Hi,
just in from a late night at school, which was a leaving do for my tutor year. Got very hot and nearly boood watching them as so many of mine were performing. Had lots of bye photos taken and it was sad but lovely. Son’s exam went ok he thinks, phew and he got it done. Spent the whole day worrying he would have brain freeze and not think of an idea. He had to make a sign for a festival and says he put extra low bits for children and disabled people, so hope that was a sharp move!
Oh you know I think one of the worst/hardest things about BC is that it takes away your peace of mind and ability to plan years ahead without thinking, what if? Mostly we chug along with it as a silent partner and then it just pops up in your mind and becomes overwhelming again.So sorry to hear about you 2 worrying. It goes with the territory but that does not make it any easier. Lisa why are you so stressed? It is a holiday, chill and look forward to it if you can. Sorry headaches are back and visual disturbances but they are normal for migraine headaches. Think calmly you have had your scans, you get headaches so this is not new and you say yourself that you are stressed and crying. I am not surprised you feel bad, it is a wonder you don’t have high blood pressure and an ulcer!! Hey you came through all this treatment and more ops than most of us with more to come. Don’t lose sight of how far you have come and this is the time to enjoy yourself. None of us knows what lies ahead but if any of us do have more bullets to bite, then that is even more reason to enjoy now. I’ll be round in 10 minutes with choccies and lots of roses to cheer you up (in cyberland). Nicky yes I will be surprised if losing so many lovely ladies so close together has not shaken a lot of people. Don’t you think that the kids growing up and coming to the next stage makes you unsettled and think about things too? Its great that you enjoy work and I hoep they soon forget about you (in the nicest way) and don’t go on about it. I always think b…r I had actually forgotten till you said that. Moving to the tablets sounds a smart move and I hope they suit you, fab to lose the vein hunting. Fingers crossed you will sail along on them, even if it is on an empty tum. I suppose you’ll get even slimmer!!! Soulgirl I right click and copy all my posts just before posting as mine get lost evry time unless short and quick (I hear you laughing - me short and quick!), then I still have it and submit it again. My dream place is to go to the Maldives on one of the white beaches that just pops out of the blue sea. Close behind is visiting the pyramids in Egypt. Hope you hear what they plan to do soon. Yup I hat waiting. Still waiting usually means it is not urgent which is good.
Hugs all round again
Lily x x x x x x x x x
Twine over off to docs at 8.30am after going in opposite direction to drop dog at kennels, boo hoo, like you Lily can weep easy!!! Ta for the cyber roses worked a treat. Blood pressure sky high again, so off to docs to try again. Got an hour of work left to do, now at this time of night, work after docs, then meeting, hopefully finish at 4pm then hope, quick change drag case downstairs and off at 5!!! Soz wot be in touch but defo wont miss work or the phone calls for parents, im excited to surprise them but way my tear ducts work at mo I will prob cry!!! Think my baby bro is planning to sor my decking whilst Im away, how good would that be eh???
Well love to all, off to sky plus ll my programmes, taking some beads with me to play with and think the hols will make me want to face recon more - will pop in tomorrow before I go but a huge thank you to you all, you are fab friends and value you all for your support and help and here’s too us all being in touch somehow still in many years to come, maybe even a meet up xxx
hi everyone
lisaf
have a well earned break. mum and dad will be so suprised and happy to see you. at least tears are flowing now, you’ll be so much more relaxed on holiday, they say a good cry does us good.
lily 2000
hope your son does well in his exams. tried to get into docs today, but no appointments, so thudding is still there. if its my heartbeat, at least i know im still alive.
nicky 08
so glad youve been sorted re tablets, i think you’ll find them ok.
glad you enjoying work, helps to keep occupied, but is difficult when people want to keep discussing illness, people keep saying to me,“are you clear now” then i have to explain about secondaries. maybe if i manage to survive for some length of time, i wont bother telling them, about that.
everyone else, have a brill weekend.
take care x
Hi,
Lisa glad to hear you are calming a bit and now ready to just get on with all the plans. Bet you won’t hardly stop to think until you are sitting on that plane. Have a lovely lovely time and don’t forget our cyber pressies. Can I have Minnie Mouse ears on a headband please lol. I plan to be on this site for a long time as long as there is someone to talk to! We will meet too one of these days, just a longer distance to plan to get up to you. Have a great time x.
