just a quickie to say my mamogram was all clear - yippeee!!!
Yeeee Haaaaa! Great news Lisa. Must really help and allow you plan the next steps knowing that all that rubbish is not around.
Belinda - how nice to have you joining in - in my case you are very welcome, we have collected a few more buddies since we started in May 2008 so please feel free to join in if you want. Itās nice to know that people read our thread and care about our ups and downs.
Sorry to hear that Lorraine is still not getting sorted, Iāll text her later and hope that OH has been able to get some action from the hospital - all very worrying.
To Peacock and Scottishlass - great if you can meet up - let us know all the gossip! I think any meet up this side of the border will have to be Easter at the earliest and will depend on holidays and any treatments going on. I have a couple of things planned plus some birthdays etc which will get in the way but you never know.
Hope everyone else is doing well and bracing yourselves for any snow that seems to be forecast one minute and cancelled the next!
Nicky xx
Nicky, Do you live in scotland or England?
Lily thank you for the messages about Lorraine, I feel so sad that she is suffering and it seems almost alone with few people to fight for her? I donāt blame you for feeling like a mad bull, it sounds like she needs someone to shake them up. How lovely that she remains herself despite all these problems, I think she is courageous, even though very scared, it sounds like neulasta would help, why oh why wonāt they give it, if I was a person to pray I would be praying for her to have some respite from this horrid disease. OMG how awful if someone has the same dress as the brideās Mum, doesnāt bear thinking about and you must be getting worried.
Lisa congrats, the news re your mammo is fantastic, yippeeeeee
Nicky hope the snow doesnāt descend upon you again, when will this winter end?
Yes, if Scottishlass and myself can meet up that will be great, I havenāt met anyone yet from the forum and it is so nice to put a name to a face.
Well, itās confirmed I have to start thyroxine tomorrow and it is a lifelong treatment but I am just hoping to feel less tired, lose weight, feel warm again, feel energetic again, and all the things that are pulling me down at the moment. The treatment will start low and will build up slowly to hopefully the right level with lots of blood tests and appointments in between! On another more worrying point I have noticed for a couple of days a discharge from my good nipple, not bloody (like before) but whitish ā so, what should I do? Do I behave like a mad woman who has had breast cancer and go straight to my doctor, or, should I wait and see how it goes for a few days?
If itās not one thing itās another eh? When will it endā¦
take care all xxx
Hi,
first of all hey Lisa buddy go girl go!!! Right thats it no moaning and worrying for at least 3 days lol after that great news :). I needed something cheery right now. So next stop new teenage style pointing up boobs I guess after recon. When does it all start? I think I am jealous, not of the op but of losing tummy. Can I donate?
Peacock crikey I am not sure at all about things coming out but guess I would ask someone, especially with your type which is not the most common BC. Not that I mean to say it is a worry just I really donāt know. When I had that I was pregnant each time!!! Sorry that didnāt help either did it but maybe you laughed? Please can I go back to being a raging bull and not mad? A mad bull sounds so tres violent lol. Good luck and hope the thyroxine suits you and no bloody side effects from that to annoy you. I wish you warmth, energy and weight loss instead). Nicky I swear its your littlun that keeps bringing us snow! Tell her to start a sun dance instead! Hope it is not landing on us as I want to go out. Went out to lunch with Victor today and dragged him in a few shops. I now have 3 pairs of shoes for the wedding in reducing levels of discomfort. Victor is in despair.
News on Lorraine. Lots of texts flying around so hope she feels a bit more energetic as I think she needs to put up a fight with her docs.She spoke to the chemo nurse and onc will see her on Wednesday. Doesnāt hurry himself does he? I think she has been in over 2 weeks. Problem being her very bad reaction to xeloda so might need another drug.Tonight she has been put on a nebuliser because her potassium level is too high, she also had an ecg and feels like a guinea pig. I know high Potassium causes heart rhythm problems so guess they are on the ball sorting that out.She says one doc gives her one medication and the next changes it so doesnāt know what is going on. I suspect the 5 attempts to get blood revealed some results that needed sorting. Latest is they are now giving her glucose and insuline? They have also taken her off her anti depressants and making her go cold turkey after 4 years with no weaning off period. I said I thought it was the worst bloody time to take your happy pills away but she says she is ok so far and they affect the electrolites. Well it sounds like there is a lot going on. I have urged her to be strong as the chemo is the thing to turn it around. She sounded very chatty and bouncing texts back which was a good sign.
