Are you taking at the same time every day? My nurse told me that was the top tip to alleviate any bone pain?!
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Yes I try and take them around the same time each night. Its just been the last one that causes pain for some reason. At least paracetamol works on it so can’t complain too much x
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I finally feel a bit more myself today. Been able to keep some food down and nausea bit better. Filgrastim injections finished too which I suspect were also adding to GI symptoms.
Feeling quite overwhelmed at the thought of having to go through this every time for another 5 treatments. Can cope with most things, but constant nausea is debilitating. Not sure if this is how it is for everyone?
Also having some stinging on urinating. Not sure if this is due to chemo irritating bladder as it excretes it. I have no temp or other signs of infection. Anybody else experienced this?
On a more positive note, can already feel that the mass has significantly reduced in size.
How is everybody else doing today?
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Hey @cookie_monster1 im glad you feel like you have turned the corner, it’s a very empowering feeling, I too also feel my lump is smaller already…………so good things MUST be happening. Just the shitty stuff to put up with. Today, with my mum I wrote a diary of every thing I experienced days 1-8, days 3-6 were bad for me, day 6 was awful…….
Can you do that whilst fresh in mind so you can manage your expectations for next time? I felt I was taking a bit of control back…….
@Charlie81 how you feeling today darling?
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cookie_monster please ring your team, I had burning pee but no temperature and it was a uti and needed antibiotics please keep safe and ring your team to check you out 
Shi xx
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Pleased you’re feeling a little better. I didn’t have burning pee. I made sure to drink lots of water which may have helped. But you definitely need to ring helpline. You don’t need any more discomfort than you have to x
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Starting to feel a bit better today thank you. Yesterday was rough but I think I might have picked up my sons flu and cough and that might have been why I was feeling bad as well. Still got a cough but it feels like I’ve turned a corner.
Took some Nytol last night and that helped a bit.
Starting to go off foods but not feeling nauseous yet thank goodness.
I had a random huge swelling two days ago all around my right eye so much it pretty much closed up. Called helpline and they’ve no idea what it is! It seems like there’s something new everyday but not necessarily related to the chemo!
It’s been hard having my son at home this last week trying to muster up energy to play with him but my husband has been great picking up the slack. Nearly the end of the holidays though! Yay!
We’ve now started to tell pretty much all our friends and family which is quite a drain with everyone wanting to call or send well wishes. However it is lovely of course to have the support and offers if help etc.
@cookie_monster1 @mrsbee2 have you noticed any hair loss yet?
@mrsbee2 what supplements are you taking you mentioned a few days ago?
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Hi Charlie, glad to hear you are feeling a bit better, I feel absolutely fine today, after the shock of how bad I was on day 6 so a welcome relief.
I haven’t noticed any hair loss yet and I had my chemo on 22/12.
Is anyone having a glass of fizz tonight? I’m not a drinker but feel I want to toast 2024 in with my husband to kicking the butt of out cancer!
All I can see is depends on what regime you are on, nothing specific to mine? Seems a silly question to call triage and ask but I don’t want to risk feeling rough again!
Have a good one all, here comes 2024, the year we all kick cancer’s butt for good x
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Happy New Year.
Lost nearly all my hair Christmas Eve, nearly 3 weeks after 1st dose.
No fizz for me. Water since my 2nd dose last Friday. Everything else tastes horrible.
Off to bed in a bit. What a light weight!
X
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Oh I hope you had a glass of fizz! I just didn’t fancy it but this morning I’ve woken up and feel like a new person and suddenly fancy loads of foods I’ve been off for 5 days! Finally managing to get some nutrition into my body!
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Morning @Charlie81 that is wonderful news!!!
I’m so pleased for you!!! I feel absolutely fine now, just re-organised my wardrobe and back to work tomorrow, I feel 9/10 just a little bit tired. Marked difference to this time last week and I’m glad I now know what to expect next round (12th).
Have a lovely day and rest when you need to!
How is everyone else? How is everyone’s sleep? I usually got straight through but am waking in the night a few times now? Then struggle to get back to sleep?
I did have 2 glasses of fizz, I couldn’t find anything on TCHP regime and alcohol so called the triage line, dr told me to enjoy a glass or 2 but not enough to be hungover as I wouldn’t know if it was a hungover or chemo reaction! I very much enjoyed those 2 glasses with my cheeseboard.
Here’s to a cancer free 2024 for all of us
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Cookie_monster how are you doing did you get hold of your team to check things Shi xx
@Shi thanks for your advice. I did speak to my team today. They suggested I ring Out of Hours GP who may prescribe antibiotics for UTI. I have decided to ring my GP in the morning.
