Hi ladies
Well, the new dw has arrived - just need to plumb it in. Waited around for ages this morning for delivery - ‘from 11.30’ well, you guessed it 2pm before he arrived! Then a quick dash into town for the last few bits plus euros for next month’s rent - which we have to pay until the maintenance grant is paid into YD’s account. At least we’ll be able to get some of our money back then. Think we have everything and, as Lily says, she can always get the few things she may not have when she’s over there. We’re off early on Sun morning for the Eurotunnel and then hopefully a smooth journey into Paris. The thought was that it should be fairly quiet and we’ve managed to borrow a friends sat nav for europe so that should help. We’ll stay overnight and say our (sad) goodbyes as she heads off to the uni for the start of Freshers week. A few things have to be sorted once she’s over there so I hope she can manage on her own.
Hope everyone else is doing well and using the cool mornings to stop the flushes! Sorry to hear you’re not sleeping Lily. I keep waking up and going through things in my head (about YD) but do get back to sleep eventually. My ED suffers with insomnia as well and is often knackered! I really don’t know which week YD is thinking of coming home. They don’t get half terms so it may not be that week at all but until she has her timetable she won’t know. I could do mid week as I can juggle my work days.
Lorraine - I worked through my chemo (on the ‘good days’) but I have an office job which involves phone calls so I don’t get too tired. I also only work part time. I must admit I do feel full of energy and I quite often forget all about my mets only to be brought up short by it all when I remember.
Bye for now, we’re off for a family meal tonight, the last one for a while 
and then getting on with loading the car tomorrow - hope we can fit YD in amongst all her stuff!
Have a good weekend, hope the sun shines for all of us.
Nicky xx
hi everyone
lily which pic are u looking at? cos the one on my profile is of me alone. im so envious of you having the decoraters in, my lounge definetly needs a coat of paint. you can come to me for tea, but i think you would have stopped off way before here. i think it will be lots of take aways.
hubby has a cold, of course he says its swine flue, hes coughing and spluttering all over the place, so i wonder how my immune system will deal with this… i find im quiet resiliant as far as cold goes.
been putting together scrapbooks of the family, ive done one for our family. and one for each grandchildren. takes ages, and unfortunetly lost baby pics of them off the computer.
have a good weekend.x
Hi,
Lorraine I have no idea what you mean sorry, I think I said ‘where are you on the photo’You look like you are somewhere high up and I just wondered where it was? The sister was Julia’s if that is where I confused you. Well things have to get a lot worse in our lounge before they get better. Sofas go tomorrow to ED and telly went today and after a repair it is heading for MD. So tonight I am watching a tv so small that I can hardly see the people and think I definitely need glasses lol. We ordered a new telly today (Victor likes boys’ toys) so it won’t be for long. MY car has a warning light flashing and as it is due an MOT, service and they suggested a cambelt change I am bracing myself for a mighty bill.I have asked for a loan car but they always lend such huge cars, remember me with the diesel estate last year? I looked like an ant trying to drive it. They are trying to get me a smaller car if possible. If not I will be getting to work very early to find a drive through space to park in with no 'can’t see a thing out the back’reversing.Lorraine I hope your Victor gets better soon and keeps his bugs to himself. The scrapbooks sound lovely and I am sure you enjoyed putting them together. Lisa hope your trip is wonderful x. Nicky - oh this is the sad weekend, poor you, I would be in a right state! Anyway i hope you don’t get too upset and remember she is not so far away really.I think it will be easier when you get back after a day or two until she gets home sick or ill argggh. I remember mine doing that and I felt sick. Mind you so was she with little chap! Don’t worry about me not sleeping, I just don’t feel tired, not even the next day and at least I get a lot done 
Enjoy the meal, where are you going for it? Your daughter’s favourite no doubt. Julia I will pass that on. He is already fuming about an article in the Times which affects us. Can’t tell you without outting my name but will tell you if/ hope when I see you. I am still on the look out for a mOther of the Bride outfit and am planning another visit to this lovely Coco shop. It is completely full of outfits for ladies to go places - Ascot, balls, cruises, dinners, weddings, all the big events. You would love it. They have shoes and hats and accessories too so they plonk hats on my head and fascinators and I hoot with laughter mostly.If I laugh then goodness knows what the other guests will do if I go with a cabbage on my head
Hugs all
Lily x
Hi All, back from a week in sunny devon! it was glorious sat by a little beach hut we hired and watched the boats bobbing about on the glistening sea just perfect. We also did lots of walking hubs worked out we covered 30 miles in a week (I am very impressed with myself and didn’t feel so guilty eating the cream teas etc!) But back to reality. Had a call from my GP the nolvadex D Tamoxifen I am on is being discontinued aghhhhh! that means going back to the original that not only gave me far more hot flushes but also periods of feeling freezing. Have any of you had the same news? Lily I think you are on the nolvadex too? I wake about about 6 times a night at present but with the original tamoxifen is was even more so I am pretty upset about the news.
