Darling buddies from May - moving on

Hi, Nicky I never click on the reply button as it takes me back to various spots in the thread. I often got Angie or our others lost friends, which gave me a shock each time. I just start typing in the bottom box, don’t need to ever log in, then just click on post button. See if that works for you. It is a shame that BCC can’t do something to help with the insurance problem. They might be able to organise a fairer rate. As you know mine is a primary dx and I am fortunate to be 4years on from that but I still have to pay extra because I have seen a dr in the past year and take ‘any form of medication’. They cannot offer any form of flexibility ans still ask me morbid questions every time, like have I been told I am terminal. I don’t think tamoxifen or an AI for 5 years warrants penalty clauses. I think people not taking them when they should, are at more risk possibly.Anyway good luck with sorting something out. It will be interesting to see if Victor’s bill goes up after his claim this year. Not sure whether I need to worry if they will pay the full cost or not as I have no idea on costs, etc. Hopefully will be ok as it is an extensive policy. I checked it with my brother (ins broker) and he said its the kind that pays for a helicopter to fly in and a private plane if needed. I would say hopefully never needed! I had not realised how much more stressful it is to be ill while abroad and just had this strong pull to just get home asap. In our hotel a previous guest with chest pain had apparently died after refusing to go for treatment, so I guess they were very keen to get Victor seen. He has taken a few extra days off, which I am pleased about. Taking him to the blood suckers tomorrow. Is it mean to be glad its not me for a change? P do they check your rads burn each day you go? I only ask as I had a rash and it tends to get worse and you have to be wary of ulcers or splits in the skin if very sore. I was given actiform cool dressings which are especially made for rads and are amazing. Just imagine something that attaches to the skin withour sticking, stays cool and encourages healing. They turned the corner for me as I could smell burning from my skin and felt like it was on fire. The worst reaction tends to be if you have skin touching skin as that reacts. So where your boob leans on the skin of the chest below it. You must stop the 2 from touching to prevent soreness. The London hospitals recommend a piece of silk between the boob and chest. The actiform is even better and separates them. Good luck, nearly there :slight_smile: Val glad to hear you are on the way back up again and fingers crossed for an excellent and speedy return to your feet. Lisakeep us posted on the family reunions. Lily x

Hi ladies, including Brown Lily - sounds like a racehorse or something!
Very scary about Victor, I hope he is recovery well and getting looked at by the GP or hospital. I think very hot weather cn play quite a part in people feeling ill or breathless etc when they havent had any previous problems. I hope it didn’t ruin the holiday but I would have been on tenterhooks afterwards. It’s always more of a problem when you are away from home, even if it’s just down the road in the UK. Speedy recovery and much rest! BTW I think you must always be looged in as the Reply box only appears when I’m logged in, and I always log out of this site when I’m done. The normal pc is OK but I know several people on here have problems with ipads and the forum overall was playing up the other evening according to one comment. So, it’s still not glitch free and there are far fewer posters :frowning:
Carole - best keep an eye on any rashes, as Brown Lily has said there’s lots of areas where it can flare up. Also, not getting air to some areas doesn’t help, maybe you need to go topless in the sun LOL Far too hot for that I think.
Lisa - hope all is well and you are having fun with the rellies.
Val - I hear you are home, take care and recover quickly. Gentle hugs
Nicky x

