Had first chemo on Friday. Didn’t feel too bad over the weekend but felt I had been hit by a bus on Monday after my first filgrastim injection Sunday night. Today been slightly better but just totally exhausted with painful achy bones. Taking some paracetamol and having to have naps. Nearly fainted this morning talking to a friend. Any advice really appreciated.
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Hi @bbluna123
That was my experience after first cycle. The steroids buoyed me up for 3-4 days then that bus got me too! The deep gnawing bone pain was in my hips and lower back. The back discomfort came in rhythmic waves. Reminded me of labour…
I’ve read on other threads that antihistamines can help with the bone pain. Chlorphenimine (Piriton) is sedating so may be helpful to take before bed especially if you are having your Filgrastim injections in the evening. Buy the generic brand as Piriton is 5 times more expensive. Others report taking fexofenadine which isn’t sedating. I’ve yet to take either as I found it settled after a few doses. Hot bath with Epsom salts may also help or hot water bottle.
Make sure you drink plenty. The nurse who does my weekly PICC care has twice told me that water is my medicine. If my husband says it one more time to me I’ll brain him! X
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Keep an eye on your temperature and please just check with your unit about any dizziness or feeling like you are going to pass out 
Shi xx
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Hello everyone & welcome to the new ladies to the thread.
Not logged on for a few days as unfortunately side effects hit me big time after 5 weeks of doing so well.
UTI has floored me.
Called red card 3 times then ended up in A& E yesterday as high temperature.
Feel like I’m in lockdown at moment 
absolutely no energy at all Hopefully the antibiotics will start to work soon:crossed_fingers:
Wishing everyone well who having their treatment this week.
X
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Hi everyone
@ wba sorry to hear you have awful UTI.
I’ve just felt so tired last few days and slept a lot. But also quite down and tearful. Crying quite a lot. Worrying my neutrophils will be down again as I’m coming up to the Thursday when they were down after previous chemo.
Is anyone getting support from outside agencies. I’ve been referred to McMillan join the dots and a nice lady rang me yesterday.
Thinking of you all as you go through this.
Xxx
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You’re not alone. Feel exactly same, very tearful 
at moment. No energy at all.
Not heard of that from MacMillan.
Did your BC nurse do referral?
Sending hugs 
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@jacx70 yes I had indigestion problems alonside sore mouth and throat. They’ve given me Omeprazole to neutralise stomach acid, which has really helped, as i was getting acid reflux too. Might be worth telling your Oncologist so they can sort something for you. x
Welcome to the forum @marymop , hope your first infusion went ok and you managed to tolerate the cold cap ok? I’m cold capping too, and hoping to continue on my 2nd round on Friday morning.
x
Also welcome to @bbluna123hope you’re keeping well. 
x
@wba Thinking of you and hoping those antibiotics do the trick . Big hugs 
x
Awww @pineapples123 been thinking about you, you’ve had such a rough ride recently. I can only imagine how this is getting you down. So sending you big hugs too x
I didn’t have a great experience with Macmillan as I really struggled emotionally after surgery. By the time some one contacted me (2 months after) I’d got through it alone, with lots of meditation and chakra balancing. It really saved me. Now I’m starting up Reiki sessions tomorrow (day before chemo) to help with my mental wellbeing. It’s not everyone’s cup of tea , but I swear by it personally. 
Really hope Macmillan can help you through though. xx
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Hi Tigertot, still haven’t found how to post but can reply. Had my first infusion of Paclitaxel and Phesgo injection, slept for the rest of the evening and have woken feeling ok, no sickness, I’m aware it a culminative so one week at a time. I do seem a lot more relaxed than previous weeks of horrendous anxiety.
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@wba yes my BCN contacted them for me. But it was too little too late for me as there was a waiting list.
I think I may have been unlucky as I’ve heard good things generally.
I’ve just become a stubborn old goat and won’t ask for emotional support any more, due to being let down many times by the system. (Long story that I won’t go in to) that’s being a single parent for so I reckon. Bitter old spinster , me 
x
Hello ladies.
Had my first EC on Monday, felt ok for most of the day till I was floored woth nausea for about 4 hours straight I was afraid to move. Slept a lot in past 48 hours, but now feeling a bit more like human. Going to try to go for short walk too as sleeping and resting is getting too much. But that fear that nausea comes back is there all the time.
One EC done 3 to go. I even counted how many days it all will last and put hearts in the callendar for every day I done so far. Its not much just yet. But it gives me hope.
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Thanks for that @tigertot, seeing the oncology team tomorrow and it is on my list of things to ask, if I don’t make a list I will sit there dumbstruck racking my empty brain! I had a wonderful free full body massage today from my local cancer charity Cherry Lodge (Herts based) and they have just rung to offer me a reflexology session next week. It’s doing wonders for my restlessness and wellbeing knowing I have something other than hospital next week. I spent time yesterday reading cancerhaircare.com info on how to look after your hair and some videos on YouTube on the coldcap, lots of great advice on what shampoo and brush/comb to use. I have also bought some picc line covers as I am fed up of my ratty bandage rolling down! Will review when they arrive if anyone interested.
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Hi Jax your on the same treatment plan as me but because Of a high liver number I’ve started on the pactitaxel first with the Phesgo injections.
Hi Debly I’m on the same treatment as you but because of liver numbers being high I’m starting on the paclitaxel, had my first yesterday with the phezgo injection. How did you find the EC I’m due 3 of those everyv3 weeks
Hi Mary
Yes I didn’t find the the EC too bad to be fair and had some really good days, just remember when you get your steroids for 3 days to take them as early as possible so 1 at 7am and 1 at 11.00am, it’s less likely to affect your sleep. Xx
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Ahh thanks, my sleep is precious even if it’s a couple of hours, thanks for the info xx
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@wba and @tigertot - so sorry to hear your tearful but totally understandable and I’m waiting for the time when it really hits me that this is what life is like for the next few months.
It’s pretty depressing but it won’t last forever and you’re both doing brilliantly - sending you all big hugs
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No worries xx take care
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Aaahhh bugger it !!! 
No chemo tomorrow…
My chemo has been postponed for another week as my bloods have come back abnormal on liver function. It’s so annoying when you really look after yourself, have a perfectly healthy diet, fluid intake is 2 litres a day, yet my liver is knackered, due to the effects of chemo.
Feeling a bit cheesed off, I just want to get on with it.
Sorry everyone, I’m being a grumpy old git today, and now my hair is starting to shed.
Shame really, had a fabulous Reiki session this morning, now I’m not getting the benifits from it. Think I’ll put my head down for an hour to see if that helps.
Rant over !
Love to all xx
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Its very hard to get information around exercise during treatment. I finally got the name of a personal Trainer who willing to give advice.
Started my first round of AC yesterday. Was nauseous and vomited last night . But okay this morning and was able to do some light exercise.
Beautiful spring weather helps .
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Hi Misha, Days 1 - 8 tend to be the worst then you will slowly improve, but it is important to rest, and always have with you an emergency bag, of pads, wet wipes and any medication you may need. I put mine in a Pink drawstring wash bag. I still ensure i have mine with me 3 years down the line, as now I’m on other tablets and thier delightful side E.
Make sure you are eating healthily, and be aware you may loose your taste. If you know what you like, then just persue eating the same, as your taste will return post chemotherapy.
Be strong and enjoy your walks but ensure you wrap up well especially on cold days, as your immunity can be affected. Lol Moonsox
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