ondanestron is zoffran, so you could ask for the domperidone as well, I have them as suppositories and they work very quickly and even if you are sick they (obviously) don’t come back up!
The Metraclopramide makes me feel very spaced out! Chemo nurse was very good when I said how rotten I was and that looking after the family was a big challenge when feeling like that and hopefully with the emend it will be better. It’s hard to think straight when you are feeling so horrible, no good to anyone, I have no family here in the UK to help so I need to be able to get on to look after my children, my hubby works away mon-fri, too. Get better soon. Tinaxx
yes i feel really spaced out, hadn’t occured to me it could be the tablets, thought was just the chemo, suppositories v good idea too, freaky idea at the same time though, but then most of this is freaky. Was feeling sick just at the thought of taking the tablets.
HI girls dont think the hair is going to last till thursday im now like a moulting dog and im sick of hoovering it up so think i might have to be brave and get rid of it next couple of days,I washed it this morning and ive had to dry it in the sun cos wouldnt dare have used a hairdryer on it ha ha xx hope everyone else doing ok and Tors hope you feeling better today xxxlove and hugs Julie
Hi Julie, I was in the same position day 20 after first fec, it literally just all came out and I had to have crew cut no.3, so much fell out I had a tesco carrier full of hair, it was hard to finally face that point but I felt better once it was done, with hind sight I would probably do it earlier. Thinking of you. Tina
I decided to make a pre-emptive strike on hair (FEC day 14)as it was starting to thin at the weekend. OH did a grade 5 all over so there’s less to come out now. Also I feel it’s quite useful to have a couple of ‘interim days’ with really short hair so it won’t be such an extreme appearance change! Scalp feels sore and odd. Can’t stop myself pulling out tufts either…like picking a scab…silly but hard to avoid!
How are the second FEC side effects going, Tina and Tors?
Very tired, it’s like there is lead in my legs. Starting first of 4 tax on Thursday, after two allergic reactions to the epirubicin. Hair is patchy and thin, and likewise scalp is sore, looks like cradle cap…Have been wearing my wig and with sunglasses on, been spooking the kids at school, sounding like but not looking like their friend’s mum!! Also think the sun does not agree with me usually love the heat and sun but found the recent hot days a struggle. Not sure if it is a side effect, but I seem to be having very vivid dreams, too!
Try again just typed loads only to lose it! Arghhhhh
Havent been on lately as just felt sicky, aching and horrible after chemo last Thursday. I felt fab on the Friday afterwards only to be hit at the weekend! Thought it was going to well! Still at least this time I know it gets better and I cant wait!
Hope new regime works for you Tina everything crossed!
I had my head shaved To Wood as OH says. As it was like baby fluff! Daughter says it looks better and I still have my eyebrows so I think that makes difference! I am just wearing hats at the moment but part of me wants to say ‘sod it’ and just go out baldy but the other half of me is so consious! I was glad I did the short stlye before as I think it helps you prepare!
I was the same scoobs couldnt help but sit there with tuffs of hair in my hand it was just too easy I dont think I could believe it so just kept on doing it!
I had my laxatives changed this time and glad to say that they seemed to have worked eventually! They might change my anti-sickness next time to reduce head aches.
Are we the only ones wishing for an average summer this year??
Hope everyone well will sit and catch up later concentration levels not great at mo!
Take care
Sarah
Hi Sarah, Tina and 'the other ’ Sue,
well I’m joining the club next Thursday when I have 1st of 6 x FEC, I go for a visit to the dept on Friday this week. Hoping that the side effects aren’t too harsh on me but I know that whatever happens there will be good advice here if I find myself needing any. I have my wig prescription now so just need to pluck up the courage to make the appointment, have bought some scarves and practised tying…thing is I really cannot stand to have anything on my head so heaven knows what will happen…will I change and get used to it…who knows!!! Gonne try the cold cap …probably won’t even be able to stand that either as brain freeze doesn’t appeal either but hey ho you never know till you try :-0 Everything still seems surreal, especially as I’m back at work for a few hours and doing my normal stuff, I wonder if I will go through this whole thing in denial cos as hard as I try I really cannot seem to get my head around it! Every time anyone asks me I just say ‘I’m fine thanks’ cos I am at the mo…ohh lets hope it stays that way!!
