Hi Caro
Sorry to hear your latest news. If you need someone to talk to, please phone the helpline, they’re here to support you through this. The lines are open now until 5pm tonight.
Take care,
Jo, Facilitator
Hi Caro, getting such news is always a shock and I really feel for you. (I know how I was when my bone mets were diagnosed) but try not to panic. Its all about increased risk but now its been discovered they will monitor you closely. It will probably help to talk it through with the professionals. My GP came to my home to tell me my news and it really helped to hear her opinion and experience of secondaries and by the time she left I had stopped crying and shaking and felt I still had a future!!! If you are anything like me you will be googling like mad, but I hope you get responses from others ladies with the same diagnosis cos I found nothing as reassuring as hearing from others who are in the same boat, yet doing really well. Hope this helps a little, Sending you lots of love xx Debbiexx
good morning ladies
thanks for all the comments re michaels poem, i`ve told him he must keep a book of his poems, who knows he might be the next keats, get me pretending to know about poems
caro sorry you have had that news keep strong babe were all here for you
dawn i was very down last week, infact nearly bumped my car as i sort refuge at the cemetery and turned abit quick, what with my incesitive oh, michaels problems and then walking into pick jayden up and being told hed been swearing, just felt like i couldnt cope,i too have alot of aches again and with my inpending years visit to bc center,
debs my boob this week has felt very tender so i put abit of aqueous cream on feels abit better today, but i will mention next week at my app
kritina love you too glad you have joined this thread
bloody hell have you seen the time 8.17am better get ready to be out the door for 8.45
byeeeeeeeeeeeeeeeee j x
hi all
caro - you had my response to your news vis text but i cant repeat it here lol - honey love you loads and i know you will handle this xxxx
I’m ok - only two weeks to my big exam - now formally having big issues with it lol
having right old time with the tamoxifen - now 10 days and still on a period - my first since oct 2009 - feel bloody awful - full and dragging feeling in the abdomen back and thighs - i was never like that before, and so light headed and weak - not helped that I am pulling mega shifts to get all the practice in for this bloody exam (and yes before anyone says do I have to do it now the ansa is YES lol)
I have started back on the iron tabs and trying not to drink booze and eat well - but craving GnT and chips lol
love you my gerts
r xxxxxx
Caro, I hope the holiday was fab, but what news to come home to… sent you a msg on FB, with you every step of the way honi, Lean on us, you can deal with this, you are one fiesty lady. Big hugs. Here for you.
Rach - not lecturing, but take it a bit easier honi! Period sounds a nightmare, sod the diet, look after yourself! The weight will come off. Mine still not re-appeared.
Dawn - big hugs for you honi - it’s all completely normal to feel like we do, our bodies have been through the mill. Don’t let’s forget that. I get very frustrated and upset that I just don’t have any energy and feel like I am dragging myself round. Like you, I miss the old Jayney!
Took your advice gerties and seeing the lovely Oncky tom, spoke to BCN re pain in chest and she didn’t want to leave it for another 3 weeks for me to see him, so seeing him tom at 9am - roll on another sleepless night. Waiting on smear results, just seems like an even bigger deal now. We seem to be going through it a bit at the mo…
Kristina, glad you have joined us.
love you gerties
xxxx
Thanks ladies for your kind words and support. I’m feeling a lot better about it now and have started getting my head round things. I’m just really scared of having more surgery, even though it’s a pretty straightforward op they do via keyhole – I’m such a wuss! I’m also really worried about the SEs from being put into permanent menopause; if the hot flushes get any worse than they are now… On a positive note; it will take care of the contraception issue, lol. I just want to get back to some form of normality.
Rachel, you MUST slow down, and yes I am lecturing you! I’ve also restarted my periods but they’ve only been lasting 3 days, yours sounds awful hun, have you mentioned it to the doctor?? I think some chips and a G&T are exactly what you need right now. Good luck with the exam, but please put your health first.
Jayney, I hope the meeting with your onc went well this morning. The pain sounds like it’s from your rads huni, but I know it’s best to get it checked out. I’m wondering if it might be worth me having a full hysterectomy (not just an oophorectomy) as they remove the cervix too, which would mean no more nasty smears, uggh.
Dawn, have you spoken to anyone about your arm/shoulder pains? It might make you feel better to get it checked out for the reassurance. Sending hugs.
As for the Gobi desert; please don’t hate me ladies, but I’ve been exactly the opposite lately and have been having lots of you know what (especially on holiday)! I’m sure that will all change once the ovaries have been whipped out 
Sending you all love xxx
Caro - sooooo jealous lol!!! I was gobi less for all of two days before a flood of another nature began - well hot damn!
Re your thoughts on hysterectomy and oofrectomy (TAH & BSO to the informed) It is a much much bigger op than the key hole even if they manage to do it vaginally.Also consider who does your op - are they very very careful to conserve the pelvic sensory nerve supply to make sure that you know what is as good after as it was before!
I promise once my exam is over i will slow down and get some rest in - we are off to NYC straight after I get the results so talk about make or break huh?
Jayney glad your seeing oncy Tom - I am looking forward to seeing my super surgeon ( oh I have such a crush lol) I keep trying to diet but by every wed I am sooooo ready for a hard drink and plate of buttery toast and marmite lol
lots of love Rachel
p.s. leah (BCC) contacted me re our Cp trip - we may be famous yet gerties hold on to your knickers lol
Hello to all my old chums, been following this thread quietly for a while - you do make me chuckle. Gobi desert… 
Good luck in exams Rachel and enjoy the hols afterwards. Nice to see u again Christina and looking so well.
Janey am sure things will be ok - but u are SO right to get it checked.
Loved the poem… oh and so much else i should remember to say but age the tablets or gin soaked brain not up to it!
caro thinking of you, i am seeing genetics counsellor next week…
have you seen this website?
