Darling buddies from May - moving on

Life after a breast cancer diagnosis Recovering from treatment
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Hi,
Angie - well what a choice of pervy outfits for a hen night.LOL. Everyone else will wonder what we are up to if we all start showing pictures of naughty nurse outfits!!! The real me would not find one big enough I’m sure. We had some holidays up your way and I hate those scary roads where you look out the window and just see a huge drop below. Hubby loves them but guess who is always on the cliff edge side squealing, do you know how close we are to the edge? Have fun driving around in the new car and soo good to hear you are out having a laugh. Long may it last. Booo about the hair though. Are you going commando or wigs or hats again? Still chilly enough to have a lovely warm hat. I know what you mean about weddings. My daughter carefully wrote Mr and Mrs on her ‘save the date cards’ and someone wrote back talking about bringing their 6 adult children with them, which is a lot more to pay for. Tricky, we need to think about what to do when she sends the actual invitations.Why don’t you just tell your Mum and Tommy’s side not to pass on any negative comments, I am sure people would not be rude to you directly or I hope they wouldn’t. I am shielding my daughter from thoughtless comments from people trying to make her do what they think. She has been hit hard by people thinking they know who should be her bridesmaids even!! It is the bride’s day so make it exactly how you want. Bet it is hard to choose someone to do the photos that is up to Tommy’s standard. Have fun planning.
Lorraine, thought I’d got away with the bakery.LOL. You are so like me when it comes to the sweeter things in life - HOPELESS! I have been trying to change how I rush through parts of life but it takes a while to get used to sitting still when you are usually manic.
Nicky how did it go today? Hoping it did not include more appointments and needles. Lisa sounds like a pretty good plan. Hope Robson gets a new bed or some snacks too!

I have just remembered that i have my 12 week check up on Monday, with the surgeon this time. I can’t remember if I am supposed to have full blood tests this time, what do you think? If yes I have to go tomorrow to get it there in time but don’t want to have a needle if I don’t need to. What a problem! Had a very long day as didn’t get home till nearly 9pm and my feet are throbbing from standing up so long. Reminded me how much they used to hurt when they swelled up.
Take care everyone
Lily x

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just lost a bloody long post arrrggghhh!!!

Lorraine, hope you arm aint too bad, do you have to wear a sleeve?!? I dont normally work 14 hours it was a few off, I work for the Chief Exec of a Housing Association and love it, do allosrts of different stuff.

Nicky, hope appointment went well today, let us know x

Lily, robson has lots of treats, he got a very bling bed for Xmas!!! Totally know what you mean about being tired, Im really tired and got a sore throat again, seem to be ailing post chemo now!! Hope the check up goes okay, and dont need a blood test, I have breast mri in newcastle in and will be doing injection with it, arrggh, not having one for a while makes it scary again with my viens.

Angie, so sorry about the hair its must be soo hard. Hope you havent got many other side effects. Thanks for the tips re money. Well countdown to wedding now eh, its hard re invites and stuff but you just need to do what you two want, sod the rest. Online hen night date needed so I can put my photo up its ready and waiting.

eel whats eveyone doing this weekend, i have a few days off work, so bank, hopsital, docs and party tomorrow with niece and a wii!!! Saturday me and best mate are going for a day/night out in preston for a good merry giggle

Enjoy all xxxxxx

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hi everyone

angie

sounds like you are living in the moment and enjoying yourself, and dont let the killjoys (re wedding plans) spoil things for you. you can tell exactly why you didnt want to invite them, like you said, anyone worthwhile would understand. i always find the moaners in life just dont have a life of their own to live. LET IT GO! and continue to be excited for your big day. i too am sorry about your hair, but hope any treatment you are having is working.

lily 2000

i do like the sweet things in life. makes it worthwhile. hope the tiredness is easing.

lisaf
my lymphodema is only slightly painful, more unsightly than anything. i have a support top to wear from lymphodema clinic, but with the hot flushes im too hot. going to a special shop on monday, which just caters for people whove had mastectomys, they sell underwear, swim wear, head gear etc. and the women who run it have been through it, so know what its all about. probably spend a fortune because im a large cup too, so they dont come cheap. hope your lymphodema is settling a bit with excercise.

take care everyone.x

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Hi ladies what a lot I have missed in a few days I caught up on Monday and posted but it seems to have got lost!

