worked in GLW.
also off to London at the weekend to the BCC family history conference if my flight isnt cancelled.
my daughter has some bug and has been puking all night too… green and nasty… yeuch! hope she is gonna be ok if i leave her
hugs and kisses xxxx
Lxx
Hello all
Leah - yep fine by me and I like paulines title too
Al - bless you honey - the liver will sort you out - i bet you have had it all your life and its only cos of the BC cr*p that they found it!
Lulubelle - you seem to lurch from one crisis to another - lol - hope the D&V isnt catching xxx Good luck for the new job!
Girls I have to say read the C word by Lisa Lynch just out about a week ago based on her blog alright tit the book is amazing - you will see your self in it.
right ho off to work now
love you my gerties
p.s. Pauline I will say BUNGEEEEEEEEEEEEEE and i will do it with you x
helllo
yes sounds good about the thread new name
ali, sorry you are going through this bad time again, we are all with you,
rach my sons face has calmed down, so i defo think it was the bubble bath, he has dates for 3 day assesments in june, where they will really observe him, theres cameras so they dont miss anything, so hopefully i can get him sorted before he moves to secondary school, well done on passing your mocks, i still have alot of work to do, so i have to apoligise for not getting on hear or fb much.
lulu you have some much going on, good luck in your new post
luv you all but must go and do some more work roll on june
julie xxx
new thread title fine with me, just hope I will remember where to find it!
Al - sorry you have lots of worry at the moment, everything crossed for you hun and big hugs. Keep us posted.
Gerties, I am worried. I am getting real bad aches in collar bone and above BC boob and into neck, feels like a gland pain. Can’t feel any lumps, but just aches and aches and aches, all day long and all night. Could it be post rads - its been 2 months now. I am so frightened I daren’t mention it to the ONC. What a wuss…
love you all,
xxxx
Jayney
I am the same -really deep down soreness, tender ribs and muscles, lumpy sore bits on the scar tissue, and aching 24/7 that doesnt respond to typical pain killers - I saw my Mr wondeful surgeon a few weeks back and he reassured me that it was nothing just post rads inflammation. But jayney babe please see your onc and get it checked - we know the probability of it being anything nasty is remote but get it checked any how.
love to ma getries yo!
p.s. have lost the plot rather feeling very very low on brain power at the mo cant remember anything??? chemo brain all over again!
rachel, i have the ‘C-WORD’ in my hand as i speak…just started it half an hour ago, looks like its going to be addictive
lulu, ali and janey (((hugs)))to you all, if you have something that your worried about it needs checking and good luck with all your results…will we ever be free of worrying ( yer for 2 days in june lol)
Leah, sounds like everyone is happy with the change of name, what happens does this thread stop, or does it get a change of name and moved under a different catagory? we will be fine with the move as long as move together lol
Roll on 12th june, only 2 cp gerties NOT going now, karen signed up this morning whay hay party luv u all NNL xxx
hi all new thread fine by me,oh what a great thread we have had i feel so lucky meetin all you guys,jayney,i get alot of pain all around were i had my op,bumps all over my scar line,im sure its rads mention it im sure its nothin,cant wait till june xxxxxxx
Jayney dont be a wuss huni get it checked out… fingers crossed its just residual pain from the rads.
the research thing was cancelled in glasgow but only found out after id driven the 50 miles there… hey ho… but i had a really good chat with some of the folk that worked there and one of their volunteers.
my flight to london wasnt cancelled and the family history conference yesterday was brill.
love n huggles xxxx
hi
jayney, i get lots of aches in my left arm and leg, especially at night, i mentioned it to my sis who said “yes i had that too”, i am going to mention it at my year check in may, but still think it is due to chemo,
lookig forwads to our june reunion gerties
julie x
Hi girlies
I can’t remember if I told you when I last posted on here (or if it was on the CP thread) that I am back to Edinburgh tomorrow to see my surgeon - I have finally decided that I DO want to go ahead with the double MX I have been offered as a preventative measure. Took a long time to make up my mind, but now that I have, I feel a lot more content. To be honest, I now wonder how I could have considered not having it done. I just feel that I have to do everything I can to keep me here for little Jai.
Thanks for all the lovely messages since he broke his leg last week, it has been a bit tough but we are getting there!
Lots of love to you all, and I am so gutted that I won’t be at Tamworth in June - I am expecting lots of text messages!!
Shenagh xxxx
Hi everyone, sorry been off the radar a while, not sure why? Looking forward to June and seeng everyone again. Life is good, however i think i now have lymphedema so i am popping to my GP have been told that a specialist nurse maybe there if not it will be another trip to the hospital. Hope everyone is well!!
Karen xx