Hi Lorraine I am not getting too excited about my son’s exams as he is bright but this is never reflected in written exams results. Just relieved that it has started ok as the courseworks will prop up the lack of writing in the next parts. I hope! Sorry I did laugh at what you said about knowing you are alive from the thudding. Crikey you have to have a sense of humour to put up with all these constant trial and tribulations. Do you have any taking exams this year? Nicky hope your much more motivated daughter is getting on well as hers start or have started. Keep smiling x.
Love
Lily x
hi lily
could just picture you in minnie mouse ears! i havnt got any taking exams my elder two are past that stage, youngest hasnt got any at moment. im afraid mine arnt really intellectual types, maybe i should have pushed them harder, but if you try and they dont bother, theirs not a lot you can do. but we love em all the same.
was going to stay in today, did a mornings housework, and then went into town, i used to be able to keep on in the house all day, but its not so important now.
hows the dieting going? my ears still thudding, just something else to put up with.
everyone have a great weekend, behave yourselves, or maybe not!
take care x
Hi
LOrraine sorry to hear you still have the ear trouble. Would it help it to put some cotton wool in your ear? Hope that does not make it worse!!! I am pushing my son a bit, well as much as I can as he is the horizontal type! He has such plans for what he wants to do and where he plans to go and then it all disappears when he sees work. Going ok so far anyway. He wants to go out to work rather than uni and in the current job market I feel he will need as good grades as he can manage to get the kind of position he is hoping for.
They had an open gardens day in the village where I was born so I walked miles today looking round gardens. Took me right back down memory lane and boy do I wish I lived in some of those places. Also met people who remembered me from being a little girl, quite amused that they recognised me lol. I have the longest spell I have had since Feb 08 without a medical appointment, hooray no needles! I feel very sorry for people on chemo with their immune system down and all this constant talk of pig flu. You don’t need the extra worry.
Hope it is sunny tomorrow
Lily x
hi lily
where you shouting at me? my ears arnt that bad or was it just you hit the wrong keys.i may try the cotton wool, but hope to go docs this week, been feeling a little queesy as well.
glad you managing to push your son, like you say the more qualifications the better. he can look after you then when he earns lots of dosh. (if only hey)
its lovely walking around gardens isnt it, i just come back from walk around the lakes. but am starving so ordered a chinese, cos had no time to go shopping today(my excuse anyway)
nicky
hope you doing ok, im having a few trembly moments, just lately, its hard to push away the fact we have secondaries isnt it? every new symptom sends my mind into overdrive, and yet we didnt worry about any ailments we had previously.
take care everyone , enjoy the nice weather.x
Hi,
Lorraine ha ha it was an accident I PROMISE!!! Try to let your usual optimism take over again, you haven’t long had great scan results. We do all get the usual things too and always will. I am avoiding my son as he has a terrible cold and sore throat again. The last time I had a cold and cough I was ridiculously annoyed with it hanging around.lol.I bet those tablets on an empty stomach would make you feel sick after a while too.
Do something nice tomorrow
Lily x
Hi all,
Lisa the symptoms you have re your eyes could just be floaters. They are horrible and block out part of the vision and are more noticeable when looking at light surfaces, reading, compter screen etc. These are particles of debris behind the eye that the body normally re-absorbs. I have just had my eyes tested as I have loads of them at present but not a lot that can be done just have to hope they will clear eventually or in part anyway. Hope that eases the angst a bit but also get it all checked out. Hope you had a lovely holiday.
Lorraine hope the ears are getting a bit better.
Lily I have now had my letter to phone through for my check up mammogram. I had my surgery at the beginning of June so I guess that is when the mammo will be scheduled for I will let you know. Not looking forward to the squashing as the lump I now have due to scar tissue (I hope) is bigger than the lump the I had with the cancer.
Good luck with your boy’s exams hope he does well.
Nicky hope you are feeling o.k.
and thinking of you Angie as always.
love Bev x
Hi Bev,
How is the sposorship raising going? I have not made a wide appeal yet so chugging along slowly. Two of my girls are running as well so it gets rather expensive. Are the floaters bothering you? Sounds really annoying. I was concerned about the mammo but it was no more painful than the first one, well short lived anyway. Keep us posted when you go. How is work now? Hoping this finds you stillimproving all the time. Hi everyone else, guess you are busy so hope you are enjoying the sunshine
Lily x
Hiya
Hope you have all had a nice weekend :0) the weather has been sunny but cold or it could be just me thats cold Im such a wimp anything below 70 degrees is cold to me.
