Thank you Dealdoh xx
???dealdoh, I’m up the front of the raft playing rose and jack dolphin watching my the lush mr dicaprio thanks, Thor and mr mimosas sausages are all your ladies, although with aliand having sausage and mash last night there might not be much to get a grip on today ???keep swimming ladies ???michelle, please let us know when 1st one ticked off and to your children for being so brave. Starfire what a beautiful photo so glad you had a holiday you all need it ??shi xx
Morning shocked, catch up on your sleep today lovely, so glad you are home??in my defence we all were the ???Bunch on the Oct ? a tune a day helped us party on through ???shi xx
What a lovely picture starfire. A weekend away - excellent idea. So good for the mind and spirit.
Shocked home is the place to be even if you are feeling a little bit pants (or a lot) how’s the mouth ? Are you able to eat any better ?
I can’t believe how lightly I seem to have got away with this first T. I think I’ve found it easier than EC. Who knows if it stays that way or if the culmative effects will get me in the end.
Shi we love your craziness ???? never change x
Good luck today Muchelle. I was the first to start treatment here being 3rd Jan but this lot soon joined me you’ll have your own crazy pack soon but we are here for you too. I read a book called Tea and chemo it’s an easy read shares a ladies journey through breast cancer treatment. There no scary stories in it the author Jackie Buxton is alive and well so no sad endings and the profits go to Breast cancer research. I found it really helpful at the beginning of my journey x
Now what to do today ?!
Thanks, all of you. Im so scared. Not of having the treatment but of becoming ill afterwards. 30 years ago my Auntie died whilst having chemo for leukaemia and that thought keeps coming into my head. I know I have to get on and do this but I don’t know how
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CT abd Shocked sending you lots of healthy hugs…
Went to me LGFB yesterday and it was brilliant.
So nice to be in a room full of people that understood.
One lady in her sixties burst into tear about her lack of eyebrows and lashes. She started off so bright and funny then all this emotion burst out of her. Was very moving.
I didnt get a chance to offer her a ride on our raft!!
It the spirit of meeting up when life is calming shall I propose September as first date…thinking we should all be finished by then?
Any other suggestions greatfully received
Lots of love xx
September sounds good to me too , I’m central x
Day 2 of T feeling fine no sick or anything as yet , when can I start to expect all the crappy se ? I’ve got what feels like a small swelling on roof of mouth but no major , I’ve got paracetamol co codamol ibuprofen and Claritin ready also difflam spray and mouthwash and I start my 6 injections tonight but they didn’t really affect me too much on fec just achy legs x I’m dreading this x
Just realised Ive missed pages of forum somehow!!!
Shocked glad youre home lovely and I hope you got the McFlurry.
I live outside Peterborough and right near A1 and train station so happy to get anywhere really.
We could do like really early September as soon as kids go back…I did think August but so many ladies with little ones to think of.
Im open to anything really…
Heres a weird one, just been for my pre chemo apt for the last session!! Doc said right youll see radiology next probably after your surgery…I asked when I saw Oncology again and he said we will give you your Tamoxifen to start after surgery so we will see you in about 6 months!!! I wanted to say but whos going to make sure my cancer doesnt just come back!!
Then I realised this is it this is how it works!!!
Am ready for the last session now…sorry girls I know Im the first finished but I will still be here. Would miss everyone too much and life on the raft xxx
I will aliand , I’m gonna hey the difflam spray on it after tea when I brush my teeth again , my treatment chemo wise finishes may 17 th fingers crossed and I think rads are about a month later xx just great to se the finishing line in front now , thinking of how I felt in February at the beginning , great to see we have done finishers in our group now ! Go Rosie !!
I’m swimming fast strokes at the minute ???
