Darling buddies from May - moving on

Angie thanks for that,c an tell you are really proud of your new wheels!!!

Wow, we need to see a picture of the wig, is it for the Wedding and wow, icing your own cake and yum to the cup cakes!!!

You seem much more upbeat and very proud of you. I think Mr D’s Secretary is nice I had a chat with her over my genetics claim form and she was very nice. Hope the info isnt too scary and good look with the Healer, I would say anything is worth trying to be honest, and what have you got to lose and as its a bit of counselling, it might get good to get some things off your chest, so to speak.

Good luck and keep us posted.

Love to rest - back to work for now! Can you believe I have to set off at 5.30am to go for scan!!!

Hi Lovelies
Great to hear from you all. You are so good at updating your photo Lisa - you put me to shame. Hope the boob in a hole scan went OK to day and you didn’t worry about all the machinery.
Angie - wow you’re doing a lot aren’t you? Take it easy but enjoy it all, maybe you can put a photo of the cake on here for a while? I think that going to a healer is the right thing to do, you have nothing to lose and so much to gain. Hope the report doesn’t scare you though.
Lorraine - new undies, great, and still managing to keep stalking the cake aisle! My weakness is savouries so I’ll have a packet of peanuts please! However a nice cream cake doesn’t go amiss or a slice of cheesecake - yum.
Lily -glad to hear some of your questions were cleared up, it’s always worrying when you don’t know the answers. I asked my onc last week where the small mets on my spine were just in case I’d ever felt them. She told me but I can’t say I’ve ever noticed any problems in that area but it will help me now if I get a tweak somewhere else as I know it’s not that particular spot.
Just a quick catch up today as I’ve been at work and also don’t want to be told off by teacher again!
I also ‘did’ IKEA yesterday which was OK as I didn’t have to drive as far as we have a new one just opened in Southampton but was a bit busy due to the novelty effect I should think.
At work again tomorrow and Thurs and then off to Madrid with OH - oops, forgot to tell that one didn’t I? Again, good old airmiles - maybe you all realise how much I spend now? Actually they are saved since last year when we didn’t use any due to I wonder what?
Take care all
Nicky xx

Hi,
sitting up waiting for my son to return. He was planning to catch up on coursework after school but when I rang he said oh I forgot to say I am going to watch a tv programme recording. So he has gone to see that ‘beat the star’ programme. He has orders to be at school on time tomorrow no matter how little sleep he gets tonight! ED came in for dinner and so hubby was back on newspapers as we watched 2 episodes of hollyoaks, eastenders, holby city and mistresses. What a great night for tv! Well for some of us anyway. Coleen is recorded to watch tomorrow.
Nicky I agree knowledge is usually better, my mind goes off on one quite easily. You lucky devil, off on another trip. Is that how the other half lives!! Spanish onion air this time instead of French onions.LOL. Don’t forget to keep your bits that had rads out of the sun. I assume you will be exposing lots of bits being so slim. I think Angie beat the essay record this time!!
Angie, fab to hear a big catch up from you. You sound really positive and so you should be.Hmmm it would def be the chocolate cupcake for me please. Maybe cyber cakes is the way for Lorraine and I to go! Sorry Lorraine for just including you in my lack of control, I am sure you are much better than me really. Angie you have nothing to lose by going for a second opinion as the latest drugs/ideas always come into the top units first to be trialled. Any news on anythinfor you? I don’t think you have lost it by trying any therapies or ideas. Many years ago a friend/neighbour of mine had bowel cancer and I used to look after her little boy while she was being treated(meanwhile her rat of a hubby was crying on a work colleagues shoulder but didn’t stop at the shoulder!). I digress. After surgery her GP said well there’s nothing else we can do, I’m afraid you have a few years at the most. We were all so shocked. Anyway I have some relatives who are healers but had never taken any notice of it being more traditional in thinking at the time.I mentioned it to her as I found out that they were apparently very successful in helping some people. She was a bit taken aback but then decided she had nothing to lose and went over there every week. No money exchanged hands at all with people they tried to help. She said I feel a bit silly sitting there as I don’t believe in it at all, she was also an atheist. They said you don’t have to believe, it still works. End of story - the healers said there was still some cancer left behind from the surgery and did their stuff, no idea what they actually do. She went back for a check up later that year and the docs could not understand how there was no evidence of any cancer and she was in remission. That was 23 years ago and she is still bouncing along. I just think no-one really knows so you go for it and I will hope it is good for you too.What do you think about selenium, someone told me I should take it?Good luck with the icing, you can buy ready stuff you roll out for formal cakes.
Lisa, hmmm are you the paraletic one who can hardly stand up or the other one.LOL. What a great picture. Woo what an early start, still you should miss a lot of the traffic. OldRobson will think you are mad when you get up at that time!I hope the needle bit goes in quick and not troublesome. Boob down the hole will be strange, keep your neck nice and relaxed or it will ache staying in one spot. Good luck with all of that, is someone keeping you company?
Lorraine I will try really hard not to keep talking about food to make you feel worse. I will just eat it silently!!LOL.
Wrap up warm tomorrow, a chilly day
Lily x

