Hi everyone!
Peppa hope it goes ok today!
I had no 3 yesterday so taken up residence on the sofa today! they had a nightmare with my veins, 2 attempts but very slow so another 2 attempts and still slow but stayed with it!! Feeling grotty!
Pauline hope you feel better soon, can’t help with the numbness I’m afraid!
I also find it very annoying that leg hair hasn’t gone although growing slowly!!
Take care and chins up girls!! love Debs xxx
Hi erin, your most welcome to join us on here, all well and trully on the chemo train here. come on here and ask away or just moan or have a laugh, we talk about anything so be warned!!! Sorry to hear about your son, so much to deal with.
I have a friend who is not on here, she has her first chemo in two weeks for breast cancer and she has also been diagnosed with lymphoma. I feel so sorry for her and she is so in the dark regarding her treatment plan. She is worried she will have to have this chemo, get over it and then have to start again for the lymphoma. I wish someone would make things clear for her. She won’t come on here because she does’nt know how to turn a comp on she says. I’m the only person she talks to going through the same thing. This site is such a godsend.
Regarding pit hairs i was also under impression once scar was healed as long as you dont use a razor you can defuzz. i used veet and found it very good. only came back once and not got any at mo. needed to do get mine out of the way for the poor physio lady.
Hope your ok debs, i am thinking of you, hope SE are bearable for you.
Take care all of you, luv pauline xxx
Hi Girls
Rach - you look amazing! Gina - so glad you have been finally able to start treatment.
Erin -sending lots of cyberhugs to you. That is more than anyone should be going through. I can’t even go there in my head (I have two grown up daughters). Keep posting here and you will always find support.
Pauline - I am so sorry about your friend too. You’d think that they would at least tell her what was going on, hopefully the chemo will be composed of treatment for both problems.
Debs - sorry about your veins, poor you. Hope you feel better soon.
Hi lu - have you spoken to shenagh recently. Hoping to meet up for coffee next week 4th around 12-ish (would be great to see you there too!) She suggested a coffee place in WGH. Or else I could find Maggie’s.
alex
xxx
hi alex lunch sounds great on the 4th… shenagh was gonna come out for lunch yesterday but she had a friend visiting so will see her next week when im at the WGH.
debs hope your getting on ok and not feeling too bad following your swamp juicing.
pauline hope your feeling a bit better now too.
Lxx
Afternoon all
Hi Erin so sorry my posting looks like I totally ignored you - I wasn’t it wasn’t there as I was cyber chatting. What alot you have to deal with, we are with you in mind and spirit!!!
I’ve just had number 2 and all my meds re-adjusted to keep me feeling slightly better! Ok at the mo’ but that usually changes doesn’t it?
Fab man took the morning off to come with me - I feel so guilty that he has to wait around for me - poor bloke - only one with any hair (for now) with a load fo chopsing (welsh for chatting) women - he seem to like it tho’.
Kids going for a sleep over - me I hope to just sleep through the whole lot… I have sleeping pills and I intend to use 'em.
Sooo tired and craving a glass of vino - its only 15.15 so a bit early but come 6 pm I’ll probably feel like sh*t so may as well enjoy now don’t you know!!! LOL
Girls you do keep me smiling loads, my ‘jardin de femme’ is now bare it all came out in the shower this morning and added to it is the pink wee; i think I’m going mad!
love hugs R xxxxxx return of the swamp monster ahhhhhhhhhh
Oh so nice to have found you, not feeling so alone now (but what a way to meet people). I was called back after routine mammo in April(I’m 54). Have had cysts drained + fibroadenoma removed in previous years, so thought nothing of it. Trundled off innocently on my own. What a shock, and I don’t think I was told in a very sensitive manner either. Usual tests followed at great speed over next 3 weeks then I was left to dangle for a further 3 weeks before treatment could start (no room in the chemo suite). I was going insane with thoughts of this alien in my body doing god knows what. Ended up crying and ranting at the breast care team. Was furious with myself as I am a Practice Nurse and am very breast aware (it’s part of my job for god’s sake) so how did I fail to spot this huge 6cmm x 4 cm mass??? Still can’t distinguish is as it doesn’t have a defined adge but I blame myself for missing it.
Am confused by all these different chemo regimes. I’ve just finished 4 cycles of Doxorubicin + Cyclophosphamide (A/C) then starting Taxotere + clinical trial drug for next 4 cycles. Have to inject G-CSF for 5 dyas post chemo which I HATE. Now have much more sympathy for my diabetic pts on insulin. Side effects not too bad with the drugs they give you but hate taking them. Hair loss was grim but you get used to it don’t you? Hate being off work, money a real worry as no sick pay.
25 year old son with Non-Hodgkins Lymphoma is having chemo too and has been very unwell, in and out of hospital - it’s been a nightmare. When he’s ok I’ can cope, when he’s not I fall apart. What have we done to deserve cancer together? However, can see that everyone else has their own troubles to deal with, so it is good to swap experiences and keep each other’s spirits up - thanks guys.