I also mentioned to them my other concerns re still feeling nauseous, diarrhoea now, nose bleeds and generally feeling unwell. They said nausea and diarrhoea are SEs of this type of chemotherapy and some people struggle more than others. If I’m still having nosebleeds I need to ring triage tomorrow and they’ll arrange some bloods.
I am in awe of you @mrsbee2 going back to work tomorrow. How are you feeling about that? So glad you got to have your New Year’s fizz.
Happy New Year everyone. Can’t wait to kick this thing’s ass and get back to living life.
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Exactly as the 1st time. First filgrastim this morning. My glands are now swollen and tender. Paracetamol and sleep for me for next few days.
@mrsbee2 back to work! I do hope you aren’t pushing yourself too quickly. Good luck with it anyway x
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@isitreallyme @cookie_monster1 my work have been amazing and set me up from home! I am no good at “not being busy” as like to be distracted, I am planning on doing what I can, when I can and as I’ve got a bed in my office, if I need a nap, I haven’t got to go far!
If it is too much I will cut back but I plan on doing what I can!
I am so sorry you are feeling so rough still, @cookie_monster1 did they switch your anti sickness? The metrocolopine were good for me.
Supplement wise I take the following:
-
Life Source gold
Plus natures source (it is a capful a day and is VILE) but has every food group in one shot -
tumeric capsule
-
Oxegenated magnesium (takes oxygen to assist with blood cell renewal)
-
Vit B
-
Iodine by weed and wonderful for menopause suppport
What are you guys using if anything?
Have a nice evening!
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@mrsbee2 hope working from home today was ok.
I’m feeling a bit better today. Metoclopramide didn’t work for me, changed to cyclizine but that didn’t really help either. I am going to see my Oncologist before my next treatment next week to ask about other options.
I don’t take any supplements at all. Do you think they’re helping @mrsbee2?
My hair has started to fall out. I keep finding hairs everywhere which is getting a bit annoying! I’m not sure how I thought it would fall out, but imagined it might be in big clumps. Fortunately some cute hats I ordered arrived today, just in time by the looks of things.
Hope you all have a good evening.
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I had my 2nd EC last Friday. My downtime started yesterday evening. Swollen and tender glands from neck to waist again.
@cookie_monster1 my clothes started looking like a large hairy dog had been lying on them from about 10 days. Then in the shower just before 3 weeks I thought lots would come out. And it did. Literally a wet hand wiped down wet hair was enough. I had already had the pixie cut. I put a plug strainer over the plug as I thought it would happen. I haven’t shaved the whispy bits off. I don’t fancy the prickly feeling.
I hope I can do a bit more than lie on the sofa tomorrow x
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You’ve got this @isitreallyme, how long did it last your first time? I have to say, I’m not looking forward to the “downtime” again, especially as everything I’m reading says it gets progressively harder…but we CAN and WILL do this….
I cold capped and quite a bit of hair came out today when I very gently brushed it, its really upset me, we are more than cancer, and I just feel it defines us. I can’t imagine wearing a wig 24/7, what do we wear at bedtime? I was convinced the cold cap would work 
something else to deal with……oh well………
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I loved being back at work! I genuinely feel like “me” again which I know is a blessing so felt a bit of normality was great!!!
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Yes check with the oncologist for a different anti sickness, there is a lot to choose from. I was on the same as you, the first was ok for two weeks then swapped, towards the end 8 was on Cyclizine for the full 5 days and still feel at bit queasy for an hour or so before the next tablet due. I probably should have asked for a different one but I muddled through.
@mrsbee2 I didn’t take any supplements at all during chemotherapy as I was told to stop all of them and only take what was press they could keep any eye on everything. Some supplements could interact so please check with your team. I had regularly taken Vitamin D but was told to stop, a few weeks in I was so fatigued I asked them to check my levels in my blood and I was borderline deficient so had very high dose for 6 weeks and now on monthly maintenance of oral liquid. I even double checked with the oncology pharmacy about supplements including CBD oil and was advised there is little research done with chemotherapy drugs and supplements, and that are done are done on cancer cells or mice which are not people so don’t give real world data. So their advice was also not to take anything not prescribed. I was advised to restart one at a time 3/4 weeks after finishing chemotherapy with Herceptin still being received and see how I am. They said risk of interaction less with Herceptin as it’s injected not infused.
Please advise your team if you haven’t already. 
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