Oh how ridiculous that they can only flush it once a week. There’s no common sense in that rule whoever created it ! Mine wouldn’t draw back last week but the chemo unit soon had it sorted - these things always happen on bank holiday weekends don’t they !
CT did you get home ??
I’m feeling a little better today. Woke up very achy and sore fingers struggled through then decided that it was silly and I should take some Brufen. I’m not much better. I have to be careful though as I get dizzy easily if I do too much. Can’t complain though I could be so much worse
Feeding us malt washers today is poldark !
Swim ladies swim xxx
Ive been drinking Forever Aloe Cranberry Gel every morning before I eat a thing. I havent (touch wood) had any ulcers or anything. Wont cure your problem right now but might help on the next cycles…feel better soon lovely and keep us posted xxx
Gosh shocked that’s some goody bag ? Hope it works though.
I’ve been using gelclair and diff Liam since my tongue got tingly. It’s not normal but not broken down yet anyway !! Good luck
Dentist needed today I’ve cracked my tooth the one I’ve had 4 root canal treatments on. Flipping hub is croutons !! I only ate a couple as he had made such an effort with dinner on Sunday. I didn’t really want any and we’d skready nearly fallen out as I didn’t want even a tiny bit of champagne - I couldn’t flipping taste anything !
Hey ho. It’s now at an odd angle with temporary dressing on. He’s still trying to save it but all I can see if implant needed !! I’ve 2 teeth missing on the other side so soft diet for me for the forseable.
It never rains when it pours or whatever that stupid saying is !
Hi shocked, biotene might help you ease mouth too, keep an eye on that swelling and take loratadine if you’ve not had any other antihistamine tablets ??hope it eases off darling, relax on the raft and love ok up shorts ???aliand, hope you get tooth fixed ASAP and soft food was boring during chemos but safest for mouth ???shi xx
Hi all sounds like everyone’s having their share of side effects. I’ve been quiet as been in hospital myself over the weekend with breathlessness and chest pain feel like an old lady and really fed up in only 47! .glad to be home but this doxatacel is evil stuff and I’m dreading the next dose and it’s effect again. I’m quite worried about it’s effect on my heart in the long term too. Has anyone else had severe breathlessness sweating and racing pulse with palpitations ?..on the positive note…12 days post 1st dose and mouth getting back to tasting again and aches less severe… think I fell off the raft but back on again clinging…x
Moomoo, sorry to hear you’ve been in hospital ??speak to your onc and let them know about the se of the breathlessness and chest pain, they might reduce next dose ???shi xx
Oh ladies T is truly horrid. My mouth cleared aroung day 10 but before that no taste at all. Not as bad as Shocked.
Shocked did you see the post about the Forever Aloe, I think it helped my digestive tract but like a said I dont think it will clear this horrid flare up you are having but it may help sooth. I hope its passing for you. You absolutely should get at least 1 good week before the next one but the no taste is miserable and made me proper cranky…if I had had my third dose I was going to ask for a reduced dose. xxx
Shocked my lovely, sorry to hear you are in casa nhs, glad they’ve got you on antibiotics and that your temp is coming down ??keep asking them what your neural are, they are what they will watch closely too. I know they say things don’t help but as soon as I went in the Life Mel honey, That and a steak a day + lower dose worked for me on the neural front, keep us posted ???shi xx
Shocked so sorry to hear that you in hospital too.its such a shame because hospitals are the worst places we want to be when feeling as rough and at home we know we could rest get fluids and analgesia…but we are in their hands and have to accept we have to go in but it is sooooo frustrating.i was on a temporary trolley in a bay with a patient being barrier nursed with rotavirus and I was using same toilet as there was no light in other toilet so eventually convinced them I really did need to go home despite my heart rate as I think it was making me worse! I was so positive at the start of this t but the only thing that’s it’s proving is we are all finding it awful one way or another. It really does help having a rant knowing everyone understands how crap it is. I was so happy thinking I only have 2 left but now it seems very daunting as I worry if they reduce dose it won’t work or may need more…ive asked to speak to onc next week before next one as it’s usually nurse led and don’t see any Drs. This crap just takes over your life and is all consuming and wears you down. Please let the sun shine this week at some point and pick us all up. I’m going to sail to Jamaica on my raft now and my order is a bob Marley cocktail and as sad as it is I’m trying to think of what movie star I’d have but tbh just me and my husband chilling on that raft would be the best x right off to do some mindfulness with this vision!
