Darling buddies from May - moving on

Life after a breast cancer diagnosis Recovering from treatment
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Aghhh Lily that sounded really horrible but glad to hear your brother is recovering well. Sorry to hear about the suspected arthritis really unfair. I have a friend who swears by drinking a concotion of apple cider and something I will look it up for you and do another post later.

Angie so good to hear you were able to get to your nan’s birthday celebrations well done. I remember that awful chemo mouth and suffered with it for ages afterwards. I was advised by a nutrionalist from the Haven Trust to take aqeuous zinc as apparently whenever the body has a problems with the mouth and taste it is down to a zinc deficiency. It certainly worked with me but obviously you would need to check whether you can take it a present. Glad to hear the reduction in steriods is a bit better for you. Thinking of you.

Peacock welcome! and I love gardening so may well ask for information from time to time. I do not have a very big garden but have managed to squeeze lots into it and have a couple of tiny raised beds with beans, lettuces, spring onions, a courgette plant(not room for more than one) runner beans, toms, strawberries in a hanging basket and potatoes in tubs. We have just planted a new tree in the front garden to celebrate my first annual check up. It is a cornus (wedding cake tree) which will be beautiful when it gets going. I too find swimming really helps with my sore arm and side and it does reduce the swelling that occurs in my hand. Likewise we all seem to be struggling with losing weight and it is so difficult when food thank goodness tastes good again after all those months of it tasting like cardboard (mind you I still ate it!)

Lorraine my cat thankfully is too old now to bring in creatures but he use to bring in bats!! that really drove me batty as I would come down in the morning to a bat hanging off a kitchen cupboard really horrible but the kids when they were younger thought it was great. We even had to phone the bat protection organisation to rescue one and I was told to feed it cat food and put it in the airing cupboard to keep it warm aghhhh! Well my daughter had to deal with it as that was taking animal welfare just a bit too far for me.

I had a lovely weekend visiting cousins for their ruby wedding celebrations which was lovely to catch up with relatives I hadn’t seen for ages. So funny though as there was a band and so we were all up shaking it all about at 3 o’clock in the afternoon I felt as if I was at a tea dance! but enjoyed it.

Hoping you all have a good week!

Bev x

682

hi everyone

hes dead! the mouse that is. we borrowed a trap off my sister but the mouse just got the cheese and had a good feast. we then put some old fashioned ones down and that was the end of him. he looked so sweet my youngest son whos 14, was trying to make me feel guilty, i couldnt believe him, hed slept with his light on, and the bedroom door wide open, and television on all night cos he was so scared of mickey,
im a little tired and very achey today, so i think i need a quite day tommorow, i might even stay in now weve caught the mouse.
had someone from francescos hair acadamy at our breast cancer support group tonight, free goodies as well cant be bad. they do know there stuff but im not convinced enough to pay £100 an hairdo.

goodnight im off to bed, i should get a good nights sleep now weve got the mouse. aghhhhhhhhhh