Lily My son was the same was never interested in exams I was lucky if he would even go to school! He left school 3 years ago and decided to take his GCSE’s 10 months ago and passed them. He now works in a pub which isnt my ideal choice for him but he loves it hes great with people so I knew something like that would suit him.
Bevy52 Im glad someone else has mentioned floaters in their eyes, when I have said that people look at me daft! Ive had them for years :0)
My Dad has got a new lease of life its great to him like that, a few weeks ago he didnt even recognise me and that made me cry. Hes been through a lot but he said to me the other day I was his main concern that made me cry again. I cried now and again between dx in August 08 and January when chemo finished but since then the tears havnt stopped. Im a great Aunty, little Evie was born the day I had my op 26th Aug when I see her I cry and shes got more hair than me so Im jealous ha ha!
How do I put a picture on here Im not very good at that sort of thing. How do you PM somebody?
Did you all see the advert for race for life? The music is Get Ready,Im a big soul music fan, Im part of group who raise money for charity by holding Soul nights so when Cancer reserch UK asked us to DJ at the Relay for life event we jumped at the chance. I can give you a link to our website so you ladies can have a look at what we do freewebs.com/yksoul I hope Im allowed to put that on, not sure.
Night ladies xx
Hi,
I am so excited to tell you. Tommy has put a picture of the wedding on his flickr if you have the site. Angie looks radiant. No comment about how our lovely friend is but boy does she look fab in the photos. There are 2 shots of them.
Soulgirl I looked at your site too, what a fab thing to do and you have helped so many charities, wonderful thing to do. Funny thing about Dads they always worry about their girls. I think you gave him the reason to pull through, he wanted to be there for you.Congrats on being a Great Aunt and the hair will return. Mine is now long enough to stick up each morning and cause me bother again!!
Love
Lily x
Hi All
Lily - haven’t checked Tommy’s site for a week or so (I’ve been tracking it as I’m sure a lot of us have but was worried there’s been no activity since Feb) Hope this is a good sign.
Soulgirl, haven’t checked yours out yet, sounds good though. To add a photo you need to either choose an image off the web or download a photo onto your pc. Go to Edit your profile on here and then choose the photo you want. It should appear then also, if you change it, so will all your posts.
Bev - good to hear from you, hope you are keeping busy.
Another quick catch up from me. OH and I went away for the night on Friday. Had a lovely meal and overnight stay in a Hotel du Vin which had got a special offer on. We stayed in Poole on the south coast. Weather wasn’t too good on Friday afternoon but was lovely on Saturday so we drove to Lulworth Cove and Durdle Door - so pretty - just like Enid Blyton’s The Five Go… books! We even got to sunbathe on the beach, fully clothed as it wasn’t that warm, but so nice to get a bit of sun. Back on
Sorry about last post, it managed to post it before I’d finished - me pressing a button on my keyboard somehow did it!
To continue…
Back on Sat eve then a day spent in the garden on Sunday, again, nice and sunny if a bit windy. Day off yesterday and sat out being lazy in the sun, very windy! It’s been nice to have a few days doing nothing in particular especially after the rushing around I did in the early part of the year. Winding up to YD’s Ball at her 6th Form. All sorted now with dress and shoes etc. Parents go to this one as well so I’ve got myself a nice dress - all way too expensive for both of us but what the heck! ED is currently having her interviews for (Art based) degree courses. Didn’t get offered the 1st one 
but yesterday’s was a much better interview so, fingers crossed! Other than that, back to work today for 3 days in a row - I try to avoid that if possible - and then off for my eventual follow up cardio appt on Friday morning. Take care everyone
Nicky xx
ps - Lorraine you would have been proud of me on Sat afternoon - I had the most enormous cream scone! Fantastic and the size of a small plate:-) Also I do try to get the secondaries bit as much as possible, I’m sure you do too, but it does rear it’s ugly head every now and then. Then I get a reality check which isn’t so good.
hi girlies
Lily 2000
i believe you, (i think!). i am trying to get back to being positive but, i think the tamoxifen, is interfering with my mood levels, im so tired at moment.and feeling a little anxious for no reason. been docs shes checked ears, said probably a viral thing, come back if it doesnt clear up, so i still have the constant reminder that im alive!
she checked bp which i thought might be problem, but didnt say anything so must be ok.
nicky 08
i bet you enjoyed the scone, youd be proud of me too. i went for coffee with sis, and only shared a scone, so at least im thinking of being good. ive been to poole its lovely, isnt it?
thanks for the well wishes, i promise to stop moaning soon. (well i,ll try.)
trying to plan day out tommorow, but hubby says its going to rain, i hope not. i went stratford upon avon, on monday, a butterfly farm, was lovely. but so hot, i was having a perminant hot flush. (oh dear i forgot im not suppose to moan,)
take care x keep having fun
Hi,
just a real quicky as want to go to bed as soon as dog decides he will come back up the garden. Far too dark and creepy to venture right down there! Things ok with me. Nicky another break you lucky devil, I am green as green. Lorraine yeah open season on cakes if we have even convinced Nicky!!! Go get em!
