Hi ann .welcome i start my chemo on the 8th before surgery so i only know mine is grade 3 due to lymph node involvement and size .i wish you all the best for you first chemo next week .xx
Hi Jules and Zena, huge hugs for being brave and getting the first treatment over with. Im so comforted by what you’ve said and I bet many other ladies will be when they hear just how positive you are sounding.
I chased to see if oncotype result back yesterday, no joy. Wish i wasn’t such an impatient worrier! ?
Welcome Ann, ul get great support from the ladies on here ?
Hope everyone has a good day. Mum’s doing a tea party and inviting all the ladies over in our family so it will be nice to have a giggle and a scone! Yum! Yep, i realise im coming across as cake obsessed in my posts ? ??. Xx
Well done Jules and Zena getting your 1st chemo out of the way. Hope you are both feeling ok and not too many SEs. I’ve not been on here for a couple of days so have got some catching up to do.
I had my pre-chemo appointment yesterday so am all set for Monday. It’s seemed a long wait since my mx at the beginning of December. I’ve been busy doing housework today because I’m guessing I won’t feel much like it next week ? (not that I ever feel like housework).
Ladies, what anti-emetics were you given?
Jo xx
Ann, I have just read your post. You are not alone with anxiety and depression. I was awful when I was first diagnosed and I know that there are many other ladies who feel the same. For me, it got better once I had a treatment plan. It’s good that you’re with your family. Nobody wants to go through this alone. Do keep coming back in to chat. I’ve been off here for a couple of days and am now struggling to keep up with all the new posts.
Big hugs,
Jo xx
Hi
I’m still feeling okay - no sickness and I managed my first steroid injection which I was dreading. It was okay.
I’ve been out for a 40 minute walk but now I feel a bit odd - not sure how to explain it.
I wake a lot at night and sometimes read and I nap during the day a little. Managing to do some family history research and watching all the DVD’s we haven’t got around to watching. OH is still making healthy meals and I’m managing small portions. I hope to have lost a few pounds but I’m worried about the effect the steroids will have. Does anyone know if they cause weight gain? I hope not.
Hope you are all okay.
Best Wishes
Jules
Hey Julie
Yes it’s a weird feeling. I can’t explain it either… like flu symptoms but not …
So good you had a walk . I just lay about …
I’m also concerned about steroids and don’t understand fully why we are having them … I don’t want to feel energetic and weird like this ;that would be very odd …
also not sleeping thing ( last thing we need) .
And weight gain ???
I agree - anyone know more would be good to know .
I know it’s something about white blood cells but in Macmillan chemo book it doesn’t actually say why just what it does …
Oh and the low mood and withdrawals after the 5 doses ?
Don’t need a low mood …
Z x
I wonder if we could just have quick update for dates and onc results if in ( sorry Mrs c I know you chased )
Jojo
Maria
Mrs cat
Ann
Sparky
Sarah
And I know jo is starting Monday …
I just can’t keep up and want to be able to wish you all luck on the night before or day if I don’t catch the right posts
Hope that’s ok xxx
Hi zena my first one is planned for 8th of feb x
Thank you flopsy that’s really interesting- I’m gonna ask onc and check which one I’m on and get back to you if that’s ok .
They are in the fridge and I’m in bed now as had a wave of exhaustion…
Thanks so much for reply xxx
Thanks for the update Zena and Jules and well done. Sounds like you’re both coping. I am definitely planning on being close to my bed and plenty of duvet time if I need it next week Zena. The SEs sound really odd. Can’t say I’m looking forward to it but it has to be done.
Jojo, I’m worrying about feeling sick too. Actually, I’m dreading it. I’ve been given Enend to take an hour before EC and then for 2 days after. Was really relieved that I’d been prescribed it as I’d heard it was good. I’ll let you know next week! I’m also having g-csf injections. Oh the joys of even more side effects and self injecting.
Big hugs to you all.