Lily thanks for your kind words to my first posting didnt join in before as I didnt think I would know what to write.
Have finished my rads and am now at the point where Im realy sore and itchy driving me mad wish I could stand on my head for the next week to stop the skin rubbing!

Have had a quick read thru and will catch up properly tomorrow all I can remember is cream cakes (loads of them) weddings and hen nights! Sorry having loads of ‘blank moments’
Take care

285

Hi,
well another wedding weekend, going to a wedding fayre this weekend . Guess what Lorraine they take cake samples to try!!! Fab! I think I was either a wedding planner or got married about 20 times in a former life because I get really excited at these places. I really should be in therapy! Will let you know how it goes. By the way I have been chatting to Fizbix, and have told her to come and chat to us. A lot of the old threads seem to have fizzled out on this new forum. Calling FB where are you?
Angie are you having a cake? What will it be like if the answer is yes. I think ours will be a cupcake one from what they are saying. They do look really cute. You mentioned the homeopathic hospital, are you being referred there to see a specialist? Sounds like agreat idea to see what they have to offer.Have a good weekend.
Soulgirl - just let it all out, whatever you want to say or talk about. I have verbal diarrhoea all the time!! Drives me mad when the post gets lost. I now copy each one before I post as it loses almost everyone of mine and why does this thread always go back to the first page, when you open it? Well done for finishing rads and I am guessing that your jumper is on fire!! It continues increasing for up to 10 days then fades quickly. If it gets really hot ask the GP for Actiformcool dressings, which are especially made for rads burns. They are so cool and made of gel so they separate the boob from the skin of the chest by just sticking without any support. Really good things to have. So are you a cake person too? Good luck with seeing the rads burn off. Are you on tablets next?
Lorraine lucky you having a shop like that. I have never seen or found one. Hope they have some good stuff to make life easier even if you have to pay a lot for the pleasure. Do they do manual draining in your area? They do here and people say it is nice as well as very good. Lisa hoep the sore throat does not develop into a biggy. I find I am picking up everything, like a big sponge sucking up germs and bugs!! I had no bugs through chemo either but now, grrrr, so annoying when you are supposed to feel better. Didn’t need more bloods today, hooray. Think it is just touchy feely on Monday. Just knowing I have it coming up has made me have my hand down my top checking every day, ok doing it now too! have fun with your neice and the wii and everything else this weekend. When is the MRI? I think you go right in the machine for that one don’t you and listen to music while in there. Is it to do with having a recon or another routine check?
Take care all. Nicky you must be spending a fortune with all this shopping for the birthday girl. Enjoy.
Lily x

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hiya all

Soul girl, welcome back, hope the rads settle down, and congrats hope that’s your treatment done, feels like limbo a litle bit but then get used to it and curse those appointments.

Fixbiz, hope you pop in, I posted and read quite a few of your posts which kept me going through rads, oh and your diet post - please come and help us with that, these minxs are talking cakes and its killing me, well actually its not as had no willpower at all this week.

Lily, hey when read your post had a touchy feely for lumps to, cant help it can we. Would be lovely to have about a month without appointments. MRI is just for boob, its going to be so dignified, lying face down with boob in a hole!!! Mind you least I wont see how close I am inside, yuk!!! Its just due to genetic things, they do it as it picks up things much earlier than mamo, just hope its all clear then I can have some thinking time bowt recon - boy that’s doing my head in, then they wonder why have high blood pressure.

Angie - hope you still keeping busy with wedding plans - we need to set hen night date!!!

Nicky, hope you are having fun shopping!!!

Lorraine, that shop sounds fab, think Ive heard of a similar one in Newcastle so going to see if I can arrange an appointment for wednesday as I only have one bra Im comfie in and doesnt offer any support and cant find a cossie anywhere.

