Thank you all so much for your kind words, optimism and strength. X
Woo hoo Dealdoh you’re hot on my heels!!! The sun is shining and the end is in sight…
Michelle I’d just say the same as all the girls…in a few days you will start to surface and hopefully one week 2 and 3 you just carry on normalish life…the good part is you learn to absolutely love what it’s like to feel well.
Starfire…any news on your decision yet? Xxx
Yes, I only have a few hairs left of eyebrows and eyelashes have thinned x
Ladies ??eyebrows and eyelashes will come back quickly between weeks 4-6 after finishing chemo ?top tip from my lovely lady on the ysl counter is to get using the mascara as soon as you can to train lashes to curl again and stop them growing straight, it’s worked well. Macneech I had Imodium on standby and also upped my carbs on t because it gave me and the May girls ?botty, but I think aliand has had botty bung up on the t. Have you painted your nails black to protect from uv light? T is the one that’ll have your nails without protection. Buddyfan on Oct ?with me used vitamin e oil I think and Ruth used something similar too, you could pm them ??
shi xx
Shocked…Fec has stolen most of my eyebrows. I have some random stragglers. I bought real hair stick on ones!!! Don’t rush and get them it looked like two caterpillars had taken up residence on my face!,
My hair started to grow back around the time of my second T.
Have no ladygarden hair, no leg hair but normal arm hair…what’s that all about!!!
Macneeth…T takes longer to kick in than FEC so make the most of day one and two…then use painkillers if you need them don’t just soldier on…take care of yourself xxx
T 1 day 12
My eyebrows are very thin and so are my eyelashes. But I’ve got growing lip hair !!! Usually I use a cream to remove it but don’t like to as I fear it may damage my skin.
What an injustice !
Energy levels rebooting slowly.
Taste still pants
I’m swimming though.
Morning all T1 day 4 , phew al kicked in last night , heartburn and aches all over body after I did injection , mouth is still sore so difflam at the ready , still managed to sleep ok , keep getting flushed so my Hickman dressings keep peeling off ! But I’ve git a drawer full of meds and so far for me better than fec as I have no sickness whatsoever !! Yay ! Is this still early days and will I come back down to earth with a bump ? So far so goodish ?? ???
Jamsey you may not. I think I’ve coped better on T than on FEC. Tiredness more pronounced and still not much taste but hey I’ll take that !
???
Ooh aliand I hope so . It certainly feels like it at the moment , by day 4 on last fec I felt really ill , I was contemplating going holiday shopping with my daughter this morning but thought best not push it lol . So sitting with my two litres of elderflower water and chilling x long may this continue x
T1 day 12 (? we count the day it goes in yeah?) and although I feel better I wouldn’t say I feel great, low energy and still not great taste which makes me feel a bit sick - anyone else still using anti-sickess this far along?
Be careful Jamesy, I found days 5 - 10 hardest!?
Aliand, I’m wondering if you’re having a smaller dose of 4? Might explain your milder SE’s, ooor maybe you are Wonder Woman?! They might reduce mine yet…woke up on Friday and my hands were red, swollen and painful so I went in to see the chemo nurses who all seemed to think it was related to the T and said I should take some pics to show onc on Thursday. Said she’d probably make some changes to the treatment plan ?
Wow Rosie, can’t believe you’re finished! And Dealdoh will be next ? You should have a read back from the beginning of this thread to see your journey, you should be so proud - we all should (I don’t yet but I’m sure I will once I’m done!)
Shocked, I started to lose my brows and lashes while on EC so just waiting for the rest to depart. I’m already using brow products (L’oreal micro tattoo and brow pomade, both very good) and I’ve got my LGFB session on Tuesday, hopefully it’s better than some other’s experiences.
I haven’t lost any feeling in my fingers thankfully, but that could change next time round considering the state of my hands already. I do have a bit of numbness in one of my heels tho ??
Oh no Amy ! Thanks for the heads up , good job I didn’t go shopping , best save my energy for the next few days , I count down in days and weeks it makes it go faster I think , I’m wishing this year away so fast but I don’t care x may 17 th is final one for me if all goes well and it can’t come quick enough , I’m actually hoping I can go back to work in August as I’m feeling a bit brain dead , I will soon prob regret that the minute I go back x lol
Aww Amy that sounds horrid. My nails are still a little sore but only if I press them. Jane set yes take it easy. I have totally paced myself and not done too much i do think it helps.
Amy I’m not aware I’m having a lower dose. While having a disturbed ussion with my fears before starting T the nurse did say to me that some people found it easier. I did of course think she was talking rubbish and just trying to be nice but I do now wonder. I’ll have to ask when I see onc this week.
Of course it could just keep getting worse each time too ?! But I’ll take this for now quite happily.
It’s really weird how we all act so differently to the same drugs isn’t it.
??♀️??♀️??♀️??♀️??♀️??♀️??♀️??♀️??♀️
Almost there Amy…last ones tomorrow!!!
I wish you were all finishing with me…for most only one more though. Apart from Aliand and her crazy 8.
Think I need it to be the last, cleaned nail polish off tonight to find big bruise like lines across my nails.
its bizarre you think you feel ok and there’s all these weird things happening in your body…
Shocked have you told them how bad your fingers are?
Sleep we’ll brace ladies and may your night time flushes be few and far between xxx
Good luck tomorrow Rosie! My penultimate one tomorrow if my bloods are right. Gonna persevere with cold freeze hell cap of pain…cos i have fuzz hair coming back through…want to protect it!! Netro count though was 0.7 Tuesday, 1.4 friday so it’s gonna be a close one… wait and see! Fingers crossed.
Woops, sorry Rosie. So what I meant to say was…wow one more and you’re done, awesome! All the best for today xx
And you too CT on your 2nd to last, nice one ??
Rosie ???we’ll have the ??ready on the raft and jacuzzi pool area on the raft ready ???shi xx
Go Rosie !!! Xxx
Hi ladies
I had my first chemo on Friday. Have been tired and queasy but not sick and feel better each day. I’m just wondering how much you went out afterwards. Obviously I don’t want to get I’ll, do I still go to choir if I feel well enough? I usually walk 3 to 4 miles a day with dogs and friends will that be a possibility? Should I only be going out in the last week? Should I avoid supermarkets? I’m sure everyone’s experience is different but all words of wisdom greatly appreciated. Xx
Nice one Michelle ?
I didn’t purposely avoid going out and about, only as Shocked said if I was feeling rough. I have a 5 year old, had to sit in the doctors waiting room twice and am at the hospital every week for line flush so thankfully I haven’t picked up anything infectious yet!
If you feel up to walking then do it, it should help you feel better.
Hope all goes/has gone well for your last one today Rosie, and CT on your penultimate one x
Aliand, that cushion looks beautiful x
Michelle, I have been the same as Shocked and avoided busy places the first 2 weeks. If I’ve met friends we’ve often gone somewhere for a walk with the dog as then you are out in the open air and not breathing in others germs. On the 3rd week I have done a bit more and been round garden centres and not too busy shops and cafes. Glad to hear you are coping well. x