Hi,
well B and I will definitely be there tonight and hope to maybe see you Flora? I tried to telephone several times and left a message
Everyone else get well wishes x x
lily x
Finally finished all my 20 rads. Given flamazine to put under boob as he said it will break and weep before it gets better. Check up in 4 weeks so just to recover now. At last no more hospital for a while. Just rest and relaxation.
hi to you all
I hope you all had a lovely meal if you went last night, I could not make it as it was mums 80th birthday and took her for a meal and did her a surprise party in her community hall where she lives which was nice,although worrying about her as she is very low at the moment and keeps saying she cant cope with life and doing anything!
Anyway I hope Tracy and Helen you are both feeling alot better now after your bugs
Also to the new ladys, I hope this site is helping you both, there is always someone who can help you with a question or worry to ease,
MissM, I am on Femera ,but I was given them after my chemo and a week before rads started,been on them since Aug 10th now, a few side effects ,but not too bad. upset tummy abit and very hot in bed at times . but all copable with and tummy eases off if you get it.
Sharon2, I am interested in coming on the 23rd to Red Lion, although how much is meal does anyone know as a guide , was told its expensive? Also would anyone be able to pick me up or be able to take me back please?
I hope everyone has a nice weekend and enjoy Strictly and or x factor!! although think Jedward should have gone!!! set up I think!!
well Shelia if you read this before I manage to get you on the phone I hope today went well , was thinking of you , will call you tonight or in morning and hope to talk to you, love juliexxx
Love to everyone and hope you are all happy as possible , xxxx
Hi,
hope all you coughers are improving. Flora, B and I had an exclusive meeting, just the 3 of us. B has had lots of tests and they are all ok, although she was very worried up till the second she heard they were ok. I am trying to persuade anothe rlady that Flora and I both know to meet you all but she is a little shy as in the middle of treatment. Flora I thought you were amazingly well, made of steel!!
Get well soon everyone
Lily x
Hi All
Hope Helen you are getting over your cough and Tracey you feel better now.
Julie, Angela and I are going to the Support Group tomorrow so see any of you there.
We must start to plan our December Xmas meal. Any suggestions of place and dates to avoid?
Flora x
Hello ladies
Hope you are all well, I am still coughing well & since having swine flu jab feel more achy! How are you feeling now Moonshine?
Good to hear you had a nice ‘exclusive meal’ and that Flora is looking good - well done!
Glad you had a nice time away with your Mum Julie.
Flora, good idea to make arrangements for a Xmas meal, I’ve got several meals & events booked already so can’t do 3,9, 11, 15 & 17 December - gosh I am going to be a right little stuffed turkey aren’t I?
Keep well ladies & enjoy the support group meeting
Lots of Love Helen xx
Hello everyone
I have been to Broomfield today- I start chemo on 26th Nov. I got my wig voucher too. Has anyone been to Studio Nine for a wig? Do they have a good selection? I’d be interested to know how you got on.
Keep smiling.
XM
Hi missm
That’s where I got my wig - Studio Nine is the name of the hairdressers, Michael Roberts Wigs are in the back of the hairdressers. I saw the lady there, she was very sweet and understanding. I can recommend going there before you lose your hair, that way she can see what your hair is like in good condition. Then the man cut a fringe into one of my wigs, not all hairdressers are trained in wig cutting apparently. My wig was so much like my hair that not many people knew I was wearing it. Good luck for 26th, once you get the first one out of the way you will know what to expect and get into some kind of a routine with how you feel. 27th November is a year since my diagnosis, it’s been tough but I can’t believe where the year has gone.
Take care
Hx
Hi Diamond
Thanks for the information re wigs- I am going on Tuesday. I had my
hair cut short yesterday so it shouldn’t be too much of a shock when it all falls out. Have you finished your treatment now?
XM
Hi Missm
Wise move - My hair was long and like you, I had it cut in to a bob and then got two wigs the same but slightly varied in colour one dark reddy brown the other with with warm low lights. My chemo finished May, rads finished July, just on zoladex hormone injections now, probably be for the next 5 years. I was very lucky in that my hair actually started to grow back after 3rd chemo, by July I was able to go wig free but had to use gel to make my hair stick up to cover my where it was a bit sparse.
Hx
Hi,
I went there for my wigs too and had such fun messing about trying them on. Take a friend and have a giggle. You have to whenever you can. Good luck for your chemo start. Have you asked about a swine flu jab or normal flu jab as you might be able to sort them out before you start. I am sure someone has advised you anyway. Hope to catch up with you some time so we can check out the dead ferrets (our fond name for wigs)
Although the first chemo is such a shock you very quickly get into a routine if you keep a short diary on the first one. You find the symptoms appear on exactly the same day after each dose so you can plan lovely things or days out on the good days. There are lots of good days. Fingers crossed you will have as easy a time as possible on this next stage of your treatment. Another big tick off that list once the first is done. I skipped out each time and fine until day 4/5 but we are all different.
Lots of luck and hi everyone else
Lily x
Hi Essex Girls
I hope you are all keeping well. Thank you for the advice about wigs. I’ve had both my flu and swine flu jabs and I am just back from having my bone scan and blood test. Just 2 more scans to go before starting FEC on Thurday. Not looking forward to it but it has to be done. Going to get my wig on Tuesday.
