Rachel I am crying too - but with happiness because I feel I belong somewhere fabulous with all the support in the world. Without you ladies I would have been down in the dregs.
As for laughter and taking the p*ss out of ourselves and breast cancer it is essential or else we would all lose the plot. I roll up readings these threads sometimes.
I posted some interesting pictures of myself on facebook pre and post 1st chemo the other day and will send a pm to you so that you can view. Dont wet your drawers dear. Love Lynb xxxxx
Well girls just back from my final chemo!!!
feels so good to know that is another bit out of the way!!
So good to see that we are all getting through it with each others support, it does help so much to have this site. can’t wait to meet everyone at Centre Parcs.
Rachel you definately spoke for me and I’m sure all of us about BCC so glad i found this site and all of you. Thanks for saying that!
love debs xxxxx
ps just wait for the side effects now!!!
ooo…happy happy joy joy!!! Had some fab news today - insurance are coughing up so will be mortgage free from now on!!! Its only took them 6months to sort it out and kinda kicking myself now that i sunk 20k of my savings into the house to reduce my mortgage last year…sometimes i guess it doesnt pay to be good with money! But at least its a worry off my mind now!!!
I’d like to add to the ‘big-ups for bcc’! Its a life-line and i know i would never have coped so well without the support from all the ladies on here - in moments of insanity its good to know your’e not alone!!
SE’s from cmf have’nt been too bad - just mega headaches, tired and breathlessness. But have been getting awfull menopausal symptoms - is anyone else? on saturday i had a hotflush from 7am to 10pm with no let-up!! My face felt like i’d had a chemical peel…unfortunately without the anti-wrinkle results after!
Good luck to the swampies this week.
xx
Ditto to what Rachel said ( a woman of too many wise words) about the BCC site, what would we do without it… cry and go slowly mad or more mad i should say.
Fantastic news pixie that should be be such a releaf (sp moment)for you and so glad se not to to bad this time round.
Mumszy i can see Aberdovey from across the river at Ynylas when we go to my husband’s family place in Borth. It looks so pretty but never made it across there yet. Was planning on going at half term but chemo half way through the week so doesn’t give us long enough. 
Well done Debs on having the final one. You must feel so happy.
Chicken soup is my MIl favourite food to feed me, especial with her being jewish she does it with little dumplings but i prefer good old heinz!!!
Hope everyone else ok. Jayney i’ve still not had my forms from BCC about Birmingham but am still good to go!!!
Lot’s of love to you all fab ladies XXXXX
Ditto Rach - I would be totally lost without this site and you fab ladies. You have kept me sane and made me feel less alone.
Debs - well done - rest up - no more chemo (yay) - the rest of us are following up the rear!!!
Pix - great news - re insurance co - a weight of your mind I’m sure.
Caro - glad you had a good break - good to get away isn’t it?
Sue - hope SEs pass and Piggy has recovered.
Got a stinky, snotty cold and a cough, but temp ok so fingers crossed I will get my Chemo No 6 on Mon. Saw Onc last night and he doubts I will have my surgery before Xmas, although I am trying to convince them! Keep you posted girlies as so want to go to CP. Been so tired with this one, not sure if it’s the TAX or just accumulation of chemo and I still have 3 to go girls - send me some good vibes - can I do it??? Just sleep all the time!
Gina - got my forms and all registered for YMF in Birmingham - looking fwd to it. Give them a call if you don’t get them. Be good to meet you.
Good luck to all on swamp juice this week (Pauline, your last one too - yay!!!).
All those who are in swamp juice land - hope the SEs pass quick.
Love you all
Keep going girls - we are nearly there!
Jayney
xxxx
evening all thought i’d let you know that i’m in Bella this week (6 Oct ed)and womans own next week or the week after - go on have a laff!
Off to cook pizza xxxxx R xxxxx
Is there no end to your fame Rachel!!! will buy both!
we are definately in touch with food this week i cooked pizza too!
Making room for you and Pauline on the sofa, hope all goes well for you both!
love to all debs xxxx
Hi Everyone
Think I’m going to make this my last post as I’m just a misery guts.
