hi, im so sorry to hear of your dad’s news must be really hard for you, my thoughts are with you and your family. You must come back when you are feeling a bit better though and give us the gossip on your man, youve stole my position of trying to find one!!!
Take care xx
hi everyone
well i went to the hospital at 9.30 for my appointment, my oncologist is on holiday so it was the registrer, she asked me what had been happening. so i relayed everything, but i felt so weak after sitting an extra half hour waiting for her to see me.
i feel my prayers have been answered in one way though, i was absolutely terrified of having chemo intravenesly again, and she said that i would be having tablet form. i was so relieved. id asked about this before because my sis had that, but theyd said it wasnt possible, but im so relieved, i feel i will manage this better,
i then had to have bloods, and gets some steriods, which i hope give me some energy, as she wants me in better nick, before we start chemo on january 11.
she also took my drain out, she said it may fill up, but she would rather drain it then, because of the risk of infection
im still lolling about but i feel i can see a light at the end of the tunnel, but still need to stop being afraid of the DARK!
HOPE YOU ALL HAVE SOME CELEBRATIONS PLANNED FOR TOMMOROW, AND HAVE A GLASS OR TWO FOR ME X
Well lorraine glad you have a better picture and hope it was a bit more positive for you knowing it will be in tablet for which is a big relief im sure. 11th Jan, how long for, dont blame you for being scared but glad you feel a little better having a way forward, we will all be here for you through it and lets hope it does what it is supposed to?? is it supposed to reduce the size of the cancer or keep it stable? Sorry i should know better but i dont.
Will raise a glass for you tomorrow that you will deal with this and the chemo will be bearable xx
Love to everyone else, whatever they may be doing tomorrow xxx
Hi,
soulgirl what sad news I am so sorry to hear that and will be thinking of you x.
Lorraine you sound a tad chirpier, well done pigeon ha ha. So, are you having xeloda tablets, as I know there are several in tablet form now? I was on the trial to test that but didn’t get that particular option. So it must feel better to have lost your friend Drain (little chap called mine Andrew and wanted his picture taken next to him!) and fingers crossed it won’t fill back up like before.So we need a plan to build a better Lorraine everyone. Angie would have been really good at this of course, as she looked after all these matters for us. So lots of protein to repair and build, lots of vitamins, iron as you might be a bit anaemic. Ok roast dinner with green veg, carrots and chocolate pudding every day I reckon 
Hope the steroids give you energy without making you stay awake, like they did to me. It sounds like she was positive to me and ready with a good plan. So you got a few of your wishes then - no surgery, no iv chemo - a lot to be thankful for if those were the things you most feared. You just have to have some faith and take that step forward and believe this will help you. Right by your side Lorraine, all of us x x x x
Nick, glad they got the oil to you and hopefully the next cold snap has blown somewhere else. Not a dot of white here now (hope I don’t regret saying that). Lisa those meet ups sounded awkward but you tough old bird lol, you did it and how strong are you these days? Well done, you keep waiting for someone good enough to deserve you. But we don’t mind a bit of intrigue while we wait
Did I tell you I had a hospital appointment yesterday? I met the plastic surgeon who has offered me more surgery if I want it. It was one of those hilarious meetings where you have a charming doctor who is happy to see someone who is in the position to joke a bit. Asked me if I minded if he filled both hands!! Don’t you love those ‘get em out for the boys’ visits!! Not! Anyway he can ‘pretty me up’ in a number of ways. He can slightly reduce my good side with liposuction (I did cringe at this one but he says it is a very good procedure), he can suck about 100mls out of one of my various chubby bits and inject it into the bad side, he can give me a chicken fillet or he can give me a tiny implant. Hmm tricky one and he has just left me to come back if and when I want to do something. He told me I am probably going to live forever so why not do it! Fancy that, you get cancer and become immortal!! Hope he is right. He also told me my biological and skin clock is way behind my actual age so I can have things done that others might not. Told you he was a charmer, where has he been for the last 2 years, swoon!! He also offered to neaten my cardio vascular scar where the port went in if I have another op. He said they are doing ports themselves as the CV docs make such a scar on their beautiful breast surgery!Not really sure what to do, so guess I will do nothing until something makes up my mind for me.