Lots of nurse on here - can we find a link to BC (other than alcohol, blimey, are there no treats left?) Most of the time food and drink taste vile so when I fancy a glass of red stuff I sure am going to have one (just try not to visulaise it going straight to the alien…)
Better post quick before this disappears.Thanks guys x
erin like you my most recent cancer was found on routine annual mammo following previous BC 3 years ago. the whole area was 2.5cm and couldnt believe i never felt it before, but then i was examined twice in the 4 weeks before by the specialist breast nurse who never noticed it either… having had BC, being breast aware and working as a nurse in sexual health and advise loads of patients about breast awareness i was totally shocked at myself for not noticing it.
try speaking to your breast nurse or if there is a maggie centre near you or the CAB about finances… i know some people with primary breast cancer have successfully got disability living allowance, which is a non means tested benefit so moight be worth applying for it.
at the end of aug i go down to half pay so a wee bit concerned about my finances too.
hugs xxx
Lulu
Hi all
Welcome to the club Erin that no-one wants to join. I have found lots of support on this thread and these girls have kept me going. I actually miss you all when I’m away!
Rach - loving the look - you look absolutely fab! Hope you have turned the corner and are less like swampy now???
Caro - how are you post surgery - healing nicely and feelin ok?
Alex - when do you start your rads? How is Jackie doin???
Lulu - hope you’re doin good? Say hi to Shenagh for me. We have been texting eachother.
Pauline - sorry to hear no 3 not so good, I have that to look forward to on Monday - yuk!
Anyone heard from Mumzy since she moved?
Debs - my chemo arm has given me jip since no 2 and is pretty painful before I go in on Monday for 3rd FEC. Feels very bruised and swollen, vein in hand is dark also. Let’s hope it will see me through as the thought of a central line fills me with dread!
Gina - hope No 1 FEC has been ok for you and SEs are bearable.
Evie (Sue) - hope you doin ok??
Pixielox - doing ok???
I have a friend who has recently been diagnosed and is having FEC. Her iron levels have been really low and has bought Spatone from Holland and Barratt to give her a boost. Mix with orange juice. Thought it was worth mentioning for those that need a boost. I am hoping that my bloods will be ok on Mon - let’s wait and see.
Will be joining you all on the sofa next week after 3rd FECing FEC on Monday (shall we get a really big sofa and veg out together??), fingers and toes crossed that it won’t be any worse than No 2 (here’s hoping!!). Seems like an age before I finish all this, sometime it just feels like a really long journey.
Love to all and have nice weekends.
Jayney
xxx
janey, my arm has been really sore too. it just aches all over it, i think it is the epi that does it. I’m hoping it will improve on the Tax. Just wanted to wish you good luck for monday, i need to get down to the scs sale for a bigger settee, getting very crowded now. pity its only cyber space or we could all be company for each other through this sh…ty time while we are force fed cr.p daytime tv.
Take care Luv Pauline xxx
Hi All
It day two and I’m still a bit of swampie creature but its not been so bad this time cos they changed the maxalon to domperignon (domerinone) and the mean sods only gave me two extra doses of the ondansetron!
Still at least jonathion ross isn’t on radio 2 this morning so I can enjoy lisa tarbuck as I veg out on the sofa with you gals! Still cant stomach day time TV except Miamin Ink on DMAX - ohhh Ami James yummy he could tatt me anyday - chris Gaver could do my bac LOL!
Erin I’m a practice nurse too and i missed two tumours up to 5x5cm so no kidding - they can’t always be found - it was only when I lost weight that i noticed enlarged chest lymph nodes and saw my boss the very next day - I’m so sorry you and your son are going through such a sh*tty time.
She: hope your at home with family and enjoying the closeness of all being together - only one more week to go??
Lulu your a star you keep all our spirits up!
Pauline I hope your feeling better!
jayney good luck for number 3 FEC it!
Alex hows you?
Pixie ditto
Caro - put that wine down and let us know how you are lol
you know I may even fancy a glass of you know what tonight! LMAO
hugs from the creature from the black latrine!
MummyT, I strongly suspect Ami secretly bats for the other side. But never mind, he could have the last potato off my plate any day! I wonder… matching hairstyles…
i’m back, just about pulled myself out of the black lagoon and shackin off the swamp juice, day 10. Took much longer this time and the tiedness is still quite bad but hay we can live with that can’t we girls. might even try a small glass of my fav tipple tonight, tia maria mmmm
You all take care and i hope you manage to escape the black lagoon soon, luv pauline xxx
Hey girls
Am not feeling so viral anymore thankfully.
Rach - i think its easy to miss tumours. neither my GP nor consultant detected mine. I was sent away after mammo with an all clear only to receive a letter about 6 weeks later asking me to go for an ultrasound. If it hadn’t been for some soul in Edinburgh studying my mammo with a magnifying glass I shudder to think.