Well Im off to pack for Preston with my mate, we havent had a good catch up for ages so will be good fun, we always end up having a giggle at something, last time was dublin where we laughed all weekend, which starting by us being hungover and sleeping in so bad rush to airport from hotel, mates bag was way over weight so had to repack our wine in various locations before rushing to the gate, only to discover on boarding that my mate still had her teabag and cup from the hotel in her pocket!!! Then at dublin many things happened such as on a wetish night, just dried off walking back to hotel at 2.30am when a bus hit the biggest puddle you have ever seen, yes right over me!!!

Have a lovely weekend, I’ll be back on Sunday xxxx p.s. will report back on any cakes I manage to eat!!! x

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Lisa what fabulous news about the pay out well enjoy yourself you have earnt it! Hope you have a lovely time with your mate at the weekend.
Sorry to hear about the lymph problem my hand is still bigger than it was but I had some manual lymphatic drainage done and that helped along with the swimming. I found a really good website that explains how to do the massage on yourself so I will endeavour to copy that over to you as it had a video link that was really interesting.

Angie great to hear the wedding plans are all coming along but you do what is right for you and don’t listen to negative people they have no right to drain you of your resources put an imaginary protective blanket around you which tells them to bleep off. Hope you are feeling o.k. and so sorry to hear about the hair as it is still too chilly at present isn’t it. I had a look at Tommy’s photos on his website what a talented man you have!!! they are absolutley stunning.

Lily what are you like enjoying going to wedding fayres to sample the cakes! you are a girl after my own heart. Hope your daughter is feeling better now.

I know what several of you are saying about still being below par as I have had two outbreaks of the dreaded cold sores since I have been back from holiday so obviously the immune system is still compromised. I went back to the Haven Trust yesterday and had some advice on nutrition which was realy helpful. They advise the 80/20% rule that is 80% of the time eat as healthily as possible but being realistic 20% of the time you can eat the naughty things cakes, wine chocs etc.

Anyway have a lovely weekend and thinking of you all as always.

love Bev x

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found the link regarding advise on lympodema

nwlymphedemacenter.org/index.html

Hope this may help.

Bev

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hi everyone

bevvy

thanks for putting the lymphodema site on, i found it very useful. im not disciplined enough with the excercises need to work on that.

soul girl
welcome to our posts, you are more than welcome, and dont worry about what to say, we just chat about this that and the other, it makes us feel better and thats all that matters.

angie
hope youve had some fun and enjoyment over the weekend, and you managing to focus on today.

lily 2000

im trying to slim down a bit at moment, but coffee morning at church today, and id had no brekky by 11.30, so ended up eating some lemon cake , aghhhhhhhh. the cup cake wedding cake sounds great, ive seen them. think thats the modern theme at the moment. i think i too would love shopping for weddings if i had a daughter, you will be so proud when she walks down the aisle(is she getting married in church, or at a registry office).

lisaf
hope you enjoy the underwear shopping, i shall hopefully be going on Monday, another downside to all this, is the cost of the bras, mine start at about 2o pounds. but since being measured and told i have completly the wrong size on, im looking forward to going.

nicky
hope you keeping ok.

