Thanks whytefawn I think the fec for me so far has been worse too especially the last one , I’m ok with the T just the pains and fatigue no nausea which for me is a great big bonus x obv only had the one T so far so will see x ???
The no nausea with T was a huge bonus. It does mean i have a cupboard full of antisickness tablets. The hospital insisted on giving them to me each cycle even though I didnt take them on T. No one is going to be feeling sick in our house for many years!
I didn’t have nausea to start with either but then the metal mouth started and made me feel sick and I had the terrible tax trots which gave me an upset tummy so I did end up using some of the pills they gave me. I’m so pleased to be feeling more human, taste still isn’t perfect but at least I can stomach water (with lemon added!)
Hi Amy
Yes its such a relief when your mouth starts to feel normal again and your taste buds come back. I suffered with it on all 6 of my cycles it was horrible. But it will come back.
Cassie x
Hi all. I’m day 15. Felling pretty much normal, though had to have an afternoon kip today. ? my mouth still isn’t quite right. I started mouthcsre the day of T and it didn’t break down but taste still not right. Saw my oncologist today who said not to worry if it doesn’t normalise while in the T as she is confident it will when I stop treatment. Not great when I’m supposed to be putting weight in.
Aches lasted about 7-10 days I did t need to take much Brufen maybe days 3-7. Epsom salt Baths helped. Sometimes twice a day.
I’ve def found it easier than EC. This time anyway. I’ve had a little peripheral neuropathy but that’s sorted itself. There’s white spots on my nails.
Hardly any nausea but constipation - oh my !! I didn’t take my last ondansitron. Whyte fawn did you take any ?
I’m swimming well
TCH day 3…hot flushes are back with a vengeance… any advice, it’s like 3 or 4 times an hour and it’s making me miserable!!!
Hi there,
I’m on y first chemo cycle and have been coping ok so far (touch wood!) Today I’ve woken and my eyes feel a bit dry, is this part of it? Is there anything I can do or take for it?
Hope you are all going well, you’ll must be relieved to be seeing the end of chemo. Thanks for all your help and tips xx
Wow Shocked, so back to FEC?! Part of me wants to say “you lucky cow” ?
I’m seeing my onc today so I’m also interested to see what she reckons moving forward since I had a reaction on my hands and feet (my hands are peeling now, ergh).
Michelle, I don’t recall getting dry eyes but I’m guessing eye drops should be ok to use, maybe check with your unit just in case? All the best x
Hi all
On T I didn’t take any anti sickness at all. I never felt like I needed it.
For dry eyes get some drops from supermarket or chemist. You can use them as and when your was feel dry. I found worse first thing in the morning and they got better throughout the day.
Cassie x
Thanks Cassie and Amy for the advice, mine have got better through the day too.
Aliand the thought for the day is beautiful, brought tears to my eyes. (So not completely dry!) x
So it’s a change for me too! The doctor thinks the swelling and redness on my hands, feet and face is a delayed allergic reaction to the T so it’s being changed to paclitaxel and it will be a reduced weekly dose. I am hoping it might be a easier option, hmm fingers crossed ?
Aliand, that’s a nice thought - thanks x
Gosh this T !! We’re all so different aren’t we ? The pains have now gone in my legs so that’s good but have started with a ducky tummy !!! Good job I’m. It going anywhere ! Went for line flush today and there was a clot in it ! Gulp ! They sorted it straight away but it did scare me a bit ! What next for us Wonder women x. ?
I’m not sure Shocked, I’m guessing 6 but I’ll be seeing the doctor again in 2 weeks and we should know by then if it’s causing a reaction or not and can continue so I can ask then.
Hi ladies , well what a night ! Temp spiked 38.3 so ended up in hosp , pumped full of anti biotics and can go home today yay ! The joys x
Oh no jamsey what a nightmare. Hope you recover quickly when’s your next chemo due ?
I’ve had blockages in my Picc destined to me a fibrous collections it’s supposed to be very common once they’ve been in for a bit.
Amy that’s annoying. Let’s hope the weekly works out better. Will that mean you don’t have a good week I wonder ? I suppose as long as it does it’s job x
I went shopping yesterday first time since January buying long cotton trousers for the summer to hide my pressure stockings ! Felt quite uncomfortable when there were lots of people eurgh bugs !!
Hop on the raft Jamsey I’ll pull you along while you drift off to sleep x
No shocked they took me straight through to an isolation room then up onto a ward iv antibiotics , they were a bit confused asi had a high white blood count but I had only just finished injections , treated really quick tbh but hopefully won’t happen again x
They treated me quickly and discharged me at 11 I’m. Now still on ward 5 hrs later waiting for meds ! I feel fine but I’m probably catching more bugs than I came in with ?
I was the same Jamesy, told me I could go home at 11am, then had to wait till 4pm for meds. The nurse said we could go in the end and come back for the meds, but just after that they came through and she came running after us with them, bless her x
Hi ladies just surfaced today after Monday’s session. I don’t know if it was the build up of it all or just mentally I knew it was the last but by god it was the worst one!!! Think I’ve turned the corner now.
Aliand that little quote was lovely xx
Shocked crikey that’s a big change… how are you feeling about it all now?
Jamesy…hope you’re home safe?
CT…HOT FLUSHES!!! Arghhhhhh xxx
Rosie good to hear from you , well done !! Xxx
I’m home finally but I did have to get a little bit shirty . And I felt awful as they had done every test known to man I think xx
Came home with anti biotics , nystatin, difflam , and gel sachets . Now for some bangers and mash and bed xx