Ok day 6 for me, and despite being off the steroids for two days Ive not had a good night with sleep. ( Awake every hour, on the hour).
Yesterday my throat started getting sore. Im drinking 1.5 - 2 litres of water a day.
Its 6am and my throat is really sore now.
Temp is fine. No aches.
For the first time , yesterday i had to take anti sickness tablet. Was really strange, it wasnt ny stomach that was upset. I’d got myself wound up about something, and it really made me feel sick. Luckily it calmed down before eating, so was able to have something.
Just wanted to share my experience so far, in case anyone else is getting similar.
(1st of 3 round of EC)
Hope all is going as best as possible for you all. xx
Nomoreptosis where have you seen picc covers please. Ive decided, after nurse spending a very long and painful time trying to get a canular in last time, to go for a picc line.
Popping in from October/ November threads to say keep going you wonderful people.
I’ve just done my second EC after 12 paclitaxel and find that I get an awful sore throat after a few days. It’s happened both cycles and I think for me it’s linked to the filgrastim injections stimulating white cell production. This gives me leg, hip and sternum pain as well as tickling my tonsils.
Give your team a ring if you’re not sure.
Has anyone had dizziness after filgrastim injection please? I had first one last night and I’m really dizzy this morning. Feel fine otherwise temperature ok. Just trying to keep still
Just wanted to ask, when you took the decision to shave your hair, did you have number 1 or 2?
My hair has almost gone shredded terribly since Sunday
My hairdresser coming today don’t know which to have?
Also are you using anything on your scalp to help.?
Any suggestions or recommendations appreciated x thanks x
Hope you doing ok?
Hi xx it’s definitely another hurdle to get over and I promise you once you have got your head around it you will feel much better. I used a blade 2 to take it down really short, I am now nearly totally bald and it has come out really fast since I shaved it. I just moisture my scalp when I do my face with tropics which I always use. I have wigs, scarfs, wooly hats & loads of options which is important and it will depend how you feel on which day. I promise you will be ok
I’m en route to get my PICC line flushed and reading the thread. It’s made me a tad emotional seeing all those words describing what we are going through. My eyes are leaking x
It will feel strange at first and give yourself some down time as let’s face it it’s not the normal thing for a woman to have to do, but pick yourself back up tomorrow/Friday. I start weekly treatment next week of paxy for 12 weeks, they have taken me off EC as I have had 2 cycles and only reduced my nasty by 2mm so not enough gain. I was a bit upset yesterday but I have been told it’s very normal and had brought my treatment forward by 3 weeks (every cloud) xx I have been told that the weekly treatment is a bit kinder as not as strong so fingers crossed for Tuesday, many wowen go back to work on this treatment so I will see how I go xx take care and if you want to message me later after your hair feel free you’ve got this
I got diagnosed 28th of November - lumpectomy just before Christmas. My story is quite similar to yours in that I was initially Stage 1 /2 and MRI and Ultrasound showed no lymph node involvement.
However unfortunately when they removed 6 lymph nodes 2 had micrometastases - so I knew given that I was under 50 (44) and had lymph node involvement that would be told that I needed Chemotherapy.
Doing 8 Rounds of AC-T - 4 * AC (every 2 weeks) + 4* Taxol (every 2 weeks) followed by 20 days of Radiotherapy. I was meant to start this week - but I need an ECG and PICC inserted so delayed until Wednesday 26th. Not going with Cold Cap as the option is not available in the hospital but heard that AC is quite hard on hair anyway so I’m resigned to a wig.
Thanks for your message, we do sound similar! Im still waiting to see oncology to get the treatment plan but have been told 6 cycles of 3 weeks with a half day infusion each cycle. Beyond that Ive no idea of details. Everyone seems to be on different combinations and lengths.
I’ve pretty much decided against the Optima trial partly given what Ive read here but also because mentally I think Id rather suffer something I don’t need, than miss out on it and find later that it would have helped. There are no guarantees with anything but I don’t think I’ll regret having thrown the kitchen sink at it. I think my adult son would feel better too about that decision.
I don’t fancy the cold cap but Im not precious about my hair. I’ll try a wig but I’ll probably go with scarves and hats and just suck up the chemo look.
I havent got my head around how cancer spreads once its in your lymphs. They only took 2 out of me and both have cancer so they’ve asked if i want to have them all out. I dont know the answer to that but it sounds from reading here that chemo and radiotherapy may be just as effective.
Im 55 and struggling with teh menopause symptoms having gone cold turkey - night sweats are new and horrible. At 44 this must be a bigger shock to your system.
I expect you are glad to be getting started albeit in a few more weeks. The sooner it starts the sooner it ends!
This forum is a fantastic support and I too am immensely grateful.
@debly123 you look fabulous! What a great shaped head too!
Liking your style and obvious confidence, that is shining through as well as the twinkle in your eye. How inspiring
Probably too easy for me to say this as Im waiting my turn on the chemo-coaster but we’ve got this ladies. The sharing of experiences, the gratitudes in all areas we can find them and the ability to just have a bloody good cry when we need to.
We’ve survived every day and every situation thrown at us so far… we can do the rest.
You’ve proper given me a boost @debly123 !! Thank you x
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in it as my scalp feels a little delicate at moment.
x