Also just heard that someone I know has just been diagnosed with BC and is awaiting her op at present which has made me feel very sad for her and her hubby and kids as we know what the journey is like.
Peacock I was interested to see you are a reflexologist I qaulified about 8 years ago but do not practice any more as I couldn’t guarantee my earnings and when the kids were studying I needed to help out. I was thinking about going back to it but was worried about the repetitive nature of the treatment possibly increasing the risk of lympodema have you had any advice on this?
Lily just unbelievable the stupid schemes that are devised by our leaders! they could all do with going back to school!
Nicky glad to hear you are more settled with your daughter. Our daughter lives in France and has done so now for 4 years went out to do a ski season and stayed! was it something I said? she loves it but due to our £ being so weak it is pretty expensive to buy things.
hope your daughter enjoys her time there.
Lisa have a lovely trip.
All the best to everyone.
Bev x
hi everyone
been christmas shopping today, so feel better now ive started. we have got to take my mum up the hospital on wednsday for the results of a scan she had. we think it may be the dreaded, but ive told my sisters not to worry until weve been. shes 82, and theres no way she could cope with chemo or an op, so not sure what would happen. it is something on her lungs that has increased since last year.
lily, what am i like, i understand what your talking about now, the picture was taken in the spinaker tower portsmouth. it has one of those glass floors you walk on when your at the top, needless to say i walked around the edge.
take care everyone x
Hi,
Lorraine I will be hoping for the best for your poor Mum and I can’t believe how much illness you have going on in your family at the moment. So difficult to help each other and lucky you are near enough to be with her. Now I always get very excited about Christmas but NOT YET arggghhhh I cannot do it!I still want to wake up to sunny days and autumn leaves and Christmas means snow and frozen cars to defrost every day. No no no. Nicky oh I have been thinking about you leaving your littlun there and hope you are ok buddy X. I am sure she will be back for you know what if not before. Bev so glad you had a nice time and I often talk about beach huts as that sounds perfect to me too. I had heard from someone else on here that nolvadex-d was going but when I went to my doc he said no problem showing. I have no idea what to do or which to ask for now. I might ask the chemist to stockpile them for me. It will only be until they say we are menopausal so not for the whole 5 years as we should change to an AI.This is worrying me, to change tablets. Someone tell me which ones to go for next? Sorry to hear about your friend and hope it is a good prognosis for her. Lisa how was your weekend. Oh that good and still recovering then
We are living in chaos with no lounge to use and the contents piled all over the house. When the plasterer came he was really cross as the decorator had told him it was a 12 foot room and there was this terrible silence as he said that is not a 12 foot room. Bloke said -it looks bigger without furniture. I thought he was either going to hit him or walk out. Luckily he just got annoyed but worked away and it looks good so far but still drying out. Wallpaper is off and so we are back to the diarrhoea coloured walls we inherited on moving in. Fab:( Little chap started football after school today. He was very keen but lost his nerve when he got there and the man made MD run round doing the activities with him. She said he settled and they played a match and he got hit by the ball and had to come off for a cry. Another generation of accident prone people coming up:)
Had a really tough day as working all day and duty standing on the gate and we had to teach a citizenship lesson, which I hate. It was solid text on the declaration of human rights and I tried to make it more interesting by telling them about the nazis etc. Lost the plot when one seemed to think they were cool and then someone started saying the P word about gypsies, which is now considered a racist term. So lost the plot with him again and sent him out. He came back in the afternoon and was saying it again but starting with an M and thought he was clever. So sent him out again.So much for staying calm ha ha! If I didn’t think I would bop him if he said it again I would give him the worst torture of sitting next to me every day :). I looked at lots of hotels in York but either they had no car park, way out of town, too small, had bad reviews or no lounge for us to sit in. Found a nice one but it has no restaurant! I will keep looking but any ideas anyone who knows the area?