take care all x

683

Hi,
glad to hear the rodent is no longer a problem Lorraine. Hubby better watch out for man traps ha ha!! You have mentioned aches quite a bit lately, do you think it is the tablets you are on because it seems a common problem. I was looking forward to coming off Tamoxifen but not so sure now. My onc prefers femara apparently and it better not do anything to my hair! Sleep tight tonight Lorraine without your 4 legged friend.
Bev Keep me posted on the cure. At the mo I am on NSAIDs which are keeping the creaks in check. It is only really in the morning so not sure if it is anything or not. Onc just poo poos anything little. Oh I would be really scared of bats. We never had cats as my Mother is very allergic to them. Just one of my daughters has picked up the same allergy. I went to a zoo a few years ago with a bat enclosure to walk through and was a bit anxious about going in as pitch black. My son and I went in together and in the first section a bat had escaped and was flying around in a panic. Not as much panic as ours as we both got out of there like a bat out of hell. We then watched very amused as other people went in and ran out. I love dancing, sounds good. I have a school prom soon and am wondering whetehr I would dance infront of all the kids. Even more imortant better check the dress I was planning to wear still does up!
Hi Peacock I love being busy and if I am at home I do absolutely nothing. Give me an impossible deadline and I HAVE to meet it. I am ok but sorry to hear your arm is not back to how it was. You have had a tough time with that. Take it easy with the painting, do they have those machines that spray paint over there, so you can just wizz round?
I went to my friend’s funeral today, you can guess what she had. Only 46 and so sad. I had a good cry for her and then cried even more when her hubby and children all came to hug me and see how I was doing.I was gone as soon as they started playing Whitney Houston - I will always love you. Trouble is then the songs come on the radio unexpectedly and can catch you out. I think I prefer hymns. Vicar realised I had it too and was sweet and that made me go as well. The undertaker who knows my family from when he was a boy said ‘lovely to see you’ and I just think this is the most ridiculous thing for him to say and always reply ‘I hope I don’t see you again’. So thinking of lovely sal today.
Nicky I can’t believe you are ok with mice, yukky yuk. We had a fab day on Sunday lying in the sun watching all the bands. The washing up is still on the go as I have this thing about not leaving machines on when i am at work all day and more purs in every day. I have a lot of hand wash nice glasses athat are going to sit there until hubby is handy to polish them all. Paper plates fab idea, why didn’t I think of that. Is femara a goody or a baddy then? I heard it was the more expensive one but no more about it. Lisa sounds like it was a good weekend for you too. I think you got out more in a month than I do in a year - really jealous! Angie when are you next at the hospital or do you have a week or two off?
Love
Lily x

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Lily, funeral sounded nice though. Not stopping on long tonight as tingly fingers and hoping its too much typing, so take care everyone and will pop in tomorrow!! xx

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oh Lily how sad you did really well to be able to go and pay your respects it must have been really tough for you life is just not fair is it and that is why whilst we can do things we must make the most of life and enjoy being with our families and friends because that is all that matters really. Sorry Lily haven’t forgotten about the concoction to help with arthritis but need to find where I have stored it so I will come back to you soon on that.

I am looking forward to Thursday and hoping for good weather as my niece is having her hen party at Ascot so we are all going to Ladies Day. I have bought a very big hat (hides the face) and have a black dress (o.k. not very summery but conceals my extra weight a bit better) so it should be fun. I went out with my sister today to help her sort a dress out and a fascinator so we had a good laugh trying them all on.

Lorraine glad you have sorted out your unwelcome guest whenever we get them in the loft we always put a piece of chocolate in the trap as that really attracts them I know it sounds horrible and cruel but they do so much damage otherwise and when we tried the supposedly humane traps the mice could always figure out how to get the goodies and make off again. Hope you are not feeling so achy soon.

love to all Bev x

686

Hi,
thanks for your kind thoughts. I had moments when I really struggled, watching her son carrying his Mum, her face on the service sheet looking back at me, her daughter saying you fight this bloody disease as hard as Mum did. I am in tune with your thinking Bev and will try not to waste a day, a moment of the extra time someone gave me that she won’t have and would have crawled through hot coals for.
So today, even having Ofsted in did not wreck my day and thankfully they did not darken my door. It is a strange job for someone to choose, to police and give such stress to people who are just on the whole trying to give something back to society?? Not always that simple I know.
Bev what a wonderful day out for you, have a fab time and make sure you tell us all about it as I have never been. Lisa the test for carpal tunnel syndrome is if the ache goes when you rest your arm on the chair and let the hand hang over the edge. If that feels better I read, you probably have it. Here’s hoping you don’t!
Hugs everyone else, what are you all up to?
Lily x x

687

hi everyone

lily not sure if aches are from tamoxifen or the bone mets, but it makes you a bit anxious and moody at times, unless of course thats the tabs as well. im just hoping i feel better for friday.(party time) its probably going to cost me in total about £800 but i feel its worth it. so sorry about your friend, and hope it didnt make the anxiety of this disease worse for you

bevvy 52
ive also heard mice like chocolate, what a way to go death by chocolate!
i should have felt more relaxed knowing wed caught him, but still had light on till hubby came to bed. and i was ok until i think i found a dropping in the bed, hubby said it was probably off my feet,
but still didnt feel reasurred.
funny your going to hen party at ascot, so is my nephews wife, maybe its the same one?
lisaf

i know what you mean about tingly fingers, my hands are like that and feel very stiff. you can be like that when your menapausal, so id heard.

