Hi - all ok with me. Had no4 last week in record time for a change! The unit was very quiet. Feeling ok, just the usual aches and pains to deal with. For some reason I don’t have the red tinge, maybe it will come back in week 3 like it did before.
Hope everyone is well, good luck Helen for your BBQ’ing on Monday.
Daisy xxxx
Hi Daisy 99, the organisation is Audrey Appleton trust.
This hot weather is playing havoc with my hot flushes!!
Hall is booked, DJ nearly booked at a very good rate, off to Helen Rollasons head office today to get letterheads etc and then I will email you with what I need doing if that is ok.
Take care Sharon2xx
Just a quick one as I need to take Jack to school but will come back later and add more to individuals.
Hi Everyone
Well just come back Monday from a brilliant lovely time at Warners at Corton.in Suffolk. Went with 3 friends, one being Shelia/Flora we did not want to come home and it always feels a come down esp as got 4th Chemo on friday,not looking forward to it! My boob ,new one as been causes me problems and pain,was told it can be more swollen when having chemo,went to breast clinic and given exercise sheet to do!
My eyes keep watering too Sharon also seem to have hayfever not had for years,well think its that as eyes have swollen up after being in sun!
Helen, sorry could not meet up but will see you soon although your radiotherapy starts monday i think!good luck with that, also know what you mean about sitting in sun, i usually am fine to sit in for a while but my skin seem to get red and face even swelled abit, but sun facter on thats highish too! strong sun i think!
Must get some info on October do, perhaps we can all meet up soon to discuss it Sharon?
Hi the new lady in Newfoundland! Glad your news is good, sorry about your sister in law, though
glad you have settled in Tracy, be nice to meet up soon, will try to come to Run if can on 21st to cheer you all on! Nicola done it in Harlow and it was very emotional;
Love to you all. let me know if your of for meal and if its in a couple of week s would like to come to see you all again ,take care
love juliexxx
Hi All
Hope you are all ok.
Daisy, well done for getting through number 4, did you satisfy that craving with a nice bit of cod??? LOL, it’s so funny what you crave on chemo!
Julie, good luck for no 4 Friday, no problem about not being able to meet up. I’ve got a bit of a busy week anyhow. Glad you had a lovely weekend away, it’s good to spoil yourself while you are going through such a rotten time.
Sharon2, well done for sorting out the hall and DJ, where is it being held? I had a reflexology session today with my Mum’s neighbour who had bc 11 years ago. She is a fully trained reflexologist, (NHS registered) and said she would be happy to offer an hour session as a raffle prize for the Pink Party. Will keep plugging for other freebie services if that’s the kind of thing you are looking for? Pretty sure my hairdresser will be able to offer something too.
Well I am enjoying my last week of freedom before I head up the A12 for the ‘big fry’ on monday. Any tips other than using ‘simple soap’ and aqueous cream to stop the soreness from you ladies that have been there, got the burns to prove it?
Hi to Tracey, Flora, Lily, Angela, Bev and anyone else I’ve forgotten, hope you are all keeping well, look forward to seeing you all soon.
Welcome to LeadWellie the new lady on-line, it sounds like a very difficult time for you, mixed emotions eh! Wish you all the best.
Take care all
Helen x
hi everyone
well 4 down two to go! Luckily found another vein to put needle in, very bruised every where! feeling tired and started to lose appetite as normal, but of to a engagement party for while tonight if can keep awake, as will rest mon to fri!
This is just a short visit as rushing about abit,
Sheila i have photos back from hol if you want to pop round anytime!
Good luck mon Helen , and love to everyone ,see you soonxxxx
Hi,
well done all you chemo girls, the last half goes by much quicker than the first half. Well done Helen for getting to rads and hope the A12 is behaving itself for your 3 weeks, I had roadworks!! Tracey hope you are preparing for our big walk. I tried to sponsor you and it came up with someone in another town, have you made a site? Bought some new lighter trainers today so need to urgently wear them in and bought a pink cap to wear, hubby sys it looks like one someone would wear to a gay pride meeting!Might ask him how he knows that, tomorrow lol. Flora I have told my daughter to get going on your joint site so hopefully she will do that early this week.Sharon2 how are the plans going?
How about a meet up? Can you ladies on chemo give us an idea when you would be up to it please?
Hugs everyone
Lily x
Hi everyone,
A meet up sounds good to me, anytime,any place!!
Good luck with rads Helen, drink plenty of water and rest when needed.
The DJ is booked, Helen Rollason centre will do our tickets so it is about getting raffle prizes, thanks Helen for our first raffle prize. I do have headed paper so we can write to companies so if we can meet up soon we can get the ball rolling. Also, if anyone wants HR will do a leeter with your name on it so you can approach companies in person, they just need your name and address.
Talk soon as I need to get Jack his breakfast.
I had a funny weekend as Den had a sort of breakdown. The realisation that he could have lost me and then losing his mum recently hit him big time. we intern her ashes on Thursday so hopefully this will enable him to move forward.