Hello ladies. Have read all your post but sorry have not the energy tonight to reply to your posts about your hols, problems etc.
It is only one week since I had my op but it seems ages ago as so much has happened in that short period of time. Every day shows a slight mprovement and I am able to walk with more ease around the house using my crutches. I have a raised toilet seat both upstairs and downstairs. I am sleeping downstairs but last night my OH tried sleeping on his own upstairs (I think he was wary about kicking my bad leg in the night ( he is a restless sleeper, unlike me). But he put the door bell!!! beside my bed so I could “bing bong” him if I needed help in the night. I managed to get to the loo myself at 4am and to go for fresh water for my painkiller called Oxynorm. Without the added pain killers I feel ancient, very uncomfortable and low in mood, but once they kick in a feel like a new woman! Todays progress is fully dressing myself and hauling the painful operated leg into the bed. Not doing it the way the hosp suggested but my own way. They are clued up for “normal” people having a complete hip replacement but have NO IDEA what it is like with repairing broken ribs, plus bone mets, plus a muscle missing from my back after LD flap!! What they were expecting me to do was just too painful. They also gave me a gadget like a thick dogs lead with a loop on the end to haul my leg into the bed but just cannot be done that way for the reasons above.
I spoke to myGP on the phone today to sort out more meds, fill him in as he did not know I had gone in for my op, and to dicusss re-starting my Femara/Letrozole. Since I had stopped my chemo I felt more vunerable about nothing fighting my corner for bone mets so have re-started that today. Also Aneathetist stopped my Diclophenac slow realease as some contra-indication when undergoing spine block. This op was easier to handle than the last one as I do not recall even entering the theatre, never saw a thing until I was back in recovery and this was by far the better way this time. I would not hesitate to have a spinal block again as long as I was fully sedated. No flashbacks…nothing at all…
I did use my Kindle a little and my OH did cancel the paper on it. But he said he may use it if we go on holiday abroad another time. To be honest I was reading the words most of the time but nothing was going in to my head. I did manage to finish a book on the kindle that I had started. I am watching TV, listening to the radio, on the laptop, or watching the TV or iplayer. Have read or shoud I say skimmed a paper newspaper but don’t test me on it…
It is going to take a long time to recover has they had to cut away bone this time and remove it and I did need 2 unts of blood earlier this week in hosp as my HB was down to 7 but was up to 10.1 after the transfusion. My GP will check it again in a week or so. Must go it has taken ages to write all this. I am thinking about you all. Peacock my “french” daughter was cycling from the station in Sarlat aling to Grolejac on her hols a few weeks ago…just incase you thought it was me!!!
Love to you all, Val (Please excuse typing errors)

Hi, Val good to hear from you and I am so glad to hear that this op was an improvement, in more than one way. The convalescence must be frustrating and uncomfortable too but hopefully getting better every day. I laughed at your comment about reading and not remembering anything. When I was in hospital with severe pre eclampsia, waiting for ED to be born, I tried to do some knitting. I was on valium for the high bp and thought I could knit despite memory loss of most of the day’s happenings but was told by my MIL who completed the item that she had never seen anything like it and had to go back to the start but didn’t have the heart to tell me at the time. Take care. By the way how is your hubby at cakes? Nicky well Victor is finding this very difficult as he is in limbo really without a dx. I took him for a lot of blood tests today but we have to wait for the ECG. We have no idea if he should be careful or not and I was warned by the nurse that people can feel depressed. I am doing a lot of running around and catering as he will eat healthier options if I just hand him the completed dish on a tray and he has been warned about lifestyle changes to make. However, I can’t keep this up when I am working full time. He goes back to work a week before me and I think that is when he will snap back into his routine as he is always terrible when bored or ill. Tomorrow baby is having his special day. YD’s partner is an atheist and so they have decided that a christening is not for them or even any church blessing. This was a bit of a problem for me, having bought my other 2 grandsons christening presents to keep. The rest of the family wanted to buy him gifts too as it is more noticeable as they all went to a lot of trouble for smiler’s naming ceremony which was also this year. My mum was disappointed that he would be the only one not to wear the family christening gown and to go in her book. I wore it at mine and many before and after me. I would have loved him to be christened but this is not my decision to make and so I have focused my pleas on wanting to treat them all the same. So I am very happy that he has his special day tomorrow and he will have his St Christopher from Victor and I to hopefully always keep him safe. He is going to put the gown on briefly for photos, for my mum. I offered to buy a cake and have had a beautiful pale blue cake made with his name on and little icing monkeys as they are his favourite cuddly toys. We may have rain tomorrow but I have been thinking that they have compromised a lot to keep the rest of us happy and it will be a fab day :slight_smile: Lily x

Val it’s lovely to have an update from you so we can send you lots of cyber hugs, it’s early days yet at just over a week and you know better than us that things take a little longer to get over each time. Here is wishing you a more painfree life so you can do more of the things you like to do. What a shame I missed Young Val but I know the route you are talking about.

Lily I am sure that Smiler’s naming day will be just as special as a Christening, but without all the religious hoo ha! You are right of course you must respect their wishes but at least you’ve all reached a compromise and I’m sure a photo of the 4 generations of you will be wonderful, especially with the christening frock on. Here’s wishing you all a very happy day and no doubt with lots of lovely food provided by Nanna. It must be very hard for Victor to now be facing some health issues and I’m sure with your coaching he will eat the more healthy options.

Nicky and Lisa, thinking of you two as well.