Have a good weekend.
XM
missm,
just wishing you lots of luck and an easy time on chemo, well as easy as it gets. Well done sounds like you have ticked a lot of things off your big list of things to do
Lily x
Hi everyone,
I went to Studio 9 and the woman I saw was great, got two lovely wigs both ash blond, caramel, reddish mixes one short and flicky and one longer and bobbed (my own hair is curly so never been able to have a bob). Have been trying to wear them over the last few days to get used to them but my own hair keeps sticking out at the bottom and sides so have had to buy nets and a gel band to keep it out of the way still not very comfortable with them yet though.
First FEC at Broomfield on Tuesday, good advice to keep a diary so I know what to expect next time. That’s the problem at the moment not knowing what se’s (if any - wishful thinking) I’ll have. I’ve got 6 bottles of champagne sitting in the garage and I’m hoping to be able to celebrate getting through each chemo session by having a little session of my own. At least I’ll have an excuse for any nausea and headaches the next day!
Keep strong ladies
Avis
xx
Hi Avis,
nice to hear from you and hoping that things will go well for you on Tuesday. They give you anti-sickness and steroids, etc down the line before they start the treatment and then tablets to take home so they usually sort you out. If not they have others to give you that are stronger or reduce the dose. Each person is different and after a while the only thing you think about is having the cannula go in first time. It is really relaxed in there and if you say hello or wave to someone it is nice to see a friendly face each time as you tend to go on the same days. I was always shouting hello or chatting to one of my new friends while having it done. There is a lot of waiting around sometimes so take something to read or a crossword to share and lots to eat and drink, although a trolley goes round but only once. other people like to snooze through it. If the air con is on it gets cool so take a big cardy or something as I used to like to wrap myself up in one like a blanket. They give you a pillow and you can have reflexology which is free and very relaxing. I recommend it.
Good luck all of you and next time we have a meet do say if you would like to join us.
Lily x x
avisq - Had my first chemo of Wed.(just EC, no F!) have been really lucky so far no sickness or nausea,just dry mouth. Have been taking the tablets but finished today so interesting to see if anything happens in the next few days. I’m not an Essex girl, from the North -Co.Durham but we are all doing the same thing. Good Luck.
Marli. X
Lots of great advice thanks Lily, I’ll defo take a snuggly cardi although I still get hot flushes from the menopause so it’s like my own personal central heating. I’m going for the reflexology sounds great, the unit seems very cheerful and bright and, chemo apart, I’m looking forward to meeting up with others in the same boat as me. Prof.D has put me on a research trial looking into sickness and anti-sickness drugs so have to keep a 5 day diary for that. Would be good to meet up with the rest of you if I’m up to it - I’ll watch out on here for when/where.
xx
Thanks for all the advice Lily- I’ll take a thick cardi with me although like Avisq I am still suffering hot flushes so I doubht I’ll need it!
I’m doing the anti sickness trial too so have to keep the dairy.- I hope there won’t be much to write in it! I’m pleased you have got some nice wigs Avisq. I am going o Studio Nine to get mine on Tuesday. I seem to be two days behind you as my first FEC is on Thursday. Good luck with yours.
Happy Sunday everyone.
XM
Hello ladies and newbies.
MissM - good luck for your first chemo., can I recommend you get a sleeping hat as your little bald bonce will get very chilly of a night time! I got mine off Ebay, it’s thin sweatshirt material and stretchy so it covers my ears. My chemo advice, ake your anti sicky tablets even if you don’t feel sick, and drink sooooooooooooo much water you are up at least 4 times a night peeing to get the toxic juice out of your system. Your tastebuds become mangled on chemo, so expect the cardboard food syndrome! Good luck, it’s do-able but a pain. Oh yeah…CONSTIPATION! You will get, no ifs or butts (excuse the pun)…so get yourself stocked up on Ducloease.
All fab with me and will be returning to work next week. I am only doing 15 hrs a week for a fortnight, then 20, Xmas break, then 20 again. I will see my GP early Jan to see about increasing my hours. Not sure what I am going back to do as I have been made redundant. I am being interviewed the 2nd week for the job of Asst Head Y11/12/13, I am the only one, so I had better get it!
Nothing to moan about healthwise. No flushes or anything…phew.
Am up for a meal…I can’t do Nov 27th/Dec 11th/Dec 7th.
Love to all… Daisy xxxxxxx
Hi Everyone and especially all the new ladies on here !
To the new ladies, no one can say chemo is nice , but everyone is different, I had 6 lots of tac , and treated myself to a little long weekeknd away after every seesion , just before my next one , as you normally feel better by the 3 rd week it gave me something to look forward to! Lily and Helen have said good advice, you may get a metal taste and sometimes get a mouth sore , but there s always something they give you for any problems and you see a doctor after every treatment, but maybe not the first one! I wore scarves alot , lost all my hair and had a wig from same shop ,studio 9, anyway very good luck to you all, and it does go round quickly really! I finished treatment in September, now on check ups and femera tablets! although got to have another op next year to correct things
I hope everyone else is fine , and count me in for a xmas meal!
I cant make 1st,4th,8th,9th,10th 11th18th, the week of 14th is good , except the fri!
so can make …2nd,3rd7th14th15th16th17th21st22nd23rd! just hope we can get together!!!
love to you all . juliexxxxx