LOve
Lily x
Hi all
Well, we’re back home minus one daughter A very busy Saturday packing the car to the brim and an early start on Sunday for the Tunnel. Luckily everything went smoothly and only a few cross words with OH in Paris as we navigated through it arghhhhhh! Exhausting carrying all YD’s stuff up 6 flights of stairs. At one point she was so worried about the tiny space she has to live in and didn’t think she could make it habitable but, the ever-organised mother (me!) had sorted it. We cracked on and it looked nice and cosy when we finished. We had a meal out and then went back to hers for a coffee and then left her for her 1st night alone Well, I did have a good cry when we got to our hotel, my poor baby! However I managed to sleep that night, 1st one in ages! And then saw in the morning to quickly sort out bank stuff across the road and then she was off to uni to start Freshers week. I managed not to cry then! OH and I stayed around for a bit to get a few things sorted that we couldn’t on the Sunday and then we headed home. A very exhausting few days. Atm she only has her UK mobile to communicate with us but should be on line and on the phone by Monday next week which will be easier. We’ve got her a telecom package that includes free landline calls and we will be able to Skpe via the pc which will make everything less expensive and a bit easier to talk without worrying about the costs!
Well, that’s my news. A day off yesterday to clear up everything from the weekend when we dashed off and then back to work today. Not too impressed by this as the weather is looking good for the rest of the week. Never mind.
Quick catch up with all of your news
Lorraine - when were you in Portsmouth? That’s not far from us and we often go there for a look around the shops and a bit of a sea breeze! Mind you we haven’t yet made it up the Spinnaker Tower! Hope your Mum is OK but can imagine how worried you must be if the diagnosis is bad. Fingers crossed it’s not.
Lily - Kids can be so stupid (for want of a better word) at times can’t they - especially when they don’t understand the facts. No wonder your blood was boiling. He probably thought he was being cool and showing off to the class. I bet all you wanted to do when you got home was sit down and relax but doesn’t sound like that happened either! It (the decorating) will all be worth it in the end. I hope that the tamoxifen for you and Bev is sorted out - you wouldn’t want to both be feeling worse than you are. I seem OK on AI’s not many hot flushes at all which has surprised me. I do remember how awful I felt 1st time round on Tam though - it did settle down after a while.
Hope everyone else is doing well and enjoying the last bit of summer, if you’re getting any sun.
Take care
Nicky x
Hi,
Nicky glad it went as well as poss. Will be back later but just wnated to post re our meet.
I have no idea what level/price anyone might be happy with so this is a provisional idea for anyone interested to look at and please say or pm if too much or not what you want. I looked at some that were much nicer but had no lounge to sit in or no restaurant or parking.
York Marriott hotel with 151 rooms so should be ok for a late booking too. Prices are £99 per room or £109 for room and breakfast for 2 or £149 for room and breakfast and dinner for 2. Sorry Lisa it does not work out well for singles, do you know anyone to share??? wink wink. It would be week commencing 26 October and I can prob make most parts of the week. We will prob stay 2 nights and look round too - at the shops naturally.
Please be honest about if this suits or not as there are thousands in York
Lily x
Hi girlies,
Thinking of you Nicky it is tough leaving your kids but it is amazing how quickly they adapt (quite annoyingly quickly unlike us)
Lily well I have got one more packet of Nolvadex to pick up tomorrow and then it is back to the original tamoxifen I am going to ask in other chemists if they can get it as this may be a possibility until supplies dry up. What I didn’t ask is why it is being discontinued so I need to try to find this out.
Well I had a horrible experience today driving up the Motorway overtaking a lorry when my back tyre went aghhhhhh! the noise was horrible thankfully I could pull over to the hard shoulder and the lorry driver kindly pulled over to see if I has o.k. and then two highway patrol men turned up (knights in shining armour!) who told me I was extremely lucky as a back tyre normally spins the car. They then told me they could tell me what do but couldn’t change the tyre for me due the “ealth and safety!” so at the grand old age of 54 I have changed my first ever tyre I feel quite proud of myself. I was a bit worried about my arm and really tried to use my left arm as much as possible but got there in the end with a check over from my tutors! I thought I haven’t survived BC to be taken out by a tyre and when it was suggested I would have to wait an hour for the AA I thought bugger it I can do this.