everyone keep enjoying the moments x

290

Hi,
well I enjoyed the wedding fayre but it was really busy and very hot. They had fashion shows going on with Mother of the bride outfits being modelled by 20 year old size 10 (or less) models - need I say any more! The groom’s Mum was with us too and we are very similar in height and shape, would make a really handy couple of short bookends!I said perhaps we should just agree to go happy and the size we are. Not many cake stands there so only had a few slithers of sponge but lots of sweets. One stall makes little favour bags and inside are love hearts or chocolate and they make wrappers with their picture or names on, thought they were cute. We took cards and leaflets for everything you can think of and more and entered every competition they were running. So no doubt we will now be bombarded with emails and more leaflets through the post. Found a shop that says they have hundreds of mother of bride outfits and said just come and try them all on for fun, so that sounded a good idea and afternoon out. Footy tomorrow, so lots of mud and gloves and a hat!
Lorraine - the cup cakes seem really popular and it means all the guests can take their own little cake home. They mostly have a single whole cake for the top so they can still do the traditional cutting or keeping it for the first christening. They had planned to marry in church but both picked different churches. When they picked the wedding venue we are going to, it has a beautiful little chapel like building and it was included so they decided to marry there in a civil ceremony. I will miss the atmosphere of the church and I like tradition but they do not go to church so have done what feels right for them. There are very strict rules that buildings for civil ceremonies cannot have anything religious in them, so no crosses, etc. they are also not allowed to play any hymns or music with religious words, which unbelievably includes Robbie Williams songs like Angel and many other modern pop songs. Ouch expensive bras!
Bev - I plan to start swimming soon once I get used to the amount of energy I need for working all week. Still have to nap when I get home most days as I struggle to get off to sleep at night and I am often still up at 12 or one. Thank you my daughter is fine now but the hospital have told her Gp to send her for a camera down her throat to have a look. That sounds so horrible, I can’t think about her going through it.I think on the whole my 80/20 might be 20 good/80 bad. The shame!!! My neuts are high but I think working in a school I just come in contact with a lot of people and therefore bugs.Hope you have seen off the worst for a while.
Lisa - Well when I read your post, I had to check again too! I sometimes find myself doing it infront of people, they must think I am weird or worse.LOL. A month without appointments, well I haven’t managed that either yet. All I seem to do is collect change to pay for car parks. Two of my friends are pondering over recon. One is faitly simple as the surgeon just mucked up her lumpectomy. The other had a mx but is very skinny so they want to cut skin from the inside of her buttocks. All I could think was how the hell do you lie, sit or anything afterwards. Imagine going to the loo!!! They have told her it would be 8 weeks recovery for her one. Where do they want to take your tissue from or would you have implants? tricky thing to have to decide. I thought the tummy one sounded like yo get the added bonus of a tummy reduction but they say it is a huge scar. No idea what I would do, maybe wait till you are sure what you want. When is the MRI and is it an injection? Have a really fab weekend and lots of laughs
Hi to everyone else. Nicky hope all your plans are working out for the celebrations
Love
Lily x

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hi all, im backand in one piece, sore sides with laughing, so bloke sitting in the pub asked us if we realised there was a credit crunch on, while we were laffing too much!!! Why cant you loose weight through laughingm I could be a size 10 then!!! No cakes but lovely chinese where we went for my hubbies 30th it was lovely oh and lots of wine and lager but boy it takes me an age to come round these days, my arm is aching like mad and my legs feel like Im about double my age, mind the arm is probably from boxing on wii sports on friday, talk about work out, i was sweating and didnt want to be knocked out so think overdun the arm. Thanks for the link going to have a look at it later and also got a link for a dvd for £5 think its from Haven Trust?!

Well recon, what to do, ive no idea. My surgeon is nice but he isnt a p.surgeon and just does LD flap recon, where they take some muscle and skin from front bring round and implant, however as its 5 hours and only him only does one side at a time, so that’s 2 ops and knowing the pain that’s to come, also then its pump up time every few weeks then op to take port out.

The tummy option sounds good but have major concerns, he said that it cant be done on both sides as can only use fat and blood supply once, however I have read of 3 people on this site who had both sides done, someone just a few weeks ago. But its around 15 hours which is sooo major isnt it, but no implant and tummy tuck but huge scars and supposed to be really painful. Girl on here said worth it but she’s just been taken back in as absesses eating away both sides and now has hole in each side at mo where opened back up and had another 3 hour op - Ive heard it has good results but when goes wrong goes horribly wrong.

Wishing someone just tell me which is best for me and that it was over with, I know Im being vain but its more than that, this weekend I was always pulling and shoving to look equal, wearing scarfts or layered tops so cant see and was really self concious about been in hotel albeit best made in nightie and stuff. Also that little bit of me says, had 1 year already, if it takes a year to sort out then that’s 2 years and if it comes back Ive done it all for nothing.

