Welcome Paloma to our little band of swimmers. If you’ve read our posts you might see we have a keep swimming moto…thought out by one of our ladies little girl. We also have an emergency life raft for bad days crewed by Idris Elba, Tom Hardy and Thor!!! Yes things get a little weird here at times…I blame all the drugs.
Marie I found the first T the most painful, second much better, general pain killers will definitely help loads just check your temp before each dose of Paracetamol. Space out your dose too so you tKe Paracetamol then 2 hours later your Ibuprofen and so on…I used some 15mg codeine tablets for a couple of nights which helped me sleep but you have to be a bit careful if you’re constipated.
Good luck it does pass after a couple of days…
ive got my 4th session tomorrow and FEC number 2!!! Xxx
Well first steroid day prior to round 4 / 6 TCH tomorrow. Getting bit anxious bout feeling so crappy again for the week…but my Onc reminded me to think about it as having only 3 weeks of icky feelings left… which is a good point.
Went out last night with a couple of friends had a run and coke (which I could taste!!!) Had a fab night! Defo going to plan in another one or two of those evenings for my next cycle - really helped lift my mood. Hubby didn’t like me going out much…but tbh I’m a bit passed caring now - harsh as it sounds.
Thanks everyone. I tried Paracetamol and ibruffen and neither seemed to help but have used co codamol today which has definately taken the edge off.
Hi Paloma, we have ‘met’ on the other forum but here is definitely a great place for support. Also pop into the earlier months as the ladies there also give great advice and support. Xx
Morning day 4 of last fec , feeling yuk , ???
Bit concerned by the amount of steroids I’ve been given to start before T , 8 a day ! That’s a lot isn’t it ?
Is this normal ?
Hi Jamesy. I have 8 a day sun mon (chemo day) and Tues. I had no issues while on them but massive steroid downer on the weds, so asked them the be reduced gradually. I now do 4 on weds, 2 thurs and 1 Fri… much better for me that way.
Thanks ladies re the steroids , haven’t had any effect of the few I’ve had to take on fec , just thought it was a lot for the T, re weather last time I was lucky enough to get a friend with a 4x4 take me in , it’s a nightmare x and so cold !
Thanks for the welcome ladies :womanhappy: I like the swimming theme and the life raft sounds a mighty good option :womanwink:
My regime has been to have the steroids 4 x 2mg tablets twice a day for the first 4 days for each of the FEC cycles for anti-sickness and have been told to start them the day before T and for the next 2 days in order to make it less likely to have an allergic reaction to the T.
With the chemo, 2 different anti-sickness drugs, the steroids and the injections, its hard to work out what is causing side affects sometimes. I have suffered aches and pains and tenderness in neck and shoulders and stabbing pains in my legs but wasn’t sure if its the chemo or injections. Other side affects have been sore mouth/throat (ice lollies helped) numbness in feet (was told it was nothing to do with chemo), stinging eyes, chest pains and flutterings (which I found very scary and Triage told me to call an ambulance), teariness, horrible taste in mouth (sucking sugar free polos helped), heartburn, nausea (ginger biscuits helped) and waking up with my hands numb and tingly, which went away when I wiggled them around rapidly, most recently a really painful tear caused by constipation which made it feel like I was pooing razor blades:smileyfrustrated:(Prune juice :womantongue: and an ointment from GP have helped) hair loss and nearly all my eyebrows already too, but still have eyelashes. I missed my period the first cycle but had one the second cycle. Had a red rash/spots and very sensitive skin on my cheeks for a few days each time which went away on its own.
Have also been allergic to dressings on my Picc line, so have had skin reactions and soreness.
I was told painting my nails a dark colour before starting the T might protect them a bit. I had really long thick hair, which I was very fond of but was told there was no point using the cold cap as the drugs were too strong and it wouldn’t work.
I wake up about 6 times a night and something that has really helped me get back to sleep and to stop my mind going a hundred miles an hour has been listening to audio cassette books with headphones, couldn’t do without it now. Xx
Wow…stupid cancer with every high you seem to get a low…I was so happy Friday getting the news the Chemo is at last working and that I only need 3 FEC which means I was lucky enough to drop 1 session. I was all that’s great news and I can take anything chemo throws at me now I know it’s working …well that didn’t last long because for some reason I am dreading tomorrow’s session. The thought of going seems to be getting harder each time…urgh my positive buzz has turned into anxious moan…is anyone else finding each session harder than the last to face? Xxx
Thanks Buddyfan, will get some tomorrow.
Paloma, I have had very similar side affects through FEC except the bone ache/pain has only arisen since the T or injections.
Rosie, completely agree, I thought getting half way would make it easier but the end seems so far. Also the cold cap is getting so much more painful each time and I’m still losing hair but I’ve got this far I don’t want to stop now but dread it! Xx
Rosie, I think it’s normal for us to be having these ups and downs. I’m currently on my week of feeling normal and I just felt really sad yesterday, I probably need a good cry but not feeling so miserable today. Have you been offered counselling? I have but heard nothing since ?
Hey Rosie, yup I’m due in today an anxious as hell. Don’t want to feel sick again, is defo getting harder.
Massive argument with hubby last night resulting in him walking out last night hasn’t helped. He came back 4 hours later but he mentioned not knowing if we have much of a future ?
Oh that and it’s snowing and all the schools are shut!! Aarrgghh…could so do without all this today!!!
Aliand you look amazing…big hug for your daughter too. That’s certainly how to inspire them to be strong.
CT I’m so so sorry that you are having to deal with this on top of everything else…can you talk to him calmly? Make him realise this stress will have a detrimental effect on your health!!!
Huge hug…xxx
Thanks for the support ladies…at least I know I’m normal, thought I was being a bit of a baby!!!
Aliand mid June…I met a girl outside the oncology unit on Friday and she was offered a trial of just 4 sessions or the standard 6…however if the 4 weren’t effective she’d get four more. She said she took the 6 wasn’t ready to gamble!!!
Morning my beautiful swimmers ???just popping the flippers on you all for a bit of extra paddling power, it’s normal to get a bit of mid point slump but once this ones over it’s really 4 more weeks and glam glam aliand will have 6 weeks, so you are getting there amazing ladies ??ct the mid point blow out with the oh is normal there have been quite a few of us had a similar episode of chucking the teddy out the pram, let him be in his man cave till he’s ready to come out. And don’t forget you can hitch a Life with Thor for a round of treatments that’s what he’s there for ???shi xx
Rosie ??it’s ok to wobble and perfectly normal ??have a word with your unit to see if there is a psychologist you could see who could give you some techniques to help you when you feel a wobble starting. You are ???and you have your clippers I. Now and the ladies are hoofing your bum onto third raft for this round to help you darling ???shi xx