I’m afraid to say I’ve had a rough week feeling extremely tired, the heat has been unbearable some days and travelling back and forth to rads and appointments is really getting me down. Yesterday came to a head with YD and myself having a major row, we both said things that we shouldn’t and ended up the pair of us cuddling and crying. It seems that when we went to the GP the other day she saw the dr by herself to tell her she feels stressed as the situation at home seems to be causing her to feel ill with tummy upsets and so on. Most of it is to do with my health and perhaps the last 4 years of hell has just about taken its toll. I woke up to a very painful rash from underneath my rads boob down to my DIEP scar, with a lot of big red bumps. My first thought was shingles but when it appeared on the other side too I think that’s been ruled out. I mentioned it to the rads dr who gave me some anti histamines and then I went to see my own GP who said it isn’t shingles but she doesn’t know what it is and is putting it down to stress! What are we like in the Peacock family!!!

Today I’ve just spent the day mostly in bed doing nothing, although YD felt poorly too so she’s been resting on the sofa and we’ve been looking after each other. Thank you for listening to my soul, it feels better to get it off my chest, YD and I have cleared the air and hopefully we can both move forward now.

I had a visit to the blood suckers yesterday too, but am pleased to say that it all went without a hitch or any pain. Hopefully my vit D result will be in on Monday so my GP knows whether to give me a high dose, I think this will ease the rib pain.

Thank you for letting me talk about my woes, you lovely DBM xxx

Hi, oh Carole its just one bloody thing after another at times isn’t it? I think you are managing brilliantly where many would have just collapsed in a heap long before now. I would say don’t look too far ahead and just try to spot lovely things that happen that morning or afternoon to focus on if you can. The big picture is always so much more overwhelming and complicated but generally things slot into place given time. I think back about losing your other home and here you are in your new home, operations out the way now, no chemo and almost through rads (down to single figures now if I kept count correctly). Although the tablets are annoying they give a certain sense of reassurance on a daily basis just by the action of taking something. I now realise I will be very anxious when I have none to take and have to walk on. You have come a long way in a short space of time if you consider the last few years and mostly on your own, with Mr P away so much. Not many people could have done this or certainly not with as much patience and thought for others as you have. You remember we talked a little while back about whether YD had been more affected than you thought. Sadly it seems she is. So like mums do, we have to also appear to be braver than we feel otherwise we have 2 people to look after. Just some ideas off the top of my head to get you thinking - maybe loudly walk in shouting yippeee, only 8 left to go, doesn’t time fly, nearly done’. Maybe say ‘I’ve just got a week or so to go and then i was thinking we’d treat ourselves to a trip to?’ Maybe say ‘do you know these tablets I am going on are really expensive and one of the most successful drugs ever made.’ Or ’ when dad gets back, I’ll be finished so we thought we would … You know where I am going with this, a bit of positive propaganda to fight off her ‘what if’ thoughts. If you think about it, its a tricky place if dad is away and mum is poorly too. I hope this helps and I have not made you feel worse!!! The rash sounds horrible and irritating so hope it improves but as it continues to cook for a week after you complete rads I think sadly it will get more annoying and that you would benefit more from taking action now to get the skin better or at least staying the same. It is always worse if your boobs are big enough to dip down to touch the skin below, so you have to prevent the 2 pieces of skin from coming in contact. Silk is apparently a natural healer and you just have a piece of fabric trapped there (this came from Harley street rads clinic). I went to the gp and got actiform cool dressings. They are amazing, not well known but made for rads burns and ulcers as they encourage healing. Even my chemist had not heard of them and had to order them. i was just lucky to see a locum nurse with experience of the problem. It is ice cream to hot boobs. Maybe you can order them online even? Good luck and yes keep moaning, offloading to us, who know just how you feel often helps. I am holding a serious ‘bloody everything post’ in reserve, just say the word and I will rant for you. Hugs carole. Lily xxxxxx

HI all, huge apologies for my absence, feel soo bad not posting but work been so manic and by time i got home an went swimming been so tired.

Nicky sounds like you have had your hand sfull xxx
Lily, how’s Victor now? Sounds scary when on hols, just shows insurance is worth it… brown too eh!! Better than this weather.
Carole, poor you, hope you and yd get some chilled time together and rash eases…
Val, kept up with your progress on FB, well done you and hope to take it easy.
no gossip here, still tired after our visitors which was fun but tiring, today ive had some sort of illergic reaction to some silicone tubing i think, i look like elephant man lol, my eyes and nose all sweled up and spots everwhere and face swollen and lumpy so anti histermines to see if helps before work on Tuesday.