Lorraine so sorry to hear about your mum it is really unfair that some families get so much happening to them in such a short space of time.
Off to my neice’s wedding tomorrow so hoping for good weather. Will report back.
love to all Bev x
Hi,
Bev that sounds terifying and really glad your car stayed reasonably controlled. What a load of … Police can’t help with tyres! Anyway i am really impressed that you were able to change the tyre. I am getting angst about the nolvadex and don’t want to change. I might go and ask my chemist to stockpile any they have. Not sure which to switch to either. I have 1 and 1/2 boxes left. Wishing you a lovely day at the wedding and good luck for the reading, not that you will need it.
Well I am starting to get rather fed up of no sofa and no tv and even worse stinky gloss paint permeating the whole house making my head thump. Wallpaperers in on Friday. I think I scared the guy when I said Victor was a perfectionist and that I had bought v expensive paper so he has sub-contracted it out. Victor says the man is scared of me as he told him to do a rough paint on something and I left a note saying I want it sanded smooth ha. Didn’t know I had such power lol.Sofas are delayed but hopefully not for long and found woodworm in the gripper rods so panics all round. I am going to work and forgetting it all until I get home each night.
Lily x
hi there everyone
bevvy 52
so glad your safe after your motorway fiasco, thank god. wow, changing a tyre your talents are endless. and them policemen were certainly not gentlemen. it must have been quiet scarey though. hope wedding goes well. thanks for kind words about mum, they have moved her appointment forward for 3 months, i think they feel even if it is the dreaded c, at 82 theyre not going to operate. and theyve just told us to get back to them if she suddenly feels unwell.
lily 2000
the smell of gloss certainly does get to you. but think how nice its going to be? you talk of woodworm, does that mean you live in an older type of house? expensive wallpaper hey? i know what you mean i couldnt believe the price of some of them. but i went halfway in the end and went to next, they seem to have some nice designs.
we are having the rest of our windows done on monday, so i think like you i will just clear off and leave them to it.
ive been in a lot of pain today, i think it may have been because i stupidly decided to wear heels yesterday, or it could be the prothesis cos ive been wearing the proper one, not softy. and i also pulled up a few weeds. sometimes you just want to forget you have secondaries, but i dont think thats possible.
anyway tommorows another day, so hopefully i will be up and about as usual. take care everyone x
Hi,
well hope I did not scare everyone off with the hotel details as it was just a suggestion and I am happy to go with other ideas where to stay. Anyway let me know. Lorraine - I was sorry to hear about your pain and from the list of things you think it might have been, I guess it was the combination of too many things in one go. Could you try pacing yourself a bit more. My feet make me fed up as they burn under the heels and feel like the tendond are not long enough. I know it is the tamoxifen but I cannot exercise really or they seize up. I am wondering about swimming as can’t think of anything else that won’t pound my feet. I didn’t think of Next for wallpaper. Victor hates shopping and so I have to think which shop is likely to have a lot of choice so it is a one stop shop. On holidays he walks round shops with me for hours but I know he hates it really so we stop often for refreshments! Hope you are feeling in less pain when you read this x.
