Coming out the other side - one year on!

Hi everyone

I’m about to move this thread to the Living with Breast Cancer section, with the title “Coming out the other side - one year on!”

If anyone has trouble finding it, please let me know.

Thanks for being so understanding about this. See you in the new thread!

Leah (BCC)

if its in our saved discussions will it automatically be saved or would we need to save it again with the new title?

oh well i can answer my own question now LOL its automatic.

Thanks gerties for your responses, you all know how I feel, like I want to bury my head in the sand, cos can’t take anything else negative! Just feel a bit off and really tired. Maybe this is due to getting back to work. The tiredness is something eles isn’t it. It gets me down, just don’t have any energy. I don’t feel breathless, but have this strange muscualar pain in my boob. I will get it checked I promise. It does hurt and makes me want to press it in!!! I am due to have my first mamogram at end of June but will see Onc again in 6 weeks (he’s not there for next herceptin on Mon). What a carry on eh???
What would I do without you lot, thanks gerties, love you all
xxxx

shenagh i hope your appointment is going well hunni. let us know the outcome.

i am seeing the plastic surgeon at sjh on the 11th to discuss it, apparently there is around a 12 month wait which is god as it gives me time to think about it.

its such a shame your not able to make it to tamworth, but hope you can make it to hamiltons on the 15th.

karen looking forward to seeing you again in june.

jayney glad your going to get checked… sending big squashy cyberhugs.

Lxx

Hello gerts!
She - proud of you honey it has not been easy for you xxxx
Lulu - you nutter lol!
Jayney - I too have my one yr on visit with my wonderful supper surgeon (I also mean that gerts he is super and wonderful and I have a huge crush on him cos he has looked after me so well)I now have a number of small pea sized lumps just inferior to my Mx scar - they are exquisitely painful and will throb for no reason. I also get a clamping squeezing pain under my scar that can take my breath away - when I see my lovely surgeon I will meantion all of this - I see him on the 24th May.
I’m also have palpitations due to the tamoxifen and hot flushes. And to add insult to injury I have the gobi desert in a region of my anatomy that should be a damp as the everglades!!! saw lovely Gp and now have px for replens MD - but come on gerties that was my one thing I could do without help lol x
love my gertie girls xxxxxx

Rachel…you call me the nutty one!!! you have such a way of describing things hun but yer i’m with you on the dessert one, glad it’s not just me. i’m not brave enough to go to docs about it…let alone share it with everyone on here…oh i just have hav’nt i lol. Glad your going to get your lumps checked mate, i go on 28th may… I also got put on blood pressure tabs today, which i think is down to the tamox and ADs…hope it’s sorted soon or doc wont let me jump!!!

One yer ago today…i had my MX, one whole year living with one boob!!! hope i get a cancellation soon !!!

Lots of luv to all my nutty mates from NNL xxxx

NNL - get yourself off to ur GP and ask for a prescription of replens MD - i have a 12 dose tube - OMG - I am so much more comfy - not just for a bit of nudge nudge wink wink but just generally - I was stunned at how gobi like everything had become and how i sort of got used to it - if you cant face your GP you can buy it on line my adv is dont; remember ur GP has seen it all - I just said I was having tamoxifen SE of vaginal dryness and could i pls have some replens - i suppose it helps to know what you want etc. If you were my patient i would see you straight.
one yr with out boob - I was sat in limbo - had the dx and was waiting for frankie to get home from school camp so we could tell the kids then on May 21 off it came.
Today some very very sexy lingerie appeared - a strap for above my boob and a front fastening compression bra - fab man was nearly over come! Afte he stopped laffing that was lol - but - for all my joking just 2 hours has made a diff to my armpit boob!
up yer viva gerts (Literally lol) xxxx

Hello ladies,we had a longer holiday due to ash in the air - 6 more days of sunshine…the problem was i didnt had tamoxifen with me for so long time ,we walk in pharmacy in Ibiza and lucky i was ,we were able to bye some there no prescribtion …it was Spanish made so i was concern about changing the brands…had to take it only for 3 days -no problem so as soon as i came back went to my own ones…Here i am with my little one who wasnt 2 yet last year when i was dx…Chris i feel so lazy that i stoped my walk for months now …soon we go to my parents in Bulgaria where we will stay for 1 month,i wasnt able to go last year at all-due to all that…Debs your hair is great too…Thanx Lulu for your support i hope you enjoy your new job…hugs to everyone Christina

hiya gerties
well this work thing is sh#gging me out, dont seem to have time to do anything else, let alone get on my new bike lol

just wanted to share this poem that my 10 year old has wrote,
its titled
the earth

one of the wonders of the world
colossal, round, beautiful
like a football rolling on a field
like a pearl in a deep blue sea
it makes me feel tiny
like a flower that`s not fully grown
the earth
the only planet with life.

it bought a tear to my eyes, as he has no confidence in himself, but i think its fab, hope you liked it
loving you all julie xx

Julie, that poem is fab!!

