Are you seriously scheduled for kimo on Christmas Day, Irina? Can’t believe that they’d put you through that, or that they’ll want to be working! Gosh, that’s hard, can’t they move it? Because I got delayed a week, my kimos fall around Christmas but am due one on New Year’s Day - can’t imagine it happening that day somehow. My wbc/neuts were also low, Avonlea, so I have to have the injections too. I’ve been told to expect aching bones, oh joy! Here’s hoping that it isn’t too horrid. I’ve been trying really hard to take things slowly today and have spent quite a lot lounging in bed so that my husband has had to take the majority of childcare on himself today - he looks shattered so perhaps now he has an inkling of how exhausted I am all the time! Poor kid has had wall-to-wall television from what I can tell and is now insisting on dressing up as Fireman Sam before bedtime, should be amusing.
Lorna - glad you’ve finished the anti-sickness tabs, they’re yuk if you ask me, no matter what you’re on.
Time for a bit of “Strictly Comes Dancing” for me, I think; what a shame Mark Foster’s out - couldn’t dance, personally couldn’t care less, what a bod!
Just sticking my head in to say Hi. Moaned on the other thread about how poo I am feeling so won’t do so here.
I am due 4th FEC on 30th Dec so think it will be a quiet new years eve for me. Part of me will be wanting to say “good riddance to 2008 and bring it on 2009” and the other part will be looking forward to my 40th in March when chemo will be behind me.
Going to curl up with youngest and watch the rest of strictly too followed by Tuesday’s Holby City and a glass of white wine and see if I can’t shake myself out of how I am feeling.
Hey girls, missed you all, haven’t been here much - now trying to catch up with all the news. Irina, so sorry about your heating breaking down - such miserable weather - and yes, I have chemo scheduled on chrismas eve, and they are going ahead with it, must be pretty miserable. Though being Armenian, the main holiday we celebrate is the New Year, so i must be hopefully a bit alive by then.
Lorna and Avonlea, glad you are better, and the sickness is not bothering as much.
Cat, I know what you mean about too much TV (and Wii in our case) for the kids, but we haven’t got much choice, so don’t feel guilty, the most important thing your son’s got a loving and strong mum like you. I’m getting joint pain on and off as well, but moxa sticks are doing wonders for me
About me - feeling better, second FEC was easier than the first one, heartbeat not bothering me as much, though still quite fast. Haven’t been sick at all, but very weak and headaches in the first half of the day, then getting back to feeling like human in the second half. Had lots and lots of visitors this half term with kids, which was lovely and great distraction - I’m blessed with wonderful friends. I’ve also started enjoying all this shaved head situation, as I love my wig, and have lots of colourful scarves so every day I’ve got a new one to experiment with - though all of them look too bright and flamboyant which is a bit too dramatic for tesco probably, but i need something to cheer me up…
And a little tip - if feeling too sick/unwell/fed up i the mornings and not feeling like eating, I eat some melons / watermelons - helps me greatly, and also contain lots of water. By the way about the water - i could never drink lots of water before - and now force myself to drink 2 litres a day and as a result got great skin for the first time in my life!
Ok this is getting too long, enjoy the rest of the weekend, and I’ll be off to natural history museum to look at the dinosaurs with my son.
hugs, Tato
Taken me half an hour to read all your posts but glad to see everyone is well and that Ostrich is healing again. I am feeling great, I have to say, and the week away was the best tonic ever. Had a lovely cottage in the middle of nowhere, sheep as neighbours and quiet as you like. We walked on Dartmoor, drank cider and got blown away on the beaches!
I’ll post properly later as I am off the the vets (again…) to have the Pheebsters’ stitches removed, then It’s the usual Sunday routine of cooking a roast (whilst glugging back a bottle of cold white) and getting the washing done from last week.
I was thinking about you all while I was away…thinking what a strong bond we all have with each other…and the best things about it is none of us have ever discussed what type of house we live in, of what area, what colour we are, how rich or poor we might be or what religion we follow (or not as the case may be). Just goes to show, take all the frills away and we are all just the same…trying to get through everyday life with the support of each other.
Sounds a bit of a sermon doesn’t it…but it’s true!!!
Anyway…I have onc appt Tuesday and bloods ready for 2nd FEC on Thursday.
Forgot to mention my hair is ok so far…early days I know, but so far so good. It’ll be the cold cap for me again on Thurs I think.
Have a good Sunday ladies…off to the vet and to stock up on some decent food for the munchies after kimo. I am getting bloody rounder just thinking about those steroids and all the food I will be craving next weekend…so it’s grapes, pineapple, cereal and nuts this time round.
