Behind you 100% Debs! How dare they? We can safely say that cancer was the most traumatic thing that ever happened to me and It surely turned MY life upside down. Not a personal catastrophe anymore! Who are these w*****s???I’m glad you told them where to get off. Keep us updated…
Well girls I don’t know what’s happening to me but two days into rads and I’m whacked! What’s this all about? My energy levels never flagged while on chemo and now I feel like a floppy bunny after two sessions of radiotherapy? Something is not right. It might be a coincidence but tonight I could got to bed…well, about now to be honest, which, trust me, is ridiculous early for the night owl that I am. Oh well…I have to listen to my body and rest. Was going to go to an aerobics class this evening but called it off. Not up to it. Let’s see what tomorrow brings.
It’s been a difficult few weeks. First, my rads was delayed because they couldn’t get the angle of the beams right. Cue another CT scan and another wait for a schedule.
Then, same day I got a letter from the geneticist saying that I’ve got the BRCA1 gene. And we all know what that means. Oophrectomy or hysterectomy and double mx.
I’m still in shock.
So. Have gone back to work because, frankly, all that sitting around was making me much worse. I’m also feeling a bit self obsessed and there is nothing like being around teenagers to take your mind off yourself. And do you know? Not ONE of them has made any comment about me being bald. Bless them!
Jo XX
PS, can no one put anything on Facebook about this please? I haven’t talked to my family about it yet. Want to do it in person.
Hollington Debs, Can you post the email address you sent your complaint too? I think we all should do one. Cancer is the worlds most deadly disease. How can it NOT be a catastrophe?
well today ladies I feel discriminated. I went to the local barbers ( where my dad goes while no one was in and asked if she could just trim it up and take fluffy ends off as i didnt feel like sitting in the hairdressers seeing all the other ladies getting their lovely locks coloured and cut and pampered. my dad pays £ 5 for a haircut and she probably takes more off than mine today I paid £ 10 £ 10 I ask you … because its a ladies cut what a bloody liability I might aswell have gone to my own blinking hairdresseres and had the full works for about a fiver more … cant wait till its long enough to go and get spoilt … xxxx Julie
Jo, sorry about the BRCA1 gene! Were you expecting it (in other words is there a history of BC in your family)? Damn and double damn! You seem remarkably calm about it. Do you HAVE to have the procedure (double mx, etc) or is it just a recommendation?
Julie, sorry about your hair. The cheeky beggars! You should have played the cancer card and refused to pay… But at least you have hair…
Had my third shot of rads today. Really quite impressive as a procedure, with all that measuring and fine tuning (not sure about the felt tip boob marking malarkey though). Only thing with a question mark is the horrendous half gown I have to wear. All frayed and discoloured. Perhaps I should get Giorgio (Armani that is) on the case…lol
I feel better than I did yesterday. To be honest with you I think I overdid things. I must be kinder to myself and rest more.
I gather Deb, Emma and Margaret are at the PB centre now…I trust they will be having a great time there!
No, wasn’t expecting it, although I knew there was a possiblity as my cancer was triple negative, which can be hereditary. There’ve been no girls born since my Grandads generation, other than me and a cousin I have no contact with so there was no evidence.
I’m not calm really, I’m really upset BUT if it keeps me alive I’ll do what I have to. Emma (same gene) said the most sensible thing I’ve heard; that after all the surgery, she will be able to stop worrying a bit. So. Me too. And I’ve been and seen pics of reconstruction and they look good. Better than the boobs I have now.
Glad you’re feeling better. Rads isn’t supposed to make you so tired, so early is it?
I’m envious of the girls at PB. While they’re living it up I’m doing controlled assessments with 6 teenagers, 1 of whom is having a strop because the rest of his class is watching a film. Life is SO hard, poor lad!!!
You are absolutely right, of course. If having the op means not worrying about it coming back it’s worth it! Like you said they can do amazing things with the recon these days.Even better than the real things (which, let’s be honest, have seen better days)
Re: rads. In truth I think my tiredeness was due to excessive running about more than the treatment. I even fitted in shopping in the supermarket between booking an appointment at the surgery and seeing the doc 45 minutes later. So I’m taking it nice and easy today.