Well this has been the week. It may stink of paint which makes my head thump and I have to eat my breakfast in the hall but we are nearly there. The wallpaper is due to go up tomorrow and then they will go. Carpet coming next week and sofa has vanished off the face of the earth rather worringly. We have been having a good time eating though. On Monday we went to MacDonalds and on to YD for the evening. On Tuesday we went to ED for dinner. Last night we went to BIL for dinner and tonight we went out to dinner with neighbours.I will have forgotten how to cook if this lasts much longer lol. Well my car went in today for its big annual service, fortunately still free from Audi. It also needed an MOT, a cambelt change(you are in luck madam they are on special at £320 eek) and it had a light on the dash to investigate. I was bracing myself before they told me I needed 2 new front tyres as well argggh. I think they felt sorry for me as they did not pass on the usual charge for borrowing a car for the day. I asked for a little car and didn’t get one. It was a big Audi A4 and on a 59 plate so brand new. I just don’t need the pressure of someone in the school car park tapping it with their door. The car park is a nightmare so I set off really early but the loan car had not even arrived so I was running pretty late and so worried about parking that I did not listen carefully enough to the instructions how to drive it!! I have not driven a car without a key to start it and this has the usual lump of plastic but you push it into the dashboard. That was fine, the girl saw me start it and sailed off into very heavy traffic by now and just concentrating on not scuffing the tyres as she had told me that was the first thing people usually wreck. Halfway there I remembered the nasty hill start infront of traffic lights that I have to do and the fact that this car has no handbrake just a little button which I had not practised and was wracking chemo brain as to which way was on. Went round the corner and saw the lights were already green, bad luck as a short timing and went to red as I approached. Had to creep up the hill at 1 mph so that I got to the top in time for the next green, despite annoyed people behind me driving right up my bumper. Got to school and a cleaner was just leaving, so I congratulated myself on being lucky to get their big space right at the top of the car park with no tricky moves required and no-one could block me in there either for my journey home. By then I was absolutely frozen as someone had the air con on 17 and I could not take my eyes off the road long enough to work out which of the sea of buttons put the temp up. My hands were like ice! Anyway parked, put the handbrake button on and went to stop the car and eek I couldn’t get this thing to come out of the dashboard. So stuck in the car park with the engine running and no way I could leave it or even lock it to go for help. I relly pulled but no luck so sat there until someone came past and shouted help a few times. The lady dashed over. I said ‘I can’t stop the car,I’ve just borrowed it’ and she said ‘don’t you turn the key!!!’ ( No I’ve been driving all these years and I can’t turn a key lol) I then showed her the buried gadget and she said you must have to press something. I know push that and went for it. She changed the radio channel ha ha! So I had to send her off to the p.e. department full of young blokes with a message does anyone know much about cars. Knew that would tempt a few of them out. Felt a bit of a twit when they solved it in 20 seconds by pushing the gadget in before pulling it out although they did stop to tell me how much they liked the car. Think I might have misled them when I said I just picked it up from the garage lol. Anyway favourite (only)car is back, credit card is loaded up and hope nothing else happens for a long time. Are you all ok?
Love
Lily x
Hi all, soz havent been on, got back from Dublin very tired and achy, awful cough and freaked out by how quickly drink hit my head and aches and pains but to be honest havent got braodband at home so cant get it switched on so ahvent been able to log on - will catch up later if I can get it sorted before I jet off to Spain on Sunday!!!
xxxxx Hope all okay
Hi All,
well we had an absolultely fab day yesterday for my niece’s wedding (new photo of me in big hat!) and my reading went well as it made my bother feel emotional which I guess is the correct reaction. The bride looked beautiful and the sun was shining couldn’t be better.
Lily I too am going to ask if I can get a stock pile of Nolvadex still don’t know why it is being discontinued. Regarding your painful heel and back of ankles I too have that but not as severe as your sounds. A colleague at work has problems with her heels due to standing all the time and has purchased some little pads that go in the shoe to cushion the area so it may be worth taking a look at them she got them from Boots and they are specifically for heel problems such as bursitus. What a scary journey in the car with a mind of its own give me the old fashion key and gears anyday. Good luck with the decorating at lease the weather is nice enough to have the windows open to clear the smell of paint.
Lorraine sorry to hear that it is suspected C with your mum the only hope it is a very slow growing one that she can cope with. Hope you are feeling better now and as Lily said try to pace yourself I know that is easier said than done. I let rip on the dance floor last night (much to the horror of my son) at the wedding and am feeling it in my arm today.
Lisa sorry to hear you are full of a cold your immune system may be a bit compromised due to the extra activities you have been doing maybe some Zinc would give you a boost? Have a lovely holiday in Spain and relax!