Tato, lovely to see you. Glad FEC 2 was better for you, and so looking forward to see a photo of you in the stunning new wig and scarves.
Pheebster, glad you had a great vacation and hope four-footed Pheebster is OK.
I feel like the psycho b1tch is coming out today, I feel really tired but wired, and have such a short temper. Made lunch for the boys and my son has just spat his out. Normally I’d ignore this but today it’s made me mad as Hell. I didn’t want to slave over the stove or oven to make a meal and to have it spat out is just too much. I’m going to bed.
Pheebster,
just thought I would say I agree wholeheartedly with your thread about taking each other just as we are, no false frills attached. This c really makes you realise whats important. I hope we remember it and live by it when we are out of this hell hole. Dont know if I can post this without it being taken off but I will anyway…
Its something that caught my eye on another site and I loved it…
It is apparently a Navajo and Hopi prophecy of the Manataka American Indian Council and is a quote from
The Whirling Rainbow Prophecy:
The Rainbow Race brings peace through the understanding that all races are one. The unity of all colours, all creeds working together for the good of the whole, is the idea that is embodied in the Whirling Rainbow. When all pathways to wholeness are respected by all cultures, the prophecy of the Whirling Rainbow will be completed.
I am not particularly religious but this hit me with its truth, maybe one day…
Cat,
how old is your son. I too would be fuming after all that effort. …learn by it… jam sandwiches for the next 10 meals!!!
I have put a plaque on my bedroom door, it says… WARNING - I have an attitude… and know how to use it!! - its a longer version of KEEP OUT!! or else…
Welcome back Pheebster, Hi Tato have missed you both.
Hi Chris I could do with one of those plaques mind you it would be up and then down like a yoyo at the moment. Cat you sound like you need a long rest, think you’ve been doing too much for too long and just putting up with it! Something was gonna give sooner or later. Have some YOU time YOU deserve it.
I’m feeling better today. Had a couple of down days, not sure why. Could have been that wbc and neuts were low and had to have injection which really made me ache and antibiotics and I hate taking tablets. Also hate that am now starting to feel like theres something wrong with me whereas haven’t up to now. Still woke up this morning and gave my self a mental kick up the backside! Feel better now.
Pheebster my hair has started to come out a bit( well a lot actually ) and I’m using cold cap. Think it might have been cos I had quite a lot of hair so maybe coldness didn’t get to scalp all that well. Have since had pixie cut so hopefully this time will be better. Good luck with other Pheebster.
Hope haven’t missed any one. Hope you all have a good Sunday.
Love to all
Caz xx
My son will be three in December so that’s why I’m usually understand if he spits food out and says it’s yukky (even though it was his fav today). Alas, he hates jam sangers but am thinking it’s cheese and ham toasties for tea tonight because they usually go down well and take next to no time to make. I had a nap after this morning’s earlier paddy, feeling calmer but strangely dizzy and fluffy at the mo.
Caz, I have to start the wbc/neuts jabs tomorrow, nor looking forward to it. Did you have a flu jab at the same time? Mine is due this Tuesday but don’t know if it sounds too sensible to have them all at the same time. I’m sure your pixie cut is gorgeous!
The vet was easy - stitches out in less than a minute. Cupboard all stocked ready for next week, as I want to do a few days in work before next kimo (Thurs) so it’s slow cooker dinners next week - don’t know if Cat’s little monster would approve…bless him. Don’t you just hate it shen you feel like doodoo, you cook a dinner regardless, and then they don’t like it. That’s the luxury of being a child though! Seriously though Cat, you need a day to yourself, luv xx Easier said than done though, eh!
Re: flu jabs. Go and get one girls… I’m lucky in that the doctor I work for did mine and he also gave OH one as well, but the oncologist did say it was a good idea to get one.
Has anyone had any trouble with their vein where cannula went. Mine has gone from the normal blue vein colour to a purple and my wrist feels bruised on the top (where the meds must have travelled through). Hope this doesn’t mean my next session is going to be painful. I was warned about collapsed veins, so I suppose this is it?
Enjoying a nice glass of something nice and got the chicken roasting, so gonna veg out on the sofa this evening now all the chores are ou of the way. Have a nice evening everyone and will catch up tomorrow.
Some great comments and thoughts here girls. Agree with Cazzb re feeling fine - in fact better than I had for years even before my op when the cancer was there - but now chemo has started one actually feels ill. Topsy turvy disease!
Yes it is great to make friends this way without the usual trimmings of culture and society. We are just women together with an experience in common and can be there for each other. keep up the good work everyone.
