Hi @trixie17 glad to hear your doing well. I am also 6 weeks out of chemo but the hair on my crown just isnt growing 
so its nice to hear you have. I have used rosemary oil but didnt agree with my skin
Im number 14 out of 15 today the redness has now started a little.
Sending love fornthe rest of your treatment 
Hi @sammy75
Sorry to hear that your hair isnāt yet growing bk on your crown, keeping everything crossed that it soon starts to grow back.
Have you had any other side affects from radiotherapy other than the redness starting? Iām finding it OK so far but itās early days.
Hope youāre managing ok on this heat x
@trixie17 yes 
ive been ok. A little tired but not chemo level tired. Ive been using flamigel and E45 cream. Thry said today my skin is where the would expect it to be for 14 sessions but obviously I knownit can peak upto 2 weeks later.
The whole hair thing is getting me down. Anyone else in the same boat as me???
@sammy75 my hair is very patchy/non existent at the front and top. Like what men get when their hair recedes away from their forehards. Growing everywhere else though which make me look mad! Itās very annoying and although Iām using rosemary oil Iām not convinced it does much. I guess we just have to be patientā¦.
@sam1204 its so frustrating as the back of my head has coverage but the rest is nothing. I have a wig for when I go back to work in 3 weeks but if I had coverage I wouldnt bother.
The rosemary oil made my scalp go red so stopped using it
How many weeks are you out of chemo now ???
@sammy75 10 weeks today. Itās flown by! Iāll keep fingers crossed you get some hair at the front soon x
On the radiotherapy now! Had my first two sessions Thurs & Friday. I was slightly nervous but not as much as I was for chemo, and now Iāve done two I feel a lot more generally relaxed about it.
The first one was slightly rubbish, I was on the couch for 45 minutes nearly because they just could not get the positioning right. What seemed to work was actually sitting me up then back down again, reset everything in a way. I was probably quite tense especially in my shoulders and arms too. I didnāt do the best job at the breath holds either, I really hope the radiation gating works as expected cuz I dropped in/out of it quite a few times on the first one.
Fortunately, the second session went way smoother. 15 minutes in and out, lay down and the position was just right almost straight away. I wore my contact lenses as well which helped with being able to see the breath hold screen.
No real side effects so far, Iām having it on a flat closure so Iām expecting maybe less inflammation compared to some ladies with breast tissue in the way. I am slightly obsessively looking at the skin though for a reaction or something, even though I know thatās a while off.
Hope everyone is managing alright in this heat, Iāve been getting the dog out for a walk first thing then locking myself inside until the evening! Sat out in the garden 8 - 10pm last night on a call with friends and it was lovely and cool compared to indoors! My new build house is a heat sink.
@demimiray so glad to here your doing well. How many sessions are you having? Ive just completed number 14 and one left on Monday (gone into a 4th week due to machines going down). I now have some redness but nothing sore at the moment.
Sending love
Hi Guys. I dont know if anyone will be able to help with my question.
(Think I put in wrong group 
) I am about to finish radiation and on the 20th have oncologist meeting where Im assuming he will prescribe my hormone treatment. I dont have any blood tests booked in before and my periods have stooped during chemo.
Has anyone got any experience or advice. Or were you in a similar position. I just thought id get tamoxifen but made the mistake of googling and it saying about overian suppression. This isnt in any of my notes and surely he isnt going to spring it on me in my next meeting. Any advice I would be grateful for if your on hormones and injections
Thank you. Hope your all well
Iām on 15 sessions too, so at the start of what youāre just finishing 
In answer to your question about Tamoxifen though - you CAN have ovarian suppression alongside it, but itās not always done. I was put on tamoxifen 4 weeks ago and had my first Zoladex shot two weeks after - but it has always been on my treatment plan. If itās not on yours, I hope they donāt spring it on you, but maybe it will be discussed. Just depends how aggressive they want to be on the hormone side.
it has always been the plan for me, I am only on Tamoxifen until they are satisfied my ovarian function is suppressed enough for aromatase inhibitors.
Hello! Iāve not been on here in a few weeks again so lots to read through!
Letrozole seems to be starting to do its worst now and Iāve been having the worst bone pain/back ache along with the hot flushes. Iām trying to pinpoint if a particular brand makes a differenceā¦I am honestly like an old woman when I try and get out of bed, up from a chairā¦! How is everyone else doing who is on it?! Also the Zoladex injections?
In other news my hair now resembles a short grey/dark curly Brillo pad which is hard to take after having a blonde bob for decades! I also had an appointment back at the original breast clinic that I started at last September. Both of my original consultants have left and I was literally stared at from afar by a new consultant who said ālooks fine, we will check you in 6 monthsā and didnāt even appear to know my name as had to ask what it was when I asked a question. I have now requested all of my medical recordsā¦ x
This happened to me too! In the 4 months since chemo ended (and I was using Polybalm religiously!) some of my nails went white, green (yuck!), bruised, lifted upā¦Iāve managed to save them all but quite a few have a ridge where the newer nail is growing up, and each one is showing damage which didnāt happen during chemo itself. Itās like a belated gift no one wants! x
Belated reply here! My eyes were so watery and sore after chemo ended, particularly in the outer corners. I found Vaseline helped! Just a tiny blob on each outer corner. Iāve had styes too as my lashes have grown in (and fallen out. And grown in again). I thought chemo would end and things would improve. In many ways it has but there is still so much not right and itās 4 months now since it finished! My eyes are much better now than they were. Hope youāre getting on ok! x
Iām so relieved my surgery is done. I was looked after well in hospital. There was AC and I was the only one in a 5 bed ward. Iāve got a lot of pain from the donor skin site on my thigh. Iām needing paracetamol, ibuprofen and codeine. Iāve got two attachments to carry around. The usual drain and also a vacuum pump which is helping the skin graft to take in my breast area. Itās all sucked in! Look at all those staples! Iāve been ok emotionally whilst Iāve had people staying overnight with me but suddenly I got panic symptoms back when I was on my own for the first time last night. Iāve still got some help in the day. I may have the pump taken off at my hospital appointment this afternoon. Fingers crossed . Iāve got three hospital appointments this week!
Hi @anncuk , I am pleased you have just asked the question re Letrozole? Keen to see what others say.
I have it in the house, but do not want to start it.
I have recently gone Into menopause during chemo (I think). Been having hot flushes and same as you getting out of chairs or bed, I feel like Iām 100 years old!
Letrozole is just going to make this worse.
Good luck with your recovery @sarahcatlover . That looks like a big operation 
Sorry to hear about the rubbish consultant and letrozole too. I donāt think anyone gets on with it. Iām putting off my decision while I get a second opinion from a private holistic oncologist. Everyone I know is taking HRT and putting oestrogen into their menopausal bodies and they want to take the little bit Iāve got left completely away! Will you stick with it @anncuk ??
The vacuum pump and dressing were removed today. It took two nurses half an hour! They had to do it so carefully to not damage the skin graft underneath. Itās so much easier only having the drain to carry around. 
@sarahcatlover- sending love and hugs and wishing youthe speediest recovery 
@sam1204 there are some positive stories ref people taking letrozole on hormone therapy thread. As ever, we tend to hear the negatives more often than the positives.
Iāll be starting my meds next month & dreading it but I will give things a try and see how things go.