Well off to work now so be in touch soon.
love Bev x
hi girlies
still in pain, went doc. he says it could be my mets or a lung infection, because it hurts when i take a breath in at times. he has given me a 500g dose of antibiotics and ibrufen, and a chest scan. so if that doesnt sort me out. i do some voluntary work on a fri aft, wasnt going to go because of pain, but i went and just took it easy, at least company helps, and i may have to learn to do things with the pain in the background. i have been pacing myself more, but if i end up not being able to get out, i dont want to regret not doing more while im able.
lily 2000
what a fiasco with the car, bet you felt like youd done a days work before you started. can you imagine what the guys said. like to have been a fly on the wall. never mind it will boost theyre already huge egos.
nicky
hope your more settled about daughters absence now. shes probably settling in nicely now.
everyone have a great weekend. x
Hi,
Lorraine I am sorry to hear that things have not picked up yet but hope they will very soon. There are a lot of chest infections around so hope the tablets will do you some good.How horrible for you to have that and the worry of what it is too.I find seeing people always helps distract me too. The girl who sits opposite me has been very poorly and kept coming into work so I am bracing myself for a nasty. No think positive and try not to get it! I think she may have swine flu as loads of kids off again and i read the number of cases is accelerating fast as expected when schools re-opened.Fingers crossed. Bev love what I can see of the hat and pleased to hear the reading went well.A lovely day to remember. I went into my chemist and he has another 4 months worth so has squirrelled them away with my name on. That will take me to Jan when I see the onc again and expect/hope to move to femara. It is the most expensive but he favours it apparently so fingers crossed again lol. I need to see the GP about an advanced order on my nolvadex so will ask him about my heels then. Lisa take it easy when you can as you are rushing around a lot and although great fun it may take its toll on you. I think your cough needs a weekend in bed or at home eating good food when you can fit it in Have a fab time in Spain and try to have a snooze on a sunbed or are you going inland? Sounds fab whichever it is.Nicky hope you get a chance for a bit of a rest too after all the stress of last weekend. Is she ok? Are you ok? x Well I was sof ed up when another warning light came up on my car that I drove straight over where they plied me with coffee and a soft chair while they plugged it into the computer and it needs a small part replaced,. They reckon it is different from what I took it in for - what do I know to disagree? Came home anf found a frantic Victor with half a kitchen roll trying to stop a slightly dripping radiator. Next thing it started coming out faster and we had to call an emergency plumber. I was bailing out into a bucket as it came out so fat. Good job the new carpet is not in yet. We were due to go out to dinner again, so I went and left Victor to have a boiled egg arhhhhh.
Everyone is ignoring my hotel post, please tell me is it too much, no good, not sure?
Have a good weekend
Lily x
so sorry to hear you are in such discomfort Lorraine and hope it gets easier soon.
Lily thats good that you can have a supply of the nolvadex I must try to do the same but my doctor will only let me have one prescription at a time which is really annoying but I will have a go at getting more.
Thinking of you all.
love Bev
hi everyone
thanks for the well wishes bevvy and lily. i was a little better this morning after taking the antibiotics yest. so i did a little ironing and went into town, but the pain soon returned and i was also a little shakey. but seeing as the antibiotics seemed to have an effect so hopefully its an infection and not something more sinister. cos it is hard not to think of it being something else.
lily
theres always something happening at your house, makes ours seem quiet and its far from that.
have a good sunday everyone.x
Hi,
Lorraine you know if I had a chest infection I would be off work and sitting on the sofa not doing a lot apart from watching diagnosis murder. I really admire your fighting talk but if it is a normal sort of infection then resting up might be the thing to help you.I totally understand why you are out and about but if you are poorly? Even superman doesn’t do everything in one day. I wish I could take your worry away. Have you thought about ringing for your scan results, they should be back or would you rather wait and not know? If the pain continues to improve on the antibiotics that is a good sign, fingers crossed for you x
Lisa ola and have a great time in Spain. Hope the warmer weather will help your cough too.
Bev I have not seen my GP yet but he is usuallly sympathetic to what I want and always says he will sign me off sick any time I say. The options I have thought of are - I lost them, forgot they were in my handbag and threw it away, dropped the pack in my coffee and they disintegrated. Or I am going away when they will need replacing is it ok to do it early this time? I think I will be honest with my GP and think he will be fine with my plan to stockpile. After all out prescriptions are free now so nothing to them. I bullied him into 2 months worth at the start and so that is on the repeat now. The chemict told me that they are supposed to prescribe one month but are allowed to push it to two max.
Nicky how are things? Hope she is happy there and you are ok
Lily x
hi all
Just nipped onto dad’s computer - Lorraine thinking of you and hope its just an infection!!
Hi all, hope eeryone okay, will catch up soon, packed and ready for off with a group of very thin bikini wearing girls - arrrgggh.
Sun or rain as case maybe its a chill out for a week.
Speak soon x