Dear ladies…you are all so so so kind, I’m not sure how I’d manage without you. Absolute worst day for a while but reading all you stuff…just feel less alone.
The hospital called today and I’ve got the breast surgeon on Tuesday now so I’m guessing I might be heading for surgery. Who knows…I wish I could express properly how much your support means.
im still paddling hard and ready for FEC…
To all ladies up this week or early next good luck…xxxx
Better day today, a friend who has survived the bc diagnosis 6 years ago, came and took me out. It was like a breath of fresh air. She was full of useful advice and of course understood exactly how I feel.
I’m now feeling physically and mentally stronger.
Now how many tines will I wake tonight and need to change strokes from doggy paddle to breast stroke to back stroke and will that water get hot ?
Morning ladies!
I’m still following you all and felt the need to post again! Well yesterday should have been chemo number 3 for me (Docetaxel) but due to the pains I’ve had in my fingers for the last two weeks I’ve had it postponed ?. I went though having my port inserted into without any numbing cream as I forgot to put it on an before my apoointment - doh, my bloods done which were all fine, my anti sickness given and then wham my oncologist jumped in!!! He is concerned that the pain lasted too long, although it went yesterday for the first time in 2 weeks, and how debilitating it had become for me - I struggled to help my little boy do his buttons up on his school shirts and also to push paracetamol through the blister packs. Due to chemo being cumulative they don’t want this side effect to escalate and then leave me with a life long condition of no feeling in my fingers. I have to go and see my oncologist on Tuesday afternoon and if between now and then my fingers have been ok we will continue but with a prescription vitamin prescribed to hopefully stop any further incidents or if the pain comes back we may look at reducing the dosage or moving on to the FEC. At the time yesterday I was disheartened but my nurse told me the delay won’t impact on my treatment and I’m booked in again for next Thursday so it is only a week. At the end of the day my oncologist is the professional and I really don’t want to end up losing the feeling in my fingers for the rest of my life as it will, when you think about it, have a big impact on my life. SO - I’ve decided to have a really good week! Hubbys home this evening from work in Hong Kong ( we haven’t seen him for 12 days), I’m feeling good and although the weathers bitterly cold the sun is shining ? I’ve booked things for us to do this weekend and I’ve booked a table at our favourite restaurant! Time to have some fun and make the most out of the week!
Love to you all especially those that are feeling low at the moment - keep strong ?. Have a good weekend if you can xxxx
Hi Dealdoh, I’m on docetaxal and Carboplatin. To be Fair, it’s not been horrific. Week one fatigue is pretty crappy. Had some issues with oral thrush round 1 but not round 2. Only other thing is the hair loss can be pretty quick - not sure where you are with that right now. Otherwise my side effects have been manageable.
Take your anti sickness and omeprozole by the book!!
Don’t stress about it too much like I said, hoping you have a smooth ride.
Tracy great that you are making the most of your extra week feeling good - sorry to hear you’ve had a rough couple of weeks though.
I’ve been to a look good feel better session today had a really good laugh so it was good therapy and came home with soooo many goodies even picked up a new wig courtesy of Macmillan as well as quite a few bandanas, hats and scarves plus a little goody bag of number 7. Met some lovely ladies at various stages of their treatment and it was sooo good to speak to people in the same situation.
Hi ladies
went for first FEC yesterday and felt so scared randomly…it’s weird I’ve read all of you coping so well but still invisioned some instant vomiting event. When the nurse presented my anti sickness and it was that Emend one I knew it was going to be ok. So I bit tired and a bit less freaked out today.
Dealdoh try not to worry about the Docetaxal mine was always on a Friday, the following Thursday I’d be back at work at the Saturday almost normal. If it hadn’t messed with my taste so much in the week I’d have coped even better.
Tracey you’ve got a weekend pass to go normal person crazy!!! Maybe they will just switch you over to FEC?
Enjoy your weekend.
CT how’s stuff your end are you doing better?
Starfire how’s your new regime have you managed to feel better?