Anyhow off for a walk with Robson to liven self up before dancing on ice tonight!!! Take care all, eat and be merry!! xx

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Hi Lisa,
don’t forget you are now allowed to choose your own hospital so perhaps another option would be to find the biggest specialist unit in your area with a recon plastic surgeon. Possibly Christies? In this area you can now opt to have surgery at the private hospital because of this new charter. Our area has a huge recon unit covering Essex, Hertfordshire and East London boroughs but too far for you to come. I know it would mean travelling but if they did it in one go and you had more confidence in them, it might be worth it. Ladies in our area are invited to meetings to meet others willing to show their finished surgery, to help them decide which type of recon they want. Yours sounds like implants if you need to be pumped up? I was told you have to have them redone every ten years or so. Would you consider just having the other mx and seeing how you get on? I know you might not be keen on the flatter shape but you would be evenly balanced again. Some days I look at all my scars and think I look like I had a run in with Zorro! LOL
Off for a check up tomorrow, arggghhhh
Lily x

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good luck with check up Lily and thanks for info. Personal choice but doubt could handle being totally fat, ooops I mean flat cos boy does it show off the fat underneath, I just want boobs back to put in top and not bother about bending down etc. did think about having masectomy with no recon but then know I would want it later and then had another surgery and pain without the benefit. Hey boy I would be chuffed if I was in here in 10 yrs to have them redone - would skip into hospital (prob not known me). Will look into further me things.

Here’s a really bad photo of me!! I should learn that wine gives me a very slanty eye!!!

p.s. decided with some of my money might try and brave it and get my teeth fixed, had braces for years when little and theyve gone back again, huge gap and twist to front teeth and really bothering my confidence at mo but nearly as scared of dentists as am of injections so its a double whammy but surely cant be as bad as what had in last year?!?!

Day off tomorrow so you all enjoy work if you need to, lie in at last and lovely long walk with robbie bobbie xxx

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Hi Ladies
Soulmate, welcome to the chatty bunch!
Well, I’ve been busy, busy, busy.
Not much shopping for YD as she keeps changing her mind what she wants! I think we’ll get things and keep the receipts so she can change them. Although we will get her something to keep as well.
We were in Paris for a lightning trip in and out to see the uni she wants to go to. It’s part of the University of London so is an English uni but based in Paris. Everyone she tells about it says she would be mad not to go. Can’t blame her, 3 years in Paris - not bad eh? Beautiful building as well and position in Paris is very central. OH and I just need to get our heads round the accommodation fees! It would all be OK if the euro wasn’t so bad at the moment. We hardly saw anything of Paris so it was just as well we’d been last year. It was a lovely day weatherwise on Saturday but I/we spent all the morning indoors and then some of the afternoon on the Metro! We flew there using my trusted airmiles (shopping at Tesco does have it’s perks) and landed way ahead of schedule. OH was due to pick us up but I got a text to say he had a flat tyre and would be late. So, we waited! Then a phone call, he was at the airport and parked and had ANOTHER flat tyre! He must have run over some debris on the motorway. Obviously he then couldn’t drive the car and had to wait for the recovery service. We phoned ED to pick YD and me up, which took about 45 mins for her to get there. So all in all a very exhausting weekend with OH not getting home till about 10pm and this was all about picking us up from a 6pm landing time! Just had an easy day yesterday - as you can imagine but went booze shopping for YD’s b’day. At least that’s another thing ticked off the list. I’ve also sorted out a dress for her birthday and some other things we’re doing in the next month or 2 so I can cross that off as well! One day I will be less stresses than I am now!
Oncs appt was just a catch up as to how I am after rads and to book the dreaded scans - arghhhh. I did say I wanted them at the end of March so we are well clear of birthdays etc - can’t go through that again this year. So even if they don’t give any good news at least I don’t know that right now!
Next thing on tick list is going to IKEA today with my Mum. Luckily the new Southampton one is open so instead of a 1 and a quarter hour trek to our nearest one it will only be 30 mins. We’ll also pop into the shopping centre there which is really nice and I’ll try and help my Mum get something for their wedding anniversary at the end of March.
Well - that’s me, now onto you!
Angie - great that the plans are coming together, I’m sure you’ll have a great time and I hope it’s stress free as it’s all happening so quick - which can be a great way to do it. Everyone sounds like they’re looking forward to it and, as Bev says, block out the ‘drainers’ even if you can only do it mentally. Sounds like you and Tommy are getting on with life in general as well - good for you, hope you’ve ticked off a few more things on your list - like the cream tea :wink:
Lisa and Lily - I hope you’ve not ticked off the cream tea LOL
Lisa - again, sounds like you’re having fun - way to go! Horrible though that you’ve got all these decisions about the recon to consider. Keep smiling and laughing though!
Lily - Weddings all around then? So much to consider and organise, I think my head would explode if I had to do it! However it must be so nice to be involved and look at all the beautiful things - even if they’re not very affordable! Take it easy with work etc and not getting too run down. I’m really surprised I’ve not gone down with any bugs since (or during) chemo. My neuts are still quite low. However due to the curse of the ever hopeful I now know I will go down with the Mother of all illnesses just as my YD’s birthday is coming up!
Bev - hope you are doing well and getting on with life - we all seem to be which is a good thing and I really enjoy the catch ups we do even if it means reading all of Lily’s essays - ha ha!
Julia, Kirsty and anyone else on here I hope you’re all well and enjoying the approach of Spring - it’s a beautiful but chilly day here and I’ll go for a quick walk before I head off on my shopping trip.
Nicky x