Catch up again tomorrow xxxx missed you all and huge apologies for absence was just sooooo tired xxx

Hi ladies
Val - hope the recovery is going well, one day at a time :slight_smile: I hope you feel much better each day and your mobility improves once the recovery period is over.
Lisa - that sounds nasty - hope it clears up soon. Also hope that you’ve had some rest after your recent visitors and you are being kind to yourself. Maybe a couple of days off would do the trick?
Lily - watch out for that lion on the loose - how scary would that be if you spotted a lion in your back garden! Hope that yesterday’s family time went well and everyone had a good time together celebrating smiler’s life, I don’t think it has to be religious to still enjoy and celebrate a baby’s birth. It’s a time for families to get together and celebrate being a family :slight_smile: Hope Victor is not overdoing it and feeling better for the rest.
Carole - poor you and YD, it’s not surprising that the past year or so are taking their toll on you both. Maybe it was a good thing to have that mimi breakdown, sometimes we all hold it in so much and put on a brave face that we don’t realise how much everything affects us. It will have done your daughter good to let it all out to you, and also to have spoken to her doctor, that’s quite brave at a young age. I know my daughters were so much more affected by my diagnosis than they let on and eventually that had to give as well. I had shielded them from hospital appointments, scans, results etc until my eldest told me she wanted to know ahead of time, not after they had happened - so I had got that wrong even though I was trying to protect them. I now include them as much as they want to be included and am honest with them so I’m not hiding anything from them. But both of them are different and deal with it in a different way. Maybe a good heart to heart with your daughter might help you both find out how you both cope from here on in? I don’t think it’s easy though for you both as you are both dealing with so much and don’t have so much ‘local’ support from family and friends as the rest of us do. However, that’s what we’re here for, so do let off steam or just come on here and tell us how you are feeling and I hope that helps you. Hugs to you and YD x
We had a busy day yestrerday with FIL’s 80th birthday. A low key family get together that went very well and luckily the sun shone so we were able to be out in the garden for most of the afternoon. All organised very last minute but it was worth it to have his family around hime to help celebrate, all chipping in with salads and trifles and things in between. We got to dee my SIL and her husband’s new spaniel puppy - so, of course my 2 D’s kept asking if we could have one. Well, not if you’re not here to look after it we’re not! Unfortunately my Mum had been in hosptal overnight on Friday as she had very high BP and a pain under the ribs. Luckily all the tests came back OK but she’s still not comfortable so is heading back there today to see if there’s anything else that can be done. What with that, OH away for a week, a daughter heading back to Paris for a flat hunt and job interview and a cat that’s on it’s very last legs it’s going to be a rather stressful week I think. Wish me luck.
Nicky xx

Hi, Lisa WHO??? Can’t remember anyone of that name!! Just kidding, you time out whenever you need buddy. BTW I am having strange ideas here and really trying to be sympathetic (because it sounds horrible)and not naughty but what were you doing to/with the silcone tubing (if its not too dodgy to write on here!). Did it involve the american relatives? Sorry just trying to make you chuckle as I imagine it is horrible when you catch sight of it so hoping it will soon go. Fat club tomorrow to see the holiday damage :frowning: It sounds hectic, firstly fingers crossed mum has nothing too tricky and it improves soon. Sounds a bit like Victor’s trouble so keep me posted. Well done FIL for becoming an octopus and hope YD gets all her plans in place to remove that worry too. Poor old cat had rallied a bit from what you said a while back but I guess his age is sadly catching up with him, the horrible part of having pets, fingers crossed for that sad day not coming too soon. We were very disappointed to hear there is no lion on the loose as we were all very excited about it. Would have been more concerned if it had been a bit closer though. i think it was a great dane with a fancy dress on!! BTW it was baby’s celebration as smiler had a naming ceremony earlier this year. Poor baby had a bit of a cold and was a bit grizzly at times but when we oput the christening gown on, he went crazy waving it up in the air, sucking th material and generally having a wrestle with the material so we didn’t get a full length photo of him in it. He is a pretty, delicate featured baby, particularly in a long dress, not sure dad was as keen as us to have him in it! It was terrible weather but did not spoil our enjoyment. We even had thunder, lightning and a power cut, incredible for August. Val I hope you are still improving day by day and at least the worry and worst part is over now. P still thinking of you and hoping for a big downpour to make you a bit cooler. Lily x