everyone else hope you enjoying the sun.

x

688

Hi all
A busy week with work and other bits so a quick catch up.
Bev - enjoy Ascot - how lovely - hope the sun comes out again. Make sure you let us know how fab the day was.
Lorraine - bet you’re looking forwards to your party. A photo of the yellowness of it all would be good! Hope it goes really well and you enjoy yourself and don’t rush around sorting everyone else out. Glad your furry friend is gone but couldn’t you just pick him up and take him outside LOL. I can say (and do) this for mice and birds but show me a big (or small for that matter) spider and I’m outta here!
Lily - Sorry about the funeral, very upsetting I would imagine. I went to my cousin’s husbands one a few years back. he died unexpectedly at the age of 32 from diabetes complications and I still remember the music and it triggered me off then and afterwards when I heard the songs. As you say, a lot to be said for hymns at least you don’t hear them when you’re in the car or out shopping. Hope you don’t feel down about it for too long, unfortunately it’s the cr@p side of BC showing it’s face.
Lisa - hope the hand is clearing up, if not it will be worth getting it sorted. A chap at work is having his 1st op for CTS next week and then the next one a few weeks after. Hope it doesn’t turn out to be this for you but it’s best to get checked.
Angie - hope you are doing well and feeling better as you reduce the steroids. Rest up, I expect you need to get your strength back.
Everyone else - hope you are doing well - can’t remember the newbies on here and can’t scroll down to you so I’ll check names (and remember them) for next time!
I’m off to the genetics clinic tomorrow to see what they have to say. I also had to deal with an appt given to me for July. When I called to change it I was told it was with my breast surgeon (who I haven’t seen since my 2ndary dx) and not with my onc, as I’d thought. A lot of confusion with no-one knowing what it’s for and me chasing 2 lots of secretaries with still no joy. A very frustrating day overall yesterday when I was sorting (or trying to sort) this out. Let’s hope tomorrow is OK especially as the dishwasher repair man is due 1st thing, if he messes it up again like last time I think he will be wearing it home :slight_smile:
Take care all, hope the rain stops (well, after it’s watered my plants for me!)
Nicky xx

689

hi there everyone

nicky 08

i am looking forward to party(friday)but ive felt really rough this week(typical) i cant explain how i feel but i have been achey and had pain and feel exhausted, and not as upbeat, but hey who knows it might just dissapear tommorow, and i can start enjoying the preparations. not that i have anything to do, its all being catered for, except put a few decorations about. smileys and jokes for the tables and yellow and orange balloons. i will try and take some pics.
you must be having a laugh, pick up the mouse, i couldnt even pick him up when he was dead. (still feel guilty about that, perhaps wouldnt have felt so bad, if id have put chocolate on the trap, cant think of a better way to go.

lily 2000
hope you feeling better, it must be so difficult working on your off days, last few days it certainly would have made me more anxious.

bevvy

have a great day at ascot.

keep enjoying the moment everyone, take care x

690

hi there everyone

nicky 08

i am looking forward to party(friday)but ive felt really rough this week(typical) i cant explain how i feel but i have been achey and had pain and feel exhausted, and not as upbeat, but hey who knows it might just dissapear tommorow, and i can start enjoying the preparations. not that i have anything to do, its all being catered for, except put a few decorations about. smileys and jokes for the tables and yellow and orange balloons. i will try and take some pics.
you must be having a laugh, pick up the mouse, i couldnt even pick him up when he was dead. (still feel guilty about that, perhaps wouldnt have felt so bad, if id have put chocolate on the trap, cant think of a better way to go.

lily 2000
hope you feeling better, it must be so difficult working on your off days, last few days it certainly would have made me more anxious.

bevvy

have a great day at ascot.

keep enjoying the moment everyone, take care x

691

sorry about double posts, tried everything to delete one, and cant manage, how do i do this?