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Hi Lorraine
Forgot to mention that I hope you got ‘fitted’ today and are feeling more perky :wink: Just remember to have suitable underwear for the hen night!
Nicky x

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hi everyone
been out and about shopping today, diet not gone so well. started off with brekky at witherspoons. then i went to the lingerie shop i told you about, im not going to tell you what size bra i had to have. i cant believe it! they were very nice, it isnt in a shop it is in a business centre. lovely inside. i asked if it was ok there and they said some women prefer it to being seen walking into a shop specially for women whod had surgery. im personally not bothered who knows but can understand some may be. so i brought 1 bra at 27pounds it fits much better than one id got on. i tried some swimming costumes on but they didnt have my size so i will perhaps go back again.
then i went to ikea, for finishing touches to hall. and was going to next (homeware) until hubby had a mantrum(heard it on radio short for man tantrum) victor mildew could have some lessons from him.

lily 2000

how do you know what your neuts are? mine are never tested. hope you manage to sort out the tiredness at work, couldnt you cut back on some hours? glad you enjoying the wedding fares. the organises havnt got a clue sometimes have they? common sense tells you people want to see similiar models to themselves modeling the costumes.
(maybe you could have a change of career) youd be around cakes and goodies all day then, cant be bad.

angie
hope you feeling ok, and coping one day at a time.

nicky 08
yes i am a little more perky. now. cant see my waistline. (whom i kidding i aint got one anyway) i can understand your daughter thinking about the move to paris, they like us around in the background, even if they wont admit it.

lisaf

glad you keeping fit on the wii, im lucky my problems are with left arm, and im right handed, but at times you forget and just carry on as normal.
hi everyone else hope youve had a happy mondayx