Been for 7th chemo today (3rd Tax). Long day as usual - at hospital from 9.30 - 17.30. Long chat to Oncologist re having 8th chemo as side effects very hard to cope with plus i need to get back to work as can’t survive on £64/week. Reminder - I am in a trial, having chemo first to shrink the mass, aim is to conserve the breast if possible. So I have Tax then 2/52 of oral chemo - Capecitabine, with its own lot of side effects added to the melting pot.
Anyway, she said it was almost certain that I would need a mastectomy, as my tumour started so big (8cm x 11cm)and although it has shrunk, she was sure the surgeon (her husband) would advise removing the breast. She also said I would not be able to have a reduction of my other breast at the same time as this was considered “elective” and therefore non-urgent and “time constraints” in the nhs would not allow the 2 at the same time. I am a 34GG, and the rest of my body a size 12 (bit bigger at the mo due to all these cr*ppy drugs). WHAT WAS THE POINT OF PUTTING ME IN THE TRIAL THEN?
I know most of you ladies have already had the mastectomy - that’s what I wanted too when I was diagnosed but was persuaded to go into this trial. I am so depressed, the thought of a 34GG plastic boob, expensive underwear to put it in. Bang goes my visit to Rigby & Pellar for some pretty undies.
Have refused final chemo - sod it, and am seeing the surgeon in a couple of weeks. I will cry lots I know.
Then took 7 attempts to get line into vein, then had leakage of Tax into vein in my wrist - it bloody hurts!
Bad, bad day so I won’t depress you anymore. Thanks all you lovely ladies for being supportive when you are going through tough times too. I wish you all a postive outcome - I will watch the site to see how you are getting on.
Lots of love to all of you xxx
Erin what a sad post! My 5th was a bad bad day and i totally know how gutted you must be about the mastectomy. Are they really certain its best? I had E boobs and my lump was 7x7 when removed and my boob looks fine and fairly perky! I thought the whole benefit of having large boobs is the fact a large lump can be taken out and the boob looks ok… my surgeon was dead against mastectomy for me.
I stood against my 8 cycles of chemo too so fair play to you. The nice ONC i saw said that 2 more would make no difference to me so why suffer it out? Poor you, poor arm, poor veins.
Hope you keep visiting the site. We are all in it together.
Hi Erin… Big hug for today! Please don’t make this your last post! Will miss you on here, and you know that we are all here for you. Complain your heart out, hon… that’s what we are here for!
Well… I had to have an operation today to reconnect the nerve in my little finger. Got an ENORMOUS bandage on my finger. Had the operation under local… doc told me he was able to sew the nerve back together so now we have to wait and see if the sensation comes back. Have to wear the big bandage for a while! Hopefully won’t get lymphoedema… doc said that there was only a very small risk. Back on antibiotics again… phew…
Rach… congrats on your magazine articles. That’s so cool! Yeah… I am with you on the poster/talk/conference thing. I am over that and only go if it is really really necessary. Chicken soup… love it!!!
Sue… sorry to hear that you have been down, honey. Hope they can do better by you and treat you gently with your next chemo session. I am really upset about how traumatised you have been *hug*! Glad the GP is ok… hope she will soon be joining her GP buddies.
Good luck to all the swampies having their next chemo. I am thinking of you xxxx
Yvette
ps… we have made it to 100 pages on this thread! Congrats everyone!
Gp update- still installed by the boiler in the kitchen demanding to be fed 6 times a day! Put her outside-she shakes…
I have been suckered…
X
hello ladies
long time since i posted i feel like a novice compaired to you all i am having fec num 2 on tuesday next if bloods are ok on monday after reading through sue its awful what you went through and i am so glad i have the pic line in as they didnt think they would get 1 fec with my veins but i have it dressed and cleaned weekly and its more human i think i would be complaining to dr’s about the nurse you had its bad enough us having to go through the cancer never mind what she put you through most of you will be getting towards the end can i ask when did you ladies start loosing the hair they told me day 14 which was yesterday i do loose some when brushing but not a lot to worry about for the min hope you are all doing ok i have had quite a good week this week got a new baby grandaughter sophie anne 6lbs 10ozs looking forward to her coming home today for a cuddle before next week its good being grandma you can lock the door if you dont feel up to seeing anybody lol just wanted to keep in touch love to everybody
janice
just catching up on here.