Have fun tomorrow. I am spending the evening babysitting little chap and with Victor, his brother and neighbours at ours, so I get all the cooking again
Night night must get my beauty sleep
Biologically young Lily x x x
get you Lily, can i swa surgeons he sounds lovely opposed to mine who meeting again next week. sounds like you have a few options, why not seen as you are in such a fab position lol!!!
xx
Hi Ladies
So sorry to read your loss Soulgirl, but it sounds like you’ve found someone who understands and is a similar position to you. Good Luck and I hope everything works out well for you.
Lorraine - well, that must be a huge relief for you. I must have been with you yesterday in spirit as I added a discussion from these forums to my saved ones all about Xeloda and how good it is for many people - knowing that it will probably be something I have take at some point. There are lots of ladies on it and I think once the dose is worked out for you it is really effective at shrinking ‘things’ and holding ‘things’ at bay. I hope you get some peace of mind now and can take a deep breath and relax - even if it’s just a bit - and know that you are being cared for. I hope the family rally round, stop their squabbling and look after you. If not get them to make you a cuppa and come and sit on here for a moan - we’ll be here for you. Take care and look after yourself and build up your strength bit by bit so you can face this next challenge - we know you can do it.
Lily - well what a flirt you are 
Getting your baps out for the boys again - and on a first date LOL. Amazing that you are immortal as well - crumbs there only seems to be downsides to this BC lark normally doesn’t there? I guess you will make any decisions when and if you have to and the options are there at least. Having said that it would still be a General Anaesthetic so that in itself is quite a big decision. On another note hope you are not left with all the cooking AND clearing up tonight. I do one or the other - usually cooking - much nicer than clearing!
Lisa - enjoy yourself tonight - who knows what might happen Have a great time and let us know if there’s any goss! Hope you are looking forward to next year - you’ve come on so much this year and we are all loving the more positive Lisa - atta girl. Good Luck next week as well, lets hope the charmer of Lily’s has a brother just posted up north!
To everyone else, Scottishlass, Bev, Julia and all the others on here who read or add anything to our chatter have a Happy New Year and I’ll see you on the other side (of midnight that is!)
Nicky xx
hi girlies
id love to be a fly on the wall tonight, when you all do some celebrating! i will be sitting with me feet up on victor, so i hope something good on tv. did have family party, but will have to give up on that one this time, plenty of time in the future.
i do feel more hopefully, (surprising what a day on steriods can do)
im trying to get someone in to do some cleaning, because boy are these men here making a meal of it,its funny really.
lily
you little hussy! i bet you didnt hurry him along did you? you have some big decisions to make. i think if you can be brave enough go for it, the only thing stopping me if i was you, would be fear. you mention xeloda, im not sure if thats what im taking the one i will be on starts with c. i will be on it for 2 weeks, and then week break
i will keep my hair as well.
have a special evening with little one, i enjoyed mine the other day, even managed to go to to the aquariam shop and get them a goldfish each, for the bowl id got them at christmas, children somehow get us to do things we couldnt normally do.
nicky
have a few glasses for me tonight, im sure you can do that!
peacock, soulgirl, bevvy and everyone else enjoy your evening.
god bless you all happy new year! x
hi girlies
its me again, had so many visitors today, had a lovely day, and the steriods are keeping me upright.
im just wondering, do you think its still ok for me to post on this thread, has it is called after treatment is finished, and i am begining again. dont want to pull any one down?
its just i know and love you all so well. and i would miss your antics. ha ha
plenty of stories to tell after tonight i bet.
xxxx
Hi,
Lorraine don’t you dare leave our post, who on earth would I find to console myself with when my new year’s diet fails in the first week!!! Only you truly understand the call of the cake :). Your treatment has finished and you are having some more and watch us get anyone who suggets otherwise, they will be mincemeat! All comes back to cakes, every time Fab that you keep the old barnet,that is always a big deal for me. Really glad you have more energy too.