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Hi,
Well the touchy feely check up went well and everything is fine. I was disappointed not to see my consultant surgeon but he sent a very good looking younger doctor who gave me an extremely thorough and long examination. Hot flush!!! Anyway he turned out to be the guy who did my surgery so I was able to find out a few things that had been puzzling me, like why they only took one node. HE said he remembered my surgery because there was a famous doctor in theatre for the SNB that day(think I must have been a training guinea pig or something!) and so mine was perfect as the expert was overseeing it. Shame I slept through this. Apparently some nodes take up the blue dye and others take up the tracer but they look for nodes which are blue and ‘hot’ and just one of mine took up the lot. He said the lymphatic system can be quite complicated and involve more nodes but mine was a simple structure of just one coming from the tumour. He said they got clear margins and were happy with just one node, which was clear. So I think I can stop thinking about that now, it was an unanswered question that popped in my head occasionally when reading other posts about nodes. Had a nice lunch out, big jacket potato with cheese and salad and then wrecked my good intentions by celebrating with a huge caramel and chocolate choux bun with fresh cream. It was heaven!Sorry Lisa! That started me off and I have also had a bag of minstrels and a curly wurly tonight. Hopeless.
Lisa you know we will cheer you on, whatever you decide to do. I would have gone for a recon I think, even at my age but especially if younger. Things look scary but it is routine to the surgeons if you get a specialist and you got over the last op very quickly so must be strong. I would look for a specialist though as you want it to be perfect first go. No sign of the bad photo by the way, just the nice scen.You can do a brace if you can do chemo and all the rest. Why not go and ask how long it would take and how much. Or you could have a private white one like the stars have and you can hardly see them. My son had to have one as allergic to metals and much less problems than the girls with their all metal NHS ones. I suppose when you get the new teeth and boob, you will be out every night and we won’t hear from you!!LOL. Just do what is right for you and will make you feel better and more confident. Good luck matey.
Oooooooh Nicky, cracking a few jokes in my direction today. By the way do you think my essays would still pass a GCSE in English??LOL. Ha ha yours wasn’t exactly concise my dear! Just going to Paris is so glam and exciting even if you did not get out much - you smelt the air! Good old Tescos and the air miles helped out. I still haven’t booked anywhere but it seems pretty likely that we will go away if we can find somewhere within a couple of hours drive. We found one with a hot tub for 8. Can you imagine sitting in that with your family and their partners every night? No nor can I. Hope YD has a fab birthday. Do you think she is worried about being in another country and leaving you behind? It must go through her head that she won’t see you so often if abroad.I think my illness is affecting my son’s plans as he is going off uni at present. Difficult to know how to convince him to live his life as he wants. I would really hate to think Bc is holding him back too. I asked at the clinic today and they now have genetics meetings so I am being referred to one for an initial chat. Will decide from there what to do but my girls show no interest in knowing and having that hanging over them. Such a difficult decision to make, I am really in two minds. Nicky your Oh must have been cursing by the time he got back. Hope the scans come after the celebrations as you wanted. Is it bone and CT this time? Last time you had a 50% reduction didn’t you, so try to think they might have more good news from the chemo and rads. Keep clear of those bugs. How low are your neuts then? I think neuts like cakes and sitting on the sofa!!LOL
Angie hope you are busy with your plans and enjoying the slightly better weather while it lasts. No doubt driving all over the place enjoying your new wheels. 4 weeks to being Mrs Tommy!!
Julia hope rads went ok and that you didn’t get too many problems. Have they decided what they are doing next, with tablets and herceptin? Bev how is work going, hope you can take it easy too. Kirsty hope all is well with you and work going ok. Hi soulgirl.
Lorraine ha ha ha did you beat Jordan in the big bra stakes?? I would need a big breakfast before being measured too. What size??? Give us a clue, how many people could live in it? LOL. Hope you don’t mind my terrible teasing. Every time I see the onc I have to have full blood tests, liver profile, bone profile, electrolyte profile and tumour markers done a few days before I see him. So he is still looking at my neuts, white blood count, etc and tells me they are all very good. This is routine in our area. I forgot to ask what they actually were but it was 5.8 last time they put it in my chemo diary. Will ask next time I go in April. Thyroid came back normal so no chance of thin tablets and the easy way out. Boo hoo. Me near cakes every day would be a disaster I think. Work is fine and there is no problem if I want to bunk off early if not teaching. There was an uproar today because my name had been put down to do a registration and they all felt this was over the top to give me one!!I do get fussed quite a bit so try to do all I can. This is my second career so still really keen and love working in a school most of the time.
Hugs for all of you
Lily (the author) x

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Phew, just a quick pop on busy today on day off, glad things went okay for people. Lorraine, my bra size will have me creaping in a hole me thinks!!!

Boy diet totally out of window but back on tomorrow then boob mri on wednesday, dreading injection and lying with it hanging in a hole!! The joys eh!!!