hi all, wow Nicky sooo jeleous of you jetting off. Im hoping for a little trip to Dublin in September but worried my operation date will come through and have to cancel.

Well, Lily it is chilly, we have had a little snow! Gonna go shopping after the old scan tomorrow, Robson will wonder what is going on at 4.30am when I get up, might leave the heating on, sod the sweats otherwise wont get up.

Diet front not good, I just want to have nice meals and treats, and I find not cakes but chocolate, I cant go a day without craving it. so. what’s your few favourite foods?!?!

Healthy - chicken, strawberries
Normal - pizza, wine, chocolate and nuts - any variety as long as they are fattening and salty!!!

Im back on taking photos, dont like my own but always loved photos but when husband died stopped taking them as much, but last year hid whenever one about. This one is special people: mam, dad and niece Sophie xxx

lisa… my wedding date clashed with check up with Dr D post brain rads. Guess which I chose… wedding of course, you can move dates trust me I’ve had to juggle about 15 appointments in Feb and it all worked out.
NN ladies I must crash, v tired now.

Lots of love

Angie

PS Thanks Lily I’m hearing so many stories like that, nice to know some people do buck the odds.

Well done Angie for being so pro-active and trying to take a bit of control. I think going to a healer is a brilliant idea and will be very comforting. We are all with you and supporting your wishes totally.

Well Nicky jet setter or what? you have a lovely time.

Lily you sure have a thorough check over I will have a mammagram in May and then each year with no other checks as far as I am aware apart from a blood test in Nov to see what the hormone level is up to. You were very lucky to only have one node removed. I ended up losing 25 although the cancer was only in one. Which has now created the at risk arm but I guess that is how it is done. I had the blue dye travel into 3 nodes at the initial surgery and the sentinel node had the blue dye in it aswell as the microbubbles trial I was on. Well it certainly sounds as if the wedding plans are progressing even if it is only the type of cake there will be!

Love to you all.

Bev xx

hi everyone

reflexology tommorow, was going to give it a miss, but it is a privelage so i need to make an effort. trouble is i want to see grandaughter as well. cant fit everything into my day, need longer ones.
lily 2000

just had cherry pie and custard so i guess for today, ive given up the diet. it was yummy! taste so much nicer when your not having junk regular.

speak later quick post cos im feeling shattered tonight.
take care everyone.x

Hi cyber buddies,
Well at last I have a photo, hope you all like the shot of my dog, Max. He is a Tibetan Terrier and it is quite hard to get a shot of him as he is so black and hairy. OH just came in and said ‘ask them if they like your new hair cut!’ LOL. Thinks he is a comedian. He is thinking of changing his car as he was told it is heading for a big bill. I am really impulsive now and think he should just go and get it and hang the consequences. He is holding back and saying perhaps we better wait. Funny what illness does to people or maybe Victor is just being contrary, hmmm have to think about that one.
Some more news, tonight I rented a house for all the family during the Easter hols. Guess what Nicky it just happened to be really close to you, So look out I am heading your way. Please say you will be there for part of the second week. I told you we always holiday where there is a Tesco to see!We did not want to go far as some of the family cannot come for long. I just fell in love with the picture and may just squat there and refuse to leave. It has 3 acres of woodland, a heated outdoor pool (I don’t think so!), a jacuzzi, spa, full size snooker table, badminton, and a tanning bed. So we will be well catered for even if it rains I hope. Plan to visit Winchester, Salisbury and maybe Southampton. Quite a lot of nice places to visit. Is anyone else down that way? Don’t worry I wouldn’t descend with the entire army!
Lorraine yummy pie and custard. mm mm mm.Hope you get both nice things in your day some how. How nice to have 2 lovely things in one day. Little chap brought me a 4th birthday party invitation round tonight and said he had written it all himself!!! Superb writing for a 3 year old and spelling! Bev I think the onc all have their own routines. Mine likes tests! I do think the SNB and what you had done (which is most likely the next advancement), is the way to go to avoid terrible after effects from the surgery. I hope yours is still improving and will continue to do so. I think the wedding was just the right thing at the right time to distract me. How is work?
Angie, no problem and do tell us about the wedding plans. Have you decided to wear a different dress and if so have you found one yet? Have you thought about practising icing on a cheap cake first or are you an expert already? I would be terrified of wrecking it!
Lisa - Hi Mum, Dad and Sophie, what a lovely shot and thank you for sharing it with us. I can’t believe you had snow, not that bad down here. In fact I put a jumper under my suit and nearly baked as school was so hot. How was the scan, hope it was not too stressful for you. Yup twinning again, it is galaxy minstrels and ripples for me at the moment. I couldn’t eat chocolate while on chemo so I feel like I have discovered it all over again.Maltesers yum.
Better finish here and Nicky I hope we can meet up again next month.
love to all
Lily x