Day 20, Hair falling out, feeling tired if I do too much. 2nd FEC on Tuesday if bloods OK. By the way what is this about flu jab? No one has mentioned it to me and wouldn’t it be risky to have one if blood count low during chemo?
Just wanted to say I had my flu jab on Weds (day after my first FEC) as chemo nurse said its ok to get it done as its not a live virus this year and you should have it done at or around time of FEC when your bloods are up but not when they are low and advised it was sensible to have one during chemo to prevent getting it. My GP was fine and undergoing chemo was one of the things on their list on the surgery wall as to consider when thinking about the flu jab. I don’t think I felt unwell and the nurse said probably wouldn’t do, it not being a live virus but then being day 2 of 1st FEC I doubt I would have noticed!
Pheebster,
All the veins in my hand have gone dark purple and I am on antibiotics for the inflammation in my wrist. The skin has started to peel off that area too. I am trying to decide re - Hickman line (see new thread) also the inside of my wrist hurts when I straighten my arm.
Went to church today and my ex was there, he said “You look like you’ve been eating well. You look better for having some weight on.” Top two things NOT to say to a woman with PMT! After which he said “You’ve got a small head” to which the only appropriate reply was “and you’ve got a small #*%@” but the vicar was standing nearby so I refrained.
Glad to hear you are all surviving FEC, gives me hope.
Cat I have had the “ten years younger” comment a few times too, good job our hair’s going to be short for the next year huh?
xx
LOL @ Irina!!! Men - just don’t engage their heads before opening their mouths do they! He probably meant it as a compliment too…
I can’t remember how many cycles you’ve had (sorry) and wonder at what stage your wrist flarred up. You must have had a few if all your veins are purple?
I’m going in to work today, so I’ll have a word with one of the nurses, see what she can suggest for easing symptoms and I will post later. My Kimo Nurse suggested the wheat bags, but they make my skin come out in the most awful blotches.
Anyway have a nice day girls…glad you are all getting your flus done…best to be safe than sorry with this bloody winter looming.
I’m off to take the dog for a run in the woods for an hour before heading out to work…ciao ciao xxxx
Pheebster, I have only had 2 cycles of FEC. It was on the first treatment that my wrist flared up; it swelled when the epi was injectd into my wrist, they had to stop the infusion and put ice packs on it, they said try againin a week but I persuaded them to try again in an hour, they then used wheat bags to bring the vein up.
The redness on my wrist bruised badly and spread almost up to my elbow. It had subsided 3 weeks later to just a small bruised area on my wrist, but when they put in the 2nd FEC (further up my arm) my wrist flared again and was sore, bright red, hot to touch 2 days later; the out of hours GP didn’t look at it but when I described the symptoms on the phone he prescribd antibiotics which I am just finishing now.
Irina, classic response for silly blokes, love it! Hope things are going OK with you today.
Pheebster, have a great time at work. How odd to wish someone that but the thought of being out with normal sane people is so enticing at the moment!
I’ve just had a very brisk and efficient district nurse round to stab me subcutaneously with stuff to boost my wbc - joyful. She wanted to do it in my tum but I am super squeamish and there’s no way she was getting that needle anywhere I could see it. It’s gone in my arm instead, and hoorah, only four more to go this week. Just cancelled my flu jab on her advice so will have to rearrange that at some point.
How’s everyone feeling today? Five days on from FEC 2, I still have a fizzy sort of sensation in my nose, it’s most peculiar. Got some sleep last night because the boys were away, but not great quality because I had such a parched mouth that I was up every half an hour or so for sips of water.
I’m OK, Day 6 FEC2. Didn’t feel as sick this time round, and wasn’t, but have been very achey and tired - probably about the same as before. I don’t know if it’s the weather changing or what, but I’ve been a bit more down this time round. It’s probably the realisation that 6 doses is actually quite a long haul and all of a sudden 1/3 of the way through still means 4 more to go. I know others have more doses than us, but I think it’s just hit me this week. On a brighter note, my period’s disappeared! I never thought I’d be happy about that, but mine were getting quite bad over the last year or 2 so it’s a small silver lining to this cloud!!
Half the trouble is I haven’t been out anywhere for nearly a week, but it’s been sooo cold I just haven’t felt like it. So tomorrow I’ve booked a yoga class and go for another Shiatsu on Wednesday - hopefully both will give me the kick up the backside I need. I also need to do a charity shoebox for school this week so will start doing some Christmas shopping - I will be organised this year if nothing else!
On the subject of flu jab - I have one every year anyway as I’m asthmatic and had it as normal just after FEC 1 and was absolutely fine.