Hi Ladies
Just catching up with all the posts as I have just come out of hospital too. Glad everyone seems to be improving now but sounds like a tough time for everyone. I had my first T on 29th and became very achy on the 3rd day and 4th day couldn’t get out of bed all day, but by tea time I tried getting up and my husband helped me downstairs. Started to eat at the table but then came over all funny and nearly blacked out. Took temperature and it was 38.4 and triage said I had to come in. Blood count went down to 0.7 and was put on iv antibiotics. Woke me up in the night to say they had grown a very unusal bug in my blood and needed to see which specific antibiotic would treat it. Day 3 they said they needed to move me to oncology ward to keep a close eye on me and the porters came and got my bed and said we are heading for the long stay ward. They left me in a ward with 4 beds, 2 of which the patients were coughing badly. I got very upset and wandered off to find a nurse, turned out I was only on the long stay because thats where a bed was available and my blood count had actually come back up, so a little communication would have reassured me instead of panicked me, but I know how busy they are.
Hi ladies! So great to hear so many of i
us have the finishing line in sight now. 24 days till my last one…hopefully anyway. I’ve also booked in to get my hickman line removed straight after my last chemo session. Although it’s helpful, I hate it being there so can’t wait to get it taken out!! Was reassured how easily they cannulated me when I was in over Easter, so even if I do need any more IV stuff they can just do it the old fashioned way!!
Had my bloods done Tuesday and I was neutropenic. Had them done again today in advance of Monday - really hoping I don’t get delayed. We will see what happens.
Hi aliand, whytefawn on Oct thread with me started her rads about 4 weeks after her surgery I think it was, jump on ???Oct and check with her ??anyone who’s done op, chemo, then rads my ???started 4 weeks after last chemo, but some started before 4 weeks. Aliand??keep paddling and get a spare pair of sexy socks, boots did a nice black pair, it’s for when you wash the pair the hospital put on you, and good advise about keeping them on, it’s safer to post surgery ???shi xx
Fingers crossed for your BT and Monday as planned CT xx
Had 1st chemo today, fec. Feeling queasy got headache, taken all meds, tang helpline suggested paracetamol. Not looking forward to 18weeks if this any advice?
Michelle take your temp before taking paracetamol , on the day off mm first fec I was shattered as I think we work our self up to it so much I was the same yesterday with my first T , if you can take your paracetamol and have an early night , I’ve just checked in my diary ( good idea by the way ) and I woke at 3 and took another anti sickness and again at 6 am , make sure you drink loads tomorrow 2-3 litres if you can and to be honest I ate my way through it , like being pregnant plenty of ginger biscuits and I loved carbs , they got me through the sicky feelings xx fingers crossed you will find your way through it , defo keep a diary to look back on each cycle x take care , you can do this x
???
Hi, September sounds good. I’m probably quite far west but don’t mind travelling, would probably use it as an excuse to make a holiday out of it!
Michelle, if you do feel ill just keep telling yourself it won’t be for long, and it will soon be over, I initially felt like it would last forever but have my last T session on the 25th.
I have my first meeting with the radiotherapy oncologist on Wed which is a sign of the next stage! ?. I had my mx before chemo. Aliand I was allowed to remove the stockings as soon as I left the hospital.
I’ve had several people ask me when I will get the ‘all clear’ but I haven’t got a clue! I’ve not had a scan and have assumed they took all the cancer with the mx and full lymph node clearance as I had one cancerous one. I’ve kinda assumed its already gone!
Paloma glad you are home x
Michelle honey it made me feel crap, nauseous and fragile. But it does t last. Batten down for a couple of duvet/Netflix days and then you will start to pick UK again. I survived 4. You can do this you are Wonder Woman ?? Sending the ??♂️??♂️??♂️ Down to get you and haul you into our raft xxx
Michelle, well done ??that’s first one ticked off, your pee will be pink till the red one if you had fec flushes through your system if you don’t already know. Think of them in 3 week cycles and it will go quicker, rather than thinking of them as 18 weeks. Rest up and always ring the rapid response for anything, that’s what they are there for, to keep you safe ??have you April starters decided on mode of transport for chemo, we had a ?, Nov had a ?, jan have swimming and raft ??it’ll help you all, it’s like the grand national a bit, you focus on getting over beachers (that’ll be no 3), then as you pass that you’ll be on countdown to ???shi xx
Whooo hooo dealdoh ???You’ve got to the bardo tune - one step further on the jukebox ???well done ???shi xx