@debly123
Hi hope it goes well for you today let us know how you are. Xxx
Hi Pineapple,
I’m like you with my chemo treatment EC and PAX for 8 rounds every two weeks. Absolutely dreading it, no idea what to expect.
Mine starts on Thursday. Good luck to you.
Not sure if im posting correctly - I’m same as you Debly 8 rounds every 2 weeks
Good morning everyone,
@tigertot glad they’ve sorted you with omeprazole, I take it daily and need to take before I even have anything to drink for it to be effective. Hope your throat has healed?
@pineapples123 Hope you are feeling back to ‘normal’ after your stint in hospital and good luck for this week x
@KazED honestly the fear of the unknown is the worst bit, once you start it all becomes a bit dreamy, not sure if the same in NI but the triage helpline we have in England has been a real comfort and help for when any side effects kick in, i have found the earlier you treat them the better so never a wasted phone call.
I have my bloods and PICC flush today and from last week I am trying to prepare for that wierd sickness I had. Awful upset tum this weekend (wish I’d called the triage earlier!) and yesterday was recommended some Bucopan and imodium which really helped with the stomach cramps. I think its the Filgrastim thats messing with my tummy so will try to pre-empt next week, anyone else have this?
@debly123 a meet up would be lovely, I’m in Buckinghamshire so maybe a halfway meet up at some point? Good luck for today
Dear all, I am starting chemo on Thursday, had PICC line fitted yesterday, though my journey began in November of last year when I got my diagnosis of Lobular breast cancer and had a mastectomy and lymph node removal. It has been a crazy few months. Hopefully we can all support each other through this challenging time, Sending love and healing hugs to you all xxx
Please look at the links I posted 13 days ago. I found the quickest way is to click the side bar to return to the beginning of the thread and click on my profile picture. Then you can see all posts from me.
The cold cap club is the same lady that does the www.cancerhaircare.co.uk charity.
As already said continuing with cold cap can improve regrowth but you need to cover any patches with gauze or a surgical cap.
Hi @sparkleandshine , you sound same as me. Mine is lobular cancer too, had masectomy in October and lymph node removal in December. Had 1 cycle of 3 ec, then onto doxetaxel for 3 cycles. Welcome to the forum, it has helped a lot.
Welcome @sparkleandshine
This is such a supportive group and a great place to others, especially in those times when feeling isolated from the world.
Sending hugs x😘
Thanks @zoemac , yes throat much better! I’m a bit more prepared for round 2 now.
Hope you’re doing ok x
Thank you Tigertot for your lovely message, sending hugs back xxx
Dear Dkc66, it does sound like we are having the same treatment, how are you finding it. Sending love and healing hugs xxx
do plan your meet up on private WhatsApp group. Keep safe
Shi xx
Our oct17 gang had weekend in London after we all finished treatment, we thought why not had afternoon tea at the arch in our own private dining room which also had sitting area so we got some tunes on after lunch and had a dance too Shi xx
@sparkleandshine got my PICC line fitting tomorrow and chemo on Thursday. Absolutely dreading it all but messages on here are really helpful!!
I live on my own so wondering how anyone else whose living solo manages.
Dear Kav50, hope all goes well with PICC line fitting tomorrow, I will be thinking of you Thursday as it looks like we are both newbies to chemo on Thursday. Have you had a visit to the chemo unit, I was shown round last Friday which put me more at ease. Please let me know how you get on, sending love and healing hugs xxx
Hello ladies, im new here.
Im starting my chemo on Monday 24th.
4 cycles of EC and 4 cycles of Paclitaxel. Every 2 weeks. Not sure how I feel about it all. Not scared about hair loss, had cut it all off 4 years ago, so asked my friend to chop it off on the 1st of March again.
Looking into getting eyebrow stensils and possibly fake eyelashes…
Still need to look into getting a hat or something as I know now having hair is going to feel cold, especially since im based in Scotland and its bloody windy here.
And managed to get cold week beforw chemo too. So taking it extra slow.
Not sure if i will be able to work at all during chemo but will have to see, as money has always been a worry, but getting made redundant at the same time as chemo sucks.
@anb1 @tigertot @kav50 @KazED @wba @pineapples123 I think I have tagged most of you in now. Been for my first paxy with phesgo injection I have to have every 3 weeks so 1 down 11 to go and feeling ok ish. I feel a bit tired and had piriton intravenously which absolutely floored me. Thank you for your wishes & take care xx
@kav50 I live effectively on my own. My oncologist said she expected me to be able to look after myself but nobody else. I have had wonderful support from friends and have learnt to ask for help, such as lifts to places. I get my shopping delivered now and make sure I have food in the freezer or that is quick and easy to prepare. I also have snack bits and pieces. I did buy a soup maker but I use bags of ready chopped vegetables as the basis of the soups. Basically I have tried to minimise the effort needed for those days when I don’t feel great. I potter about slowly and have lots of rest as well.
Glad everything went ok @debly123 and thanks for the update. I already take Piriton for itch caused by Fibromyalgia and greatly increased by the Palbo. I assume you got a big dose. It does take it out of you but the bonus of not taking Palbo anymore is less itch! Trying to take a positive.
@zoemac we have a Chemo Helpline and they tell you to phone for anything as soon as it happens. They are very good and the hospital is only 5 minutes away.
My temperature was high today and I now have a slight cold and inflammatory markers slightly up. I’m on antibs and Paclitaxel has been postponed until next week - everything crossed.
Thanks all.