Val, sounds like a nice weekend, hope things go well with your mum.
Lily, thanks for that lol! It was all above board the tubing I mean lol!!! Still got fat face and swollen eyes - happy days x
Thinking of everyone must go now to have a scratch at my spotty arms, aqua fit tomorrow, hope it’snot chlorine allergy - lost 5lb this week as started again as been bad so that was good.
Sun out today for first day in ages, been torrential rain for days on end!
Night all xxx

Hi Lisa, well done for the weight loss, very impressive. I only managed a loss of half a pound but considering it included my excessive eating on holiday it wasn’t too bad. They had no diet drinks at all so swam a lot to compensate. I just seem to chug along slowly, about 10lbs lost overall, so far. I could continue my jokes about above board and your tubing but will refrain as feeling sorry for your fat face and swollen eyes. Look on the bright side, when the fluid goes that will be more weight loss without giving anyhting up :slight_smile: . Have you seen the dos as I thought piriton might sort it out? Good luck that it goes soon. Today ED and I hit Lakeside on a shopping frenzy starting with 2 hours in primark before hitting the fooodhalls. Then around the rest of the shops. I bought some rather racey black short boots with leopard skin backs for £25, slippers,underwear,essential black cardigan to replace old one, some trousers for work, skinny stretch (essential) jeans and a lacey top and pressies for everyone else. Victor had new shoes. he is a nighmare and will never ever buy shoes himself or try any on so I have to try to work out whether they will be comfy. Over the years I have taken more and more liberties with the style I buy ha ha. His first comment was, they are rather pointed aren’t they. Followed by putting them on and saying ‘do my feet look big in these?’ . I guess that’s the blokes version of ‘does my bum …’. Then he decided they were really really comfy and would do! He has had 2 days back at work, including today when he had a medium length drive to a meeting and was fine, so fingers crossed all is well. The hospital in corfu sent a disc of his ct scan and results today and we spent an hour googling all the things they found to see if it was normal to have sharp angles, etc. I couldn’t imagine where sharp angles came in with a heart issue but we eventually found that sharp is good. They also told him one kidney is smaller and looked up all his blood test results. Seems his potassium is low and that can cause a lot of problems. Carole you must be getting down to about 5 to go by now, hope it is going by fast for you now. Lily xx

Hi Lisa, well done for the weight loss, very impressive. I only managed a loss of half a pound but considering it included my excessive eating on holiday it wasn’t too bad. They had no diet drinks at all so swam a lot to compensate. I just seem to chug along slowly, about 10lbs lost overall, so far. I could continue my jokes about above board and your tubing but will refrain as feeling sorry for your fat face and swollen eyes. Look on the bright side, when the fluid goes that will be more weight loss without giving anyhting up :slight_smile: . Have you seen the dos as I thought piriton might sort it out? Good luck that it goes soon. Today ED and I hit Lakeside on a shopping frenzy starting with 2 hours in primark before hitting the fooodhalls. Then around the rest of the shops. I bought some rather racey black short boots with leopard skin backs for £25, slippers,underwear,essential black cardigan to replace old one, some trousers for work, skinny stretch (essential) jeans and a lacey top and pressies for everyone else. Victor had new shoes. he is a nighmare and will never ever buy shoes himself or try any on so I have to try to work out whether they will be comfy. Over the years I have taken more and more liberties with the style I buy ha ha. His first comment was, they are rather pointed aren’t they. Followed by putting them on and saying ‘do my feet look big in these?’ . I guess that’s the blokes version of ‘does my bum …’. Then he decided they were really really comfy and would do! He has had 2 days back at work, including today when he had a medium length drive to a meeting and was fine, so fingers crossed all is well. The hospital in corfu sent a disc of his ct scan and results today and we spent an hour googling all the things they found to see if it was normal to have sharp angles, etc. I couldn’t imagine where sharp angles came in with a heart issue but we eventually found that sharp is good. They also told him one kidney is smaller and looked up all his blood test results. Seems his potassium is low and that can cause a lot of problems. Carole you must be getting down to about 5 to go by now, hope it is going by fast for you now. Lily xx

