January chemo starters ?

Jamsey, rads are fine, you will have a rads planning meeting where you will have 3 little tattoos and you will get a gown to wear when you start rads, which they peel down to show the side which is getting the rads while on the machine. At the start of this journey I read something from a lady who had been on this journey too and she said remember chemo and rads are the good guys like having extra doctors working to fight this with us too which has helped keep focused and ?. Keep ??? keep swimming and just take it one step at a time, you are all so ??and doing so well and everyone on the threads :heart::heart:Each other ??:sparkles::sparkles:shi xx

Thankyou so much for your help Shi ?
Just had a call from chemo unit re low wbc , I can have my chemo as planned tomorrow yay ( who would of thought I would be happy ?? ) but I’ve got to do the injections to help my count ? They are going to show me that tomorrow x I’m sure she said for three days ?

Hi Jamesey, I’m from the December thread but I had radiotherapy last March/April. They don’t let you wear a vest or your bra but I got some cheap stretchy vests from primark to wear under tops. I would take my too & bra off & then pull the vest back up to walk across the room as it’s so chilly in there & like you say, just so fed up showing my boobs to the world!! It also keeps your tummy warm when having the radiotherapy & whilst they get you into the right position! You can then pull the vest back up once they’ve finished. It helped me keep a bit of dignity anyway, what with a big scar from surgery & making sure the wig wasn’t wonky!! ?? xx

That is very true!! I hate being cold & I hated undressing & walking across the room! You’ll be so pleased that chemo is out of the way though. And ticking each radiotherapy off day by day is that step closer to normality ? Xx

Just been to oncologist prior to Chemo number 3 and it transpires that the Docetaxal hasn’t touched my tumour and it’s grown!! I’m starting FEC Friday to try that but it may well be I have to go for surgery sooner. For the first time in ages I’m truly scared. Not of surgery of what if my tumour is resistanct to all Chemo!!! Xxx

Flipping eck Rosie , I can understand why your scared , did they say why they thought it hadn’t done anything ? Have you had the 3 dovetaxel ?
Shocked good job you went to your gp
It seems like it’s never ending doesn’t it ?
??

Rosie darling, it’s good that your onc is keeping close eye on you and will be switching your chemo. Has he said he wants to do something be fec and then have a look at everything then or does he want to do 2 fec s and then see how things are? It’s understandable you are feeling ??but our onc’s will have seen it all before and know what to throw at it. Ask also if there are any clinical trials you can join, you can look these up before you speak to your onc on cancerresearchuk.org. Keep ??and sending you :heart::heart:And ???shi xx

Thank you so much ladies…Shi I will do that. They’ve said it’s unusual but it happens. They will do a FEC Friday and another MRI after that, if there’s obvious improvement then carry on with FEC if nothing straight to Mx with lymph nodes but she said be prepared too not be able to have reconstruction if that’s the case because it’s starting to invade the nipple a lot more!!! I knew it wasn’t right as it’s so solid and looks really horrid. 

This unpredictable journey is certainly a tough one…bad cancer day today…xxx

Awww Rosie - sorry to read your update. Hope the FEC blows that lump out the wayer.
Amyjb - pleased you liked the charity shop haul idea…i had a fab time, got loads now.

Still finding all this emotionally hard going…relationship with hubby is not going well, although I can’t blame the cancer fully it certainly isn’t helping. My consultant said all this can test even the strongest relationships - she isn’t wrong.

Found a tai chi class locally that im going to attend on Friday, looking forward to that.

Keep swimming against that tide peeps xxx

Oh Rosie, sorry to hear that things aren’t going in the planned direction ?  This is a tough enough journey without having to make changes along the way.  Big hugs and I hope it’s a better day for you tomorrow xx

 

Shocked, eek a temp!  Glad you got it sorted quickly.  Rest up girl ?

 

I hear ya CT - me and my partner had a bit of a wobble on the weekend.  It’s hard having to worry about yourself, and them ?