x

692

Hi,
gremlins left the school today and I escaped their attentions, phew. BTW my son passed his driving test yesterday. I don’t think anyone could be more pleased with themselves and he is out and about all the time. He was very amused when i reminded him that he could drive himself to school this morning. I was thinking how nice it will be to not have a £40 a week bill for lessons and then I rang the insurance company. Ahh. Apparently he is much higher risk now he has passed his test so premiums went up by £126 a month. You can’t win!
I have been teaching long multiplication to the masses today - a topic guaranteed to make the whole class go oh no and slide under the desk with a glazed expression on their faces (you too? lol). I have a tried and tested method that never fails and they were so pleased with themselves when they realised they could do these big sums.
I was really hot again today. Sleeping on top of the bed at night mostly so I guess I am warming up again.I don’t get the sweats but the prickles are like someone throwing handfuls of needles at me, yowee.If I react quick enough when i first feel warm, I can stop them so I madly try to throw clothes off. Do you like meercats? We bought some lifesize plastic ones that you put in the garden bushes on springs and they move in the breeze. You just see their faces sticking up, might be a shock for the dog and the neighbours lol.One of our daughters is meercat crazy so they were to amuse her.
Well hope everyone is ok, especially Angie. Are you well enough to go out and enjoy your lovely scenery at the moment? Lorraine take it easy and I really hope you have a lovely party and feel well enough to make the most of the big day. You could always take a few paracetamol or something to take the edge off any aches. You must tell us all about the party. Nicky thanks for your thoughts and I am actually quite upbeat now I am past the actual day. It made me think how precious time was and not to be wasted. So it will probably project me into major retail therapy unfortunately! Can one woman solve the credit crunch lol? Lisa take care of yourself and don’t panic Mr Mannering!
hugs everyone
Lily x x

693

hiya all, bit late so will catch up tomorrow, hope everyone okay and will read posts when not as tired! pooped today. Been for breast mri again, oh guess what, all wiating for me due to antics of viens last time, well got an anethetist to come who I want to be my new best friend, 1st shot! Wasnt pleasant and couldnt find any and managed to canulated me on inside of wrist, ouch. Scan was tad wierd, boob hanging in hole and squashed inside mri but face down so not to bad - fingers crossed nothing to report, dont mind the scans its the reults. well went for a wander round newcastle and treated mam and dad to lunch, but boy, I couldnt be bothered shopping, up since 6am and was sooo tired and achy, think armidex has been creeping up on me, lol!!!

Catch up tomorrow, love to all xx

694

Hi,
Lisa just wanted to say well done for being brave. You make me glad I have ‘virgin veins’ as I hate needles but mine co-operate when they need to as not used much. You hit my other fear too, confined spaces. I had visions of you with your eyes tight shut until you got out. Hope I don’t need one as all my scans so far have been open areas. Glad Mum and dad were with you and it goes without saying that I have everything crossed for you to get good results. When do you go back? Until then try not to dwell on it if you can. keep smiling
Lily x

695

Woops forgot,
Lorraine hope you are feeling better and have a lovely yellow day tomorrow
Lily x

696

Well all, take that was fantastic loved every minute, well until I got home at 4am!

Had a missed call from the hospital where I had the breast mri. Cant ring back till monday but when ive got my original letter out it says that tey only rng you to let you know that you have an urgent appointment as something needs futher investigation and likely to involve, mamogram, ultrasound or biopsy - so as you can imagine Ive cried all day, really dont want to go through all that crap again and terrified that if something is on other side then chemo cant of worked - knew I was high risk but was thinking down the line not already. Hate to see my mam and dad upset too, cant bear doing this to them again. im hoping blew out of proportion and nothing but not looking likely - sorry for the twine girls.