Jo xx
Hey ,
Yes jojo and jo
I got emend one before and 2 for days after - has actually worked so far and I’m having a weetabix with koko milk ( surprisingly like normal milk ) and brown sugar on to ( nautie)
Pretty much every 3 hours to stave off the weird feeling of hunger but sick hunger ( weird too ) …
Also taken 2 ondazatron bed and breakfast they call it … and had 2 injections of anti Sick before chemo not sure what they were called …
my steroid is called filgastram
And also taking dexamethasone for 3 days too …
Also just had a diazepam too ?
I want to take paracetamol for my headache but just feel overloaded with drugs … il keep eye on water retention to jojo … bloody SEs the muggles just don’t know what we are goin through lol xxxx
xxxx
You sound like you’re doing fab Zena. I got a sick queasy hungry feeling when I was pregnant and just had to snack to reduce it. I’ve bought in lots of chocolate ginger biscuits just in case! Glad to hear Emend works. A friend recommended it to me so I asked my onc for it. He said I might not need it and they would see how I was! So relieved that it was prescribed anyway. It’s a real cocktail of drugs we get, isn’t it?! At least we are getting there and not waiting for something to happen.
Hope you carry on feeling better Zena xx
Just googled it and yes it’s a g-Sef my phone will not let me spell it and I’m to tired to argue with it ?
Gonna keep an eye on the Dex thou too xx
True jo . I am excited for you for Monday Hun , feels like we’ve been on this road for such a long time Hun xxxxx
Zena I remember that hungry feeling. Such a strange one but it developed in to indigestion later on for me so was prescribed omeprazole…more drugs!
The filgrastim injection isn’t steroidal. It’s the rocket fuel for your white cells (also known as g-csf) If your white count dips too low you could get an infection & be hospitalised (like I did!) so it’s important to take your temperature. Mine went slightly over 36 & I left it all day as I didn’t want to bother them (I know I know) even though I felt really ill. I got a bit of a telling off when I eventually phoned in…
Anyway I hope you can sleep well tonight!
Jojo xx
Ok il take temp daily then ? It’s gone from 36.5 to 36.9 before chemo so I have a base reading …
don’t want to go in … so good tip thank you .
So much isn’t there … ?
Hello everyone- I’m starting chemo inn wednesday and having Fec-T. Planning on cold capping and just wondering if people who are cold capping or are going to paint their hair or tie it back at all? Or is that a no no? Would obviously be loosely tied back
What a lovely message Ann , I’m so sorry for all this in your life it’s so awful, we all know and are here when you need us …
Yes you can take and do someone to Per chemo I went alone and it was ok but did wish I’d had someone just to squeeze a hand … also we were aloud someone in first chemo session too but not after as it is a busy little room and very guess people including me will want privacy from now on , hair etc …
Don’t offer cold cap in Cheltenham yet ( not like posh Cheltenham to be behind) but I hate cold so wouldn’t like it I think.
As you can see I’m up again now … feeling sick a bit and weird strange body feeling. Not horrific just uncomfortable and achy and strange …
I guess it’s my body trying to deal with this stuff inside me and not quite knowing how to make me feel … it’s like it’s working something out and try’s my to decide whether to tell me it’s ill or not … very odd , but doable and good kicking cancer feeling as my lovely friend LL keeps telling me …
Welcome Taylor and
Sorry can’t help with cold cap but anything else just ask us / me xxx
Good luck for Monday Ann and then tues if you don’t come back on in between Huns …let us know when you can xxx
And sorry it’s ages Maria - is that op recovering or just slow hospital ? Xxxxx
Just taken diazepam so excuse - pre and allowed guys … and any other stupid prediction texts ( I’m blaming that anyway ??) x
Morning, my apologies Taylor I didn’t welcome you yesterday… I can’t help with the cold capping and not sure I will do it yet.
Well I need to get myself into gear and to Cardiff… zena and Julie hope you have a good day. JoC good luck for tomorrow if I don’t get a chance to catch up later… have I missed anyone? Have a great day? Xx