Anyway you ladies seem to be managing well and so shall I if /when I need to…I’m rambling now so gonna stop
Catch you soon, stay fit well happy and smiley hugs Suze xxxx
Hello Ladies,
Wishing you well through your chemo. I’m going to be starting mine sometime in June so am following your stories.
Gill x
Hi all
Glad you have a plan Suze. If you’re anything like me, you’ll feel better once the treatment actually starts - mentally at least! Now I know I felt grotty for a week, then much better, I can plan better for next time too. I know it’s probably cummulative and I may not ‘bounce back’ so fast, but still, I have a reasonable idea of FEC SEs for me. I didn’t see the treatment unit before I started. Not sure I would have wanted to as it was a bit grim in a way. All very friendly though so hope the visit is helpful for you on Fri.
I’m off to (sunny?) Cornwall for the start of half term for a few days before 2nd FEC next Weds.Have a good weekend everyone.
Forgot to add that I’m taking hair clippers with me as it really is coming out now and will need to get rid tomorrow I should think. Cycling to pick up children yesterday I felt like it could just blow out of my head. Looking sparse along parting too - not a good look.
Will have to try out Buff as hat or wig won’t survive cliff top walks!
Suex
well im" peeing" for england as im drinking loads in preperation for FEC 2 this afternoon. Hope this one goes as well im in at 1.30pm didnt have a visit before mine either but then im a nurse so basically new what was going to happen ( although still petrified at how id feel afterwards and during tx) definately makes you have more compassion and understanding of what my patients go through .Hair has lasted till today but after hospital will definately be getting rid cos im sick of hoovering the bed ha ha and my OH wasnt impressed when he woke up with hair in his mouth ( shoudnt snore then should he ).
Having my first tax at the moment and no drama this time, loaded with dex and piriton, and wondering what the se’s will be compared to the fec. Cold cap freezing my brain, only doing in the vain hope my hair will grow back quicker! Hope everyone ok! Warm hugs, Tina. (hospital has wireles and iTouch passing the time!
Good Luck Tina ive had 2nd Fec " down 4 to go xx im ticking them off as i go .
For me half way! Just glad this one is done&waiting now to see how tax se’s compare to fec, apart from hairloss lol! Hope everyone is doing ok. Have opted not to have the neulasta prophylactic just the neupogen if neuts are low. I had such a bad migraine and bone pain so onc agreed on that one. Hugs to all. Tinaxxx
well was fine untill 9pm last night took anti sickness pills at 7pm and icked them and my tea all up i think i had a bit of a heavy tea should have stuck to something light but then went to bed at 10pm and was fine after that untill i got up this am and icked the tablet back again but ok again now gonna try my dinner soon xx
Hi, they gave me the domperidone in suppositories for the case of unable to keep tablets down! Maybe your gp could prescribe those. Had the emend yesterday, today&tomorrow. So far so good. Hope the sickness settles for you!!!
HI TINA I WILL DEFINATELY AS GP FOR DOMPERIDONE SUPPS AFTER BANK HOLIDAY ( woops caps again ) even if im ok by then ill have them for next time .ive managed dinner and a light tea ive only been sick twice and once iam iam ok in between .Hope everyone else doing ok take care all xxx
Maybe your onc could prescribe Emend, day 3 now after chemo and apart from slight queasy feeling no nausea problems, I take one Emend 1 hour before chemo and then one dose each day 2&3. Most posts on the forum relating to emend seem to have good results with it. I hope you get better soon! I used the domperidone suppositories also for my migraine sickness, they worked well for me then, too. Tinaxx
feeling much better today Tina no more sickness and managed to eat OK so can deal with that .Tired today but that’s probably cos I’ve been up at 5 am taking my daughter meet the trip bus shes’ away for the weekend in Newquay.What are mams for eh xx