Blimey Fec you’ve been through it…hope the itching is settling.
Aliand can’t believe you’re on round 2…it’s gone quite quickly, reassuring that you’ve only had one awful day so far.
A hopeful one for you ladies I’m day14 post first T and apart from being a bit tired I’ve felt fairly normal all week. Hair on head is hanging in there but elsewhere there’s been some major losses.
I don’t use swabs either. My trust don’t give a sharos box. I put all the injections into a Tupperware tub & take them for the next treatment where they’ll dispose of them xx
Ah bless you ? Yes I’m sure your nurse neighbours wouldn’t mind at all.
FEC, you get used to the wig. I remember at first it drove me mad, quite scratchy & I couldn’t wait to get it off! It does get easier, although I was always relieved to take it off! I think because your scalp is quite sensitive & it’s gone from having hair to nothing! I tried a wig liner but found it too tight & just one more annoyance! You do get used to it xx
I just saw your post Alisnd and it reminded me… there are courses called Headstrong where you can learn tips for tieing headscarfs and tips about hats and turbans, I think. I’ve not done one myself but it might be worth seeing if they run in your area, and if so book on one. I was too poorly after my chemo to go to mine
There are also Look Good Feel Better courses - book on one! You get a lot of lovely freebies and lots of make-up tips - both general and to help manage some of the chemo side effects. Really good
They give you a little tube of udder cream - it’s great stuff - really kind to skin (and you don’t need too much of it!). I think you can buy udder cream from amazon and eBay from what I have heard others say.
Take care and good luck with everything - you are all strong and can do this.
I’m now on day 10 after having. EC and yesterday I noticed black spots on my tongue, they aren’t sore and I’ve been lucky enough to have very few side affects.
I’ve been brushing my teeth religiously after eating, Has anyone else had these?
Hi Theresa it could be start of thrush have you got fluconzole and difflam from onc? Ring the unit up, chemo can give you thrush mouth, I got it every round of chemo and the fluconzole and difflam from onc sorted it. Hope that helps ??shi (Oct thread)
I’ve been feeling pretty rough last 2 days but nothing like what you’re going through, FEC! So I’ve also been up to do a dance for you, I really do hope those changes make a difference coz it’s bad enough going through this with mild/common SE’s let alone bloody hives, etc! FEC-IN-HELL alright!?! ?
HI Fec I’ve been reading a thread about some ladies who are getting their Tax weekly and quite literally sailing along. One was changed to weekly because she was so ill on it? Maybe this should be the option for you?
Im sorry I can’t remember without going back (don’t take offence I’m struggling to remember my own name at the moment)you’ve still got you tumour is that right? If you have or anyone else who has…have you noticed changes in your breast? I’m not kidding if I showed anyone my boob at the moment they’d know it has cancer in. It’s an off colour and my slightly inverted nipple has gone all the way in with loads of skin tethering and it feels fairly solid. It hurt like hell when I had the first session. Not sure if the changes are good or bad. Seeing the onco next Wednesday so trying to hang on xx
Day 12 - lots and lots of spots!!! Argh! Not had acne this bad since I was 15!! Called the info line and I’m off to see my GO in a mo - concern about them becoming infected…nice!
Not overly keen on sitting in germ filled GP waiting room…might loiter in the foyer instead. Hoping this can be sorted. Grrrr ?
Aww fec and it really is FEC how bloody crap is that !! I really hope they can sort it next time for you xx
I’ve got my pre ass Monday and I’m going to ask about the amend and sedative as I can’t sleep anyway so thinking that would be a good idea xx
Hang on in there ladies. Xxxxx
Yup… done the mouth thrush thing. Got some Orange flavour gel stuff… cleared up within a couple of days. Hope yours does the same. I found sucking hardboiled fruit sweets helped mine - stopped my mouth getting dry. Foxes glacier fruits. Give it a try x
Hi ladies, not being a party pooper but please watch your alcohol and pace yourselves through chemo as the battering your liver and kidneys get on this journey can impact on their function too and these are checked each blood test and they can cause chemo delay if your onc’s not happy with the readings. Just want you all to get safely through so just thought I’d mention it ?? there is the fever tree range of water that tastes like a gin and tonic that a lot of ladies on the threads have ???shi xx
Hi shocked ??I’m sorry for coming over like a clucky mother hen, I just want you all safely through the chemo ??I know our Oct girls have had the odd ???too, I’ve just been the steroid ???Queen for the chemo journey ???can’t even put it down to a ???love you all ??shi xx
Oh wow, this insomnia is awful! Anyone else experienced it and when it subsided? I’m currently on day 5 after cycle 1. I take it it is probably the steroids and I finished those yesterday, fingers crossed for blessed sleep tonight ??
No insomnia here, but I’m exhausted. Totally knackered. Can’t get off the couch. Energy levels are just too low ! Feeling low today today too which I feel guilty about as some of you lot are in a much worse state that I am. X