Keep chasing the antibiotics have you got your rapid response card with you? Show them and make sure they are aware you’ve barely had any 
Shi xx
Sorry to hear this @pineapples123 . Youre in the best place. Its hard to know when to contact hospital. My voice is quite weak last day or so and have a cough, though its not bad. Apart from that fine. I wasnt told to check temperature but having seen all these threads think ill start checking and will contact hospital if no better tomorrow to be on safe side. Hope you get a bed and antibiotics soon.
@Pineapples so sorry you’re having to stay in but equally glad they are on the case. It’s so good you mentioned to the nurse and she acted so quick, hope they finally fed you and you get a good nights sleep 
@wba I really feel for you, it just seems to have happened so quick it must be difficult to get your head around, sending hugs 
I’ve had a really tough week, no sleep at all on Friday/Saturday night. but after the final Dexamethasone and Filgrastim on Sunday my sleep has been getting better. I had dreadful constipation with abdomenal pain so called the helpline, lots of movicol and Dulcelax over 2 days resulted in the opposite effect 
Its such trial and error along with what to and not to eat!
Had my bloods taken and PICC line flushed Tuesday and that was the first time I’ve felt physically sick, just came out of no-where - Has this happened to anyone else?
@warmfuzzies I was told by the radiologist not to lift my PICC line arm above my head! Asked BCN if it’s ok to do Pilates and yes but only once the worst of the bruising has gone down. I had a one to one with a Pilates instructor to tailor some exercises to me which hopefully I can do when feel up to it, walking is really good for me too.
@mrsjelly I have the brain fuzz too, started to write anniversary tonight in Valentines card! Also all the best intentions for food just no energy to make it, had a weetabix for brunch!
Hope everyone else is doing OK? Together we really have got this 
5 Likes
Morning x. How are you feeling over your hair now, has it felt a little easier as the days have gone by. I was just wondering how you are getting on with treatment? I started on EC every 3 weeks for 3 treatments but unfortunately my nasty only shrunk by 2mm so they have taken me off it and putting me on paxy for 12 weeks alongside another one every 3 weeks. I found EC quite hard but manageable and was told the paxy is a bit easier as it’s weekly and a lower dosage. I am a bit nervous so was wondering how you were getting on do your symptoms get less after a few days xx take care
@wba ahh I figure as much. Damn! That means another 5 months off Padel tennis. This really is the gift that keeps on giving.
Does everyone have a PICC line? I’ve no idea if I have good veins.
I guess it’s just a pause on life as I know it, side step into an alternative universe, get the job done, emerge the other side and rebuild.
It’s real mental gymnastics.
Thanks @zoemac pilates is a good idea! I’ve got a Pilates instructor so I’ll ask her.
Sounds like it might be walking, Pilates and exercise bike as a good mix… that could work.
In lockdown I got a subscription to Pelaton for 12.99 a month. Mine is just a regular exercise bike but I could still do the classes. It was great and I really enjoyed it. I might look into that. 
@pineapples123 thinking if you and hoping you got some sleep last night and the antibiotics you need. X
1 Like
@debly123
Morning,
I’m ok with my hair, it was just a shock when if came off.
I’m quite a positive person so it’s done now. I will adjust.
Just having to mess about with my wig to get it right.
They probably took you off the EC & you on similar to me to hopefully shrink it.
I’m 4 down out of 12 now.
Paclitaxel every week & every 3rd week I have Pembrolizumab & Carboplatin
I’m there for total of 4 to 5 hours every 3rd week
Side effects so far. Some nausea, heart burn, insomnia, little fatigue & had a rash last few day’s but all manageable so far?
My liver enzymes were raised as well, they have said to drink more fluids.
They had come down a bit yesterday.
Said it’s normal for this to happen.
Hope you’re doing ok? X
1 Like
Thanks yes same they want to shrink it, so I start next Tuesday on the paxy for 12 weeks then surgery xx
Day 7 of chemo and already on antibiotics. 
.
Called 24hr line as my throat is making it difficult to eat and drink. After seeing doctor, its was discovered that I’ve got an infection and my throat is full of little “puss pockets”.
Nice!
So on antibiotics for 7 days for that.
Don’t know if anyone else has had this. ? I’m assuming its a side effect as I’m getting mouth ulcers too.
Hoping all is well 
amongst you all. xx
PS - FUN FACT - I have just been told I was born with no tonsils!!! @
4 Likes
Well you learn something everyday hope the antibiotics calm things down for you. Xx
1 Like
I had chemo from Sept 2023 I had to ring the helpline twice due to temperatures, second time I was admitted for 6 days.
Check your information/red card you were issued by your hospital, in Velindre, Wales they wanted to speak to you if you temp went below 35.5C or above 37.5C.
Temperatures can be a sign of infection. Please call for guidance.
2 Likes
Thanks @debly123 x
Actually its strange as the discomfot of it seems to be moving down my food pipe as well.
Almost feels like bad indigestion on top.
Will give it another day or so and if no improvement, back to the Docs.
Hope the antibiotics start working soon for you, & you start to feel better
Wow 
That’s definitely a surprise fact to learn.
Xxx
1 Like
Hi @tigertot so sorry to hear about your throat. Hopefully antibiotics will work. Nothing worse than a sore throat . So miserable. Have
I’m still in hospital and will be over the weekend. They are being really careful as my white blood cells are so low I can’t fight off any infection. I’m getting intravenous antibiotics. They taking lots of blood and swabs and urine samples to see if I have infection anywhere.
They are giving me injections to boost my neutrophils ( just white blood cells I think).
After the one this morning I started getting really bad pain in my legs then hips and back. I think this is a side effect as it stimulates bone marrow to produce more blood cells.
Is anyone else having to do injections and are they getting pain?
@zoemac you are taking filgrastim. Do you get leg pain?
Thanks @Shi about your information about your neutrophils or lack of them. Hopefully mine will be showing themselves by Thursday so I can get my second chemo session.
Hugs to everyone xxx
4 Likes
Good to hear you’re getting all the treatment needed to hopefully get you back home
after the weekend.
You’ve had so much to deal with over the last few day’s, such anxious time for you.
Have been thinking of you.
x
@wba thank you
How are you doing? How many sessions have you had now?
I’m awake early in hospital. Managing to sleep a bit. But fully awake now…
Looking forward to my breakfast.
Take care xxxx