Heya Lily.

I’m still wearing the silk dress I bought last year to the wedding. It’s just that I have a big traditional style dress that mum bought for me 20 years ago on a mad shopping spree but I didn’t like it anymore and I refuse to wear prosthetics on my wedding day so I’m going flat chested 20’s style slinkyness but I will have a wonderful huge cape.

I’ve now got 2 spare cakes (been up to the bakery) and I have done icing before but I’m really not that bothered about swirly bits etc, actually all the cake designs I’ve seen are too OTT for me.

Going for fresh flowers though, I would love to have got some mistletoe but it’s too late in the season for that.

It’s looking like people maybe arriving from the states too, not sure who yet but I expect it’s an old friend of my ma’s who I do really like, she’s like a god mother to me. And a londong friend who I assumed couldn’t possibly make it maybe can too which would be great even if she will have a wee baby with her.

Back to distracting myself from tomorrow… bone scan… waaah, excuse me while I just hide like a scaredy cat.

Have a great evening.

Angie

Hi All

Angie, thanks I know would defo move appointment for a Dublin trip!!!

Lily loving the Maxter, boy can you image our wigs if we had ever carried out our threat to use our dogs hair!!!

Well girlys me and my viens are not speaking, after rising at 4.30am with only 2 hours sleep made it in perfect time (oh and snowing in Newcie land). Well hour later I was back out no scan!!! The nurse wouldnt even attempt my viens as coudnt use a butterfly that was tiny as needed to canulate (god I know the lingo now) so the could pump the contrast in when on table. A special doctor came in and apologised hugely, had 3 goes and gave up, my arm is black and blue, burst, collapsed whatever or bit of all, aching at tad now. Even had the demon inside wrist and even looked at my smelly feet. Had a look at my bad arm but thought unlikely too and wasnt letting them - so had to shop shop shop!!! Waiting for consutlant to decide what to do, might get my chemo ward to have a go then travel up with it in or possibly get an anethetist to do it - they only need a little blast of lovely gas and viens pop up!!!

Well bra shopping, M&S in Newcie had a lovely underwired fab, nice bra with matching nicks and bra had pocket and everything in, was well impressed, didnt even freak out at size, but might wear my old falsie with it in case I rupture it again!! Bravissimo, nice, no pocket but the size round me was smaller but cup, boy could be working my way half way down alphabet!!

Nite all, back tomorrow bright and breezy, need more sleep xxxx

Angie, dress sounds lovely and it sounds like its going to be a fab day with really precious people around you. Hope the bone scan goes okay, aarrrggghh needles and radioactive dye!!! Its a close scan but harmless I just wanted to stick my head out to see if I could see the computer as I had to run through to Carlisle for mine xxxx

Hi all: Haven’t posted anything on here for a couple of weeks - no reason - but will read thru it all again and get with it.

Angie: your healer sounds a good idea - a girl who worked upstairs from me here was a reiki master and when I told her about my BC she laughed and said she had wondered why she felt such heat coming off me! She said it was like standing in front of a fire! Who knows what that was.

I’m fine, six weeks into the Arimidex - 254 more weeks to go! Now got to do things about my tachycardia including 24 hour heart monitor next week and then an echo-cardiogram. If it isn’t one thing, its another.

Will come back when i have read all your messages.

LOL

Julia

Two messages in one day - you can tell I’m not busy today!!

Right – here goes – trying to do a catch up with your busy ladies!