Hi ladies
Hope all is well with you. Val, that you are recovering (I’ve read that you are getting more mobile by theday) and the painkillers aren’t needed for too long. Lily, you are right, potassium has a big part to play in heart problems. Remember me saying about mine all through chemo? My atrial fibrillation (palpitations) can be caused by this plus a whole host of other problems. feed Victor bananas or, if you read into this properly dried apricots and other foods as bananas aren’t actually that high. Glad baby’s day went well - except for the Christening robe bit, maybe he knows Dad doesn’t believe :wink: Sorry I got the name wrong but I’m blaming Carole as I’d read her post and couldn’t remember whether it was baby or smile - even now have I got that right?
Lisa - well done with the weight loss keep going - and also to Lily who has done well even with a holiday diet in between!
Carole - hope youa re not too shattered and things have settled at home. Not long to go with the rads then you can kep away from hospitals for a while except for scheduled appointments. Is it any cooler? I’ve looked at South West France and it hasn’t seemed as hot this week. Which is just as well as OH is in Biarritz on a week’s ‘offsite’ management conflab - well, so he tells me.
Poor kitty is still with us but no more rallying for her :frowning: She did pick up a bit after we changed her diet and she had some steroid injections but that was back in June so is winding her way slowly to the end. A very sad time for us especially as I think muggins will have to decide that she should be put down to avoid the stress (hers not ours) of losing mobility which is what happened to our cat from a few years ago. With her we hadn’t expected it so couldn’t avoid it but with little missy she is getting worse so you know it will happen. Speaking to my SIL helped the other day as she said she regretted not putting her old moggy down before he got that bad. YD is due back to Paris at the weekend with a job interview on Monday but still no flat - yikes. They are trying hard but I guess it’s quiet over August when Paris goes on holiday, maybe more will come up next week whilst she’s there to view with the others.
I had a scary thing happen the other day when driving. I was in my car and ED was 2 cars behind as we took that car back to the garage for a continuation of the repair problem. We were going under an underpass in the town centre when I saw car lights coming towards me. This was not OK as it was a dual carriageway! I had never thought anyone could do that - but they did - go the wrong way down a one way road. Luckily ED was also OK and no-one was in the outside lane so there wasn’t an accident - but there so easily could have been.
Have a good weekend everyone, a bit sunnier than the Bank Holiday one I think. A quiet one for us with OH back and YD off. All change :slight_smile:
Nicky x

Hello my lovilies, Not been on the site much. Had a really bad day yesterday and spent most of the time in bed sleeping or on the couch dozing. Had a lot of pain and discomfort and an unsettled night. Was just a bad day all round.
Today is the difference as chalk and cheese. Felt really good. Suppose I will just have to expect that while I am recovering. MY OH was out all day walking with his best pal so his wife, my friend, popped over at lunchtime and spent the afternoon with me. We had a bite to eat ( my OH had made soup for us in the morning…bless) and there was strawberries and clotted cream but she didn’t want that so it was cheese and biscuits etc. But we had a good chinwag and caught up with all the gossip and put the world to rights…as only us women can…
Am heading off to bed now. Just going to take my array of pills and boy am I ready for bed…I am exhausted now…
Have read your posts and glad you are all getting on with life as always. Take care, Love V

HI All, can have a good catch up tomorrow as off work yippee…
Lily, thanks for the jibes, very funny, apparently it isnt the tubing as its what they use for baby bottle teets, god knows now i just look old and wrinkly where the skin has dried out and neck is very spotty and eye swells at night - hee hee, piriton helping!!!
Lily hope Victor is okay and Im sooooo jeleous of those shoes xx
Nicky, poor cat, it’s sooo sad, very scary re the car situation too, arrgghh xx
Val, glad its a good day you are an inspiration xx
Carole, have the rads finished? xxx