Thats all for now, take care. I told Lorraine people were asking after her, she liked that
Lily x
hi all, havent really had time to catch up, and still at this hour going to try online shopping lol!!
Lily never mind perky boobs, i have enough teenage zits sprouted today, wonder if its the painters sanding down my doors, dust everywhere!!
3 pairs of shoes sounds like my type of girl!!
Nicky - hope the snow stays away.
Peacock - really sorry about your friend, its so hard. Glad you are starting some tablets and hope they dont have any side effects for you. I would go to the docs but then i am paranoid. Hope you and Val manage to meet up.
Well i will text Lorraine again tomorrow, didnt want to keep pestering her. Hope it makes some changes.
Belina, nice of you to pop in along with anyone else. ha thank god ive got no love life gossip at the moment to embarras myself!
Nite nite all, from a non twiney Lisa xxx
P.S. Lily, due to start end May I think but as yet no word should be getting initial letter with request for dates cant do - good job i didnt go for the 5 week option eh!!
Hi
Quick post from me.
Scottishlass - I meant the border being between France and England rather than England and Scotland so Iām sorry for the confusion! Iām way down south about 40 mins from the coast near the glorious, grade II listed town of basingstoke! Umm, if you know Bāstoke youāll know Iām joking!
Glad to hear from Lorraine, via Lily, but not so good with everything going on with her meds, will txt her later for moral support.
More shoes Lily - weāll be calling you Imelda before long 
Enjoy the half term.
Peacock - I would check out anything you are concerned about - just for re-assurance if anything. No, youāre not a neurotic BC lady (well, you might be for all I know!) but someone who is keeping an eye on anything that is different - which is why youāre now getting your thyroid sorted!
Iāll tell YD to keep away - thatās really unfair Lily! As usual we haven;t seen much of her so far. She went to the zoo today with one of her school mates! Quite a treat for half term. Weāre off to take Tesco by storm this afternoon buying up English delicacies for us to take back in the car. Things like ketchup, Bisto, mayo etc! Things all the girls out there are missing but cost a fortune if bought in France. Anything you need Peacock
Take care all
Nicky xx
Hi,
just joking about your sweet pea Nicky. Good luck with the next move and hope it is less traumatic than the last one up the flights of stairs. I am hoping for good weather as Victor wants to go for a drive and i feel like some sea air. No good if it is raining like today though.
Lisa yes the shoe collection is growing.These were fabulously cheap only Ā£12 from Peacocks so a real bonus that grey and comfy to add to my wedding collection. Really funny as I had promised myself the most expensive shoes I could find for the wedding!
Lorraine says the hospital wonāt do anything until they have checked out why she has high potassium and low sodium. Wish I didnāt know what the answer could be but hoping for something treatable, she needs a break after all this. She says her Victor is getting really annoyed that they are not giving her chemo so I hoep he will get some action going. She sees the onc tomorrow.
A quiet day here with me beavering away on my dissertation and now up to 11,000 words and running out of things to write about. I am so fed up with it. Particularly as I was given a B for my last piece of work. I was not happy with that as I did it while having chemo and the operations so couldnāt go to London to their library or concentrate to read heavy stuff. They said the B was because I had not included enough references from other authors or books, despite knowing my situation.Grrrrr. Not sure why I took it so personally. Well better finishe here. I am loving the lie ins this week, hope everyone not posting is ok. You know who you are 
Lily x
hiya, lily hope the homework going okay!!! having a hard time at work too, so busy and can feel my āchunter modeā hitting in but really im trying to de-stress it just isnt worth it and if a director cant do something that Im expected to do twice as much then surely she will be found out at some point lol!!!