erin im not surprised your feeling down and thats terrible that you felt pressurised into commencing the trial… however you can withdraw from a trial at any time you like… if your not happy then tell them you no longer want to be part of it… they cannot make you continue with it… there are very strict guidelines concerning research trials hunni.
i also wonder if its not a bit of a conflict of interest having the husband wife team of oncologist and surgeon, maybe you could ask to see a different surgeon for a second opinion… you are entitled to request this.
well done pauline and debs for making it to the end.
pixie great news about your insurance… it is such a relief to have one less thing to worry about. glad you havent found the cmf too bad… i have been have horrendous hot flushes then im freezing my pink fluffy ‘heids’ are off and on at every turn.
rachel what you like you media-junkie lol
jayney hope your surgery is either before xmas or after CP… but would be good if it was before as that could be part of your recovery programme lol
caro nice to see you back and glad you enjoyed your break.
Janice my hair started to go on day 14 although they said could be any time after day 10 bit most came out on day 17… and it came out from my foof before anywhere else. congratulations on your new wee grand daughter.
hi to mumzsy, gina, yvette, drabble and anybody else iv missed.
to the BCC peeps… i find this place invaluable too and i think no matter what you do you can never please everybody… like all the rant when somebody says they are being positive… well some of us do actually find a positive out look beneficial even if others do not… and im sure the same can be said of many issues surrounding BC… we all cope in different ways to get through this horrible thing!
anyway love and hugs to all
Lulu xxx
Dear Lulu,
Thank you for your kind words
Very best wishes
Janet
BCC Facilitator
Hi girls,
Janice what lovely news enjoy your cuddles!! my hair came out about day 19 even though i tried the cold cap! Hung on to a few wisps foe a while but then just got rid of it!
erin, sorry you are feeling so down at the moment, but do keep posting on here, it helps to chat!
janey i have been very tired and onc told me yesterday that it is accumalative and that 3 fec and 3 tax is a very tough regime!
Evie, seems to me the GP is getting more care than you!!!
just realised that a post i did yesterday didn’t get on here!! it was the one backing up Rachel and her thanks to BCC, i’m so glad i found this site early on, made so many friends couldn’t have got this far without it! Thank you BCC!
love debs xxxx
God my chemo brain is bad!! post did get on here, still doesnt hurt to say thanks again!
Yvette hope finger is ok!!!
debs xxx
Morning All
Oh yvette you poor thing no wonder you had no feeling as you had severed the nerve! heal quickly.
sue - you have been suckered - how about getting a little baby female rabbit to keep the non-injured GP company (more animals!!!)I watched the Paul O’Grady show yesterday and wanted to take home all of the dogs they had on!
Seriously Erin please do not stop posting we are here for you and i agree with lulu, you need a 2nd opinion, a psych assessment to prove that you also need a reduction @ the same time or you’ll have a screaming abdab! re the trial, the declaration of helsinki on human experiementation ( written after the atrocities of WW2) states that you are free to pull out at any time and equally if you feel you were pressurised at any time to take part in or remain in the trial you can complain to the hospital ethics committee. You should have been given all of this information with your copy of the written informed consent at the start of the trial, pull this paper work it will tell you how to complain, pull out and get the hosp to investigate what may be pressure tactics. That is of course if you have any energy.
Janice nice to see you back - well done grand ma!!!
Pauline - watch out me and my dressing own are on our way - its all sticky from the honey and banana sandwich i had for second breaky yesterday (yes I am a hobbit have a look at my hairy feet!)
love to you all xxxxx
Just a quickie But just noticed on FB that it’s pixie’s Birthday.
HAPPY BIRTHDAY Pixie
Hope you manage to have a fab day
Lots of Birthday Hugs ((((((((((((((((())))))))))))))))
XXX
happy bidet pixie xxxxxx