Love to all
Hi all
I havent been on here for a while posting a comment but I have kept up with all of the news and happenings.
Not had any probs with the ‘gobi desert’ have had stabbing pain in chest had it checked out and all ok. Im still weeing for Wales and England,Scotland and Ireland too. I had No 6 Herceptin yesterday and going ok with that too.Just wondering if anyone else still has bouts of tiredness, last week I was full of energy this week its gone im knackered all the time.
Mustn’t moan really as all in all im doing fine.
Its lovely to hear that we are all getting on with our lives as this time last year we were all in the throws of it
Good luck Rach on your exams.
Julie hows things now with your son
Christina text you soon hun.
Oh and ive finaly dyed my hair blonde and it looks fab.
Love to all
take care
Sally xxx
Hi all, so confusing - so many threads andcrmails and Facebook messages I keep forgetting where I’m up to! Each hope exams ok and Caro saw your news and sending hugs. Hope everyone else ok.
I had my lumpy bits ultrasounded today and it’s all scar tissue do a huge relief. Going to have a few drinks tonight. Who wants one with me?
Al
xx
Make mine a large glass of red! Smashing news Al, I had the same news in January - bloody scary times eh?? Really pleased x
Hi all
Just wanted to tell everyone how glad I am to have ‘met’ you all - what would I have done without you!!
Love and hugs to everyone. Keep strong!
Shenagh xxx
Hi everyone
Sorry for butting in but i wanted to ask a question. Ive had 3 FEC and had my 2nd tax on tuesday. I wondered if anyone could give me their experieinces with their eyelashes and brows. I have about half or less of mine left and wondered will i lose the rest or when you lost yours and when they came back. Sorry for the bother!
Al - great news - I’ll join you for a G&T. So pleased for you honi!
Caro - glad you are getting your head round things, one day at a time. As Rach says, I would think there are lots of other things to take into account if you go for a full hysterectomy. As for the lack of gobi dessert in your dept, very envious you lucky girl. Just a thought, if and when periods return does the drought retreat???Rach, you must slow down or else you’ll be too tired to see NYC! Retail therapy at its best - it will be fab. Good luck with the exam honi.
Saw lovely Oncky yesterday and he says its down to the rads. He did say that the cancer would have to be very very agressive to get through everything he is throwing at me. Got to keep on with exercises and massage every day. Scar tissue is contracting etc. He is not too concerned, but is bringing mamo forward from end of June, just to check things out. So watch this space. Heart scan was fine. Well its a year for me next Thursday gerties and I can honestly say that the last few weeks have been tough. This time last year I had no clue what I was about to face - very scary.
Couldn’t have got through it all without you fab gerties, and those gopping DGs! Thanks to the lovely Gina, for starting this wonderful thread. Love you all and roll on Tamworth for a gertie hug.
Lovely to hear from you She, Sally and Chris - sounds like your doing well.
Have super weekends
xxxx
Hi mrs mc
you’re more than welcome to butt in, that is why we are all on here to help and to share our experiences,
I lost my eyelashes on the tax but within about 3 weeks of the chemo finishing they began to grow back. I finished Sept last year and although they are back they are not as long or thick as they were, I never totally lost my eyebrows they just thinned out a lot, they again aren’t growing back quiet so thick, (saves money on waxing ha ha)You might be lucky and not totally loose them and if you’ve got this far with what you have, could be you wont loose any more…its hard to say im afraid
I hope this is of some help to you, hang on in there ,I know its hard at your stage to imagine being back to your old self but it does happen.
Take care
Sally xx
Oh and feel free to butt in whenever you want xx
Mrs Mac, welcome!! i lost all my eyelashes and eyebrows, eyelashes came back and are fine took about 3 months i think. My eyebrows are still a bit patchy, now 7 months post chemo!! But a bit of pencil sorts it out!!!
havent been on for a while and lots to catch up on, Rach I’m excited to hear more about BCC and our trip!!!
Caro, hope you are ok, what rotten news to come back too!
Jayney, glad to hear its all down to rads! thats what i keep telling myself, but will check it out!
Al, great news!! hope you have got over sch hols!!
Dawn xxx
love to all debs xxxx
hellooooo all you gerties old friends from before and new ladies, i am back on line , i will try and catch up on posts…have a crate of wine to hand to see me through
love and hugs to you all xxxxxxxxxxxxxxxxxxxx
heyyy, Rhian
great to see you posting - how are you doing?
xxxmonica
hiya monica
hey i am ok, house sit was pants, definately ‘not what was on the tin’ but got through ( chemo is some sort of SAS training for the rest of the poo life throws at us if we get through that the rest is a walk in the park ha ha) stayed in the house sit area found a little place. how are you doing?
xx
Hi everyone …i’m back from a week in devon and i can’t keep up with you all. Glad our resident sex therapist has been looking after you all. SEX??? whats that??? just had a week away and not a sniff… me and gaz just had a week in single beds in a caravan in a room next to inlaws…didn’t matter whether i had a gobi or an oasis… bbbhhhh…
Well i just read all your posts but there is so many with news, appointments
Debbie and julie, (((hugs)))
Caro, what bad news babe, hope your doing ok and getting your head around it now
sex therapist, slow down hun, glad you have been keeping everyones spirits up, bet all the docs wonder whats going on with all these women going in with gobie’s lol
Janey, sally and ali, good news about the check ups, so relieved for u both
Rhian, glad to see your back on line, can’t wait to meet you in june
Shenagh, hope jay is on the mend hun
I’m not even going to try and list you all that i hav’nt mentioned, i am bound to forget someone. You know i luv and miss you all and can’t wait for june…sod the jump…i just cant wait to see all of you again…(((((hugs)))) NNL xxx