What do you mean about Lorraine, you must have done some research, I didnt do any, but after seeing what my mum in law went through with ovarian cancer and what ive heard about my grandma it can be really painfull, really hope she manages to get chemo and it blasts the crap right out of her!! xx
Love to everyone else, just finished online shopping, hall almost finished and probably have to move to parents, brother is starting on bathroom and me cannot last without a toilet nearby!!!
xxxxxxxxx
hi there girlies,
today the oncologist understudy came to see me and as said that there is no possible way they could chuck anymore chemo at me, it would do more harm than good, and feels i might have to come to terms with the fact that i may have only weeks or months left, they are going to try and build me up, but it might be a matter of making my time left is of quality rather than suffering and think it would be killing me rather than helping me to have anything at moment. of course everyone in the family is very upset, i do feel peaceful and the pain is being kept under controbl of course the worse thing will be leaving my family behind. in a week or so i think i will be going into the local hospice, which is more geared up to dealing with this sort of thing. but the nurses where i am have been brilliant one brought me a paper and bag of sweets, which i havnt been able to touch, but a nice gester and she cried her eyes out today when i was given the news, so at least i feel close to the people around me.
hope your all still living life to the full
lots of love lorraine x
Oh Lorraine, I came on to catch up but everything has gone into insignificance nowā¦ you are in my thoughts, I hope you can be kept comfortable, I just canāt find the wordsā¦
Dear Lorraine, we have met on Secondaries and I have been dropping in here to see how you are. Iām so very, very sad and sorry you have had this news. I know you have a deep faith and I hope you will find this a great comfort right now. I hope those lovely nurses will make you as comfortable and as pain free as is possible. I will be thinking of you Lorraine. I will request prayers for you on the prayer thread if someone has not already done so. Lots of LOVE, Belindaā¦xx
Hi,
I already knew, my sixth sense. I have texted Lorraine tonight and she is as always graceful, accepting and at peace with what life has sent her. I know she she has no fear of dying but one thing we can all do is to keep the thread in the way she has always wanted it to be. āEvery day mattersā and Lorraine loves to hear what we all get up to every day. I am doing it for you buddy as well as me and making good use of my time.
Cyber hugs everyone and lets keep sending texts and photos. I sent her a cyber bouquet and she liked that.Lorraine we are all right by your side holding your hand buddy
Love
Lily x
didnt really want to come on tonight as had a funny feeling about this when driving home tonight, i really dont know what to say, apart from you are a true inspiration and the way you deal with it all is amazing. Im glad the nurses are being supportive and glad the pain is under control. Love you and will defo have fun for you. Text you tomorrow cos everyday does matter xxxx
Another lurker who just wanted to say hello and send my love to Lorraineā¦ I started reading the thread after Lorraine posted asking if anyone knew anything about ascitesā¦ (i replied as my father in law died a couple of months after developing itā¦) Your love for her and herās for all of you shines through and i just want to send you all my love and hope that her time in hospice is peacefulā¦
Love Theresa x
My lovely Lorraine, how sorry I am to hear this. I really donāt know what to say other than to echo what our other buddies have said. You are always in my thoughts and prayers and I hope that you will remain as peaceful as you are and that any pain is kept under control. I think we all know that the worst bit will be letting the family go and I hope your OH and boys will get strength from you and how you are dealing with this. I will continue, like the other, to make Every Day Matter.
Lots of love and hugs
Nicky xx
Lorraine,
Although I havenāt posted on this thread before, I hope you donāt mind me butting in. I am thinking of you and praying that all your days are peaceful and filled with love.
nicky x
Hi,
long text from Lorraine. She is in good spirits and very amused at being told she is a medical miracle. In her words, they have told her that her salt level is so low, she should be climbing up the wall like mad woman!!! Not a very reassuring thing to say I thought. So she is under investigation. Those of you who do so, pray for an easy time as they have a short time span to get blood for the next test and it has been taking a over half an hour of digging over the last few days. This time they have a 10 minute slot. Hopefully this will give them more information how to balance her body and make her more comfortable. She told me all this at 2.50 this morning, the little terror! Victor thought the world was coming to an end when the phone went off. Thanks for a good giggle Lorraine, the bed was shaking (with me laughing!!). I am taking little chap to a farm today so wellies and an anorac for me.This ones for you x
Hugs
Lily x
Hi Lorraine,
We have spoken a few times via private message as we are from the same area. I really hope you are getting the care and attention you deserve. The local hospice has a good reputation and Iām sure you will be very comfortable there. Iāve thought about you lots and followed this thread for news of you.
Best wishes x
Lorraine
Im sorry to hear that you are going through so much my thoughts and prayers are with you and your family