Having good time at pb but had to sneak out today as there are only so
many seeds a girl can eat. The four of us went for a walk, saw a bus with "bristol’ on thd front, jumped on, went shopping at primark and had cake and coffee at starbucks. Spent tonight doing odd active meditation/imagery thing involving jumping round a room. Then have just had malory towers type secret wine/cridps/diet coke/ chocolate binge in my room. Is a lovely tranquil place but emma is disgusted that there is no telly. Meanwhile we are all disgusted that emma left m and s with a fruit loaf she didnt pay for…!
So really entering the spirit of the place eh Vickie? He he
I know what you mean about the seeds. And you can’t be good all of the time so a good cup of coffee and a cake is a must at times. Not sure about shoplifting,mind… I have got to say I didn’t miss the tv…
Anyway, I hope you got something out of the experience. I surely did. Enjoy your last day.
Lulu xx
It sounds fab. If anyone goes again, I’d love to tag along. It would be nice if Kim could come too. She’s hopefully phoning the hosp for us to do a LGFG makeover thingy. Anything that can take the ‘Boy George’ edge off my current look would be good.
consumers.ofcom.org.uk/tell-us/tv-and-radio/a-specific-programme/
this is the link for ofcom if anyone else wants to complain, I am sorry to hear of your news Jo and feel for you as if you havent been through enough without this as well. Lulu glad you feeling better today, radio does take it out of you and you just have to listen to your body and take plenty of rest.
Glad everyone is having a good time at PB.
Take care everyone and keep well, this site is a god send to me
xxx
HDeb I am really pleased you complained to ofcom, thank you.
I have written a little bit about pb on our fb page if anyone is interested. I was a sceptic and although I am not a complete convert now I am very grateful, and felt very cared for. So am relaxed now and had the added bonus of spending time with Vickie, Emma and Margaret. We met a lovely lady with another form of cancer who has been quite isolated during her treatment and it made me feel v grateful for the help and support I have got from bcc, the forums and meeti g all you ladies. Am looking forward to our next lunch and may be planning further adventures, all being well.
Jo, hope you are happy back at work and I hope you are getting lots of help with your Braca news.
Hi everyone, PB was a nice break, pleased I went.
mam had mastectomy yesterday and has been throwing up through the night and then threw up again after trying some toast this morning. Feel so sorry for her, but pleased I came home early from PB to be with her!
The fruit loaf from M&S was a total accident, We bought our shopping and it wasn’t until I was waiting for the taxi I saw I had the bread in the same hand as the carriers. I have never shoplifted before!
Going to walk the dog now before going to see my mam.
xxx
Something funny happened today as I was leaving the hospital after my radiotherapy session. I could hear this crazy woman calling “Lulu Lulu” !! Never thought for a minute she was calling me, as Lulu is an assumed name. Looked behind to see who was making all this racket and it was none other than Emma with her mum desperately trying to attract my attention!! She had forgotten how to pronounce my real name, bless! She nearly resorted to shouting in Spanish…only it’s the wrong nationality, innit? So glad I met her! Big hugs all around and lots of squealing noises. Glad I saw Emma’s mum too.
And by the way, had a good stroke of Emma’s hair which is so thick and curly it’s unbelievable! Ever so cute!!
Glad DEb and the girls had a good time at the P B centre…
Time to cook some tea now. OH is quite desperate…
Lulu x
Was so nice to see you Lulu, bet you could see I was pleased haha!
Thanks for the compliment about my hair, but I know it really looks like a curly mop! Lulu I think you’re going to end up with a twin, mam had her eye on your wig didn’t she!
Mam’s so much better than last night, think I’ll have a good night sleep tonight now!
xxx
What we have to make sure to do, your mum and I, is to never socialise together. That’s all. Ha ha Right now I can just about fool anybody with that wig of mine , including the medical profession, but if I’m spotted in the company of someone sporting the exact same haircut and colour…well the game will be up in no time!
I’m glad your mum is better! And I love your hat!
Lulu x
Looks like me and Emma have the same hairdresser ( the sheep shearer) ha ha mines so thick and curly I have bought myself the cutest pair of mini straighteners emma ( cos cant get conventional ones in to short hair yet ) babyliss professional minis from amazon £ 10 they get really hot and they dual voltage so can use them on holiday ha ha cute xx
I have got to say I didn’t miss the tv…