Hope everyone doing okay x

697

Hi,
oh f Lisa, what a horrible horrible thing to have to think about all weekend.I so wish I was nearer to come round but you know I am with you in spirit.I think you have to hook on to the fact that they do this if there is something else to investigate. You know that most lumps, etc are not cancer and there are other things that show up that are not the crappy C. With someone with a dx of BC they would investigate a wart on the boob to be on the safe side. I think there could be many other reasons and I am hoping one of those good ones has your name on it. I will now have to do the whole race for life tomorrow with fingers and legs crossed for you, not taking any chances.My book says that the MRI is not particularly reliable for BC and often makes fibroadenomas and other benign lumps look like cancer and misses others that are.
No point me saying don’t worry, I would feel the same way. However, I am right by your side trying to share the worry, whatever this turns out to be.
biggest hugs ever
Lily x

698

Thanks for that Lily, means lots believe me!! Mam and dad are really upset and Im hoping its for nothing. Friend been round and cheered me up and planned lots of things whilst in background Im panicing not going to be around for them. Im hoping its nothing too, but the whole going for scans etc. again is scary, had mamo in this year but think they are bit uncertain with younger peoples breasts??! Dunno. only thing im clinging to is that Ihave major rash due to sunny weather and large boob and hoping this is all its picked up, not sure I =m strong enought to deal with it all again ??!?!?

Ta though and good luck tomorrow xx

699

Hi Lisa, oh I am so sorry you have been thrown into such a horrible place again but as Lily rightly said there could be so many reasons and due to the previous history they will be checking everything in such detail. Keeping everything crossed for you and please let us know as soon as you hear anything. I am thinking of you.

Well Ascot was interesting I think everyone goes there to get drunk now don’t get me wrong I enjoy a glass (or two) but it was really a big booze up not quite what I expected but still you live and learn as they say. The main thing is the youngsters enjoyed themselves (I suspect they enjoyed the dressing up part most of all) which was the main objective and thankfully it didn’t rain!

Be in touch again soon and thinking of you all and sending out positive vibes to my fellow travellers on this horrible journey we have encountered together.

love Bev xx

700

hi everyone

lily
hope the race went well, i bet youll enjoy it that much youll take up jogging for life. i know you said you may walk, but well pretend, at least your a good sport anyway

lisaf
i really hope tommorow goes ok, sometimes the hospitals do get things wrong as far as calling you back, (which at times is for small things, but a member of staff can exagerate,if theyve misunderstood what theyve been told, and i really hope its just something like that, im saying that from experience with my mother when they made us an appointment with mcmillan nurse, and shed not even got cancer,

bevvy
i take it no more trips to ascot in the future then? i hate it when everyone around you is drunk, and your sober, it can be so irratating. you just feel like going home and enjoying a good chill with a book. i like you enjoy a few glasses but dont enjoy it in the afternoon, maybe at a party or something.
which reminds me.
PARTY WAS A HUGE SUCCESS, had a panic on the night before had been to hairdressers for a colour, and asked for some blonde streaks, and when i came out it was so vivid, i came home and hubby said “what have you done?” i couldnt go with it like that, so i went back next morning and had it toned down, still a bit brighter than i wanted it, but i guess the theme was yellow!
the room looked lovely in yellow, with a touch of green and orange.
and the dj, played all the right music, which had everyone up dancing, i had a few vodka’s and i too was well a way.
i had to laugh at my nephews i introduced them to my minister, but only by his christian name and they of course were being a bit crude after a few drinks, but he just found it funny that they didnt know who he was, until my hubby spoiled the fun by telling them.
the yellow theme went brilliant, most people except for about 4 dressed in yellow and they played yellow submarine, yellow polka dot bikini, and others. and of course we had to play, always look on the bright side of life, because it was my dads favourite song, and it ment i felt he was there in spirit. he was a wonderful dad. so gentle and sensitive, and never a bad word to say about anyone.

ive had so many flowers too, which as lifted my spirits, but im still very fatigued. but just dont seem to be getting time to chill with one thing and another.

THE MOUSE SAGA
KILLED MOTHER MOUSE LAST WEEK. AHHHH
BUT THE BABIES 5 OF THEM DECENDED ON US LAST NIGHT, NO SOONER HAD WE CAUGHT ONE, THEN ANOTHER APPEARED, UNTIL 5 IN TOTAL, MY HUBBY CAUGHT THEM AND WE REALEASED THEM DOWN THE FIELD.
BUT WHERES THE DADDY? I WANT TO KNOW.
so last night bedside light was on again, and another sleepless night.
hope everything ok, with you all and you have no furry friends! oh dear that doesnt sound quite right LOL X