Lily x x
Hi lily.
I have been looking all over for you i have missed talking to you. how are you hope you are well. i have got my new lump looked at they seem to think its scar tissue hope so. i am doing the walk on sat with hubby been looking forward to it was going to do it with my eldest but he has broken his rib playing football so am doing the walk with hubby have decorated our bras now we are doing the half but are going to enjoy it. how have you been hope you have been ok. i don`t know how i would have got throught the tests and surgery without you. sorry to but in but its the only place i have found you. xxxxxxxx take care Tracy xx
Hi,
Tracy we never think of anyone as butting in on this thread, so no problemo. Glad to hear you sounding busy and ok. I would expect you to have scar tissue, I certainly do and it has worried me at times. I asked the doc how I would know and he said it would keep growing if it was anything else. Not sure I could spot anything though! Are you waiting for results again? If yes fingers crossed for you and hope it stays dry for your walk. I am doing the race for life next month, but walking! I missed you too but didn’t want to pull you into worry that you did not need to have hanging around you all the time x.
Everyone else hi. I said goodbye to my tutor group today and even some of the boys cried. I had 4 hours teaching various groups today and loved spending the last day with them. Cost me a fortune in sweets though. Back to the drawing board with Year 7 next I guess. Half are staying on so I will still see them around. Madlt trying to get my son’s brain to suck up a whole book of A level ICT!!! Stress!!
Love
Lily x
Hi everyone - new and old
Very quiet on here at the moment isn’t it? Must be Lisa doing all the postings and keeping us going! Not much going on over here. Travellers are still with us, they had their court appearance yesterday and I’ll chase the council again tomorrow to find out when they have to be gone by. I really can’t understand how they get away with setting up camp somewhere where we would all be chased off. They have also threatened our elderly neighbour and been seen around our village going into people’s gardens. Not a nice bunch at all, plus the mess they have/will leave, more council tax for us then!
I’m off to the hospital for my follow up cardio (or cardi) appt tomorrow and see what they say. I only get the palpitations when I’ve had too many glasses of wine, although this can vary from having one glass to 2 or 3 glasses - not an exact science! I’ll hopefully be away from the place for a while as I’ll go onto tablet bisphosphonates which will upset my morning routine but will hopefully be bearable.
Luckily we are not yet into the exams yet, YD starts her A2 exams after half term. ED has handed in her portfolio for marking for her Art course and is now having a tense time waiting for the mark as she needs a ‘merit’ to get on the course she wants to do. Although she’s quite capable of getting that it’s up the the tutors and as it’s so subjective she may not get one. We’ll have to deal with that when/if it happens.
Other than this we’ve got a quietish weekend, just some drinks at my Mum and Dad’s for friends that weren’t around for the 50th anniversary weekend but as I’m the designated driver my palpitations shouldn’t be a problem!
Have a good weekend all, and back to earth with a bump - not literally - for Lisa - hope you had a great time and your Mam and Dad were (nicely) surprised.
Nicky xx
Hi Nicky,
good luck for when open season on exams starts - so stressful and that is just for me lol. I know just what you mean about art. ED and MD are very arty and did A level then ED went on to foundation art and graphic design degree. She could never work out if they would like her work or not. I was totally biased and thought it was all brilliant which seemed to annoy her a bit too! Can’t win with the arty types. Good luck with the appointment tomorrow and keep us posted. It would be easy for me, not enjoying wine, just makes my head thump. Tried to just eat yoghurt and fruit for lunch to lose weight this week, plus brekky and dinner. After 3 days of a headache and tummy ache I am back on carbs and trusty sandwiches! I am obviously not back to normal yet in the nether regions. Also took my Mum to a hospital appointment today and we go back in 2 weeks for an ultrasound to see why she keeps getting bladder trouble. Then met my fab local BC friends and we stuffed our faces as usual lol. Busy day for a Thursday.
Lisa tell us all about it.
Lily x