Shocked I’ve got my Look good thingy on the 1st…hope they teach me the scarf thing been a bit scared of it…
Lots of love to all you brilliant ladies…so glad I found this group xxx
Hi ladies fec 2 day 3 all on start the injections tonight only 3 ? Does anybody take loratedine with them ? Earlier or later or does paracetamol work , was told to do them in the evening have a bath then go to bed ? Hair was shaved last night (I’ll upload pic later ) felt better in bed and got up to no furry pillow ! Strangely although emotional I feel strangely better that it’s been done and my head is nice and snug in my beany xx I only went to grade 1 as as frightened of nicking scalp . Will nature ( chemo) take its course and the little bits fall out on their own ? Looks very grey yuk !
Rosie glad all went well , fingers crossed but I’ve so far other than my wbc done really well and didn’t even. Know my counts were low x
Starfire you doing ok ?
Gonna chill all day in my beany and read a book xxxx
???
Glad to hear everyone seems to be faring ok at the moment ?
Jamesy, I found that Ibuprofen worked better than the Claratin. I take 10 of those injections and the pain doesn’t come until after I’ve had about 7 of them. And I also went to a grade 1 when I shaved my head, and it will continue to come out, I reckon I’ve still got about 30% coverage.
I’m having a lovely day out with my little girl, then we’re staying over at one of my friends, give OH a bit of time for himself. I might even have a few glasses of wine, altho a bit apprehensive about that in case it mucks with my sleep ?
All the best everyone and have a great weekend xx ?
The old me , new me to follw x
Hey Rosie, pleased your FEC wasn’t as bad as expected. Doing ok at the minute - out with the kids at a soft play today! Ready to hit TCH round 3 on Monday - half way, whoop whoop.
Things still not good with hubby but I’m just focusing on me and the kids right now. Defo not the response I expected/hoped for from him but got some good friends I can confide in…plus talking to you guys always helps xx
Dealdoh, still not been brave enough to grade mine yet… have sat with clippers in my hands but keep bugging out! I look very much like a monk right now!!
God knows how I’ve done those pics lol , but that is a before and after , I did go very short in between so that got me a bit used to it as always had long hair xx
Beautiful lady xx you look great xx
Aww just looking at my long hair then made me sad , I have had a long wig that looks almost like it . But I’m happy in my beany at the moment , crazytimes I got my sister to do it , my daughters were with us , we cried , laughed and cried again , but I slept better last night and just think well it’s done and dusted now x
Karen xxx
???
Hiya , I always use my phone but if you go one an iPad or comp you can add pics I kinda cocked up on mine as you can see xx lol I got there in the end ha ha when I finally put my wig on one day I’ll upload it xx ??
Hi. I’m very envious of the bravery of you ladies that have braved the shave. I still haven’t got the courage to do it, I haven’t even tried the wigs on that I have! ?. My hair has thinned a lot, probably 70% and have a few bald patches on top that I am covering with a hair band at the moment. I think I’m still hoping that now I’ve fimished FEC that T will be kinder! Lots of love ??
Hi Marie I was told during T my hair would start growing back so I’m hoping so I’m having it on it’s on so will see xx I was trying to hold on to mine , I’d had it cut short but it was hurting to put my head on a pillow and when I washed it yesterday loads came out .so I gathered all my grown up daughters and sister and went for it , my one daughter sobbed a lot but then I said I looked like jimmy krankie and we laughed x I felt so much more comfy in bed last night , it was one of the hardest things I had to do but I did feel like ok I’ve hit rock bottom and the only way is up xx and upwards we are going in this crap journey x ???
Hi Jamesy, mine doesn’t hurt yet, just tingly so a constant reminder and I ‘de matt’ daily. I’m just taking it one day at a time and go from there. I feel quite shallow worrying about something so relatively trivial, especially as my hair was never anything special anyway!! ? xx
It’s not trivial , it defines us as women , it’s a massive thing , my daughter has mild alopecia , she’s 35 and every time she gets stressed such as now , she gets a little bald patch on her head . It made me realise how proud I was of her coping with that over the years and kind of helped xxx do it when you feel ready , there’s no rush , it has to be the right time for you xxx take care xx ???
Hi January ladies, just to let you know most worked hair starts coming back on t ???also mishy18 told us all about the new shampoo bar from lush it’s a red dot shaped one after she had great regrowth while using it and us Oct chemo thread who lost our hair have nearly all switched to this and for me personally seeing as for my 6th chemo I ended up back of fec because t didn’t agree with me I can happily say the new shampoo bar appears to be working and I’ve only been using it for a week now. Hope that helps, keep ???swimming ladies and keep ???you are all doing amazing ???
shi xx