Hi,well my long post from yesterday vanished into thin air when the site went wobble. Or maybe it was my end, either way I clicked post and it was in the little box but didn’t make it on here, very puzzling. Cannot remember half of what I said but Nicky I do wish the last times with your cat go as easily as these things can. It is the saddest part of having a pet and I am always the one that has to do the deed too :frowning: I had to help ED take her dog and howled the place down with her, just too sad. Don’t worry about the babies, it will only get more confusing as the pride expands in size! It was baby, our newest member. The car incident sounded terrible and you were lucky not to be involved in something serious. Do they have reasonable b & b type establishments in Paris if the job comes up? More worry :frowning: but it will be exciting for her I am sure. Carole it has been quiet, are you ok. You must be down to little numbers of days now, well done and I hope things have got better rather than worse at home. Hugs. Val it sounded like your good spell followed a good rest so I guess it will be a balancing game at the moment for you to rest enough but still do as many things as you can manage. You have come a long way already and deserve a little peace from medical intervention. Perfect timing for a friend to pop up for a good chat to make time fly by. Keep well. Lisa or should I say the lesser spotted wrinkly Lisa, oh poooooor you. It sounds horrible and I am sorry for you, just trying to get a few giggles for you. What on earth caused it then? You need to think carefully about anything else you did/touched (no comment :wink: Maybe hair dye(that def can cause it), make up, spray, air freshener? Was it just your face? If yes, then surely it must be something you touched or maybe ate? I know those tiny silicone things inside handbage can cause that? Enjoy your weekend everyone love Lily x x

Hello girls

I’m sorry for my absence and I must confess that I haven’t read back on all the posts since my last posting but I hope you are all doing well and Val is recovering nicely.

My absence has been because I have felt terrible : the problems just keep adding up and yesterday I asked if I could stop rads - only 4 more to go now - but the Dr said no as the benefits of having it will be lost if I stop before the full 25!!!

The recon boob is still dressed, still looks horrible so fed up with this.

The red blotchy rash is from under my boobs down to my hips on both sides and it looks like my skin is bruising under it. Rads doctor says it isn’t anything to do with rads. I asked the Rads dr about the product you were given Lily but he wouldn’t give me anything.

The final problem I’ve had for the last few days is that I feel flu like, I keep shivering and just can’t get warm and when you touch my tummy/boob it is burning. I’ve checked my temperature and it isn’t raised so obviously not an infection. Usually the shivering is eased by taking paracetamol and nurofen, temporarily. Did any of you have similar symptoms with rads? I don’t remember this last time.

I’m off today to have the zoledronic acid drip, I don’t think it can make me feel any worse than I do already so might as well get it out of the way.

One day I hope to post how well I am feeling

All for now, take care all and enjoy the weekend xx

Lily, god knows havent used anything differently at all and when I get hot it flares up too, at mo just wrinkly eyes and dry skin also got it on my neck, i did however let my aunty wax my eyebrows and lip (ouch) and my lip puffed right up and lips swelled but it all went down and this was about 5 days afterwards.
Carole, poor you, it sounds awful and Im sure the side effects of rads makes you tired and weepy too mine did xxx really hope they get to the bottom of the rash, it sounds bad, is it itching too, and here’s me complaining about my face. Hope you can get some clarity soon xxx
Love to everyone else xxx
Lisa

Peacock, Although your Rads Doctor said it was nothing to do with rads I do think you need to have someone else check it out. If I had seen this post earlier I would have advised you to speak to the nurses today when you get your infusion of Zolidronate. You cannot let this go untreated and you may need to see a specialist doctor. This is serious Carole as I know you have diabietes as well as your other health issues. Is Mr P around just now? Please let us know how you get on and what is happening. I am not saying that this is life threatening but I do not think you can just pretend it is not happening. It needs attention now. Please think about it. Thinking about you and hoping you can get comfort soon, Gentle hugs, Val

Oh dear Carole, you are having problems aren’t you? I echo what Val has said, I think it needs checking out. Also, you may feel a bit worse after your infusion today :frowning: For some reason the 1st infusion can make you feel flu-ey so this may add to your woes - hoping of course that it doesnt. Really hope things improve quickly for you and the rashes disappear, it can’t be good at all for you at the moment. Sending you gentle hugs as well. Take care.
Hi everyone else - a busy afternoon for us buddies, we don’t usually post at this time. Well I’m feeling a bit down as have just packed YD off to Paris (again). It’s all a bit different now as I don’t know when she will be back and also, as she is no longer at uni and will be working, she won’t have such long holidays either, even when she does get to visit :frowning: I have said to OH I’m only being selfish here as I do want her to get on with her life and enjoy this year (or more?) but it is all very odd not to have her around. Hope to here from her soon, although she is camping out on someone’s floor until she finds a flat, especially as she has some interviews lined up next week.
Hope everyone else is doing OK. Lisa - hoping you are feeling better after your tubing incident (I still don’t think you’ve told us the truth ha ha) and Val that each day things get easier for you. Nice that you had a good old chatter the other day with your friend :slight_smile:
Nicky xx