Nicky I don’t like to think of you preparing for bad news but I know you are sensible and will keep your chin up. 2010 could be your best year for ages:)Did I mention that he was good looking too. Lisa he is the one you see for more surgery, get yourself down here lol. I now know why everyone giggles when they say ‘I am under Mr ?’ lol. You are right Nicky about the general and it was really just a question on my part which rapidly turned into an appointment to discuss it. i think I will just sit on it for now.Seems I have a feww billion years to make up my mind although he will kick the bucket before me if I am immortal. What a thing to say but it gave me a giggle and something to talk about. Have a lovely evening and see you next year definitely please x.
Lisa here we go into another one and hoping you have a lively year with lots for us to chat about. Julia happy new year and hope it is a good one for you.
Well better finish here. Just want to thank you for your laughter, tears, good advice, rubbish advice and sharing so much with me. I loved it all
See you next year
Love
Lily x
Hi,
haaaaaaaaaaaaaaaaaaaaaappy New Year
Love
Lily x x x x x x x x x x x x x x x x x x x x x x x x x x x x x x x x
happy new year buddies, may we celebrate many more together x
Happy New Year Buddies
Lorraine - don’t you dare leave, we’re here to support you all the way. If anything we should move the thread to a different section because we all seem to be having something done whether it’s BC treatment or dealing with surgery etc. So glad you are feeling a bit better, hope you continue to do so and also that the steroids don’t keep you awake too much. The chemo is Xeloda - the C is it’s other name which I can’t spell! Something like Cap… - check out on here for anything you need to know about it, I think the main problems are dry hands and feet so you can get Victor to massage cream into them every day! It sounds like a very do-able chemo and I’m glad you won’t lose your hair - it’s not a vanity thing as we all know it’s just a pain in the backside having to disguise the fact you have lost it.
Lily - hope the evening was good and you didn’t have to do too much work. Posting at 1am - now there’s dedication for you!
I’m the only one up in our house atm, quite a late night but a very enjoyable one with friends. A cold walk home at 2am, off to bed and then YD turns up earlier than expected so we stayed up another hour chatting - duhhh - couldn’t we have done that today?
Anyway - better get on with a few things but just wanted to wish you all a very good 2010 and may the long awaited Buddies meet-up happen!
Nicky xx
I’ll edit this in a minute to put the chemo name in once I’ve checked on other threads
Xeloda’s other name is Capecitabine
Hi Lorraine,
Here’s the link to BCC’s publication on Xeloda, hope it helps. If you need to talk to someone about this, then the helpline staff are here for you. The helpline is back to normal working hours on Monday 9-5 Mon - Fri and 9-2 Sat.
Kind regards,
Jo, Facilitator
thanks jo, happy new year to you, what would we do without you and the team. x
Hi,
well thats my final big meal cooked I hope. I had 12 for dinner tonight and have told them I am hanging my oven gloves up for the rest of this weekend for a rest. Unfortunately despite not drinking much champagne at all as I was emergency driver for the family, I still managed to wake up with a headache. I had the most terrible acid all night and was on the sofa sucking peppermints at 4.30 am so the ache is up the back of my neck. Took one of my tablets and woke up at 5pm with them all arriving shortly after. They didn’t mind and offered to help and they we all watched Quantum of Solace for the umpteenth time. Daniel Craig well mmmmm. Do any of you still have stomach trouble? I can’t eat after about 8 pm or I get terrible acid and can’t lie down to go to sleep. That’s what got me last night chocolate and raspberries at 11 pm. It was worth it though lol.
Well this is the year of my daughter’s wedding so I am going to make a big effort to reduce my weight but gradually, nothing too dramatic - like I have a choice in this! I have lost 4lbs but have not checked if it is back on after the last few days. Interestingly the surgeon told me that the unoperated boob usually loses weight faster than the one with scar tissue so that is another reason to not go into more surgery just yet. Boo hoo back to school on Monday.