Love Sharon2xx
Hi All
A meet up sounds good to me!! 1st rads out the way today, caravan overturned on the A12 so not a good start, my Dad took me and was doing a Victor Meldew about how caravans shouldn’t be able to travel in the daytime … oh what joy! Anyway we made it in time for a zapping. All ok, just a bit sleepy this afternoon. Got my first zoladex jab tomorrow, just waiting for those hot flushes!!
Sorry to hear your hubby not good Sharon2, must be a really stressful time for him, well all of you in fact, take care x
I’ve texted Julie and Daisy, to ask them to post dates when they are good, so hopefully we can meet up and get organised for this pink party.
Look forward to seeing everyone soon
Love Helen x
Yoo-hoo
Next chemo for me is Fri 19th June, so anytime before then suits me. Only date I can’t do is this Thursday as it’s parents evening.
Saw Dr L today, nice lady. Was a bit worried though, as she took a very long time examining me, I was wondering if I was actually being groped!
I have a chest x-ray tomorrow as I am getting short of breath, but lungs are clear and she said it’s nothing to worry about, as I am borderline aneamic, and its probably that. Got ultrasound on my pelvic area as she says there are some nodules there (according to Nev it was my ovary!!!, so he has some explaining to do when I see him), again nothing to worry about, but she wants an ultrasound, and it would seem what she wants, she gets! She wasn’t that nice to the nurses at the clinic, barking her orders out. Then it’s back to her or Nev again in 6 weeks before the BBQ’ing of the breast begins.
All ok with me, glad things went well with you Helen, well done Julie on no4.
Speak to you all soon.
Daisy xx
Hi,
Sharon2 really sorry to hear Den has been so down and hope this Thursday is not too traumatic for all of you. Big hugs for that day.
Helen nice to see you and meet your daughter at the fete. She is a real sweety. Victor Meldew and a caravan ouch. Quite a rotten start to your travels down the A12. It was 50 miles a day for me so 750 miles in total, a lot of petrol and car park money too. You shouldn’t notice anything before the end of the second week. Fab little deli with lots of unusual foods and a cafe upstairs near the hospital. Just go across the crossing and it is in that road on the left. Yukkky for the zoladex, hope it is ok for you x.
Daisy gosh you are piling in the tests. Think you must have run into out least favourite doc, who none of us want to be transferred to. I had to have a chest xray as they saw a shadow and forgot to recall me. Scared the pants off me but it was fine. They don’t tend to say fine unless they really are pretty convinced. Will keep my fingers crossed anyway too just in case. Nodule/ovary thing is rather puzzling, keep us posted on it all.
Will ask Bev re meeting and get back to you, if pea brain remembers!
Hi everyone I haven’t mentioned. Tracy are you out practising?
Lily x
Blimey! you lot are like buses, no one around then you all come along at once.
Daisy, glad your check up was okay. The trouble with scans is they show up all sorts of things that we otherwise wouldn’t be aware of. I’m sure there’s nothing to worry about. I have to say I really am not keen on Dr.L. Every time I’ve seen her I always come out more worried than when I went in!
Helen, you are on the home run now yipee! there always seems to be some problem or other on the A12, hope the rest of the treatments are smooth running, I thought all the staff there are so kind and nice.
Lily, I forgot about the Fete, did you have all the cream cakes?
I haven’t bothered with sponsorship online, suppose I should of done really. I have when feeling up to it been on some long walks with the dog, other than that I am not prepared at all. I had a bad week last week with one of my usual flare ups so didn’t do anything at all. The weather isn’t helping either, hope it is nice on the day.
YD has gone on school trip to Dorset and ED is not in my good books, teenagers!!
Sharon, so sorry to hear Den has been feeling down, at least he is letting it come out. It has been a difficult time for him and I hope he feels better soon. I hope you are not working too hard and over doing it! Will be great to meet up soon and hope I can help with the party planning. Printer is currently kaput so I may have to do something else unless I get it fixed in time.
Shall we arrange a meet up then? What evening/time would suit everyone. I can’t do Tuesday 16th, otherwise think anytime will be okay with me.
Hope to see you all soon,
hugs
Tracey xx
Hi
Everyone
Just a quick note at momment as stillwaiting for injection from nurse and nicola to come and watch.! Anyway next week except wed should be good to meet, thu fri would be better , Dasiy .will i see anyone soon , not heard anything except have app on mon with Proff D already booked ages ago? Your seem to be seeing alot of people etc ,not seen anyone ,boo hoo!
will write more soonxxxxx
Hi All
Good to see everyone chatting online. Had my zoladex injection today, not quite as painful as I thought! Now just waiting for the side effects to kick in! Felt really yuck last night after my first dose of the ‘zapping’ but not so bad today. Think I overdid it… walked to the school and back twice, had a bit of shop around Colchester, did my ironing, had my daughter’s friend here for tea and then took them to Brownies! Took it easier today. Had a good run up the A12 today and made it in 30mins flat…only 18 more to go - yawn!!!