Well better go, but love to all and chins up, boobs (if have any out) and tummys in - not, I have too much everywhere, my photos prove that xxx

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hi girls.

great to hear you all chirpy!
lily 2000

im so envious you munching on them goodies, ive not cut everything out but cut back, and its murder. i think i was born to munch cakes, and be fat. by bra could fit an army in, (mind you that sounds good).
seriously though ive always hated being big, and wished id asked for reduction on other side at surgery. not brave enough now. glad you enjoy work, makes life more fun, and wonderful that they are taking care of you.

lisaf

i take it your a big girl in the boob stakes then. and to think we were given them for free. hope boob mri goes well on wednsday, just had a terrible thought i dont think theyd make a hole big enough for mine. and your photo looks like you were having fun, keep it up.

angie

hope you having plenty of pleasant days out, take care thinking of you.

nicky 08
have you dissapeared to some exotic place again, or are you just a busy bee at moment.

everyone enjoy your day!

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Wow so much to catch up on, sorry if I miss anyone or anything I have a memory like a sieve at the mo but lots to tell.

Lily… yes am doing a cake but it’s actually an organic rich fruit cake from the Village Bakery that I already have in the cupboard I just have to ice and decorate it. also going to do chocolate cup cakes for those who don’t really like fruit cake.

Not sure when to do the hen night, I’ll check the calender. I’ll wear my cosplay wig too, so funky.

Lisa… I’d ask about what’s available at Newcastle re recon. I didn’t like the sound of the tummy one either, wouldn’t want messing with abdominal muscles myself and if it can’t do both sides then are they going to look the same? I think the back based on might be better. To be honest I never did too much research as I decided that I’d think about that later if I hadn’t just got used to the new me and I have so that’s that. I rather like not having to wear an over the shoulder boulder holder as we used to call them at school :slight_smile:

And stop this talking of it coming back. I’ve done the bad luck for the both of us alright :wink: Also I’ve got a copy of the haven’s DVD it’s really quite good, I try and do the stretches when ever I remember. You look really cute in that pic. And perhaps we should both get opinions from Christies, if you could get appointments around the same time we could give you a lift in Silver (the volvo), might be worth asking. Bet we can’t though. That’s asking too much I bet.

You may all think I’ve lost it, I know some on this forum certainly will but (if you’re one of them and reading this thread this isn’t intended for your reading so if you’re feeling like commenting… please don’t) Sorry had to say that. But I’m going to a healer in about a month. I’ve heard really good things about him from several different places and thought what have I got to lose, I am a bit of a sceptic on this but he’s not charging silly money and all my family and friends are encouraging me and telling me to be more open minded on this. The trouble’s going to be finding out where these tumors in my head actually are so I can tell the healer. I’ve only just realised that my onc refusing to tell me this info is actually stopping me from getting help elsewhere. Fuming and getting my records. I don’t actually need to know that info myself and yes it will scare me but I need to have it for other people.

… half an hour later …

Decided to phone his secretary and just said I’m going to see a healer and they want to know what they’re working with, so she’s going to send me a copy of the report. Sometimes it’s better to just ask directly isn’t it. And she wasn’t at all judgemental either.

The guy I’m going to see does what’s known as energetic healing but a lot of it is also talking through your past and how you feel about life, counselling basically, and nutrition etc, how to be healthy while living with this stuff.

If those of us with mets can slow their growth right down, not *suffer* the side effects of treatment and live a long time then we’re a lot closer to cancer being a chronic disease now that’s worth aiming for while we wait for a cure and I do believe they will cure cancer. I don’t think it will be a disease mankind suffers in a thousand years for example but whether it’ll be soon enough for any of us I don’t know but I do think it will happen.

Nicky. Paris what a lucky daughter, and 2 punctures… I think maybe your YD should give some of that luck to her Dad :wink:

Lorraine… mantrum that’s so funny. Glad you got some nice well fitting undies.

Those of you trying to diet… I was told start the day with a piece of fruit, ideally a banana and you’ll get one of your 5 a day, won’t crave as much sugar and can burn that energy efficiently. It’s certainly worked for me. I make a batch of fruit salad every few days with banana, sweet apples, kiwi, pineapple etc and have that for brekkie. There’s something appealing about pudding for brekkie, but in order to diet you have to leave out the cream :wink:

Oh gosh 780 words… sorry.

Lots of love to you all and hope you’re all having a wonderful day, more on wigs and capes and wedding cake icing disasters to follow soon I’m sure (I’m icing the cake you see :wink:

Angie