Nicky – I think trying to slim down is the same for all of us, just takes so much effort. I’m doing the low carb which generally works for me – so far I have lost about 4lbs in two weeks, just hope it keeps going. Glad you had a good trip to Paris, even though it was very quick and then you had all fun when you got home – life is a b***h ain’t it? I envy your daughter – OH and I nearly went to live in Paris some years ago, but Peugeot bought Chrysler and we didn’t go – had been flat hunting and everything – what did I just say about life?

Madrid as well! You are lucky, hope the weather is good and I’m sure you will enjoy the food, etc.

Lisa – glad I don’t have to make decisions like yours about the recon, it is very difficult. Having choice of where to go helps in one way, but checking out which is best will take time, but it is better to be happy with where you are going. My battered bosom is now at least a cup size or two smaller than the other one so needs a bit of padding. Have sent for some thingies from one of the mastectomy co’s which should arrive today so will see how that looks. I think you are even braver having the teeth done, I always cringe when I see that on the makeover progs. Vein problems are the pits aren’t they – hope they come up with a good solution.

Lily: You are obviously enjoying yourself with the wedding fayres, etc. Only problem is the more choice the more confusion. The wedding venue sounds nice and the rules are a bit like the humanist funeral thing we did for my mum. “Any music you like but no God”

Love Max – my neighbour has just had a Tibetan puppy who bullies the two year old Wheaten terrier something rotten. Holiday house sounds great, we are going to Scotland to stay with friends in a couple of weeks time and, as they are serious walking people, am not going to have room in case for the walking shoes – shame that, what?

Glad your touchy feely check up went OK, I had one on Monday with my lovely onc. As I said in my brief message, am on the Arimidex but still debating the Herceptin and waiting for the results of the heart investigations. My Prof doesn’t seem too worried if I don’t go the Herceptin route but we will wait and see. Please can we just get all this messing about over and get on with life! My onc mentioned the dreaded mammo and my reaction was “if you think I’m putting my damaged bit in your squishing machine, you are mad!” “On no, not for quite some time, when the nerves are feeling better. We want to stay friends don’t we?”

Angie: am tracking your progress and sincerely hope you are OK. The wedding plans sound great and the slinky look is so much more elegant than the meringue!

Lorraine: Trying on bras is a nightmare even when your boobs are the same size – wherever you go they come up with different sizes! I am back in the underwired ones now and have an old one on which is fantastic fit, very comfortable, was from M&S but as I’ve cut out label since it scratched, don’t know what size it is!

Love to all
Will keep on reading you great messages

J

hi there everyone

its getting so confusing trying to remember what everyone as wrote, and when i try to look end up scrolling my message all over the place.

lily 2000

hes beautiful, i want to adopt him, the dog that is. keep talking about having one, but like to just go out when ever i want and it wouldnt be fair. when i had our king charles she used to sleep in my bed(very unhygenic, but i didnt care). it was lovely a huge hot water bottle, and she used to grumble when hubby came up, even dogs know the problems we have with these men.

nicky 08
hope everything ok, and u still getting about exploring the world.

carrieann

its true what you say, bras do vary in size such a lot, wish i could wear underwired ones but body doesnt look sexy so might as well have comfort, im glad you found some nicies to cheer you up

hope everyone else filling their time, with enjoyable pleasant things, and making the most of life. x