Daisy, blimey any more tests you can fit in? Hope you get good results. I don’t mind the doc, think she is a bit batty & like you I thought she gave a ‘very thorough’ examination!!
Tracey, how you doing? Haven’t seen you online for a while.
Lily, weren’t those cakes ‘yummy’ at the fete?
Hope to see you all, I can’t do next Weds, as I’m going up to London to see ‘We will Rock You’ Think that is the date of the support group meeting anyhow.
Anyway, my eyes are drooping so better get an early night, ‘hi’ to everyone I haven’t mentioned and hope to see you all soon
Love Helen x
Julie - this was a routine appt booked ages ago, but as Dr Leone went through my file and scans etc,it was then she decided to request an ultrasound as SHE wanted it! The chest xray is just because I am coughing, so again, it was only done for that reason, not a routine thing. I am not worried about nodules as she TOLD me not to! I can imagine she is one scary-Mary on a bad day.
Next Thursday would be good for me, the 18th as Chemo next day. are folks up for that? All those in favour say ‘aye’…
What shall I have done next? Wonder if I could wrangle some lipo all in the name of BC research as I hear that fat cells contain oestrogen?
I pulled the ‘I am on chemo, do I have to wait?’ plea in the X-ray dept at Broomfield yesterday, I waited all of ten minutes - shocking!
Hope everyone is well, and see you next week.
Daisy xx
Thursday is ok for me, are we going to the Miller & Carter (next door to Fox & Raven), as some of us weren’t too impressed with Fox & Raven last time? Shall we make it early again?
H x
Hi Everyone
First yes 18TH is good for me, at Miller and Carter? What time will it be.? Glad its good for you Sharon/Daisy, 5th chemo next day,I am off for 2 nights before my next chemo with a friend from when i was 4 years old! to Warners again, 3rd time this year and going again on 10th July, not sure wether i am doing the right thing but it takes my mind of all this crappy chemo side effects. well abit anyway.
Having real problems with my breast and scar tissue,back etc,really painful and rang clinic to see if can see Mr Smith but nurse said tell Proff D on Monday as got app anyway,said he will know,still say its chemo that causes it.
Found at last something i can taste first week! Pinapple and coconut juice and food wise nuts and rasins!
Been feeling depressed but trying to snap out of it, expect we all get our low moments,
Shelia, can you make thur 18th for this get together? I can bring photos too if your able to make itx
Well John is asleep on settee as usual ,should be me!
Sharon 2 i feel so sorry for Den, think it must have all hit him suddenly with losing his mum, and worrying bout you, I know JOhn never shows he worries but perhaps deep down he does,well nearly lost all this so think better send it as slow at typing
Helen , sorry you was shattered after first zap, i will be dreading that, but pleased to finished chemo. feeling more tired each time and more tender eveywhere, did you? Have you bought creams for soreness ,and told what to get?By way have you had app for scans etc. think you have had them?I had bone scan and cat scan before op so wonder if will have anymore later?
I went to fete sat , see you did too,hope Lily,Tracy.Angela.Sharon,Sharon, and everyone i have forgotten is well and happish too,love to all juliexxx
Hi,
next Thursday sounds fab. Can we make it 6.30 sort of time as I can’t eat too late? Will catch up with everyone then. I have hurt my leg but as it is improving quickly I hope I will still manage the race for life with you Tracey. If not could you manage running with my daughter she is trying to beat her record LOL. Only joking! Hope the flare up has turned into a damp squid and disappearing and that little had a nice trip. Must have been a bit quieter while she was away! Yes I gathered you might have had some annoying/disappointing news.Talk to me when we meet or not whichever you feel like. See you on Thursday I hope. Must remember to tell B.
Lots of tests and examinations going on. Can I recommend the very nice Austrian surgeon who is very thorough!!No way will you convince me with a middle aged lady compared to the lovely TG. helen hope you are feeling better and i was told that rads are more than you think and that it is important to eat and drink well while having them. Hope the rest goes smoothly for you. Daisy she is ok unless giving you not so good news and drops it like a ton of bricks with no nice noises or warning and then peers over the glasses at you to look for a reaction. Give me the Prof any day, I like optimistic and cheerful. Julie I think I will go out and buy shares in Warners. I have never been but it sounds great if you are going back so many times. Do you go to the same one each time? Chin up matey, just think how far you have come and just keep asking until someone sorts you out with something to help x x.
Sharon2 you can apply online to britvic for charity events, might be worth trying them for prizes?
Hope to see you all at ’ next door’ next Thursday at 6.30 unless someone needs to change this
Lily x
Hi I can do Thursday see you there. Only a quickie as at work!!!
love sharon2 xxx
Wowzers Sharon2 I never get the opportunity for a quicky at work. What line did you say you are in???
Ha ha ha ha ha ha ha
See you next week
Lily x x
Ps - just trying to give you a little giggle after what must have been a tough day x x
6.30 Thursday at Miller & Carter it is…look forward to it.
Helen - how has your first week of being BBQ’d been? Are you undercooked, cooked or well done?
Daisy xx