Shocked. So sorry you are back in hospital again. This T (and chemo in general) is rubbish. I’m having my second T today and already dreading the horrible mouth and bone pain! I thought getting nearer the end would make it easier but it just seems never ending. Xx
Oh shocked ! How flipping crap for you !!! Hope they let you out in the morning , sounds like jail doesn’t it , I’ve started on my mega steroids today ready for T tomorrow I’ve got to be honest I’m totally dreading it xx gosh this bloody chemo x
Well someone has to have a good day. I’ve seen Breast surgeon and plastic surgeon today. They did an us scan to look at reduction as they are seeing what they can save. Anyway significant reduction on tumour. From 3.5 to 2cm. So far only had 1 T so there’s a possibility it might be all gone by the end. Also lymph node now not visible so lymph biopsy booked in June and hoping that won’t need full lymph clearance. They also showed me some photos they were amazing to see with very faded scars and reconstructed or prosthesis nipples made me feel much better about being sexually attractive again post surgery.
I’m feeling very tired from SE but elated from today’s news. I can do this ??? I am a Wonder Woman ??? and have already managed 5 chemos the next 3 are going to be easier mentally knowing how much good it’s doing.
Just need to sort out the ??? or rather lack of it ! Someone promised me the runs with T I feel like I’m loosing out ? so uncomfy and nauseas with it. Plastic surgeon disappointed I’m not fat enough so I’ve got to eat as much as possible - they’ve no idea how hard that is with no taste, a sore mouth, nausea and bad teeth !
Pass the chocolate !
Shocked - oh c**p I really do feel for you. I go into the hospital terrified to touch any door or handrail. Still wearing gloves and using hand gel like it’s going out if fashion. I can’t think of anything worse than being stuck in a room with someone infectious.
Hoping tomorrow the bloods pick up and you can escape.
Rosie I think it’s normal to have fear at the end of treatment even if you’ve had the full whammy. Keep remembering about the news you got about your positive reaction to the treatment from the FEC. All our bodies react so differently. On 4 FEC I didn’t have much shrinkage.
Moo moo hope you are on the up now x
Jamaica sounds a good destination. Their sunshine and laid back lifestyle will do us all good. I’m heading there too x
Thanks Aliand…Im not sure whats going on with me I like you was so elated then just went blah…Im wondering if its a hormonal thing too as Im having about 800 million hot flushes a day!!!
Then I read you have three more and tell myself off!!!
Did they check your Lymph nodes before chemo? I had my sentinal node biopsy before the start.
Im so please your Tumour is shrinking now…just reading that and typing this is making me think I need to kick my grumpy self up the bum and stop focussing on the worst…
Shocked sending you lots of love…try at least to get some rest!! xxx
Just a thought for the summer ladies…I was reading a thread on something else and the ladies on there started their journey together 4 years ago. They stay in touch and meet once a year? Anyone think that might be a good idea?
Aliand , that is really good news to hear , a very positive thing in amongst the mist xxx Rosie I think we all need a kick up the bum sometimes but it’s hard isn’t it ? I watched bake off last night and cried buckets about that lovely family who lost their son to cancer and mom had Breast cancer then it returned , it was just so sad that it made me want to tell myself off , then I went to bed , whipped off my wig and looked at a bald me with a Hickman sticking out of my chest and I cried buckets again ! We are going through a whole range of emotions but I’m with aliand . We are wonder women ! I wear my Wonder Woman knickers when I have my treatment xxxx
???I just paddling today x
Shocked ???hopefully they will get you in your own room on a ward soon. I had a 6 day stay in casa nhs when my neutraphils went on holiday to Florida after my first chemo, my mate mai7 ended up in hospital on 5 of her 8 chemos I think it was, it’s frustrating but it keeps you safe and that’s all that matters lovely. You have everyone using raft from nehind and that emergency submarine is out and about too, so jump in there too. Keep eating and drinking to keep your strength up as much as you can???aliand great news on the shrinkage ???and escaping ???botty on t, well done you ???Enjoy being lucky because most of us had to be within a few feet of the lav on t ?:female_sign: ?:female_sign: ?:female_sign: and considering grown up nappies for overnight botty ?too. ??shi xx
Aliand -Yayyyyyyyyyy I’m so pleased for you ??
Jamesey it feels like prison especially now I’m feeling. Bit better but on a positive I could taste the soup they just served up - negative was it was truly awful.
Shocked that made me laugh ! Tasting the soup but it was crap lol I’ve just had apple pie and custard while I have some taste buds left I never lost them in fec but I’m gather from all you lovely people I’ve got this too look forward to x on a positive note from shi I use biotene toothpaste and haven’t had mouth problems really at all as yet ???
