Thank you to @Shi and @carrie5 I am very unused to reaching out, but lovely to know that Carrie you are in the same antique position as me. I wish you a speedy chemo plan, I do understand where you are as I found the wait for mine hard. Funnily enough I was almost delighted to get it started so I could get it over and done with. Found my fears were worse than the actual, and tolerated my first lot EC without too many side-effects. It’s great to read the stories on here and pick up so many tips. I live alone as my husband died of cancer a few years ago and although I’ve got great friends and family, it’s lovely to be able to share with people who are going through what I’m going through, and to share things that you don’t want to burden family with. I’ve been following since the beginning of the month and have gained so much from everybody’s story, thank you everyone.
@oldgirl1 , glad you shared, Please do reach out. I’m a widow of less than 6 months, I really want to protect my family from all the worry and it does take time to get your head round living alone doesn’t it. All the best.
@oldgirl1
Welcoming you in to this group, where we all support and look after each other. xx❤️
Hello @oldgirl1
Welcome to the February start group.
I’m sure you will find it supportive, as we all go through this difficult time.
It’s really helped me. x
Not tried to bathe yet… still showering after WLE and ALNC but will give it a go when I can, thanks!
@tigertot morning x how you feeling today have your symptoms got a bit easier. @pineapples123 and how are you doing hopefully more settled and either at home or getting back home soon. X
Morning @debly123 ,
Hope you’re well x❤️
On day 3 of antibiotics, and the sore throat is gone , but the dicomfort and pain has moved down the esophagus and is painful to eat. I think there is tissue damage from ulcers etc.
Like having constant indigestion.
I’m now regularly using salt water mouth wash, in between eating , as well as lightly brushing, to help to reduce sore mouth and ulcers.
Funny, I chew mint sugarfee gum and that tends to ease the discomfort of the sore esophagus. So if it works… I’m going with it!
I have an appointment with my oncologist on 20th for review before having round 2 of EC. I will certainly discuss these side effects with him and see if they can help with this.
Can’t continue through 6 rounds like this .
Otherwise, managing all the niggly stuff, (Nausea, fatigue, insomnia) quite well.
xx
Hope all you other warriors are feeling well today. And if not , come and have a winge fest with me ! xx
Yes have a chat with them and see what they say, I have done 2 rounds of EC and I am starting Paxy on Tuesday for 12 weeks then surgery, I am quite apprehensive but I never had any side effects with EC apart from like you say fatigue and a bit of insomnia (from the steroids) so fingers crossed. take care chic
Hi everyone
Sorry to hear @tigertot about your throat and continued pain. Hopefully it will get sorted really soon. Thinking of you.
I’m still in hospital. My neutrophils are normal now apparently so I’m really hoping I can get home today. The doctor will have to come to see me and that could be a while.
I’m just desperate to get home now.
Love to everyone and hope any side effects will be minimal.
Xxxx
Thanks @debly123
Yeah I’ll be having 3 rounds of EC then I swap to 3 rounds of Docetaxel. Its inevitable that the anxiety will kick in when changing to a different chemo. But l’ll deal with that when the time comes eh? Let us know how you get on with the Paxy on Tuesday . Take care xx
Hey @pineapples123 so glad to hear you’re on the mend now! What a last few days its been for you. I know its a bit of a wait for the Doc, but you’re nearly there now. Big hugs xx
Hello @pineapples123
Hope you’re now home and feeling better?
Wishing everyone in the group well this week who are having their treatments this week again.
My 5th one this Thursday.
Hugs to you all x
Yes thinking of everyone this week. Im having 2nd ec this Thursday and having picc line put in Wednesday as they found it hard to find a vein last time. Spoke to my consultant today. Told him ive had breathlessness and lost my voice last week and its still very weak. He wasnt concerned and , as long as blood tests ok, hes cleared me for 2nd chemo. Hair coming out a lot now. Got to decide if its worth carrying on with cold cap. @pineapples123 I hope youre home and ok.
Hi all
I have been on Palbo and Letrozole for SBC for 15 months. Due to progression, I am due to start Paclitaxel on Wednesday along with another hormone treatment. Oncologist was discussing me at the MDT last Thursday to confirm and I see him tomorrow. I’m terrified of all the side effects. Just have to get on with it though like everyone else.
Interested in how anyone else is getting on with Paclitaxel.
K
Hey @wba .
Better now they sorted me with some Omeprazole as it looks like I had a problem with acid reflux, which then developed in to throat infection. Hopefully I won’t suffer as much when i do my 2nd cycle on 28th. How are you?xx
Hi @dkc66 I am also on E.C for 2nd round but about a week behind you. I am also cold capping, so kind of waiting for something to happen. When did your hair start to thin? xx
Yes hope you’re well @pineapples123 and finally home xx❤️
@KazED hello there . If i remember rightly, @debly123 is starting Paclitaxel on Tuesday , Maybe you could send her a message?
Gosh i hpoe I’ve got that right . If you scroll up the posts on here you’ll see, quite a recent post. Hope this helps
xx
Hi @debly123
I am starting Paclitaxel on Wednesday. I see you are a day ahead and starting tomorrow. Any advice or tips you’ve learnt? Have been reading about cold cap on the January thread but not sure about it. I think I’ll get told more tomorrow after I see my Oncologist.
Hope all goes well for you tomorrow.
Thanks.
K
Hi @tigertot my hair started falling out yesterday, day 17. My scalp started getting sore the day before then in the shower I had a handful of hair come out and since then it has continued shedding. Still unsure whether to bother with cold cap again on Thursday.
Hi there x. This is my second phase of chemo as started on EC so for me I never cold capped and shaved my hair quite some time ago now. I know it’s one of the biggest hurdles is the hair loss and it’s just getting a feel of what feels right for you. Some of the other ladies will be more experienced with the Cold capping information. With regards to the paxy I have my first one today at 10 and then 11 more every week, I try and take things one step at a time and I don’t research much I just come on here and get comfort and information from all these lovely ladies. I will let you know how it went today though, I’m in Leeds and I would love to meet some people for coffee at some point. Take care Xxx
Hi @dkc66 , personally I would persevere with the cold cap, if you can. It can also help with the promotion of regrowth of hair.
Have a look at this link for some fantastic information on cold capping. These guys are the experts and I’ve found all of their videos really informative.
Its the Cold Cap Club on youtube.
https://youtube.com/playlist & si=ywFvRiYVKE5kMMpN
Hope this helps , xx
Thanks. Hair loss is so scary for me along with the other potential side effects. I was reading about cold cap and ice mitts last night. I’ll hopefully hear more today before my first treatment Wednesday.
I’m in Northern Ireland. I’m in a Breast Cancer Now SBC Group which is invaluable as you are meeting and now friends with others in a similar position.
All the best for today @debly123.