I laughed at the domperignon or whatever. I was with niece on Thursday for her chemo and she got these too - sounds like scoffing decent champers - shame its flipping meds!
Lovely to see your post Jayney. Jackie won’t mind me saying, she’s having one chemo for liver and different one for bone and lung and she’s to start herceptin next week too. The treatment up here is second to none. We are hoping she’s start to feel a bit less horrid soon, especially as we are all off to Skye next Saturday for a week. Can’t wait - it will either be great or we will all fall out!! OH and me, my two daughters and their boyfriends, Jackie and 5 dogs!!! Older daughter is just going for 4 days though - and camping outside cottage.
Pauline - poor you having a rough time at the moment. Hope you feel loads better soon.
Susanne lol - i should really take a peek and see this man for myself! loved your comment. I do like a bit of good old fashioned innuendo - ooooh he can get his ink into me any day lol 
Hey Caro - off to daughters for dinner and cava woo hoo. Hope you are ok.
Pixie - how you doing?
Lu - hi, hope you are ok. Having my sim session at 1100 on Tuesday, same time as Shenagh’s rads so will see her then. If you are around at 12-ish we can all go for coffee at the WRVS place - would love to see you.
Miss Mumzsy’s postings - hope she gets connected again soon.
Well girls, off to get drunk! Love getting drunk, hate the hangover.
alex
xxxxxxxxxxxx
I have to say you lot are are the biggest bunch of lecherous old boozers any one could wish to meet and I am soooooo glad to be in your gang! I feel right at home! If we ever get chance to meet up heaven help the land lord and boy totty around…
agreed about Ami shame but as you say its always worth the approach…
So I’m not the only Ink fan then? Come on own up, who else has tats, where and when and what of… spill…
love and hugs the swamp monster going for a vino!
I don’t have any, but Mr.Grumpy is covered in them. He has an eagle on his chest, his arms are festooned with a rose, Zappa’s weasel, a cat… And he has an awful one on his back, supposed to be a copy of a Dali, but it didn’t quite work!
Hello everyone!! I’m back from week 2 of rads. It’s SO nice to be home for the weekend to hug my baby - I’ve missed him even more this week than last week (and I’ve also missed hubby and you huys too!)
Scanned through all the posts but can’t seem to remember who’s up to what, sorry!!
Rachel, you look beautiful. Thank you for texting me this week, always makes me smile.
Week 2 has gone OK treatment wise. My skin is holding up just fine (Western General in Edinburgh do not ‘prescribe’ or recommend using any cream unless you have irritation. My only problem is a large swelling under my arm. Saw the doctor on Wednesday who sent me straight upstairs to the surgeon (one of the perks of staying on site I guess). He thought it was just fluid so was going to drain it, but once he put the (huge) needle in, only blood came out, so he took a very sore sample to send to the lab. I see him on Monday afternoon for the results - not too worried though (bugger, have I just jinxed things now??)
Looking forward to meeting Alex and Lulu on Tuesday - will be nice to have buddies up there. We are all going to the Look Good, Feel Better session at Maggies, so hoping for a good goody bag!
Love and hugs to you all. Keep smiling : )
Shenagh xxx
P.S. Re tattos, I have two (much to my Dad’s horror!) I’m 38, and still worried of what Daddy thinks of me lol!
I have a small rose on my right shoulder, which I have had for about 15 years, then two years ago, I got hubby’s name in Arabic on my lower back and LOVE it. Since having my baby, I have been thinking of having his name on my inner wrist, but it’s a big step as it will always be on show.
Would LOVE Chris Nunex from Miami Ink to do it - phwoar!!!
xxxx
alex and shenagh looking forward to seeing you both on tues.
been a bit of a spacekadet this weekend and joining you girls vegging on the sofa… hope your all feeling better soon.
i have a tattoo at bottom of my back of a viney thing with flowers on… was agony and dont think i could face another although quite fancy getting my blue flowers changed to pink.
also have 7 very fetching blue dots on my right boob from rads 3 years ago… and at the end of the year will no doubt have a matching set on my left boob LOL
well girls i recommend heavy drinking!!! Been on sess for two days…got in on sat morning at 8am and started again at 7pm, just going to bed now…seemingly there are no hangovers with chemo!!! Just trying to make the most of the ‘good’ days!
She - i had a couple of lumps drained last week, the one under the arm was just fluid which they got rid of but they couldnt do anything with the one near my scar as it had gone hard, they were just seromas so hopefully yours will be too.
tats - only one so far on my shoulder, always wanted more but could never afford it. My mates training to be a tattoo artist and will do it cheap, and having just had a huge needle stuck in my armpit i’m defo up for more pain!!
pix
xx
Pixilox I’ll drink to heavy drinking too, sometimes it is just so needed. Got my first tattoo as a pressie from my daughter on my 40th b day. Butterfly on my thigh and I love it.
Sleep well Anne xx