Havent been on here for a while girls but had to have a look after I saw a comment from pauline on fbk, now i know girls, gobi desert!! lol

Jayne, know how you feel I’m also very achy around scar and boob, keep putting off ringing but have appt 25th so …will ask then!

Have a lovely weekend girls even if we dont have the sun, its an extra day off work!!

love to all debs xxxxx

Julie - me now in tears - what a lovely poem! Really beautiful!
rach and NNL - gobi desert here too - what a pain in the ar"e!!! (well not literally!) Been to GP and she given me KY on repeat and told me to use heaps of it - bless her - she is the best! Will ask for replens next time. Gorgeous photo Christina!
Debs - always nice to hear from you and glad you are ok.
Like Julie - work is completely sha**ing me out too! My phased return is far too optimistic according to Occ Health so cut it right back, which although I winged at, I knew in my heart of hearts she was right (I just hate being wrong). Came home yesterday and slept for 2 hours - very frustrated with lack of energy etc. Herceptin next wk which will flake me out even more! Smear test yesterday (I thought of you Rach, all your smear test stories, I had a little giggle as I was lying legs a kimbo!). If it’s not the top half, it’s the bottom! This time last year, I had no idea what was about to bite me on the ar*e - its a very strange feeling. Good luck all with your up and coming appts - can’t wait to see you all in June for a BIG GERTIE HUG!
xxxx

By the way - PINCH, PUNCH, FIRST OF THE MONTH!
xx

LOl Jayney - glad your taking it a bit easier (this coming from a girl that has just pulled x3 12 hr shifts on the trot - barking mad I couldnt be fagged to get dressed til midday today - gopping DG was well comfy) talk about topping and tailing Jayney I hope you were well behaved and didn’t make your practice nurse blush?
The KY is good for you know what but it doesnt hang round for long and it pH balanced to provide longer term moisture - so get the replens MD on Px - btw durex make some soooooper loooob if your looking for stuff other than KY. - oh i sound just like a sex therapist now lol
I really must do something with my weight - I am eating for Wales at the mo’ i have to watch my fingers near my face - they might just disappear with what every I’m troughing.
right ho me gerties love ya xxxx

Thanx Jayney…i had same problem 2-3 months ago…gobi desert-he that is nice to call it…i found my skin will brake if i use normal soap for washing…so stop that- use natural soap from health shop with olive oil,wich helps and also not using any bath products just water…if that can help …Julie that is great poem …ilove it,you must be proud of your little one, often people who are talanted to write poems or music are not very confident and often shy- but they have great talant…it is raining here horible not same as Ibiza…have good weekend everyone …Christina

hi girlies,im feelin really down at the mo,my neck,shoulder and arm aches all the time,i feel like im grievin for the old dawny,cant stop cryin and feelin scared nobody understands except you guys, julie,what a lovely poem hope your all well and cant wait till june love ya xxxxxxxxxxx

plus ive just had a new carpet after all my hard work decoratin got up this mornin some t…t left the door open and pippin has s,t everywhere and she had her head beind the sofa with her backend stickin out,she thinks you cant see her cause she cant see you,anybody want a bulldog lol

Oh Dawn honey (((((((((((HUGS)))))))) and get a cork for that bulldog!
It can be really hard to keep moving forward when fear causes emotional and physical paralysis. I am so angry at times because i am not back to the way I was this time last yr - I am sooooo fat and so unfit (yes I am trying what with the gym and diets)and like you i have pain - dawn what you me and loads of others are feeling is totally normal and natural. My pal asked me if i wanted to go back on the antidepressants - I stopped during my chemo when I couldnt keep stuff down it was easier to just stop. I said no not at the mo cos most of the time I’m OK the rest of the time I am a denby throwing mad woman - btw can you pop to the seconds shop for me just down the road from you …lol!
So dawn my hon I ma sending you loads of love and warm positive vibes xxxxxx

rachael,bless you and thankyou xxxxxxxxxx

Hello ladies. Been away in South Africa for the last 3 weeks and haven’t had chance yet to catch up on everyone’s posts. Just wanted to share something; I just got a letter through the post informing me I’ve got a BRCA 1 mutation, so am also at increased risk of ovarian cancer. It really shocked me and I’m a gibbering wreck.