Lorraine how are you feeling after a few more days on steroids? Hopefully brighter but not too twinkly eyed and Tigger bouncy. Are you managing to eat some good meals too to build yourself up. If I had been allocated arm 3 or 4 on my trial I would have been able to help you out on xeloda but got the long country route of e/cmf instead. My boiler man worked while on xeloda and had no trouble. I hope it is lucky and kind to you.
Yes def do the meet up Nicky. I was also thinking of coming to that same house near you for Easter but rather a stack of bills with the wedding approaching so can’t manage everything. Does anyone know who would be best to get insurance from if I went to America?
Lisa hope your head felt better than mine this morning.
Love
Lily x
hi everyone
lily
well steriods are certainly livening me up, i know for the first time am wide awake for most of the night, fitting some reading in.
funny though no energy for housework still!lol
i am hoping and i do think this course of chemo will be easier, but im just a little concerned it will do the trick, but i have to have faith.
just heard yesterday a lady from our church died in a house fire new years day, so it just shows whats the point of worrying.
my tummy hadnt been playing up until these silly ascites, but i do hope you can sort yours out.maybe youll have to restrict yourself after a certain time,(if you think its worth it)
you made me laugh talking about the boiler man, i can just imagine you sitting him down with a cup of tea, and talking about what treatment he was having.
nicky
hope you enjoying yourself, i suppose its back to work for you too
peacock
hope weather in france isnt too bad
lisaf
youve gone quiet, what are you up too?
everyone else keep living life to the full, i need your stories and antics to give me a laugh!
xxxx
Hi All
Soulgirl so sorry for your loss and glad you have someone to support you and in turn you can support him in his grief. Hoping that relationship grows stronger for you.
Lorraine so glad to hear you have more energy now the steriods are kicking in. Remember the magic chicken stock soup to help build yourself up. I really think that made a difference to me during chemo and so glad to hear you are not having the dreaded in the viens again. Keep strong.
Lily well what are you like not to be trusted with good looking doctors who pay wonderful compliements. If I were you I would be back to organise the surgery if only to see him again!! no seriously you need time to work that one out but it does sound as if it was a positive appointment and good to see he made you laugh oh immortal one!! what a lovely thing to have said.
Nicky good to hear you had a great christmas with your family all together and wishing you a great 2010!
and good wishes to everyone else for the new year
I have found this new year a bit weird and didn’t know I was going to feel like this. We had a lovely evening out with friends at a local pub and even with my dodgy foot I actually danced quite a bit ( well if that is was it could be called feet planted firmly to the spot while the body and arms waved around!! I don’t think I would be accpeted for Strictly!)and ended up with an even more swollen ankle. but the following day and even today I feel quite flat and sad.(probably due to having too much time alone at present due to the injury) Sorry I do not wish to bring others down on here by reading this but just wondered if this is normal. When I should be feeling so grateful and happy I just feel very sad. I will get a grip but feel better for offloading on here as I haven’t spoken to anyone else about these feelings as it all seems to silly now after all the previous rubbish I have endured.
Anyway my quote for the year will be:-
Keep your thoughts positive because they become your words
Keep your words positive because they become your behaviours
Keep your behaviours positive because they become your habits
Keep your habits positive because they become your values
Keep your values positive because they become your destiny
-Gandhi
Love Bev xx
hi there
bevvy dont worry about off loading, im sure we can all take it, and want to continue to encourage each other when we can, when one of us is down, theres plenty of the others to lift us up, thats whats so good on here
i think sometimes you cant help getting low, cos we now try to enjoy our days even more than pre cancer, and we want to be out there enjoying every moment, just in case. but hopefully your foot will soon be 100 percent, and youll make up for lost time. x
Happy new year all and dont you dare leave us Lorraine.
Well had a nice two days and just off to take mam and dad to shop so I will pop back in later and give you all the goss… hee hee xx
lisaf
cant wait! x