 

All the best everyone with your swimming/floating/doggy paddling ???

Crazytimes, it’s a very tough one on husbands and oh’s too, I don’t know if this will help but I found including my husband in each step helped him understand the journey better and when he came to chemo with me, he was able to speak to other ladies husbands about things man to man while me and the lady next to me rattled away happily about shopping and holidays and bc forum and tips, the body changes after op are hard for us and can be hard for them too. Again I don’t know if this will help but how I got over that hurdle was I asked him to take a look at wound to see if he thought it looked ok, it made him feel included and useful and protective like men like to be ??:sparkles::sparkles:shi xx

Hi. 3rd FEC for me with a 20% reduction to help manage side effects. Definitely much better than last time, just a bit queasy but managing to eat and very heavy legs!
Rosie I had my surgery first (seems to be the preferred option at my hospital) but they don’t do the reconstruction so opted to have this later down the line. I preferred this route as a) I just wanted the lump out and b) I felt there was too much to think about having to go to another hospital meeting new consultants, surgeons etc with everything else. I found that the operations were a lot easier then Chemo!
Shocked, hope you feel better soon.
CrazyTimes, it’s definately tough on relationships, you are not alone. ?.
Lots of love to all ??

Hi Shocked. Glad you are feeling ok. It’s a rocky road for sure! Yep I’m half way through ? but onto T next which I’m sure will be a whole new journey! Xx

Im hoping FEC blasts the so an so out the water…tomorrow being my first FEC any top tips greatfully received. Im a bit nervous!!

CT you know me and my husband had a really difficult few weeks and we have settled now but I feel your pain. When I couldnt cope anymore with what was happening over that time I kind of just focussed on me and not trying to figure out him. It helps in terms of keeping calm but it feels very lonely too. I dont know what to say to help just youre not alone and if you want to really vent send me a PM I dont mind listening xxx

Shocked glad youre feeling better now…

Ive just bought a job lot of arm bands and rubber rings…xxx

Thanks shocked…

Every change of direction is scary to come to terms with!!

T (DOcetaxal) goes in via drip and takes a couple of days to hit you so this is all very different.

Am very very fed up with stupid cancer xxx

I’m with you on that one Rosie!! ??

Number 2 done , came home with filigastram ?? Spelling ? Start day 3 for 3 days , neutrophils are only 1.3 at the moment so hopefully this will help ??
1/3 of the journey done ( well give it 10 days ) xxx

Hi Rosie, I’m from the November thread. I had two fec and ‘felt’ that my lump shrunk. My MRI showed that it had some reduction but not enough so they swapped me to docetaxl and herceptin. After three of those there is no change so I’m skipping chemo 6 and having surgery on Wednesday. Maybe the Fec will shrink it for you I did notice a difference. But was also doing a shrinky dance. Don’t worry if it doesn’t shrink. Your team are monitoring you and if your resistant to chemo they will chop it out and blast it with radio. Try not to let it worry you and sending mahoosive hugs xxx

Hi Rosie, I found sucking ice lollies while they injected the red one on fec helped preserve my mouth from any sores. Also you will have tizer pee while the red one works it’s way through. Keep hydrated and see if you can have a heat pad on your arm while they do the infusion. Good luck ???and fec fine, don’t worry. If you get any burning pee but no temp though please ring your unit, that caught me out after first fec, it was a uti, it’s a common thing during chemo, just wanted you to know what to look out for ??:sparkles::sparkles:shi xx

Hi Rosie
Sorry to hear that T wasn’t working for you. I notice that my lump got smaller on FEC but didn’t notice much change on T so hopefully it’ll be the same for you. You’ll fine side effects kick in quicker with FEC. My main issues were dizziness and general woozy head for first few days. Keep your anti sickness up to avoid getting nausea. I got oral thrush with every cycle so make sure you mention any mouth issues to your chemo team they can prescribe mouth wash for you.

Keep swimming ladies ???