Hi de hi campers!
Sorry Lorraine, just been out to dinner at Prezzos and had oven baked pollo carbonara followed by honeycomb cheesecake and feeling quite stuffed! So yes I am doing enjoyable things, maybe a bit too often though!Glad you like Max, he is a real character and very good at learning tricks. He is getting on so sleeps a lot, in fact he is snoring happily next to me now. However if he saw a postman, gosh, he goes ballistic and barks the place down. Very gentle and reliable but noisy. He sleeps on the bed if you leave the door open, he seems to have decided that one of the spare rooms belongs to him and pulls the duvet back when it is very cold.
Julia lovely to hear from you, both times!Well done for losing weight, I should follow your lead but need to get in the right mood first. The holiday in Scotland sounds nice, not so sure about walking fanatics though. Some of them just keep going and I am very out of condition. LOL good idea not to take your boots. I am surprised they are taking so long to make a decision for you as I know there is a time limit to start herceptin, maybe it is quite a few months. Sorry if your boob is still sore. I will let you know how I fare with the squishing next month. Hope it is not a real screamer.Hope they sort you out without compromising your heart problems. How do you find arimidex? My onc seems to prescribe femara from what I have heard. By the way have you all got the forms to apply for free prescriptions? I eventually got mine this week and need to send it off. Lisa yep he was nearly a bald dog to donate his hair. Tibetan terriers have almost human hair making the m hypo-allergenic so would be good for wigs.LOL. Oh poor you with the veins, that must have been very upsetting and sore. I know what you mean they gassed me to get my veins back up after bursting 2 before my op. Crikey all that journey and they can’t find anyone who can get in a vein!! Good job you weren’t depending on it!At least you had a useful day shopping Jordan!!! I am too scared to get measured now in case I am into the biggies, still can’t wear underwires or my rads burn goes mad. I tried recently and got a big white weald up that itched like you would not believe and had to wriggle round school all day. Angie glad you are sorted out with a dress you are happy with. I think I misunderstood when you last spoke about it. I have heard of Pinky and the brain but you will be Slinky and the cape!!! LOL. That sounds lovely and you will need it if it stays cold. Have you got shoes and what do you have to go on your head? Interested in your choice of flowers? I am a big flower fan and buy them every week. I really like roses and also tulips. Wow glad some people are fussing you and making a big effort to share your special day. Hope the bone scan went ok. I did not think it was bad just a bit shocked when I fell asleep and woke up with it right over my nose. At least the jab is tiny so hope that went in ok and you had more luck than poor Lisa. Nicky are you about to have another bone treatment, good luck with the needles if you are. Sorry I lose track of your weeks.
Hugs
Lily x

hiya all, just a quick pop in , hope everyone is okay and bearing up. Ah, Lily favourite flowers and Angie’s, what is everyone elses? Mine is the Gerbra, its such a happy flower, love them, had them for my wedding and carried a large one for Graham’s funeral but still has happy memories, they make me smile, strange or what!!!

Well, doctors today after yestrday and rushing there from work, doc gave me pills but might try and see my usual doctor tomorrow and see if I can try to reduce myself first, dont want more bloody pills!!! So, healthy eating and exercise starts tomorrow!!! So, tongiht, had cumberland sausage, homemade chips, chocolate, nearly bottle of wine and still have nibbles to go - hope she doesnt want my b.pressure tomorrow!!!

Night all, lots of love xx

Hi all

Thanks to the lovely Lily who sent me an email prompting me to post.

hi to everyone I know but haven’t “spoken with” for ages.

Quite honestly I got really fed up when they chnaged this site and it put me off posting all together. To say i detest it now would put it mildly. I just found the other one so easy to use.

Really sorry to hear your news Vertie - Lily told me. Crap or what? Have to say whilst I am not wishing anything on myself my brain is definitely not functioning properly. I have significant memory issues - if anything worse than on chemo. Sometimes I just can’t remember anything - not all the time though.

Think I am also exhausted - have been working since DX and all through treatment and am so tired I could cry … That’s not helping mind or body - or weight loss come to that.

So apologies for not commuicating butI just need to have a bit of time off and try and rest.

Hopefully will be back soon.

Barnet news - following scalping by over-zealous hairdresser now looking ok.

Sending best wishes to everyone
love FB XX

I just tried to find the diet thread but just cant find it! Will look again but if anyone posts on there please explain I am having a few weeks off.
Cheers
Love FB XX

Hi - me again - nothing for weeks and then three in two days!

Lily, my battered boob is not sore or anything - just looks a bit grim, but the deep nerves have still not healed completely - according to the Prof - and they would play up if squashed. Arimidex is OK, a couple of hot moments during the day but nothing else - so far.

It is me that is holding off the decision about herceptin until I have had all the heart tests and then I will decide if I am preapred to risk heart damage. I am having the monitor fitted next Wed and have just had an appointment for the ECG at the same time at a different hospital! Did I hear someone say joined up management?

Take care all

J

hi everyone

tried to stay in today and do extra housework,cos ive been just doing the essentials, but i just cant seem to get into it, so decided to go out shopping instead besides it was a beautiful day. i am still feeling weary, and maybe a little down, which is puzzling why it should happen now, when i finished chemo in august , i go bed at a reasonable time but struggle to get up in the morning. so i can imagine its so hard for you girlies back at work.
lily 2000
sounds a lovely lunch, im slipping a little on the diet. i cant have brekky cos of tabs in morning, so it was 11 before i ate today, then i had to use some sausage up, (would have cereal but cant take milk near tablet time either) then at 3 i was peckish in town and went marks for coffee and cake cos they have an offer on for two pounds. then roast lamb tonight. i enjoyed every last bit of it though. i dont think im cut out to be a slimmy.

hope everyones ok x